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ERKNet EsCapeKD cohort study: Visits

23 forms  
Comorbidities
Description

Comorbidities

Alias
UMLS CUI [1,1]
C0009488
Allergies
Description

I.comor_allergies

Data type

text

Alias
UMLS CUI [1,1]
C0020517
Heart failure
Description

I.comor_heartfail

Data type

text

Alias
UMLS CUI [1,1]
C0018801
Cognitive delay / dementia
Description

I.comor_dementia

Data type

text

Alias
UMLS CUI [1,1]
C0497327
UMLS CUI [1,2]
C0338656
Motor delay / motion impairment
Description

I.comor_motordelay

Data type

text

Alias
UMLS CUI [1,1]
C0026650
Hearing impairment
Description

I.comor_hearing

Data type

text

Alias
UMLS CUI [1,1]
C1384666
Vision impairment
Description

I.comor_vision

Data type

text

Alias
UMLS CUI [1,1]
C1456582
Malignancy
Description

I.comor_malignancy

Data type

text

Alias
UMLS CUI [1,1]
C0006826
Other comorbidities
Description

I.comor_other

Data type

text

Alias
UMLS CUI [1,1]
C2598125
UMLS CUI [1,2]
C0009488
Biochemistry
Description

Biochemistry

Alias
UMLS CUI [1,1]
C0005477
Serum bicarbonate in mmol/l
Description

I.sbicarb_escape

Data type

float

Alias
UMLS CUI [1,1]
C0428301
Hemoglobin in g/dl
Description

I.hemoglobin_escape

Data type

float

Alias
UMLS CUI [1,1]
C0518015
Potassium in mmol/L
Description

I.lab_potassium_escape

Data type

float

Alias
UMLS CUI [1,1]
C0202194
Calcium in mmol/L
Description

I.lab_calcium_escape

Data type

float

Alias
UMLS CUI [1,1]
C0201925
Parathormone in pmol/L
Description

I.lab_parathormone

Data type

float

Alias
UMLS CUI [1,1]
C0202159
Serum inorganic phosphorus (CKD 3-5 OR Dialysis) in mmol/L
Description

I.lab_phosphorus_escape

Data type

float

Alias
UMLS CUI [1,1]
C1266228
UMLS CUI [1,2]
C0229671
Transferrin saturation in %
Description

I.lab_transferrin

Data type

float

Alias
UMLS CUI [1,1]
C1277709
Blood Urea in mg/dl
Description

I.lab_urea

Data type

float

Alias
UMLS CUI [1,1]
C0005845
Biobanking
Description

Biobanking

Alias
UMLS CUI [1,1]
C2347027
Were samples for biobank obtained at this visit?
Description

I.biobank_samples

Data type

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C1512698
If yes, Were serum samples obtained at this visit?
Description

I.serum_samples

Data type

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3854286
UMLS CUI [1,3]
C1550100
UMLS CUI [1,4]
C1512698
If yes, Were plasma samples obtained at this visit?
Description

I.plasma_samples

Data type

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3854286
UMLS CUI [1,3]
C0444263
UMLS CUI [1,4]
C1512698
If yes, Were urine samples obtained at this visit?
Description

I.urine_samples

Data type

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3854286
UMLS CUI [1,3]
C0200354
If yes, Were DNA samples obtained at this visit?
Description

I.dann_samples

Data type

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3854286
UMLS CUI [1,3]
C0444245
If yes, Please enter the sample code:
Description

I.sample_code

Data type

text

Alias
UMLS CUI [1,1]
C1299222
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Similar models

ERKNet EsCapeKD cohort study: Visits

23 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Comorbidities
C0009488 (UMLS CUI [1,1])
Item
Allergies
text
C0020517 (UMLS CUI [1,1])
CL.34
Code List
Allergies
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
Item
Heart failure
text
C0018801 (UMLS CUI [1,1])
CL.34
Code List
Heart failure
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
Item
Cognitive delay / dementia
text
C0497327 (UMLS CUI [1,1])
C0338656 (UMLS CUI [1,2])
CL.34
Code List
Cognitive delay / dementia
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
Item
Motor delay / motion impairment
text
C0026650 (UMLS CUI [1,1])
CL.34
Code List
Motor delay / motion impairment
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
Item
Hearing impairment
text
C1384666 (UMLS CUI [1,1])
CL.34
Code List
Hearing impairment
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
Item
Vision impairment
text
C1456582 (UMLS CUI [1,1])
CL.34
Code List
Vision impairment
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
Item
Malignancy
text
C0006826 (UMLS CUI [1,1])
CL.34
Code List
Malignancy
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
Item
Other comorbidities
text
C2598125 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
CL.34
Code List
Other comorbidities
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
Item Group
Biochemistry
C0005477 (UMLS CUI [1,1])
I.sbicarb_escape
Item
Serum bicarbonate in mmol/l
float
C0428301 (UMLS CUI [1,1])
I.hemoglobin_escape
Item
Hemoglobin in g/dl
float
C0518015 (UMLS CUI [1,1])
I.lab_potassium_escape
Item
Potassium in mmol/L
float
C0202194 (UMLS CUI [1,1])
I.lab_calcium_escape
Item
Calcium in mmol/L
float
C0201925 (UMLS CUI [1,1])
I.lab_parathormone
Item
Parathormone in pmol/L
float
C0202159 (UMLS CUI [1,1])
I.lab_phosphorus_escape
Item
Serum inorganic phosphorus (CKD 3-5 OR Dialysis) in mmol/L
float
C1266228 (UMLS CUI [1,1])
C0229671 (UMLS CUI [1,2])
I.lab_transferrin
Item
Transferrin saturation in %
float
C1277709 (UMLS CUI [1,1])
I.lab_urea
Item
Blood Urea in mg/dl
float
C0005845 (UMLS CUI [1,1])
Item Group
Biobanking
C2347027 (UMLS CUI [1,1])
Item
Were samples for biobank obtained at this visit?
text
C2347027 (UMLS CUI [1,1])
C1512698 (UMLS CUI [1,2])
CL.2
Code List
Were samples for biobank obtained at this visit?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C5399964 (UMLS CUI [1,1])
Item
If yes, Were serum samples obtained at this visit?
text
C2347027 (UMLS CUI [1,1])
C3854286 (UMLS CUI [1,2])
C1550100 (UMLS CUI [1,3])
C1512698 (UMLS CUI [1,4])
CL.2
Code List
If yes, Were serum samples obtained at this visit?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C5399964 (UMLS CUI [1,1])
Item
If yes, Were plasma samples obtained at this visit?
text
C2347027 (UMLS CUI [1,1])
C3854286 (UMLS CUI [1,2])
C0444263 (UMLS CUI [1,3])
C1512698 (UMLS CUI [1,4])
CL.2
Code List
If yes, Were plasma samples obtained at this visit?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C5399964 (UMLS CUI [1,1])
Item
If yes, Were urine samples obtained at this visit?
text
C2347027 (UMLS CUI [1,1])
C3854286 (UMLS CUI [1,2])
C0200354 (UMLS CUI [1,3])
CL.2
Code List
If yes, Were urine samples obtained at this visit?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C5399964 (UMLS CUI [1,1])
Item
If yes, Were DNA samples obtained at this visit?
text
C2347027 (UMLS CUI [1,1])
C3854286 (UMLS CUI [1,2])
C0444245 (UMLS CUI [1,3])
CL.2
Code List
If yes, Were DNA samples obtained at this visit?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C5399964 (UMLS CUI [1,1])
I.sample_code
Item
If yes, Please enter the sample code:
text
C1299222 (UMLS CUI [1,1])
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