Anglais

The data table (n=21 variables) contains information from AREDS participants' lens photographs, including degree of nuclear sclerosis, cortical and posterior subcapsular opacities, and iris pigmentation. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.

19 Formulaires  
  1. StudyEvent: SEV1
    1. The data table (n=142 variables) contains AMD and cataract phenotype information, medical history and socio-demographic information drawn from several data sets (e.g. enrollment_randomization, amdlensphenotype, followup), plus a unique patient identifier (ID2) for participants with a genetic specimen (to be found only in GENSPECPHENOTYPE and GENSPECFUNDUSLENS [pht000376] tables). Nuclear, cortical and posterior subcapsular opacity information is included for both eyes at baseline and end of study. Other disease information (e.g. diabetes, cancer, angina), medical information (e.g. BMI, blood pressure) and smoking status are also included annually throughout follow-up.
    2. The data table (n=12 variables) contains information about the occurrence of adverse events during the AREDS clinical trial, e.g. type of adverse event, severity, primary ICD9 code, outcome, potential relationship to study drug, timing, and treatment. Data were collected through the clinical trial and for the first 6 months of the natural history follow-up immediately after the clinical trial concluded. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    3. The data table (n=25 variables) contains detailed information about cataract phenotypes (n=23 variables) as well as final AMD phenotype (n=1 variable), and patient ID. Nuclear, cortical and posterior subcapsular opacity information is included for both eyes at baseline and end of study. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    4. The data table (n=56 variables) contains information about AREDS participants' dietary intake of alcohol, amino acids, carbohydrates, fiber, poly- and monounsaturated fatty acids, proteins, vitamins and minerals. Participants' glycemic index and glycemic load are also included. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    5. The data table (n=102 variables) contains AREDS treatment assignment, basic socio-demographic characteristics and baseline medical history for AREDS participants. Medical history information includes eye disease information such as AMD Category, visual acuity, and past ophthalmic treatments (e.g. cataract surgery, laser treatment), as well as information about the presence/absence of other diseases (e.g. angina, arthritis, cancer, diabetes, high blood pressure), use of prescribed drugs for disease management (e.g. blood-thinning medications, digoxin, thyroid hormones, insulin), use of over-the-counter drugs (e.g. NSAIDs, antacids), intake of vitamins and minerals, and smoking history. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    6. The data table (n=83 variables) contains information obtained at follow-up visits during the AREDS clinical trial (every six months following randomization), annually in person during the natural history follow-up, and via phone between annual in-person visits. Variables include information about AREDS participants' ophthalmic medical history (e.g. cataract or other eye surgery, laser treatment for AMD, retinal repair, capsulotomy, presence/absence of lens, glaucoma, and visual acuity) and general medical information, including new diagnoses of cancer, heart disease, stroke, and peripheral vascular disease, disease history of angina and high blood pressure, current disease status of diabetes, arthritis, and gout, use of prescribed drugs for disease treatment or management (e.g. blood-thinning medications, digoxin, thyroid hormones, insulin), use of over-the-counter drugs (e.g. NSAIDs, antacids), and smoking behavior. For version 3 release of the study, visual acuity data of the right eye have been added for odd-numbered visits. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    7. The data table (n=49 variables) contains information from AREDS participants' fundus photographs, including presence, type, and extent of drusen, presence/extent of RPE depigmentation, SSR (serous sensory retinal) detachments, subretinal hemorrhages, subretinal fibrosis, and geographic atrophy. In addition, information on photocoagulation (PC) treatment for AMD SRNV is included, as well as AMD Severity Scale Scores and AMD Simple Scale Scores calculated from the fundus data. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    8. The data table (n=62) contains information only for AREDS participants who have a genetic specimen. A unique patient identifier (ID2 field) for these participants (to be found only in GENSPECPHENOTYPE [pht000001.v2.p1] and GENSPECFUNDUSLENS data tables) is included instead of the patient identifier used for data tables with all participants (ID field). Information about fundus and lens characteristics are included as follows - fundus: presence, type, and extent of drusen, presence/extent of RPE depigmentation, SSR (serous sensory retinal) detachments, subretinal hemorrhages, subretinal fibrosis, and geographic atrophy; lens: degree of nuclear sclerosis, cortical and posterior subcapsular opacities, and iris pigmentation. In addition, information on photocoagulation (PC) treatment for AMD is included as well as AMD Severity Scale Scores and AMD Simple Scale Scores calculated from the fundus data.
    9. The data table (n=6 variables) contains information about AREDS participant hospitalizations (e.g. reason, time from randomization, duration, primary ICD9 code) during the entire study. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    10. The data table (n=21 variables) contains information from AREDS participants' lens photographs, including degree of nuclear sclerosis, cortical and posterior subcapsular opacities, and iris pigmentation. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    11. The data table (n=7 variables) contains information about AREDS participant deaths (e.g. cause, time from randomization) during the entire study. A search using the National Death Index (NDI) yielded additional deaths not identified during the study. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    12. The data table (n=44 variables) contains information about AREDS participants' use (e.g. type, frequency, dose, duration) of non-steroidal anti-inflammatory drugs (e.g. aspirin, ibuprofen, acetaminophen, naproxen). Data were collected at in-clinic visits starting in October 2004. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    13. The data table (n=16 variables) contains information about AREDS participants' general vision status (e.g. general vision score, ocular pain score, VFQ overall score), and its effect on participants' behavior (e.g. near and distant activities, social activities, driving, mental health score) as obtained through the VFQ-25 questionnaire. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    14. Subject - Consent Information
    15. Subject - Sample Mapping (including mapping to Coriell IDs)
    16. The data table (n=2 variables) contains information on subjects' annual exposure to sunlight (hours; April through September).
    17. This dataset provides refractive error values obtained from control subjects of the AREDS study (phs000001.v3.p1) and represents a substudy of AREDS ; data of n=7 new variables are provided in addition to basic sociodemographic data. Subject - consent and subject - sample mapping information is available through phs000001.v3.p1.
    18. This dataset provides refractive error values obtained from control subjects of the AREDS study (phs000001.v3.p1) and represents a substudy of AREDS ; data of n=7 new variables are provided in addition to basic sociodemographic data. Subject - consent and subject - sample mapping information is available through phs000001.v3.p1.
    19. This dataset provides refractive error values obtained from control subjects of the AREDS study (phs000001.v3.p1) and represents a substudy of AREDS ; data of n=7 new variables are provided in addition to basic sociodemographic data. Subject - consent and subject - sample mapping information is available through phs000001.v3.p1.
pht000379.v2.p1
Description

