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ERKNet Core Registry: Visits

23 forms  
Visit
Description

Visit

Alias
UMLS CUI [1,1]
C0545082
uid
Description

I.uid

Data type

integer

Alias
UMLS CUI [1,1]
C2348585
ID
Description

I.pat_id_visits

Data type

text

Alias
UMLS CUI [1,1]
C2348585
Center
Description

I.Center_id_visits

Data type

text

Alias
UMLS CUI [1,1]
C1301943
UMLS CUI [1,2]
C0565990
Visit number
Description

I.visit_nr

Data type

integer

Alias
UMLS CUI [1,1]
C1549755
Visit date
Description

I.visit_date

Data type

date

Alias
UMLS CUI [1,1]
C1320303
Age at visit (in years)
Description

I.visit_age

Data type

integer

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0030705
UMLS CUI [1,3]
C0439234
Treatment modality
Description

Treatment modality

Alias
UMLS CUI [1,1]
C0087111
Treatment
Description

I.Treatment

Data type

text

Alias
UMLS CUI [1,1]
C0087111
TX: same allograft as last year?
Description

I.tx_same_graft

Data type

text

Alias
UMLS CUI [1,1]
C0022671
UMLS CUI [1,2]
C0564454
UMLS CUI [1,3]
C0262926
TX: Date of transplantation
Description

I.tx_date

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C0022671
TX: Early graft loss (< 1 mo.)?
Description

I.tx_early_graft_loss

Data type

text

Alias
UMLS CUI [1,1]
C0877690
UMLS CUI [1,2]
C1279919
TX: Pre-emptive Transplantation?
Description

I.tx_preemptive

Data type

text

Alias
UMLS CUI [1,1]
C0022671
UMLS CUI [1,2]
C0332288
UMLS CUI [1,3]
C0243095
UMLS CUI [1,4]
C0011946
HD or PD: Start of dialysis
Description

I.dialysis_start

Data type

date

Alias
UMLS CUI [1,1]
C0808070
UMLS CUI [1,2]
C0019004
UMLS CUI [1,3]
C0031139
HD or PD: Were there any other treatments between the current treatment and the treatment indicated at the previous visit?
Description

I.inter_treatments

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0087111
Which other treatment?
Description

I.inter_treatment_X

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0087111
Other treatment start date
Description

I.inter_treatment_X_start

Data type

date

Alias
UMLS CUI [1,1]
C0808070
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0087111
Other treatment stop date
Description

I.inter_treatment_X_stop

Data type

date

Alias
UMLS CUI [1,1]
C0806020
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0087111
Clinical status
Description

Clinical status

Alias
UMLS CUI [1,1]
C0449440
Weight in kg
Description

I.weight

Data type

float

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C0439209
Height in cm
Description

I.Height

Data type

float

Alias
UMLS CUI [1,1]
C0005890
UMLS CUI [1,2]
C0475210
Blood pressure (systolic) in mmHg
Description

I.bp_sys

Data type

integer

Alias
UMLS CUI [1,1]
C0871470
Blood pressure (diastolic) in mmHg
Description

I.bp_dia

Data type

integer

Alias
UMLS CUI [1,1]
C0428883
Biochemistry
Description

Biochemistry

Alias
UMLS CUI [1,1]
C0005477
Serum Creatinine in mg/dl
Description

I.screa

Data type

float

Alias
UMLS CUI [1,1]
C0600061
eGFR in ml/min/1.73 m2
Description

I.egfr

Data type

float

Alias
UMLS CUI [1,1]
C3811844
Status CKD (CKD 1-5)
Description

I.ckd

Data type

text

Alias
UMLS CUI [1,1]
C1561643
UMLS CUI [1,2]
C2074731
Serum LDL cholesterol in mg/dl (mean of last 2-3 measurements if measured more than once in past 12 months)
Description

