Age of patient at primary diagnosis
Item
Age of patient at primary diagnosis
integer
C0001779 (UMLS CUI [1,1])
Birth region of patient
Item
Birth region of patient
text
C0005615 (UMLS CUI [1,1])
C3258107 (UMLS CUI [1,2])
Item
Race
text
C0034510 (UMLS CUI [1,1])
CL Item
African American (2)
Current living region of patient
Item
Current living region of patient
text
C0521116 (UMLS CUI [1,1])
C0337646 (UMLS CUI [1,2])
Altitude of living in meters above sea level
Item
Altitude of living in meters above sea level
integer
C0002349 (UMLS CUI [1,1])
C0337646 (UMLS CUI [1,2])
C0036493 (UMLS CUI [1,3])
C0441889 (UMLS CUI [1,4])
Item
Patient sex
text
C0079399 (UMLS CUI [1,1])
Smoking history
Item
Smoking history
boolean
C1519384 (UMLS CUI [1,1])
Smoking history: if yes pack years (PY)
Item
Smoking history: if yes pack years (PY)
integer
C1519384 (UMLS CUI [1,1])
C1277691 (UMLS CUI [1,2])
Body mass index
Item
Body mass index
integer
C1305855 (UMLS CUI [1,1])
Item
Alcohol consumption
text
C0001948 (UMLS CUI [1,1])
Code List
Alcohol consumption
Known inherited syndromes (e.g. MEN2, VHL, NF1, Carney triad...)
Item
Known inherited syndromes (e.g. MEN2, VHL, NF1, Carney triad...)
boolean
C0019247 (UMLS CUI [1,1])
C0027662 (UMLS CUI [1,2])
C1858592 (UMLS CUI [1,3])
C0019562 (UMLS CUI [1,4])
C0027831 (UMLS CUI [1,5])
If yes: please specify
Item
If yes: please specify
text
C2348235 (UMLS CUI [1,1])
Unilateral paraganglioma
Item
Unilateral paraganglioma
boolean
C0205092 (UMLS CUI [1,1])
C0030421 (UMLS CUI [1,2])
Multilocular paraganglioma
Item
Multilocular paraganglioma
boolean
C0439064 (UMLS CUI [1,1])
C0205277 (UMLS CUI [1,2])
C0030421 (UMLS CUI [1,3])
Multilocular paraganglioma: Specify other locations of paraganglioma
Item
Multilocular paraganglioma: Specify other locations of paraganglioma
text
C0030421 (UMLS CUI [1,1])
C0205277 (UMLS CUI [1,2])
C0439064 (UMLS CUI [1,3])
C1521902 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,5])
C0450429 (UMLS CUI [1,6])
Distance from cranial tumor end to base of the skull (in mm)
Item
Distance from cranial tumor end to base of the skull (in mm)
integer
C0012751 (UMLS CUI [1,1])
C0149543 (UMLS CUI [1,2])
C3163632 (UMLS CUI [1,3])
C0475445 (UMLS CUI [1,4])
Metastases at primary diagnosis?
Item
Metastases at primary diagnosis?
boolean
C0027627 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Other tumor diseases of the patient
Item
Other tumor diseases of the patient
boolean
C0205394 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0006826 (UMLS CUI [1,3])
Which type of tumors are known?
Item
Which type of tumors are known?
text
C0332307 (UMLS CUI [1,1])
C0027651 (UMLS CUI [1,2])
Other comorbidities
Item
Other comorbidities
boolean
C0205394 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
Yes: Please specify other comorbidities
Item
Yes: Please specify other comorbidities
text
C3845569 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
Shamblin classification: right carotid artery
Item
Shamblin classification: right carotid artery
text
C0008902 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
C0007272 (UMLS CUI [1,3])
Shamblin classification: left carotid artery
Item
Shamblin classification: left carotid artery
text
C0008902 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
C0007272 (UMLS CUI [1,3])
Size of tumor in mm: right carotid artery
Item
Size of tumor in mm: right carotid artery
integer
C0475440 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
C0007272 (UMLS CUI [1,3])
Size of tumor in mm: left carotid artery
Item
Size of tumor in mm: left carotid artery
integer
C0475440 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
C0007272 (UMLS CUI [1,3])
Nerval symptoms at primary diagnosis?
Item
Nerval symptoms at primary diagnosis?
boolean
C0235031 (UMLS CUI [1,1])
C4071762 (UMLS CUI [1,2])
If yes: Specify nerval symptoms
Item
If yes: Specify nerval symptoms
text
C2348235 (UMLS CUI [1,1])
C0235031 (UMLS CUI [1,2])
High blood pressure symptoms at primary diagnosis?
Item
High blood pressure symptoms at primary diagnosis?
boolean
C0020538 (UMLS CUI [1,1])
C4071762 (UMLS CUI [1,2])
Other symptoms at primary diagnosis
Item
Other symptoms at primary diagnosis
text
C0205394 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C4071762 (UMLS CUI [1,3])
Item
Familial history for paraganglioma
text
C0241889 (UMLS CUI [1,1])
C0030421 (UMLS CUI [1,2])
Code List
Familial history for paraganglioma
Number of affected family members with paraganglioma
Item
Number of affected family members with paraganglioma
integer
C0750480 (UMLS CUI [1,1])
C0086282 (UMLS CUI [1,2])
Familial history for other tumors
Item
Familial history for other tumors
boolean
C0241889 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0027651 (UMLS CUI [1,3])
Yes: Type of other tumors
Item
Yes: Type of other tumors
text
C0332307 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0027651 (UMLS CUI [1,3])
Endocrinological testing before treatment performed?
