Englisch

This CMT disability survey table contains participant IDs, disability survey about using scooter, walker, shoe insert, wheel chair, cane, and ankle foot orthoses, if walks or bed bound, gender, age, if Charcot-Marie-Tooth disease (CMT) or not, CMT genetic type, personal identities, race, form name and status, visit and visit age, and DMCC record ID.

4 Formulare  
pht006238
Beschreibung

pht006238

Alias
UMLS CUI [1,1]
C3846158
Masked Participant Identifier
Beschreibung

baseline

Datentyp

float

Alias
UMLS CUI [1,1]
C1555580
UMLS CUI [1,2]
C2348585
Uses a scooter all the time Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0557777
UMLS CUI [1,3]
C3812891
UMLS CUI [1,4]
C0678257
Uses a scooter all the time Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0557777
UMLS CUI [1,3]
C3812891
UMLS CUI [1,4]
C2347373
Uses a walker some times Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0043016
UMLS CUI [1,3]
C3827992
UMLS CUI [1,4]
C0678257
Uses a walker some times Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0043016
UMLS CUI [1,3]
C3827992
UMLS CUI [1,4]
C2347373
Uses Ankle Foot Orthosis AFO leg brace on one leg Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C0678257
Uses Ankle Foot Orthosis on one leg Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C2347373
Uses a shoe insert or similar foot orthosis on one foot Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C1283250
UMLS CUI [1,3]
C1736940
UMLS CUI [1,4]
C0678257
Uses a shoe insert or similar foot orthosis on one foot Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C1283250
UMLS CUI [1,3]
C1736940
UMLS CUI [1,4]
C2347373
Bed bound Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0425251
UMLS CUI [1,2]
C0678257
Bed bound Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0425251
UMLS CUI [1,2]
C2347373
Walks noticeably differently than other people but does not require any aid to walk Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1705242
UMLS CUI [1,2]
C2712089
UMLS CUI [1,3]
C0332288
UMLS CUI [1,4]
C0557834
UMLS CUI [1,5]
C0678257
Walks noticeably differently Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C2712089
UMLS CUI [1,2]
C1705242
UMLS CUI [1,3]
C2347373
Uses a shoe insert or similar foot orthosis on both feet Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C1283250
UMLS CUI [1,3]
C1736940
UMLS CUI [1,4]
C0230473
UMLS CUI [1,5]
C0678257
Uses a shoe insert on both feet Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C1736940
UMLS CUI [1,3]
C0230473
UMLS CUI [1,4]
C2347373
Uses a wheelchair some times Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0853966
UMLS CUI [1,2]
C3827992
UMLS CUI [1,3]
C0678257
Uses a wheelchair some times Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0853966
UMLS CUI [1,2]
C3827992
UMLS CUI [1,3]
C2347373
Uses Ankle Foot Orthoses braces on both legs Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0182083
UMLS CUI [1,3]
C1706086
UMLS CUI [1,4]
C1140621
UMLS CUI [1,5]
C0678257
Uses Ankle Foot Orthoses braces on both legs Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0182083
UMLS CUI [1,3]
C1706086
UMLS CUI [1,4]
C1140621
UMLS CUI [1,5]
C2347373
Uses one Cane Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0920240
UMLS CUI [1,2]
C0678257
Uses one Cane Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0920240
UMLS CUI [1,2]
C2347373
Uses Ankle Foot Orthosesbraces plus one cane Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C0920240
UMLS CUI [1,4]
C0678257
Uses Ankle Foot Orthosesbraces plus one cane Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C0920240
UMLS CUI [1,4]
C2347373
Uses Ankle Foot Orthoses braces plus 2 canes Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C0205448
UMLS CUI [1,4]
C0920240
UMLS CUI [1,5]
C0678257
Uses Ankle Foot Orthoses braces plus 2 canes Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C0920240
UMLS CUI [1,4]
C2347373
Uses a 4point cane Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3874140
UMLS CUI [1,3]
C0678257
Uses a 4point cane Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3874140
UMLS CUI [1,3]
C2347373
Uses two canes Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0205448
UMLS CUI [1,2]
C0920240
UMLS CUI [1,3]
C0678257
Uses two canes Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0205448
UMLS CUI [1,2]
C0920240
UMLS CUI [1,3]
C0678257
Uses Ankle Foot Orthosesleg braces plus a 4 point cane Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C3874140
UMLS CUI [1,4]
C0678257
Uses Ankle Foot Orthosesleg braces plus a 4 point cane Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C3874140
UMLS CUI [1,4]
C2347373
Uses a walker all the time Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0920121
UMLS CUI [1,2]
C3812891
UMLS CUI [1,3]
C0678257
Uses a walker all the time Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0920121
UMLS CUI [1,2]
C3812891
UMLS CUI [1,3]
C2347373
Uses a walker plus Ankle Foot Orthoses leg braces Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0920121
UMLS CUI [1,2]
C1524063
UMLS CUI [1,3]
C3843016
UMLS CUI [1,4]
C0678257
Uses a walker plus Ankle Foot Orthoses leg braces Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C3843016
UMLS CUI [1,3]
C0920121
UMLS CUI [1,4]
C2347373
Uses a wheelchair all the time Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0853966
UMLS CUI [1,2]
C3812891
UMLS CUI [1,3]
C0678257
Uses a wheelchair all the time Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0853966
UMLS CUI [1,2]
C3812891
UMLS CUI [1,3]
C2347373
Uses a scooter some times Descriptor
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0557777
UMLS CUI [1,3]
C3827992
UMLS CUI [1,4]
C0678257
Uses a scooter some times Numeric (where 0 = no disability and 10 = completely disabled)
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0557777
UMLS CUI [1,3]
C2347373
Please select the best description of your ethnicity
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1522427
UMLS CUI [1,2]
C0678257
UMLS CUI [1,3]
C0015031
Which best describes your gender
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1522427
UMLS CUI [1,2]
C0678257
UMLS CUI [1,3]
C0079399
Do you have CMT
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0007959
If yes please indicate if you know the genetic type for example CMT1A CMTX etc
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0314603
UMLS CUI [1,3]
C0332307
UMLS CUI [1,4]
C0007959
CMT genetic type
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0007959
UMLS CUI [1,2]
C0314603
UMLS CUI [1,3]
C0332307
What is your age in years
Beschreibung

