Baseline Characteristics, at time of index event

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Patient ID
C1269815 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number.
integer
C1269815 (UMLS CUI [1])
Item Group
Demographic Factors
C1704791 (UMLS CUI-1)
Age
Item
Please provide the patient's date of birth
date
C0001779 (UMLS CUI [1])
C0421451 (UMLS CUI [2])
Item
Please provide the patient's sex at birth
integer
C0079399 (UMLS CUI [1])
Code List
Please provide the patient's sex at birth
CL Item
Male (1)
CL Item
Female (2)
Ethnicity: American Indian or Alaska Native
Item
What is your ethnicity (Select all that apply) 0 = American Indian or Alaska Native
boolean
C0015031 (UMLS CUI [1,1])
C1515945 (UMLS CUI [1,2])
Ethnicity: Asian
Item
What is your ethnicity (Select all that apply) 1 = Asian
boolean
C0015031 (UMLS CUI [1,1])
C0078988 (UMLS CUI [1,2])
Ethnicity: Black or African American
Item
What is your ethnicity (Select all that apply) 2 = Black or African American
boolean
C0015031 (UMLS CUI [1,1])
C0005680 (UMLS CUI [1,2])
C0015031 (UMLS CUI [2,1])
C0085756 (UMLS CUI [2,2])
Ethnicity: Hispanic or Latino
Item
What is your ethnicity (Select all that apply) 3 = Hispanic or Latino
boolean
C0015031 (UMLS CUI [1,1])
C0086409 (UMLS CUI [1,2])
C0015031 (UMLS CUI [2,1])
C0086528 (UMLS CUI [2,2])
Ethnicity: Native Hawaiian or Other Pacific Islander
Item
What is your ethnicity (Select all that apply) 4 = Native Hawaiian or Other Pacific Islander
boolean
C0015031 (UMLS CUI [1,1])
C1513907 (UMLS CUI [1,2])
Ethnicity: White
Item
What is your ethnicity (Select all that apply) 5 = White
boolean
C0015031 (UMLS CUI [1,1])
C0007457 (UMLS CUI [1,2])
Item
What is your ethnicity (Select all that apply) 6 = other or 999=unknown (only fill out, if none of the above)
integer
C0015031 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C0015031 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
Code List
What is your ethnicity (Select all that apply) 6 = other or 999=unknown (only fill out, if none of the above)
CL Item
other (6)
CL Item
unknown (999)
Item Group
Baseline health status
C1442488 (UMLS CUI-1)
C0449440 (UMLS CUI-2)
Height
Item
Please indicate the height of the patient
float
C0005890 (UMLS CUI [1])
Item
Indicate units of height
integer
C0005890 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Code List
Indicate units of height
CL Item
cm (1)
C0475210 (UMLS CUI-1)
(Comment:en)
CL Item
in (2)
C0439204 (UMLS CUI-1)
(Comment:en)
Weight
Item
Please indicate the weight of the patient
float
C0005910 (UMLS CUI [1])
Item
Indicate units of weight
integer
C0005910 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Code List
Indicate units of weight
CL Item
kg (1)
C0439209 (UMLS CUI-1)
(Comment:en)
CL Item
lbs (2)
C0439219 (UMLS CUI-1)
(Comment:en)
Item
Have you ever been told by your doctor that you have atrial fibrillation?
integer
C0004238 (UMLS CUI [1])
Code List
Have you ever been told by your doctor that you have atrial fibrillation?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Have you ever been told by your doctor that you've had a heart attack (this is sometimes called a myocardial infarction, or MI)?
integer
C1275835 (UMLS CUI [1])
Code List
Have you ever been told by your doctor that you've had a heart attack (this is sometimes called a myocardial infarction, or MI)?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Do you currently smoke, or have you smoked cigarettes or tobacco over the past year?
integer
C1519386 (UMLS CUI [1])
Code List
Do you currently smoke, or have you smoked cigarettes or tobacco over the past year?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Do you drink more than one alcoholic drink a day?
integer
C0001948 (UMLS CUI [1])
Code List
Do you drink more than one alcoholic drink a day?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the patient has a documented history of hypertension, diagnosed and treated with medication and/or diet and/or exercise
integer
C0262926 (UMLS CUI [1,1])
C0020538 (UMLS CUI [1,2])
Code List
Indicate whether the patient has a documented history of hypertension, diagnosed and treated with medication and/or diet and/or exercise
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Have you ever been told by your doctor that you have diabetes?
