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  1. StudyEvent: Z6051 Stoma Quality of Life Scale (SQOLS)
    1. No Instruction available.
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Patient demographics
Item
Visit
text
C25284 (NCI Thesaurus ValueDomain)
C0332307 (UMLS 2011AA ValueDomain)
C25616 (NCI Thesaurus Property)
C1948053 (UMLS 2011AA Property)
C19712 (NCI Thesaurus ObjectClass)
C1515944 (UMLS 2011AA ObjectClass)
C25716 (NCI Thesaurus ObjectClass-2)
C0545082 (UMLS 2011AA ObjectClass-2)
CL.1
Code List
Visit
CL Item
Month 12 (Month 12)
Patient Study ID
Item
Patient ID (Pt. ID issued during registration unless pt. previously registered to an ACOSOG study.)
text
C25337 (NCI Thesaurus ValueDomain)
C2348585 (UMLS CUI-1)
C16960 (NCI Thesaurus ObjectClass)
C25462 (NCI Thesaurus Property)
C25364 (NCI Thesaurus Property-2)
Patient Initials
Item
Patient Initials
text
C25191 (NCI Thesaurus ValueDomain)
C2986440 (UMLS CUI-1)
C16960 (NCI Thesaurus ObjectClass)
C25536 (NCI Thesaurus Property)
Institution Name
Item
Institution Name
text
C25191 (NCI Thesaurus ValueDomain)
C1301943 (UMLS CUI-1)
C21541 (NCI Thesaurus ObjectClass)
C21541 (NCI Thesaurus ValueDomain-2)
C25364 (NCI Thesaurus Property)
Institution Number
Item
Institution No.
text
C25337 (NCI Thesaurus ValueDomain)
C1301943 (UMLS CUI-1)
C21541 (NCI Thesaurus ObjectClass)
C0805701 (UMLS CUI-2)
C25364 (NCI Thesaurus Property)
Assessment Date
Item
Date
date
C25164 (NCI Thesaurus ValueDomain)
C2985720 (UMLS CUI-1)
C25367 (NCI Thesaurus ObjectClass)
C25367 (NCI Thesaurus ValueDomain-2)
C38000 (NCI Thesaurus Property)
Item Group
Quality of life assessment
Item
I am able to participate in hobbies that I enjoy
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25217 (NCI Thesaurus Property-2)
C1516048 (UMLS 2011AA Property-2)
C73426 (NCI Thesaurus Property-3)
C0019826 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.2
Code List
I am able to participate in hobbies that I enjoy
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I do not enjoy eating out in public because of concerns regarding my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C66715 (NCI Thesaurus Property-2)
C1947907 (UMLS 2011AA Property)
C49060 (NCI Thesaurus Property-3)
C0678367 (UMLS 2011AA Property-2)
C62184 (NCI Thesaurus Property-4)
C0870433 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.3
Code List
I do not enjoy eating out in public because of concerns regarding my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I am able to go out with friends
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property-2)
C25499 (NCI Thesaurus Property-3)
C0441471 (UMLS 2011AA Property-2)
C49060 (NCI Thesaurus Property-4)
C0678367 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.4
Code List
I am able to go out with friends
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I am able to perform the same duties at work/school
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property-2)
C25193 (NCI Thesaurus Property-3)
C0028811 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.20
Code List
I am able to perform the same duties at work/school
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I worry about traveling because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property-2)
C0003467 (UMLS 2011AA Property)
C53462 (NCI Thesaurus Property-3)
C0040802 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.6
Code List
I worry about traveling because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I enjoy sexual activity less because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property-2)
C0242428 (UMLS 2011AA Property)
C25640 (NCI Thesaurus Property-3)
C0392756 (UMLS 2011AA Property-2)
C17127 (NCI Thesaurus Property-4)
C0036864 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.7
Code List
I enjoy sexual activity less because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I feel less attractive because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C25640 (NCI Thesaurus Property-2)
C0392756 (UMLS 2011AA Property)
C73114 (NCI Thesaurus Property-3)
C2346874 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.8
Code List
I feel less attractive because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
My sexual partner is not bothered by my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C17127 (NCI Thesaurus Property-2)
C0036864 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.9
Code List
My sexual partner is not bothered by my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I don't mind if others are aware I have a stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property-2)
C0242428 (UMLS 2011AA Property)
C54070 (NCI Thesaurus Property-3)
C0004448 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.10
Code List
I don't mind if others are aware I have a stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I feel attractive in my clothing
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property-2)