pht000379.v2.p1

DUMMY ID NUMBER
Description

ID2

Type de données

string

STUDY VISIT NUMBER (ALL PARTICIPANTS)
Description

VISNO

Type de données

text

IRIS PIGMENTATION RT EYE (ALL PARTICIPANTS)
Description

REIRISCO

Type de données

text

NUCLEAR COLOR RT EYE (ALL PARTICIPANTS)
Description

RENUCCOL

Type de données

text

NUCLEAR SCLEROSIS RT EYE (ALL PARTICIPANTS)
Description

RENUCSCL

Type de données

float

CORTICAL OPACITY W/IN 5 MM RT EYE (ALL PARTICIPANTS)
Description

REPCTCOL

Type de données

float

PSC OPACITY W/IN 5 MM RT EYE (ALL PARTICIPANTS)
Description

REPCTPSC

Type de données

float

CORTICAL OPACITY IN WHOLE FIELD RT EYE (ALL PARTICIPANTS)
Description

REPCTCOA

Type de données

float

IRIS PIGMENTATION LT EYE (ALL PARTICIPANTS)
Description

LEIRISCO

Type de données

text

NUCLEAR COLOR LT EYE (ALL PARTICIPANTS)
Description

LENUCCOL

Type de données

text

NUCLEAR SCLEROSIS LT EYE (ALL PARTICIPANTS)
Description

LENUCSCL

Type de données

float

CORTICAL OPACITY W/IN 5 MM LT EYE (ALL PARTICIPANTS)
Description

LEPCTCOL

Type de données

float

PSC OPACITY W/IN 5 MM LT EYE (ALL PARTICIPANTS)
Description

LEPCTPSC

Type de données

float

CORTICAL OPACITY IN WHOLE FIELD LT EYE (ALL PARTICIPANTS)
Description

LEPCTCOA

Type de données

float

NUCLEAR SCLEROSIS RT EYE - RESCALED (ALL PARTICIPANTS)
Description

RENUCADJ

Type de données

float

NUCLEAR SCLEROSIS LT EYE - RESCALED (ALL PARTICIPANTS)
Description

LENUCADJ

Type de données

float

YEARS FROM RANDOMIZATION TO DATE OF NEITZ PHOTO RT EYE (ALL PARTICIPANTS)
Description

RENZTIME

Type de données

float

YEARS FROM RANDOMIZATION TO DATE OF SLIT LAMP PHOTO RT EYE (ALL PARTICIPANTS)
Description

RESLTIME

Type de données

float

YEARS FROM RANDOMIZATION TO DATE OF NEITZ PHOTO LT EYE (ALL PARTICIPANTS)
Description

LENZTIME

Type de données

float

YEARS FROM RANDOMIZATION TO DATE OF SLIT LAMP PHOTO LT EYE (ALL PARTICIPANTS)
Description

LESLTIME

Type de données

float

LAST PHOTO IN CLINICAL TRIAL (ALL PARTICIPANTS)
Description

LASTCLINL

Type de données

text

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Similar models

The data table (n=21 variables) contains information from AREDS participants' lens photographs, including degree of nuclear sclerosis, cortical and posterior subcapsular opacities, and iris pigmentation. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.