I.ldl_cholesterol

Data type

float

Alias
UMLS CUI [1,1]
C0428474
Serum bicarbonate in mmol/l
Description

I.sbicarb

Data type

float

Alias
UMLS CUI [1,1]
C0428301
Has a leukocyte cystine level been obtained at least once since last visit?
Description

I.cystine_done

Data type

text

Alias
UMLS CUI [1,1]
C0005771
UMLS CUI [1,2]
C0023516
UMLS CUI [1,3]
C0010682
UMLS CUI [1,4]
C3872643
Most recent leukocyte cystine concentration in nmol/mg protein
Description

I.lcystine

Data type

float

Alias
UMLS CUI [1,1]
C0023516
UMLS CUI [1,2]
C0546634
Hemoglobin in g/dl
Description

I.hemoglobin

Data type

float

Alias
UMLS CUI [1,1]
C0518015
Serum Oxalate in µmol/l
Description

I.serum_oxalate

Data type

float

Alias
UMLS CUI [1,1]
C4064091
Is the patient receiving RAAS antagonist therapy? (* ACE inhibitor / AT1 receptor blocker / mineralocorticoid receptor blocker )
Description

I.ras_antagonist

Data type

text

Alias
UMLS CUI [1,1]
C0003015
UMLS CUI [1,2]
C0521942
UMLS CUI [1,3]
C5396467
SGLT2 Inhibitor treatment?
Description

I.sglt2_inhibitors

Data type

text

Alias
UMLS CUI [1,1]
C3273807
How many febrile urinary tract infections occurred in the past 12 months?
Description

I.feb_urinary_tract_infect

Data type

integer

Alias
UMLS CUI [1,1]
C3875265
UMLS CUI [1,2]
C1265611
UMLS CUI [1,3]
C3887293
Does the patient receive enteral feeding?
Description

I.enternal_feed

Data type

text

Alias
UMLS CUI [1,1]
C0086225
Is the patient currently on growth hormone therapy?
Description

I.growth_hormone

Data type

text

Alias
UMLS CUI [1,1]
C0744483
UMLS CUI [1,2]
C1512698
UMLS CUI [1,3]
C0521116
Audiometric assessment performed in the past two years?
Description

I.audio_assess

Data type

text

Alias
UMLS CUI [1,1]
C1512698
UMLS CUI [1,2]
C0018786
UMLS CUI [1,3]
C4299034
if yes: Audio assessment date
Description

I.audio_assess_date

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C0018786
Proteinuria measurement done since last update (or treatment start)?
Description

I.protur

Data type

text

Alias
UMLS CUI [1,1]
C0033687
Date of measurement
Description

I.protur_date

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C0242485
UMLS CUI [1,3]
C0033687
24h proteinuria (pediatric/adult) in g/24h
Description

I.protur_24h

Data type

float

Alias
UMLS CUI [1,1]
C1442770
UMLS CUI [1,2]
C0242485
UMLS CUI [1,3]
C0033687
Protein/Creatinine in g/g
Description

I.protur_protcrea

Data type

float

Alias
UMLS CUI [1,1]
C1096054
Dipstick result
Description

I.protur_dipstick

Data type

text

Alias
UMLS CUI [1,1]
C0430370
UMLS CUI [1,2]
C0456984
Is patient currently on statin therapy?
Description

I.statin_therapy

Data type

text

Alias
UMLS CUI [1,1]
C4316157
UMLS CUI [1,2]
C1512699
Peritonitis episodes since last update
Description

I.peritonitis

Data type

integer

Alias
UMLS CUI [1,1]
C1265611
UMLS CUI [1,2]
C0031154
UMLS CUI [1,3]
C3872643
Was a biopsy performed since last update?
Description

I.tx_biopsy

Data type

text

Alias
UMLS CUI [1,1]
C1512698
UMLS CUI [1,2]
C0194073
UMLS CUI [1,3]
C3872643
if yes: Result:
Description

I.tx_biopsy_result

Data type

text

Alias
UMLS CUI [1,1]
C1274040
UMLS CUI [1,2]
C0194073
Was Total Kidney Volume assessed by MRI in the past 12 months?
Description

