Item
How has your health been in the last month in comparison with other people you know of the same age?
text
C0018759 (UMLS CUI [1,1])
C1517741 (UMLS CUI [1,2])
C0439231 (UMLS CUI [1,3])
Code List
How has your health been in the last month in comparison with other people you know of the same age?
CL Item
Excellent (1)
C1961136 (UMLS CUI [1,1])
CL Item
Very Good (2)
C3641222 (UMLS CUI [1,1])
CL Item
Good (3)
C0205170 (UMLS CUI [1,1])
CL Item
Fair (4)
C2911689 (UMLS CUI [1,1])
CL Item
Poor (5)
C2700379 (UMLS CUI [1,1])
Item
Did the diagnosis of vascular disease affect your
text
C0011900 (UMLS CUI [1,1])
C0042373 (UMLS CUI [1,2])
C0392760 (UMLS CUI [1,3])
Code List
Did the diagnosis of vascular disease affect your
CL Item
psychological health (1)
C0205486 (UMLS CUI [1,1])
C0018759 (UMLS CUI [1,2])
CL Item
physical health (2)
C0517226 (UMLS CUI [1,1])
CL Item
both (3)
C1706086 (UMLS CUI [1,1])
CL Item
none of the above (4)
C0549184 (UMLS CUI [1,1])
Item
If you have had a vascular surgery, how would you rate your health after surgery?
text
C0042381 (UMLS CUI [1,1])
C0018759 (UMLS CUI [1,2])
Code List
If you have had a vascular surgery, how would you rate your health after surgery?
CL Item
a lot better than before (1)
C2984081 (UMLS CUI [1,1])
C3841449 (UMLS CUI [1,2])
CL Item
a little better than before (2)
C2984078 (UMLS CUI [1,1])
C3841646 (UMLS CUI [1,2])
CL Item
the same as before (3)
C0442739 (UMLS CUI [1,1])
CL Item
a little worse than before (4)
C2984078 (UMLS CUI [1,1])
C1457868 (UMLS CUI [1,2])
CL Item
a lot worse than before (5)
C2984081 (UMLS CUI [1,1])
C1457868 (UMLS CUI [1,2])
Item
In comparison with your health 1 year ago, how would you rate your health now?
text
C0018759 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C1707455 (UMLS CUI [1,3])
Code List
In comparison with your health 1 year ago, how would you rate your health now?
CL Item
a lot better than before (1)
C2984081 (UMLS CUI [1,1])
C3841449 (UMLS CUI [1,2])
CL Item
a little better than before (2)
C2984078 (UMLS CUI [1,1])
C3841646 (UMLS CUI [1,2])
CL Item
the same as before (3)
C0442739 (UMLS CUI [1,1])
CL Item
a little worse than before (4)
C2984078 (UMLS CUI [1,1])
C1457868 (UMLS CUI [1,2])
CL Item
a lot worse than before (5)
C2984081 (UMLS CUI [1,1])
C1457868 (UMLS CUI [1,2])
Item
Do you suffer from neurological symptoms?
text
C0235031 (UMLS CUI [1,1])
Code List
Do you suffer from neurological symptoms?
CL Item
Never (1)
C2003901 (UMLS CUI [1,1])
CL Item
Occasionally (2)
C1998882 (UMLS CUI [1,1])
CL Item
Sometimes (3)
C1998882 (UMLS CUI [1,1])
CL Item
Often (4)
C0332183 (UMLS CUI [1,1])
CL Item
Continuously (5)
C0549178 (UMLS CUI [1,1])
Item
Have you felt lonely, unhappy, depressed, or anxious over the past month?
text
C0497307 (UMLS CUI [1,1])
C0023974 (UMLS CUI [1,2])
C0003467 (UMLS CUI [1,3])
C0439231 (UMLS CUI [1,4])
Code List
Have you felt lonely, unhappy, depressed, or anxious over the past month?
CL Item
Never (1)
C2003901 (UMLS CUI [1,1])
CL Item
Occasionally (2)
C1998882 (UMLS CUI [1,1])
CL Item
Sometimes (3)
C1998882 (UMLS CUI [1,1])
CL Item
Often (4)
C0332183 (UMLS CUI [1,1])
CL Item
Continuously (5)
C0549178 (UMLS CUI [1,1])
Item
In general, have there been any changes in your life that you feel have been detrimental to your quality of life?
text
C0392747 (UMLS CUI [1,1])
C0034380 (UMLS CUI [1,2])
C3640815 (UMLS CUI [1,3])
Code List
In general, have there been any changes in your life that you feel have been detrimental to your quality of life?
CL Item
yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
no (2)
C1298908 (UMLS CUI [1,1])
Item
How is your medical knowledge about your rare vascular disease?
text
C1386497 (UMLS CUI [1,1])
C0376554 (UMLS CUI [1,2])
C0042373 (UMLS CUI [1,3])
C0522498 (UMLS CUI [1,4])
Code List
How is your medical knowledge about your rare vascular disease?
CL Item
Excellent (1)
C1961136 (UMLS CUI [1,1])
CL Item
Very Good (2)
C3641222 (UMLS CUI [1,1])
CL Item
Good (3)
C0205170 (UMLS CUI [1,1])
CL Item
Fair (4)
C2911689 (UMLS CUI [1,1])
CL Item
Poor (5)
C2700379 (UMLS CUI [1,1])
Item
Do you feel well informed / treated at your medical centre?
text
C1533716 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C1514623 (UMLS CUI [1,3])
C0565990 (UMLS CUI [1,4])
Code List
Do you feel well informed / treated at your medical centre?
CL Item
yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
no (3)
C1298908 (UMLS CUI [1,1])
Item
Have you attended supporting groups for your disease?
text
C0036606 (UMLS CUI [1,1])
C2827364 (UMLS CUI [1,2])
Code List
Have you attended supporting groups for your disease?
CL Item
yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
no (2)
C1298908 (UMLS CUI [1,1])
Item
Would you appreciate further reference centres / supporting groups/ networking expert groups concerning your rare vascular disease?
text
C2346843 (UMLS CUI [1,1])
C1517331 (UMLS CUI [1,2])
C0036606 (UMLS CUI [1,3])
C1882071 (UMLS CUI [1,4])
C0019994 (UMLS CUI [1,5])
C0522498 (UMLS CUI [1,6])
C0042373 (UMLS CUI [1,7])
Code List
Would you appreciate further reference centres / supporting groups/ networking expert groups concerning your rare vascular disease?
CL Item
yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
no (2)
C1298908 (UMLS CUI [1,1])
Item
Does your disease affect familial and social life?
text
C0392760 (UMLS CUI [1,1])
C0815198 (UMLS CUI [1,2])
C3476515 (UMLS CUI [1,3])
Code List
Does your disease affect familial and social life?
CL Item
yes (1)
C1705108 (UMLS CUI [1,1])
CL Item
sometimes (2)
C1998882 (UMLS CUI [1,1])
CL Item
no (3)
C1298908 (UMLS CUI [1,1])