Englisch

The dataset provides information about the age of disease onset and basic sociodemographic data. In study version 3, data of n=189 subjects have been added.

5 Formulare  
pht004471
Beschreibung

pht004471

Alias
UMLS CUI [1,1]
C3846158
De-identified Subject ID
Beschreibung

SUBJECT_ID

Datentyp

string

Alias
UMLS CUI [1,1]
C4684638
UMLS CUI [1,2]
C2348585
Disease onset age
Beschreibung

age_onset

Datentyp

text

Maßeinheiten
  • Years
Alias
UMLS CUI [1,1]
C0206132
Place of subject's birth
Beschreibung

birthplace

Datentyp

text

Alias
UMLS CUI [1,1]
C0032040
Gender of participant
Beschreibung

sex

Datentyp

text

Alias
UMLS CUI [1,1]
C0079399
Race of participant
Beschreibung

race

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
Level of education
Beschreibung

education

Datentyp

text

Alias
UMLS CUI [1,1]
C0013658
Subject's age
Beschreibung

age

Datentyp

text

Maßeinheiten
  • Years
Alias
UMLS CUI [1,1]
C0001779
Years
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Ähnliche Modelle

The dataset provides information about the age of disease onset and basic sociodemographic data. In study version 3, data of n=189 subjects have been added.

5 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
pht004471
C3846158 (UMLS CUI [1,1])
SUBJECT_ID
Item
De-identified Subject ID
string
C4684638 (UMLS CUI [1,1])
C2348585 (UMLS CUI [1,2])
Item
Disease onset age
text
C0206132 (UMLS CUI [1,1])
age_onset
Code List
Disease onset age
CL Item
Missing (999)
CL Item
Not assessed (1000)
Item
Place of subject's birth
text
C0032040 (UMLS CUI [1,1])
birthplace
Code List
Place of subject's birth
CL Item
Participant Left Blank (999)
CL Item
Not assessed (1000)
CL Item
United States (1)
CL Item
Outside United States (2)
Item
Gender of participant
text
C0079399 (UMLS CUI [1,1])
sex
Code List
Gender of participant
CL Item
Female (1)
C0086287 (UMLS CUI [1,1])
CL Item
Male (2)
C0086582 (UMLS CUI [1,1])
CL Item
Not Applicable (NA)
C1272460 (UMLS CUI [1,1])
CL Item
Unknown (UNK)
Item
Race of participant
text
C0034510 (UMLS CUI [1,1])
race
Code List
Race of participant
CL Item
Other (9)
CL Item
White (1)
CL Item
African American (2)
CL Item
Asian (3)
CL Item
Native American (4)
CL Item
Pacific Islander (5)
CL Item
Not assessed (1000)
Item
Level of education
text
C0013658 (UMLS CUI [1,1])
education
Code List
Level of education
CL Item
Participant left blank (999)
CL Item
Not assessed (1000)
CL Item
Less than 1st grade (0)
CL Item
1st, 2nd, 3rd, 4th grade (1)
CL Item
5th or 6th grade (2)
CL Item
7th or 8th grade (3)
CL Item
9th grade (4)
CL Item
10th grade (5)
CL Item
11th grade (6)
CL Item
12th grade NO Diploma (7)
CL Item
High school graduate, diploma or GED (8)
CL Item
Some college credit but less than one year (9)
CL Item
One or more years of college, no degree (10)
CL Item
Completed occupational, technical or vocational program (11)
CL Item
Associate (2-year) college degree (12)
CL Item
Bachelor's degree (13)
CL Item
Master's degree (14)
CL Item
Professional degree (15)
CL Item
Doctorate degree (16)
CL Item
Missing (99)
age
Item
Subject's age
text
C0001779 (UMLS CUI [1,1])
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