baseline

Datentyp

float

Alias
UMLS CUI [1,1]
C0001779
Identifyyourself: Genetic Counselor
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0681906
UMLS CUI [1,2]
C0587719
Identifyyourself: Other
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0681906
UMLS CUI [1,2]
C0205394
Identifyyourself: Patient
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0681906
UMLS CUI [1,2]
C1299487
Identifyyourself: Physical Therapist
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0681906
UMLS CUI [1,2]
C1704312
UMLS CUI [1,3]
C0949766
Identifyyourself: Physician
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0681906
UMLS CUI [1,2]
C0031831
Yourrace: American Indian or Alaska Native
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C1515945
Yourrace: Asian
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0078988
Yourrace: Black or African American
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [2,1]
C0085756
Yourrace: Native Hawaiian or Other Pacific Islander
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C1513907
Yourrace: Other
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0205394
Yourrace: Refused
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C1705116
Yourrace: Unknown
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0439673
Yourrace: Unknown or not reported
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0439673
UMLS CUI [1,3]
C1706613
Yourrace: White
Beschreibung

baseline

Datentyp

text

Alias
UMLS CUI [1,1]
C0034510
UMLS CUI [1,2]
C0007457
Form name
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C3242370
Visit
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C0545082
Form Status
Beschreibung

baseline

Datentyp

string

Alias
UMLS CUI [1,1]
C1516308
UMLS CUI [1,2]
C0449438
Data Managament Coordinating Center Internal Identifier
Beschreibung

baseline

Datentyp

float

Alias
UMLS CUI [1,1]
C3274381
UMLS CUI [1,2]
C1711341
Computed Age (in days) at visit (where DOB provided)
Beschreibung

baseline

Datentyp

float

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C1320303
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Ähnliche Modelle

This CMT disability survey table contains participant IDs, disability survey about using scooter, walker, shoe insert, wheel chair, cane, and ankle foot orthoses, if walks or bed bound, gender, age, if Charcot-Marie-Tooth disease (CMT) or not, CMT genetic type, personal identities, race, form name and status, visit and visit age, and DMCC record ID.