I.mri_done / kidney_volume_assessed

Data type

text

Alias
UMLS CUI [1,1]
C1512698
UMLS CUI [1,2]
C2827452
UMLS CUI [1,3]
C0024485
UMLS CUI [1,4]
C3887293
Date of TKV assessment
Description

I.mri_date / kidney_volume_assessed_date

Data type

date

Alias
UMLS CUI [1,1]
C2985720
UMLS CUI [1,2]
C2827452
UMLS CUI [1,3]
C0024485
Type of Imaging Assessment
Description

I.img_assessment_type

Data type

text

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0011923
Total Kidney Volume in ml
Description

I.tkv

Data type

float

Alias
UMLS CUI [1,1]
C0439810
UMLS CUI [1,2]
C2827452
UMLS CUI [1,3]
C0439242
Patient height at assessment in cm
Description

I.assessment_height

Data type

float

Alias
UMLS CUI [1,1]
C0475210
UMLS CUI [1,2]
C0031809
UMLS CUI [1,3]
C0005890
Height-adjusted TKV in ml
Description

I.height_adjusted_tkv

Data type

float

Alias
UMLS CUI [1,1]
C0005890
UMLS CUI [1,2]
C3873159
UMLS CUI [1,3]
C2827452
UMLS CUI [1,4]
C0439242
Does the patient have or is he/she considering to have a child?
Description

I.pat_child

Data type

text

Alias
UMLS CUI [1,1]
C1512698
UMLS CUI [1,2]
C3831118
UMLS CUI [1,3]
C0008059
UMLS CUI [1,4]
C0521116
if yes: Was prenatal genetic counseling offered?
Description

I.pat_child_genetic_counseling

Data type

text

Alias
UMLS CUI [1,1]
C0678804
UMLS CUI [1,2]
C0017382
a) Does the patient have angiomyolipoma >3cm?
Description

I.angiomyolipoma

Data type

text

Alias
UMLS CUI [1,1]
C0206633
UMLS CUI [1,2]
C1704243
UMLS CUI [1,3]
C0205449
UMLS CUI [1,4]
C0475210
b) Does the patient have neurological disease manifestations (SEGA/Epilepsy)?
Description

I.neurological_disease

Data type

text

Alias
UMLS CUI [1,1]
C1512698
UMLS CUI [1,2]
C0027765
UMLS CUI [1,3]
C1280464
UMLS CUI [1,4]
C0014544
Is the patient currently treated with an mTOR inhibitor?
Description

I.mtor_inhibitor

Data type

text

Alias
UMLS CUI [1,1]
C2746052
UMLS CUI [1,2]
C0521116
UMLS CUI [1,3]
C1512699
Did patient develop new stones in past 12 months?
Description

I.new_stones

Data type

text

Alias
UMLS CUI [1,1]
C0205314
UMLS CUI [1,2]
C0022650
UMLS CUI [1,3]
C3887293
Potassium in mmol/L
Description

I.lab_potassium

Data type

float

Alias
UMLS CUI [1,1]
C0202194
Serum inorganic phosphorus (CKD 3-5 OR Dialysis) in mmol/L
Description

I.lab_phosphorus

Data type

float

Alias
UMLS CUI [1,1]
C1266228
Spot Urine Oxalate / Creatinine ratio in mmol/mol or umol/mmol, or convert from mg/g
Description

I.lab_ur_oxalur_oxalcrea

Data type

text

Alias
UMLS CUI [1,1]
C1319737
Serum anti-PLA2R (Only for Primary Membranous glomerulonephritis (OC 97560.0))
Description

I.visit_im_pla2

Data type

text

Alias
UMLS CUI [1,1]
C5558376
UMLS CUI [1,2]
C0086445
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Similar models