C0242428 (UMLS 2011AA Property)
C73114 (NCI Thesaurus Property-3)
C2346874 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.11
Code List
I feel attractive in my clothing
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am statisfied with the foods I eat
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C62185 (NCI Thesaurus Property)
C0242428 (UMLS 2011AA Property)
C66715 (NCI Thesaurus Property-2)
C1947907 (UMLS 2011AA Property-2)
C25217 (NCI Thesaurus Property-3)
C1516048 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.12
Code List
I am statisfied with the foods I eat
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I have financial concerns regarding my ostomy supplies
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C26696 (NCI Thesaurus Property)
C0003467 (UMLS 2011AA Property)
C25217 (NCI Thesaurus Property-2)
C1516048 (UMLS 2011AA Property-2)
C72888 (NCI Thesaurus Property-3)
C2350008 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.13
Code List
I have financial concerns regarding my ostomy supplies
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I have problems with odor
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C17139 (NCI Thesaurus Property-2)
C0037361 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.14
Code List
I have problems with odor
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am embarrassed by gas (noises or rapid filling of bag)
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C37954 (NCI Thesaurus Property-2)
C0016204 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.15
Code List
I am embarrassed by gas (noises or rapid filling of bag)
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am worried my stoma will leak
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property-2)
C0003467 (UMLS 2011AA Property)
C40416 (NCI Thesaurus Property-3)
C0015376 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.16
Code List
I am worried my stoma will leak
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am bothered by skin irritation around the stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C50743 (NCI Thesaurus Property-2)
C0152030 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.17
Code List
I am bothered by skin irritation around the stoma
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I manage the same responsibilities at home
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C61372 (NCI Thesaurus Property-2)
C1273870 (UMLS 2011AA Property)
C41194 (NCI Thesaurus Property-3)
C0020052 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.18
Code List
I manage the same responsibilities at home
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
Social situations make me feel anxious
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property-2)
C0003467 (UMLS 2011AA Property)
C20188 (NCI Thesaurus Property-3)
C0851364 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.19
Code List
Social situations make me feel anxious
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I find an ostomy support group helpful
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C25387 (NCI Thesaurus Property-2)
C0814225 (UMLS 2011AA Property)
C17120 (NCI Thesaurus Property-3)
C0036606 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.21
Code List
I find an ostomy support group helpful
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
StomaQualityofLifeOverallSatisfactionAssessmentScore
Item
Rate your overall satisfaction with your life right now on a scale of 0 to 100 (With 0 being very unhappy to 100 totally satisfied.)
float
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25605 (NCI Thesaurus Property)
C1561607 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property-2)
C62185 (NCI Thesaurus Property-3)
C0242428 (UMLS 2011AA Property-2)
C25338 (NCI Thesaurus ValueDomain)
C0449820 (UMLS 2011AA ValueDomain)
Item
What effect has your stoma had on your quality of life
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C25492 (NCI Thesaurus Property-2)
C1280500 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.22
Code List
What effect has your stoma had on your quality of life
CL Item
Improved My Quality Of Life (Improved my quality of life)
CL Item
Made My Quality Of Life Worse (Made my quality of life worse)
CL Item
No Effect On My Quality Of Life (No effect on my quality of life)
StomaQualityofLifeDischargeConfidenceAssessmentScore
Item
When you left the hospital how prepared did you feel to take care of your new stoma/ostomy (Rate your level of preparedness on a scale of 0 to 100. With 0 being totally unprepared to 100 feeling totally prepared and confident.)
float
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C25166 (NCI Thesaurus Property-2)
C0030685 (UMLS 2011AA Property)
C43367 (NCI Thesaurus Property-3)
C1704726 (UMLS 2011AA Property-2)
C25338 (NCI Thesaurus ValueDomain)
C0449820 (UMLS 2011AA ValueDomain)
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