4 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
pht006238
C3846158 (UMLS CUI [1,1])
maskid
Item
Masked Participant Identifier
float
C1555580 (UMLS CUI [1,1])
C2348585 (UMLS CUI [1,2])
UsesascooterallthetimeDescript
Item
Uses a scooter all the time Descriptor
string
C1524063 (UMLS CUI [1,1])
C0557777 (UMLS CUI [1,2])
C3812891 (UMLS CUI [1,3])
C0678257 (UMLS CUI [1,4])
UsesascooterallthetimeNumeric
Item
Uses a scooter all the time Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C0557777 (UMLS CUI [1,2])
C3812891 (UMLS CUI [1,3])
C2347373 (UMLS CUI [1,4])
UsesawalkersometimesDescriptor
Item
Uses a walker some times Descriptor
string
C1524063 (UMLS CUI [1,1])
C0043016 (UMLS CUI [1,2])
C3827992 (UMLS CUI [1,3])
C0678257 (UMLS CUI [1,4])
UsesawalkersometimesNumeric
Item
Uses a walker some times Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C0043016 (UMLS CUI [1,2])
C3827992 (UMLS CUI [1,3])
C2347373 (UMLS CUI [1,4])
UsesAnkleFootOrthosisononelegD
Item
Uses Ankle Foot Orthosis AFO leg brace on one leg Descriptor
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
UsesAnkleFootOrthosisononelegN
Item
Uses Ankle Foot Orthosis on one leg Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C2347373 (UMLS CUI [1,3])
UsesashoeinsertononefootDescri
Item
Uses a shoe insert or similar foot orthosis on one foot Descriptor
string
C1524063 (UMLS CUI [1,1])
C1283250 (UMLS CUI [1,2])
C1736940 (UMLS CUI [1,3])
C0678257 (UMLS CUI [1,4])
UsesashoeinsertononefootNumeri
Item
Uses a shoe insert or similar foot orthosis on one foot Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C1283250 (UMLS CUI [1,2])
C1736940 (UMLS CUI [1,3])
C2347373 (UMLS CUI [1,4])
BedboundDescriptor
Item
Bed bound Descriptor
string
C0425251 (UMLS CUI [1,1])
C0678257 (UMLS CUI [1,2])
BedboundNumeric
Item
Bed bound Numeric (where 0 = no disability and 10 = completely disabled)
string
C0425251 (UMLS CUI [1,1])
C2347373 (UMLS CUI [1,2])
WalksnoticeablydifferentlyDesc
Item
Walks noticeably differently than other people but does not require any aid to walk Descriptor
string
C1705242 (UMLS CUI [1,1])
C2712089 (UMLS CUI [1,2])
C0332288 (UMLS CUI [1,3])
C0557834 (UMLS CUI [1,4])
C0678257 (UMLS CUI [1,5])
WalksnoticeablydifferentlyNume
Item
Walks noticeably differently Numeric (where 0 = no disability and 10 = completely disabled)
string
C2712089 (UMLS CUI [1,1])
C1705242 (UMLS CUI [1,2])
C2347373 (UMLS CUI [1,3])
UsesashoeinsertonbothfeetDescr
Item
Uses a shoe insert or similar foot orthosis on both feet Descriptor
string
C1524063 (UMLS CUI [1,1])
C1283250 (UMLS CUI [1,2])
C1736940 (UMLS CUI [1,3])
C0230473 (UMLS CUI [1,4])
C0678257 (UMLS CUI [1,5])
UsesashoeinsertonbothfeetNumer
Item
Uses a shoe insert on both feet Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C1736940 (UMLS CUI [1,2])
C0230473 (UMLS CUI [1,3])
C2347373 (UMLS CUI [1,4])
UsesawheelchairsometimesDescri
Item
Uses a wheelchair some times Descriptor
string
C0853966 (UMLS CUI [1,1])
C3827992 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
UsesawheelchairsometimesNumeri
Item
Uses a wheelchair some times Numeric (where 0 = no disability and 10 = completely disabled)
string
C0853966 (UMLS CUI [1,1])
C3827992 (UMLS CUI [1,2])
C2347373 (UMLS CUI [1,3])
UsesAnkleFootOrthosesonbothleg
Item
Uses Ankle Foot Orthoses braces on both legs Descriptor
string
C1524063 (UMLS CUI [1,1])
C0182083 (UMLS CUI [1,2])
C1706086 (UMLS CUI [1,3])
C1140621 (UMLS CUI [1,4])
C0678257 (UMLS CUI [1,5])
UsesAnkleFootOrthosesonbothleg2
Item
Uses Ankle Foot Orthoses braces on both legs Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C0182083 (UMLS CUI [1,2])
C1706086 (UMLS CUI [1,3])
C1140621 (UMLS CUI [1,4])
C2347373 (UMLS CUI [1,5])
UsesoneCaneDescriptor
Item
Uses one Cane Descriptor
string
C0920240 (UMLS CUI [1,1])