integer
C0011849 (UMLS CUI [1])
Code List
Have you ever been told by your doctor that you have diabetes?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the patient has a chronic lung disease
integer
C1533075 (UMLS CUI [1])
Code List
Indicate whether the patient has a chronic lung disease
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the patient has a diagnosis of renal dysfunction
integer
C3279454 (UMLS CUI [1])
Code List
Indicate whether the patient has a diagnosis of renal dysfunction
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether an echocardiogram was performed to assess ejection fraction
integer
C0013516 (UMLS CUI [1])
Code List
Indicate whether an echocardiogram was performed to assess ejection fraction
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
If "1 = yes" to ECHOPERF, please state range of patient’s ejection fraction:
integer
C0232174 (UMLS CUI [1])
Code List
If "1 = yes" to ECHOPERF, please state range of patient’s ejection fraction:
CL Item
<30%  (1)
CL Item
30-39%  (2)
CL Item
40-50% (3)
CL Item
>50% (4)
Diagnostic categories: Ischemic Heart Failure
Item
Please indicate diagnostic categories: 1 = Ischaemic
boolean
C0018801 (UMLS CUI [1,1])
C0475224 (UMLS CUI [1,2])
Diagnostic categories: Hypertensive Heart Failure
Item
Please indicate diagnostic categories: 2 = Hypertensive
boolean
C0018801 (UMLS CUI [1,1])
C0020538 (UMLS CUI [1,2])
Diagnostic categories: Valvular Heart Failure
Item
Please indicate diagnostic categories: 3 = Valvular
boolean
C0018801 (UMLS CUI [1,1])
C0018824 (UMLS CUI [1,2])
Diagnostic categories: Familial Heart Failure
Item
Please indicate diagnostic categories: 4 = Familial
boolean
C0018801 (UMLS CUI [1,1])
C0277558 (UMLS CUI [1,2])
Diagnostic categories: Peripartal Heart Failure
Item
Please indicate diagnostic categories: 5 = Peripartum
boolean
C0018801 (UMLS CUI [1,1])
C2053583 (UMLS CUI [1,2])
Diagnostic categories: Myocarditis/Inflammatory Heart Failure
Item
Please indicate diagnostic categories: 6 = Myocarditis/Inflammatory
boolean
C0018801 (UMLS CUI [1,1])
C0027059 (UMLS CUI [1,2])
C0018801 (UMLS CUI [2,1])
C0333348 (UMLS CUI [2,2])
Diagnostic categories: Infiltrative Heart Failure
Item
Please indicate diagnostic categories: 7 = Infiltrative
boolean
C0018801 (UMLS CUI [1,1])
C0332448 (UMLS CUI [1,2])
Diagnostic categories: Stress/Takotsubo Heart Failure
Item
Please indicate diagnostic categories: 8 = Stress/Takotsubo
boolean
C0018801 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
C0018801 (UMLS CUI [2,1])
C1739395 (UMLS CUI [2,2])
Diagnostic categories: Chagas Disease Heart Failure
Item
Please indicate diagnostic categories: 9 = Chagas Disease
boolean
C0018801 (UMLS CUI [1,1])
C0041234 (UMLS CUI [1,2])
Diagnostic categories: Idiopathic/other Heart Failure
Item
Please indicate diagnostic categories: 10 = Idiopathic/Other
boolean
C0018801 (UMLS CUI [1,1])
C0332240 (UMLS CUI [1,2])
C0018801 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
Diagnostic categories: Heart Failure, category unknown
Item
Please indicate diagnostic categories: 999 = Unknown
boolean
C0018801 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C0683312 (UMLS CUI [1,3])
Item Group
Treatment variables
C0087111 (UMLS CUI-1)
Item
Indicate whether the patient is currently being prescribed medication for heart failure
integer
C0013227 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
Code List
Indicate whether the patient is currently being prescribed medication for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether ACE inhibitors are currently prescribed for heart failure
integer
C0003015 (UMLS CUI [1])
Code List
Indicate whether ACE inhibitors are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Angiotensin Receptor II Blockers are currently prescribed for heart failure
integer
C0521942 (UMLS CUI [1])
Code List
Indicate whether Angiotensin Receptor II Blockers are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether an Angiotensin Receptor Blocker/Neprilysin Inhibitor combination is currently prescribed for heart failure
integer
C0521942 (UMLS CUI [1,1])
C4051513 (UMLS CUI [1,2])
C0205195 (UMLS CUI [1,3])
Code List
Indicate whether an Angiotensin Receptor Blocker/Neprilysin Inhibitor combination is currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Beta Blockers are currently prescribed for heart failure
integer
C0001645 (UMLS CUI [1])
Code List
Indicate whether Beta Blockers are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Calcium Channel Blockers are currently prescribed for heart failure
integer
C0006684 (UMLS CUI [1])
Code List
Indicate whether Calcium Channel Blockers are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Digoxin is currently prescribed for heart failure
integer
C0012265 (UMLS CUI [1])
Code List
Indicate whether Digoxin is currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Diuretics are currently prescribed for heart failure
integer
C0012798 (UMLS CUI [1])
Code List
Indicate whether Diuretics are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Hydralazine and Isosorbide Dinitrate are currently prescribed for heart failure
integer
C0020223 (UMLS CUI [1])
C0022252 (UMLS CUI [2])
Code List
Indicate whether Hydralazine and Isosorbide Dinitrate are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Ivabradine is currently prescribed for heart failure
integer
C0257190 (UMLS CUI [1])
Code List
Indicate whether Ivabradine is currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Mineralocorticoid Receptor Antagonists are currently prescribed for heart failure
integer
C1579268 (UMLS CUI [1])
Code List
Indicate whether Mineralocorticoid Receptor Antagonists are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether other medications are currently prescribed for heart failure
integer
C0013227 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Code List
Indicate whether other medications are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Did the patient receive a cardiac device to treat heart failure?
