ERKNet EsCapeKD cohort study: Patient information

Basic data
Description

Basic data

Alias
UMLS CUI [1,1]
C2707520
Date of informed consent for the EsCapeKD cohort study
Description

I.informed_consent_date_escapekd

Data type

date

Alias
UMLS CUI [1,1]
C2985782
Congenital malformations (other than kidney)
Description

Congenital malformations (other than kidney)

Alias
UMLS CUI [1,1]
C0000768
Does the patient present congenital malformations?
Description

I.congenital_malformation

Data type

text

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C1512698
If yes: Heart affected
Description

I.heart_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C3649636
If yes: Brain affected
Description

I.brain_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C4021085
If yes: Eye affected
Description

I.eye_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0015392
If yes: Ear affected
Description

I.ear_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0013443
If yes: Skeleton affected
Description

I.skeleton_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0816871
If yes: GI tract affected
Description

I.gitract_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0017189
If yes: Gonads affected
Description

I.gonads_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0018050
If yes: Neural tubes affected
Description

I.neuraltubes_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C0000768
UMLS CUI [1,2]
C0027794
If yes: Other
Description

I.other_affected

Data type

boolean

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0000768
If other affected, please specify:
Description

I.organs_affected_other

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0000768
Immunological evaluation (Immunomarkers)
Description

Immunological evaluation (Immunomarkers)

Alias
UMLS CUI [1,1]
C0152036
UMLS CUI [1,2]
C0220825
Serum C3
Description

I.dia_im_serum_c3_escape

Data type

text

Alias
UMLS CUI [1,1]
C2097846
Serum IgA
Description

I.dia_im_serum_iga_escape

Data type

text

Alias
UMLS CUI [1,1]
C2229758

Similar models

ERKNet EsCapeKD cohort study: Patient information

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Basic data
C2707520 (UMLS CUI [1,1])
I.informed_consent_date_escapekd
Item
Date of informed consent for the EsCapeKD cohort study
date
C2985782 (UMLS CUI [1,1])
Item Group
Congenital malformations (other than kidney)
C0000768 (UMLS CUI [1,1])
Item
Does the patient present congenital malformations?
text
C0000768 (UMLS CUI [1,1])
C1512698 (UMLS CUI [1,2])
Code List
Does the patient present congenital malformations?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Unknown (9)
C0439673 (UMLS CUI [1,1])
I.heart_affected
Item
If yes: Heart affected
boolean
C3649636 (UMLS CUI [1,1])
I.brain_affected
Item
If yes: Brain affected
boolean
C0000768 (UMLS CUI [1,1])
C4021085 (UMLS CUI [1,2])
I.eye_affected
Item
If yes: Eye affected
boolean
C0000768 (UMLS CUI [1,1])
C0015392 (UMLS CUI [1,2])
I.ear_affected
Item
If yes: Ear affected
boolean
C0000768 (UMLS CUI [1,1])
C0013443 (UMLS CUI [1,2])
I.skeleton_affected
Item
If yes: Skeleton affected
boolean
C0000768 (UMLS CUI [1,1])
C0816871 (UMLS CUI [1,2])
I.gitract_affected
Item
If yes: GI tract affected
boolean
C0000768 (UMLS CUI [1,1])
C0017189 (UMLS CUI [1,2])
I.gonads_affected
Item
If yes: Gonads affected
boolean
C0000768 (UMLS CUI [1,1])
C0018050 (UMLS CUI [1,2])
I.neuraltubes_affected
Item
If yes: Neural tubes affected
boolean
C0000768 (UMLS CUI [1,1])
C0027794 (UMLS CUI [1,2])
I.other_affected
Item
If yes: Other
boolean
C0205394 (UMLS CUI [1,1])
C0000768 (UMLS CUI [1,2])
I.organs_affected_other
Item
If other affected, please specify:
text
C1521902 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0000768 (UMLS CUI [1,3])
Item Group
Immunological evaluation (Immunomarkers)
C0152036 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
Item
Serum C3
text
C2097846 (UMLS CUI [1,1])
Code List
Serum C3
CL Item
Not tested (99)
C3640292 (UMLS CUI [1,1])
CL Item
normal (0)
C0205307 (UMLS CUI [1,1])
CL Item
low (1)
C0205251 (UMLS CUI [1,1])
CL Item
elevated (2)
C0205250 (UMLS CUI [1,1])
Item
Serum IgA
text
C2229758 (UMLS CUI [1,1])
Code List
Serum IgA
CL Item
Not tested (99)
C3640292 (UMLS CUI [1,1])
CL Item
normal (0)
C0205307 (UMLS CUI [1,1])
CL Item
elevated (2)
C0205250 (UMLS CUI [1,1])