C0678257 (UMLS CUI [1,2])
UsesoneCaneNumeric
Item
Uses one Cane Numeric (where 0 = no disability and 10 = completely disabled)
string
C0920240 (UMLS CUI [1,1])
C2347373 (UMLS CUI [1,2])
UsesAnkleFootOrthosesplusoneca
Item
Uses Ankle Foot Orthosesbraces plus one cane Descriptor
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C0920240 (UMLS CUI [1,3])
C0678257 (UMLS CUI [1,4])
UsesAnkleFootOrthosesplusoneca2
Item
Uses Ankle Foot Orthosesbraces plus one cane Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C0920240 (UMLS CUI [1,3])
C2347373 (UMLS CUI [1,4])
UsesAnkleFootOrthosesplus2cane
Item
Uses Ankle Foot Orthoses braces plus 2 canes Descriptor
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C0205448 (UMLS CUI [1,3])
C0920240 (UMLS CUI [1,4])
C0678257 (UMLS CUI [1,5])
UsesAnkleFootOrthosesplus2cane2
Item
Uses Ankle Foot Orthoses braces plus 2 canes Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C0920240 (UMLS CUI [1,3])
C2347373 (UMLS CUI [1,4])
Usesa4pointcaneDescriptor
Item
Uses a 4point cane Descriptor
string
C1524063 (UMLS CUI [1,1])
C3874140 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
Usesa4pointcaneNumeric
Item
Uses a 4point cane Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C3874140 (UMLS CUI [1,2])
C2347373 (UMLS CUI [1,3])
UsestwocanesDescriptor
Item
Uses two canes Descriptor
string
C0205448 (UMLS CUI [1,1])
C0920240 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
UsestwocanesNumeric
Item
Uses two canes Numeric (where 0 = no disability and 10 = completely disabled)
string
C0205448 (UMLS CUI [1,1])
C0920240 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
UsesAnkleFootOrthosesplusa4poi
Item
Uses Ankle Foot Orthosesleg braces plus a 4 point cane Descriptor
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C3874140 (UMLS CUI [1,3])
C0678257 (UMLS CUI [1,4])
UsesAnkleFootOrthosesplusa4poi2
Item
Uses Ankle Foot Orthosesleg braces plus a 4 point cane Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C3874140 (UMLS CUI [1,3])
C2347373 (UMLS CUI [1,4])
UsesawalkerallthetimeDescripto
Item
Uses a walker all the time Descriptor
string
C0920121 (UMLS CUI [1,1])
C3812891 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
UsesawalkerallthetimeNumeric
Item
Uses a walker all the time Numeric (where 0 = no disability and 10 = completely disabled)
string
C0920121 (UMLS CUI [1,1])
C3812891 (UMLS CUI [1,2])
C2347373 (UMLS CUI [1,3])
UsesawalkerplusAnkleFootOrthos
Item
Uses a walker plus Ankle Foot Orthoses leg braces Descriptor
string
C0920121 (UMLS CUI [1,1])
C1524063 (UMLS CUI [1,2])
C3843016 (UMLS CUI [1,3])
C0678257 (UMLS CUI [1,4])
UsesawalkerplusAnkleFootOrthos2
Item
Uses a walker plus Ankle Foot Orthoses leg braces Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C3843016 (UMLS CUI [1,2])
C0920121 (UMLS CUI [1,3])
C2347373 (UMLS CUI [1,4])
UsesawheelchairDescriptor
Item
Uses a wheelchair all the time Descriptor
string
C0853966 (UMLS CUI [1,1])
C3812891 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
UsesawheelchairNumeric
Item
Uses a wheelchair all the time Numeric (where 0 = no disability and 10 = completely disabled)
string
C0853966 (UMLS CUI [1,1])
C3812891 (UMLS CUI [1,2])
C2347373 (UMLS CUI [1,3])
UsesascooterDescriptor
Item
Uses a scooter some times Descriptor
string
C1524063 (UMLS CUI [1,1])
C0557777 (UMLS CUI [1,2])
C3827992 (UMLS CUI [1,3])
C0678257 (UMLS CUI [1,4])
UsesascooterNumeric
Item
Uses a scooter some times Numeric (where 0 = no disability and 10 = completely disabled)
string
C1524063 (UMLS CUI [1,1])
C0557777 (UMLS CUI [1,2])
C2347373 (UMLS CUI [1,3])
Yourethnicity
Item
Please select the best description of your ethnicity
string
C1522427 (UMLS CUI [1,1])
C0678257 (UMLS CUI [1,2])
C0015031 (UMLS CUI [1,3])
Yourgender
Item
