Englisch

demographics: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.

6 Formulare  
  1. StudyEvent: SEV1
    1. Eligibility Criteria
    2. Subject ID and consent group of participants with or without 21-Hydroxylase deficiency and involved in the "Potential Modulatory Role of Osteoprotegerin in Bone Metabolism of Patients with 21-Hydroxylase Deficiency" project.
    3. registration: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.
    4. demographics: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.
    5. eligibilityform: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.
    6. intakeform: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.
pht007998
Beschreibung

pht007998

Alias
UMLS CUI [1,1]
C3846158
Masked Participant Identifier [Demographics Form]
Beschreibung

baseline

Datentyp

float

Alias
UMLS CUI [1,1]
C1555580
UMLS CUI [1,2]
C0679646
UMLS CUI [1,3]
C0600091
Ethnicity [Demographics Form]
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C5441552
Gender [Demographics Form]
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0079399
Primary Race [Demographics Form]
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0034510
Age at registration [Demographics Form]
Beschreibung

baseline

Datentyp

float

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C1514821
Date of Birth not allowed by local institutions IRB ethics committee [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C2348576
UMLS CUI [1,2]
C0086911
UMLS CUI [1,3]
C4683850
Race: American Indian or Alaska Native [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C1515945
Race: Asian [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0078988
Race: Black or African American [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0085756
Race: Native Hawaiian or Other Pacific Islander [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C1513907
Race: Other [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0205394
Race: Refused [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C1705116
Race: Unknown [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0439673
Race: Unknown or not reported [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0439673
UMLS CUI [1,3]
C1549114
Race: White [Demographics Form]
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0007457
Form name [Demographics Form]
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C3242370
Participant Cycle# [Demographics Form]
Beschreibung

baseline

Datentyp

float

Alias
UMLS CUI [1,1]
C0679646
UMLS CUI [1,2]
C3846158
Visit [Demographics Form]
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0545082
Form Status [Demographics Form]
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C3176351
Data Management Coordinating Center Internal Identifier [Demographics Form]
Beschreibung

baseline

Datentyp

float

Alias
UMLS CUI [1,1]
C0596404
UMLS CUI [1,2]
C1707512
UMLS CUI [1,3]
C0600091
Computed Age (in days) at visit (where DOB provided) [Demographics Form]
Beschreibung

baseline

Datentyp

float

Maßeinheiten
  • Days
Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C1320303
Days
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Ähnliche Modelle

demographics: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.

6 Formulare
  1. StudyEvent: SEV1
    1. Eligibility Criteria
    2. Subject ID and consent group of participants with or without 21-Hydroxylase deficiency and involved in the "Potential Modulatory Role of Osteoprotegerin in Bone Metabolism of Patients with 21-Hydroxylase Deficiency" project.
    3. registration: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.
    4. demographics: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.
    5. eligibilityform: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.
    6. intakeform: This dataset has been checked for HIPAA sensitive information, consistency between the asserted data in the study description with the data available through dbGaP, distributable study document corresponding to the dataset, format for study loading, and items that may be ambiguous to dbGaP users. Code meanings and truncated variable descriptions are provided as submitted. For questions regarding the data, please contact the study investigators.
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
pht007998
C3846158 (UMLS CUI [1,1])
maskid
Item
Masked Participant Identifier [Demographics Form]
float
C1555580 (UMLS CUI [1,1])
C0679646 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,3])
Ethnicity
Item
Ethnicity [Demographics Form]
string
C5441552 (UMLS CUI [1,1])
Gender
Item
Gender [Demographics Form]
string
C0079399 (UMLS CUI [1,1])
PrimaryRace
Item
Primary Race [Demographics Form]
string
C0034510 (UMLS CUI [1,1])
AgeAtRegistration
Item
Age at registration [Demographics Form]
float
C0001779 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C1514821 (UMLS CUI [1,3])
Item
Date of Birth not allowed by local institutions IRB ethics committee [Demographics Form]
text
C2348576 (UMLS CUI [1,1])
C0086911 (UMLS CUI [1,2])
C4683850 (UMLS CUI [1,3])
DOBNotAllowed
Code List
Date of Birth not allowed by local institutions IRB ethics committee [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: American Indian or Alaska Native [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C1515945 (UMLS CUI [1,2])
Race_AmericanIndianorAKnative
Code List
Race: American Indian or Alaska Native [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: Asian [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C0078988 (UMLS CUI [1,2])
Race_Asian
Code List
Race: Asian [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: Black or African American [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C0085756 (UMLS CUI [1,2])
Race_BlackorAfricanAmerican
Code List
Race: Black or African American [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: Native Hawaiian or Other Pacific Islander [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C1513907 (UMLS CUI [1,2])
Race_NativeHIorPacificIslander
Code List
Race: Native Hawaiian or Other Pacific Islander [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: Other [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Race_Other
Code List
Race: Other [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: Refused [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C1705116 (UMLS CUI [1,2])
Race_Refused
Code List
Race: Refused [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: Unknown [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
Race_Unknown
Code List
Race: Unknown [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: Unknown or not reported [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C1549114 (UMLS CUI [1,3])
Race_Unknownornotreported
Code List
Race: Unknown or not reported [Demographics Form]
CL Item
Box Was Checked (1)
Item
Race: White [Demographics Form]
text
C0034510 (UMLS CUI [1,1])
C0007457 (UMLS CUI [1,2])
Race_White
Code List
Race: White [Demographics Form]
CL Item
Box Was Checked (1)
form_name
Item
Form name [Demographics Form]
string
C3242370 (UMLS CUI [1,1])
Participant_Cycle_Number
Item
Participant Cycle# [Demographics Form]
float
C0679646 (UMLS CUI [1,1])
C3846158 (UMLS CUI [1,2])
Visit
Item
Visit [Demographics Form]
string
C0545082 (UMLS CUI [1,1])
Form_Status
Item
Form Status [Demographics Form]
string
C3176351 (UMLS CUI [1,1])
DMCC_record_id
Item
Data Management Coordinating Center Internal Identifier [Demographics Form]
float
C0596404 (UMLS CUI [1,1])
C1707512 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,3])
visit_age
Item
Computed Age (in days) at visit (where DOB provided) [Demographics Form]
float
C0001779 (UMLS CUI [1,1])
C1320303 (UMLS CUI [1,2])
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