ERKNet Core Registry: Visits

23 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Visit
C0545082 (UMLS CUI [1,1])
I.uid
Item
uid
integer
C2348585 (UMLS CUI [1,1])
I.pat_id_visits
Item
ID
text
C2348585 (UMLS CUI [1,1])
I.Center_id_visits
Item
Center
text
C1301943 (UMLS CUI [1,1])
C0565990 (UMLS CUI [1,2])
I.visit_nr
Item
Visit number
integer
C1549755 (UMLS CUI [1,1])
I.visit_date
Item
Visit date
date
C1320303 (UMLS CUI [1,1])
I.visit_age
Item
Age at visit (in years)
integer
C0001779 (UMLS CUI [1,1])
C0030705 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])
Item Group
Treatment modality
C0087111 (UMLS CUI [1,1])
Item
Treatment
text
C0087111 (UMLS CUI [1,1])
CL.28
Code List
Treatment
CL Item
Conservative (CO)
C0459914 (UMLS CUI [1,1])
CL Item
Hemodialysis (HD)
C0019004 (UMLS CUI [1,1])
CL Item
Peritoneal Dialysis (PD)
C0031139 (UMLS CUI [1,1])
CL Item
Transplantation (TX)
C0022671 (UMLS CUI [1,1])
Item
TX: same allograft as last year?
text
C0022671 (UMLS CUI [1,1])
C0564454 (UMLS CUI [1,2])
C0262926 (UMLS CUI [1,3])
CL.2
Code List
TX: same allograft as last year?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C5399964 (UMLS CUI [1,1])
I.tx_date
Item
TX: Date of transplantation
date
C0011008 (UMLS CUI [1,1])
C0022671 (UMLS CUI [1,2])
Item
TX: Early graft loss (< 1 mo.)?
text
C0877690 (UMLS CUI [1,1])
C1279919 (UMLS CUI [1,2])
CL.29
Code List
TX: Early graft loss (< 1 mo.)?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
Pending (9)
C2711509 (UMLS CUI [1,1])
Item
TX: Pre-emptive Transplantation?
text
C0022671 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
C0011946 (UMLS CUI [1,4])
CL.2
Code List
TX: Pre-emptive Transplantation?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C5399964 (UMLS CUI [1,1])
I.dialysis_start
Item
HD or PD: Start of dialysis
date
C0808070 (UMLS CUI [1,1])
C0019004 (UMLS CUI [1,2])
C0031139 (UMLS CUI [1,3])
Item
HD or PD: Were there any other treatments between the current treatment and the treatment indicated at the previous visit?
text
C0205394 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
CL.30
Code List
HD or PD: Were there any other treatments between the current treatment and the treatment indicated at the previous visit?
CL Item
none (0)
C0549184 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
CL Item
yes, 1 treatment (1)
C0205447 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
CL Item
yes, 2 treatments (2)
C0205448 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Item
Which other treatment?
text
C1521902 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
CL.28
Code List
Which other treatment?
CL Item
Hemodialysis (HD)
C0019004 (UMLS CUI [1,1])
CL Item
Peritoneal Dialysis (PD)
C0031139 (UMLS CUI [1,1])
CL Item
Transplantation (TX)
C0022671 (UMLS CUI [1,1])
I.inter_treatment_X_start
Item
Other treatment start date
date
C0808070 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
I.inter_treatment_X_stop
Item
Other treatment stop date
date
C0806020 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
Item Group
Clinical status
C0449440 (UMLS CUI [1,1])
I.weight
Item