integer
C2735362 (UMLS CUI [1,1])
C0018787 (UMLS CUI [1,2])
Code List
Did the patient receive a cardiac device to treat heart failure?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate the device type
integer
C3177146 (UMLS CUI [1])
Code List
Indicate the device type
CL Item
ICD (1)
C0162589 (UMLS CUI-1)
(Comment:en)
CL Item
CRT (2)
C2936377 (UMLS CUI-1)
(Comment:en)
CL Item
ICD + CRT (3)
C0162589 (UMLS CUI-1)
C2936377 (UMLS CUI-2)
C0205195 (UMLS CUI-3)
(Comment:en)
CL Item
Other (4)
C2735362 (UMLS CUI-1)
C0018787 (UMLS CUI-2)
C0205394 (UMLS CUI-3)
(Comment:en)
CL Item
Unknown (999)
C2735362 (UMLS CUI-1)
C0018787 (UMLS CUI-2)
C0439673 (UMLS CUI-3)
(Comment:en)
Date of device procedure
Item
Indicate the date of DEVPROCEDURE
date
C2584899 (UMLS CUI [1,1])
C2828363 (UMLS CUI [1,2])
Item
Did the patient undergo cardiac surgery?
integer
C0018821 (UMLS CUI [1])
Code List
Did the patient undergo cardiac surgery?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate the cardiac surgery type
integer
C0018821 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
Indicate the cardiac surgery type
CL Item
CABG only (1)
C0010055 (UMLS CUI-1)
(Comment:en)
CL Item
Valve (2)
C1292963 (UMLS CUI-1)
(Comment:en)
CL Item
CABG + valve (3)
C0010055 (UMLS CUI-1)
C1292963 (UMLS CUI-2)
C0205195 (UMLS CUI-3)
(Comment:en)
CL Item
Other (4)
C0205394 (UMLS CUI-1)
C0018821 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (999)
C0018821 (UMLS CUI-1)
C0439673 (UMLS CUI-2)
(Comment:en)
Date of cardiac surgery
Item
Indicate the date of CARDSURG
date
C0018821 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Has cardiac rehabilitation been initiated?
integer
C0700431 (UMLS CUI [1])
Code List
Has cardiac rehabilitation been initiated?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Burden of Care
C0087111 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
Item
Did the patient’s appointment or admission have any complications which were related to a device for Heart Failure including, but not exclusively: active bleeding requiring exploration and/or transfusion, abscess related to the device, minor infection (localized, treated with antibiotics and surgical drainage) related to the device, major infection (systemic, requiring device explant) related to the device, minor malfunction (requiring follow-up appointment/reprogramming), and/or major malfunction (requiring explant or revision)?
integer
C0009566 (UMLS CUI [1,1])
C2828363 (UMLS CUI [1,2])
Code List
Did the patient’s appointment or admission have any complications which were related to a device for Heart Failure including, but not exclusively: active bleeding requiring exploration and/or transfusion, abscess related to the device, minor infection (localized, treated with antibiotics and surgical drainage) related to the device, major infection (systemic, requiring device explant) related to the device, minor malfunction (requiring follow-up appointment/reprogramming), and/or major malfunction (requiring explant or revision)?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of complication due to device
Item
Indicate the date of COMPLDEVICE
date
C0009566 (UMLS CUI [1,1])
C2828363 (UMLS CUI [1,2])
Item
Did the patient have a major healthcare-associated infection (requiring IV antibiotics and/or prolonged hospital stay – 14 days or more) during this admission?
integer
C0205721 (UMLS CUI [1])
Code List
Did the patient have a major healthcare-associated infection (requiring IV antibiotics and/or prolonged hospital stay – 14 days or more) during this admission?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of diagnosis of healthcare-associated infection
Item
Indicate the date of COMPLHOSP
date
C0205721 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Did the patient have a major adverse event related to Heart Failure medication during this admission, and/or as a cause of this admission?
integer
C0009566 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Code List
Did the patient have a major adverse event related to Heart Failure medication during this admission, and/or as a cause of this admission?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of diagnosis of complication due to medication
Item
Indicate the date of COMPLMED
date
C0009566 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Hospital admissions
Item
How many times has the patient been hospitalised in the last 12 months due to heart failure?
integer
C0184666 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
C0018801 (UMLS CUI [1,3])
Hospital appointments
Item
How many hospital appointments has the patient had in the last 12 months due to heart failure?
integer
C0030675 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
C0018801 (UMLS CUI [1,3])

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