Which best describes your gender
string
C1522427 (UMLS CUI [1,1])
C0678257 (UMLS CUI [1,2])
C0079399 (UMLS CUI [1,3])
DoyouhaveCMT
Item
Do you have CMT
string
C0007959 (UMLS CUI [1,1])
YourCMTthegenetictype
Item
If yes please indicate if you know the genetic type for example CMT1A CMTX etc
string
C1521902 (UMLS CUI [1,1])
C0314603 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])
C0007959 (UMLS CUI [1,4])
CMTgenetictype
Item
CMT genetic type
string
C0007959 (UMLS CUI [1,1])
C0314603 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])
Whatisyourageinyears
Item
What is your age in years
float
C0001779 (UMLS CUI [1,1])
Item
Identifyyourself: Genetic Counselor
text
C0681906 (UMLS CUI [1,1])
C0587719 (UMLS CUI [1,2])
Identifyyourself_GeneticCounselo
Code List
Identifyyourself: Genetic Counselor
CL Item
Box Was Checked (1)
Item
Identifyyourself: Other
text
C0681906 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Identifyyourself_Other
Code List
Identifyyourself: Other
CL Item
Box Was Checked (1)
Item
Identifyyourself: Patient
text
C0681906 (UMLS CUI [1,1])
C1299487 (UMLS CUI [1,2])
Identifyyourself_Patient
Code List
Identifyyourself: Patient
CL Item
Box Was Checked (1)
Item
Identifyyourself: Physical Therapist
text
C0681906 (UMLS CUI [1,1])
C1704312 (UMLS CUI [1,2])
C0949766 (UMLS CUI [1,3])
Identifyyourself_PhysicalTherapi
Code List
Identifyyourself: Physical Therapist
CL Item
Box Was Checked (1)
Item
Identifyyourself: Physician
text
C0681906 (UMLS CUI [1,1])
C0031831 (UMLS CUI [1,2])
Identifyyourself_Physician
Code List
Identifyyourself: Physician
CL Item
Box Was Checked (1)
Item
Yourrace: American Indian or Alaska Native
text
C0034510 (UMLS CUI [1,1])
C1515945 (UMLS CUI [1,2])
Yourrace_AmericanIndianorAlaskaN
Code List
Yourrace: American Indian or Alaska Native
CL Item
Box Was Checked (1)
Item
Yourrace: Asian
text
C0034510 (UMLS CUI [1,1])
C0078988 (UMLS CUI [1,2])
Yourrace_Asian
Code List
Yourrace: Asian
CL Item
Box Was Checked (1)
Item
Yourrace: Black or African American
text
C0034510 (UMLS CUI [1,1])
C0085756 (UMLS CUI [2,1])
Yourrace_BlackorAfricanAmerican
Code List
Yourrace: Black or African American
CL Item
Box Was Checked (1)
Item
Yourrace: Native Hawaiian or Other Pacific Islander
text
C0034510 (UMLS CUI [1,1])
C1513907 (UMLS CUI [1,2])
Yourrace_NativeHawaiianorOtherPa
Code List
Yourrace: Native Hawaiian or Other Pacific Islander
CL Item
Box Was Checked (1)
Item
Yourrace: Other
text
C0034510 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Yourrace_Other
Code List
Yourrace: Other
CL Item
Box Was Checked (1)
Item
Yourrace: Refused
text
C0034510 (UMLS CUI [1,1])
C1705116 (UMLS CUI [1,2])
Yourrace_Refused
Code List
Yourrace: Refused
CL Item
Box Was Checked (1)
Item
Yourrace: Unknown
text
C0034510 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
Yourrace_Unknown
Code List
Yourrace: Unknown
CL Item
Box Was Checked (1)
Item
Yourrace: Unknown or not reported
text
C0034510 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C1706613 (UMLS CUI [1,3])
Yourrace_Unknownornotreported
Code List
Yourrace: Unknown or not reported
CL Item
Box Was Checked (1)
Item
Yourrace: White
text
C0034510 (UMLS CUI [1,1])
C0007457 (UMLS CUI [1,2])
Yourrace_White
Code List
Yourrace: White
CL Item
Box Was Checked (1)
Form_Name
Item
Form name
string
C3242370 (UMLS CUI [1,1])
Visit
Item
Visit
string
C0545082 (UMLS CUI [1,1])
Form_Status
Item
Form Status
string
C1516308 (UMLS CUI [1,1])
C0449438 (UMLS CUI [1,2])
DMCC_record_id
Item
Data Managament Coordinating Center Internal Identifier
float
C3274381 (UMLS CUI [1,1])
C1711341 (UMLS CUI [1,2])
visit_age
Item
Computed Age (in days) at visit (where DOB provided)
float
C0001779 (UMLS CUI [1,1])
C1320303 (UMLS CUI [1,2])
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