Weight in kg
float
C0005910 (UMLS CUI [1,1])
C0439209 (UMLS CUI [1,2])
I.Height
Item
Height in cm
float
C0005890 (UMLS CUI [1,1])
C0475210 (UMLS CUI [1,2])
I.bp_sys
Item
Blood pressure (systolic) in mmHg
integer
C0871470 (UMLS CUI [1,1])
I.bp_dia
Item
Blood pressure (diastolic) in mmHg
integer
C0428883 (UMLS CUI [1,1])
Item Group
Biochemistry
C0005477 (UMLS CUI [1,1])
I.screa
Item
Serum Creatinine in mg/dl
float
C0600061 (UMLS CUI [1,1])
I.egfr
Item
eGFR in ml/min/1.73 m2
float
C3811844 (UMLS CUI [1,1])
I.ckd
Item
Status CKD (CKD 1-5)
text
C1561643 (UMLS CUI [1,1])
C2074731 (UMLS CUI [1,2])
I.ldl_cholesterol
Item
Serum LDL cholesterol in mg/dl (mean of last 2-3 measurements if measured more than once in past 12 months)
float
C0428474 (UMLS CUI [1,1])
I.sbicarb
Item
Serum bicarbonate in mmol/l
float
C0428301 (UMLS CUI [1,1])
Item
Has a leukocyte cystine level been obtained at least once since last visit?
text
C0005771 (UMLS CUI [1,1])
C0023516 (UMLS CUI [1,2])
C0010682 (UMLS CUI [1,3])
C3872643 (UMLS CUI [1,4])
CL.2
Code List
Has a leukocyte cystine level been obtained at least once since last visit?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
I.lcystine
Item
Most recent leukocyte cystine concentration in nmol/mg protein
float
C0023516 (UMLS CUI [1,1])
C0546634 (UMLS CUI [1,2])
I.hemoglobin
Item
Hemoglobin in g/dl
float
C0518015 (UMLS CUI [1,1])
I.serum_oxalate
Item
Serum Oxalate in µmol/l
float
C4064091 (UMLS CUI [1,1])
Item
Is the patient receiving RAAS antagonist therapy? (* ACE inhibitor / AT1 receptor blocker / mineralocorticoid receptor blocker )
text
C0003015 (UMLS CUI [1,1])
C0521942 (UMLS CUI [1,2])
C5396467 (UMLS CUI [1,3])
CL.2
Code List
Is the patient receiving RAAS antagonist therapy? (* ACE inhibitor / AT1 receptor blocker / mineralocorticoid receptor blocker )
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
Item
SGLT2 Inhibitor treatment?
text
C3273807 (UMLS CUI [1,1])
CL.2
Code List
SGLT2 Inhibitor treatment?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
I.feb_urinary_tract_infect
Item
How many febrile urinary tract infections occurred in the past 12 months?
integer
C3875265 (UMLS CUI [1,1])
C1265611 (UMLS CUI [1,2])
C3887293 (UMLS CUI [1,3])
Item
Does the patient receive enteral feeding?
text
C0086225 (UMLS CUI [1,1])
CL.32
Code List
Does the patient receive enteral feeding?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
C0086225 (UMLS CUI [1,2])
CL Item
nasogastric tube  (1)
C0192456 (UMLS CUI [1,1])
CL Item
gastrostomy tube (2)
C0017196 (UMLS CUI [1,1])
C0041281 (UMLS CUI [1,2])
Item
Is the patient currently on growth hormone therapy?
text
C0744483 (UMLS CUI [1,1])
C1512698 (UMLS CUI [1,2])
C0521116 (UMLS CUI [1,3])
CL.2
Code List
Is the patient currently on growth hormone therapy?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
Item
Audiometric assessment performed in the past two years?
text
C1512698 (UMLS CUI [1,1])
C0018786 (UMLS CUI [1,2])
C4299034 (UMLS CUI [1,3])
CL.2
Code List
Audiometric assessment performed in the past two years?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
I.audio_assess_date