Item
Endocrinological testing before treatment performed?
boolean
C0694557 (UMLS CUI [1,1])
C0039593 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C0087111 (UMLS CUI [1,4])
Positive findings from endocrinological testing?
Item
Positive findings from endocrinological testing?
boolean
C1446409 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C0694557 (UMLS CUI [1,3])
C0039593 (UMLS CUI [1,4])
Type of endocrinological testing
Item
Type of endocrinological testing
text
C0332307 (UMLS CUI [1,1])
C0694557 (UMLS CUI [1,2])
C0039593 (UMLS CUI [1,3])
Positive findings from endocrinological testing
Item
Positive findings from endocrinological testing
text
C1446409 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C0694557 (UMLS CUI [1,3])
C0039593 (UMLS CUI [1,4])
Prior to treatment: other medical profession consulted (e.g. ENT or nurology department)?
Item
Prior to treatment: other medical profession consulted (e.g. ENT or nurology department)?
text
C0332152 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,4])
C0587450 (UMLS CUI [1,5])
Specify other medical professions for further diagnostics
Item
Specify other medical professions for further diagnostics
text
C3845569 (UMLS CUI [1,1])
C0037778 (UMLS CUI [1,2])
C1517331 (UMLS CUI [1,3])
C0430022 (UMLS CUI [1,4])
Pre-operative balloon occlusion test of internal carotid artery?
Item
Pre-operative balloon occlusion test of internal carotid artery?
boolean
C0445204 (UMLS CUI [1,1])
C3697458 (UMLS CUI [1,2])
C0205102 (UMLS CUI [1,3])
C0007272 (UMLS CUI [1,4])
Diagnostic Imaging performed of paraganglioma before treatment?
Item
Diagnostic Imaging performed of paraganglioma before treatment?
boolean
C0011923 (UMLS CUI [1,1])
C0030421 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C0087111 (UMLS CUI [1,4])
Ultrasound
Item
Ultrasound
boolean
C0041618 (UMLS CUI [1,1])
Yes: Date Ultrasound
Item
Yes: Date Ultrasound
date
C0011008 (UMLS CUI [1,1])
C0041618 (UMLS CUI [1,2])
Yes: Specify positive findings
Item
Yes: Specify positive findings
text
C1521902 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
Computed tomography (CT)
Item
Computed tomography (CT)
boolean
C0040405 (UMLS CUI [1,1])
Yes: Date CT
Item
Yes: Date CT
date
C0011008 (UMLS CUI [1,1])
C0040405 (UMLS CUI [1,2])
Yes: Specify positive findings
Item
Yes: Specify positive findings
text
C1521902 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
Magnetic resonance tomography
Item
Magnetic resonance tomography
boolean
C0024485 (UMLS CUI [1,1])
Yes: Date MRT
Item
Yes: Date MRT
date
C0011008 (UMLS CUI [1,1])
C0024485 (UMLS CUI [1,2])
Yes: Specify positve findings
Item
Yes: Specify positve findings
text
C1521902 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
Angiography
Item
Angiography
boolean
C0002978 (UMLS CUI [1,1])
Yes: Date angiography
Item
Yes: Date angiography
date
C0011008 (UMLS CUI [1,1])
C0002978 (UMLS CUI [1,2])
Yes: Specify positive findings
Item
Yes: Specify positive findings
text
C1521902 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
Whole body CT
Item
Whole body CT
boolean
C0412583 (UMLS CUI [1,1])
Yes: Date Whole body CT
Item
Yes: Date Whole body CT
date
C0011008 (UMLS CUI [1,1])
C0412583 (UMLS CUI [1,2])
Yes: Specify positive findings
Item
Yes: Specify positive findings
text
C1521902 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
Whole-body imaging MRT
Item
Whole-body imaging MRT
boolean
C0024485 (UMLS CUI [1,1])
C0444584 (UMLS CUI [1,2])
Yes: Date whole-body imaging MRT
Item
Yes: Date whole-body imaging MRT
date
C0011008 (UMLS CUI [1,1])
C0024485 (UMLS CUI [1,2])
C0444584 (UMLS CUI [1,3])
Yes: Specify positive findings
Item
Yes: Specify positive findings
text
C1521902 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
PET-CT
Item
PET-CT
boolean
C1699633 (UMLS CUI [1,1])
Yes: Date PET-CT
Item
Yes: Date PET-CT
date
C0011008 (UMLS CUI [1,1])
C1699633 (UMLS CUI [1,2])
Yes: Specify positive findings
Item
Yes: Specify positive findings
text
C1521902 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
Other paraganglioma or malignancies detected?
Item
Other paraganglioma or malignancies detected?
text
C0205394 (UMLS CUI [1,1])
C0006826 (UMLS CUI [1,2])
C0030421 (UMLS CUI [1,3])
C1511790 (UMLS CUI [1,4])
Imaging data available for research?
Item
Imaging data available for research?
boolean
C0470187 (UMLS CUI [1,1])
C0011923 (UMLS CUI [1,2])
C1511726 (UMLS CUI [1,3])
C0008972 (UMLS CUI [1,4])