Item
if yes: Audio assessment date
date
C0011008 (UMLS CUI [1,1])
C0018786 (UMLS CUI [1,2])
Item
Proteinuria measurement done since last update (or treatment start)?
text
C0033687 (UMLS CUI [1,1])
CL.26
Code List
Proteinuria measurement done since last update (or treatment start)?
CL Item
Not done (0)
C1272696 (UMLS CUI [1,1])
C0033687 (UMLS CUI [1,2])
CL Item
24h proteinuria (1)
C1442770 (UMLS CUI [1,1])
C0033687 (UMLS CUI [1,2])
CL Item
Protein/Creatinine (2)
C0033687 (UMLS CUI [1,1])
C0486293 (UMLS CUI [1,2])
CL Item
Dipstick result (3)
C0430370 (UMLS CUI [1,1])
C0456984 (UMLS CUI [1,2])
CL Item
Not applicable (9)
C1272460 (UMLS CUI [1,1])
I.protur_date
Item
Date of measurement
date
C0011008 (UMLS CUI [1,1])
C0242485 (UMLS CUI [1,2])
C0033687 (UMLS CUI [1,3])
I.protur_24h
Item
24h proteinuria (pediatric/adult) in g/24h
float
C1442770 (UMLS CUI [1,1])
C0242485 (UMLS CUI [1,2])
C0033687 (UMLS CUI [1,3])
I.protur_protcrea
Item
Protein/Creatinine in g/g
float
C1096054 (UMLS CUI [1,1])
Item
Dipstick result
text
C0430370 (UMLS CUI [1,1])
C0456984 (UMLS CUI [1,2])
CL.33
Code List
Dipstick result
CL Item
0 (0)
C0430370 (UMLS CUI [1,1])
C0456984 (UMLS CUI [1,2])
C1513916 (UMLS CUI [1,3])
CL Item
(+) (1)
C0430370 (UMLS CUI [1,1])
C0456984 (UMLS CUI [1,2])
C0442722 (UMLS CUI [1,3])
CL Item
+ (2)
C0430370 (UMLS CUI [1,1])
C0456984 (UMLS CUI [1,2])
C0442722 (UMLS CUI [1,3])
CL Item
++ (3)
C0430370 (UMLS CUI [1,1])
C0456984 (UMLS CUI [1,2])
C0442723 (UMLS CUI [1,3])
CL Item
+++ (4)
C0430370 (UMLS CUI [1,1])
C0456984 (UMLS CUI [1,2])
C0442724 (UMLS CUI [1,3])
Item
Is patient currently on statin therapy?
text
C4316157 (UMLS CUI [1,1])
C1512699 (UMLS CUI [1,2])
CL.2
Code List
Is patient currently on statin therapy?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
I.peritonitis
Item
Peritonitis episodes since last update
integer
C1265611 (UMLS CUI [1,1])
C0031154 (UMLS CUI [1,2])
C3872643 (UMLS CUI [1,3])
Item
Was a biopsy performed since last update?
text
C1512698 (UMLS CUI [1,1])
C0194073 (UMLS CUI [1,2])
C3872643 (UMLS CUI [1,3])
CL.2
Code List
Was a biopsy performed since last update?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
Item
if yes: Result:
text
C1274040 (UMLS CUI [1,1])
C0194073 (UMLS CUI [1,2])
CL.34
Code List
if yes: Result:
CL Item
No rejection (0)
C1298908 (UMLS CUI [1,1])
C0018129 (UMLS CUI [1,2])
CL Item
Borderline findings (1)
C0205189 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
CL Item
T-cell mediated rejection (2)
C5983209 (UMLS CUI [1,1])
CL Item
Antibody-mediated rejection (3)
C1608421 (UMLS CUI [1,1])
Item
Was Total Kidney Volume assessed by MRI in the past 12 months?
text
C1512698 (UMLS CUI [1,1])
C2827452 (UMLS CUI [1,2])
C0024485 (UMLS CUI [1,3])
C3887293 (UMLS CUI [1,4])
CL.2
Code List
Was Total Kidney Volume assessed by MRI in the past 12 months?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
I.mri_date / kidney_volume_assessed_date
Item
Date of TKV assessment
date
C2985720 (UMLS CUI [1,1])
C2827452 (UMLS CUI [1,2])
C0024485 (UMLS CUI [1,3])
Item
Type of Imaging Assessment
text
C0332307 (UMLS CUI [1,1])
C0011923 (UMLS CUI [1,2])
CL.35
Code List
Type of Imaging Assessment
CL Item
Ultrasound (P Unit ONLY) (1)
C0041618 (UMLS CUI [1,1])
CL Item
MRI (2)
C0024485 (UMLS CUI [1,1])
CL Item
CT (3)
C0040405 (UMLS CUI [1,1])
I.tkv
Item
Total Kidney Volume in ml
float
C0439810 (UMLS CUI [1,1])
C2827452 (UMLS CUI [1,2])
C0439242 (UMLS CUI [1,3])
I.assessment_height
Item
Patient height at assessment in cm
float
C0475210 (UMLS CUI [1,1])
C0031809 (UMLS CUI [1,2])
C0005890 (UMLS CUI [1,3])
I.height_adjusted_tkv
Item
Height-adjusted TKV in ml
float
C0005890 (UMLS CUI [1,1])
C3873159 (UMLS CUI [1,2])
C2827452 (UMLS CUI [1,3])
C0439242 (UMLS CUI [1,4])
Item
Does the patient have or is he/she considering to have a child?
text
C1512698 (UMLS CUI [1,1])
C3831118 (UMLS CUI [1,2])
C0008059 (UMLS CUI [1,3])
C0521116 (UMLS CUI [1,4])
CL.2
Code List
Does the patient have or is he/she considering to have a child?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
Item
if yes: Was prenatal genetic counseling offered?
text
C0678804 (UMLS CUI [1,1])
C0017382 (UMLS CUI [1,2])
CL.2
Code List
if yes: Was prenatal genetic counseling offered?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
Item
a) Does the patient have angiomyolipoma >3cm?
text
C0206633 (UMLS CUI [1,1])
C1704243 (UMLS CUI [1,2])
C0205449 (UMLS CUI [1,3])
C0475210 (UMLS CUI [1,4])
CL.2
Code List
a) Does the patient have angiomyolipoma >3cm?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
Item
b) Does the patient have neurological disease manifestations (SEGA/Epilepsy)?
text
C1512698 (UMLS CUI [1,1])
C0027765 (UMLS CUI [1,2])
C1280464 (UMLS CUI [1,3])
C0014544 (UMLS CUI [1,4])
CL.2
Code List
b) Does the patient have neurological disease manifestations (SEGA/Epilepsy)?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
Item
Is the patient currently treated with an mTOR inhibitor?
text
C2746052 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
C1512699 (UMLS CUI [1,3])
CL.36
Code List
Is the patient currently treated with an mTOR inhibitor?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
Item
Did patient develop new stones in past 12 months?
text
C0205314 (UMLS CUI [1,1])
C0022650 (UMLS CUI [1,2])
C3887293 (UMLS CUI [1,3])
CL.2
Code List
Did patient develop new stones in past 12 months?
CL Item
No (0)
C1298908 (UMLS CUI [1,1])
CL Item
Yes (1)
C1705108 (UMLS CUI [1,1])
I.lab_potassium
Item
Potassium in mmol/L
float
C0202194 (UMLS CUI [1,1])
I.lab_phosphorus
Item
Serum inorganic phosphorus (CKD 3-5 OR Dialysis) in mmol/L
float
C1266228 (UMLS CUI [1,1])
I.lab_ur_oxalur_oxalcrea
Item
Spot Urine Oxalate / Creatinine ratio in mmol/mol or umol/mmol, or convert from mg/g
text
C1319737 (UMLS CUI [1,1])
Item
Serum anti-PLA2R (Only for Primary Membranous glomerulonephritis (OC 97560.0))
text
C5558376 (UMLS CUI [1,1])
C0086445 (UMLS CUI [1,2])
CL.37
Code List
Serum anti-PLA2R (Only for Primary Membranous glomerulonephritis (OC 97560.0))
CL Item
Not tested (9)
C3640292 (UMLS CUI [1,1])
CL Item
Negative (0)
C0205160 (UMLS CUI [1,1])
CL Item
Positive (1)
C1446409 (UMLS CUI [1,1])
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