19 Formulaires
  1. StudyEvent: SEV1
    1. The data table (n=142 variables) contains AMD and cataract phenotype information, medical history and socio-demographic information drawn from several data sets (e.g. enrollment_randomization, amdlensphenotype, followup), plus a unique patient identifier (ID2) for participants with a genetic specimen (to be found only in GENSPECPHENOTYPE and GENSPECFUNDUSLENS [pht000376] tables). Nuclear, cortical and posterior subcapsular opacity information is included for both eyes at baseline and end of study. Other disease information (e.g. diabetes, cancer, angina), medical information (e.g. BMI, blood pressure) and smoking status are also included annually throughout follow-up.
    2. The data table (n=12 variables) contains information about the occurrence of adverse events during the AREDS clinical trial, e.g. type of adverse event, severity, primary ICD9 code, outcome, potential relationship to study drug, timing, and treatment. Data were collected through the clinical trial and for the first 6 months of the natural history follow-up immediately after the clinical trial concluded. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    3. The data table (n=25 variables) contains detailed information about cataract phenotypes (n=23 variables) as well as final AMD phenotype (n=1 variable), and patient ID. Nuclear, cortical and posterior subcapsular opacity information is included for both eyes at baseline and end of study. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    4. The data table (n=56 variables) contains information about AREDS participants' dietary intake of alcohol, amino acids, carbohydrates, fiber, poly- and monounsaturated fatty acids, proteins, vitamins and minerals. Participants' glycemic index and glycemic load are also included. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    5. The data table (n=102 variables) contains AREDS treatment assignment, basic socio-demographic characteristics and baseline medical history for AREDS participants. Medical history information includes eye disease information such as AMD Category, visual acuity, and past ophthalmic treatments (e.g. cataract surgery, laser treatment), as well as information about the presence/absence of other diseases (e.g. angina, arthritis, cancer, diabetes, high blood pressure), use of prescribed drugs for disease management (e.g. blood-thinning medications, digoxin, thyroid hormones, insulin), use of over-the-counter drugs (e.g. NSAIDs, antacids), intake of vitamins and minerals, and smoking history. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    6. The data table (n=83 variables) contains information obtained at follow-up visits during the AREDS clinical trial (every six months following randomization), annually in person during the natural history follow-up, and via phone between annual in-person visits. Variables include information about AREDS participants' ophthalmic medical history (e.g. cataract or other eye surgery, laser treatment for AMD, retinal repair, capsulotomy, presence/absence of lens, glaucoma, and visual acuity) and general medical information, including new diagnoses of cancer, heart disease, stroke, and peripheral vascular disease, disease history of angina and high blood pressure, current disease status of diabetes, arthritis, and gout, use of prescribed drugs for disease treatment or management (e.g. blood-thinning medications, digoxin, thyroid hormones, insulin), use of over-the-counter drugs (e.g. NSAIDs, antacids), and smoking behavior. For version 3 release of the study, visual acuity data of the right eye have been added for odd-numbered visits. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    7. The data table (n=49 variables) contains information from AREDS participants' fundus photographs, including presence, type, and extent of drusen, presence/extent of RPE depigmentation, SSR (serous sensory retinal) detachments, subretinal hemorrhages, subretinal fibrosis, and geographic atrophy. In addition, information on photocoagulation (PC) treatment for AMD SRNV is included, as well as AMD Severity Scale Scores and AMD Simple Scale Scores calculated from the fundus data. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    8. The data table (n=62) contains information only for AREDS participants who have a genetic specimen. A unique patient identifier (ID2 field) for these participants (to be found only in GENSPECPHENOTYPE [pht000001.v2.p1] and GENSPECFUNDUSLENS data tables) is included instead of the patient identifier used for data tables with all participants (ID field). Information about fundus and lens characteristics are included as follows - fundus: presence, type, and extent of drusen, presence/extent of RPE depigmentation, SSR (serous sensory retinal) detachments, subretinal hemorrhages, subretinal fibrosis, and geographic atrophy; lens: degree of nuclear sclerosis, cortical and posterior subcapsular opacities, and iris pigmentation. In addition, information on photocoagulation (PC) treatment for AMD is included as well as AMD Severity Scale Scores and AMD Simple Scale Scores calculated from the fundus data.
    9. The data table (n=6 variables) contains information about AREDS participant hospitalizations (e.g. reason, time from randomization, duration, primary ICD9 code) during the entire study. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    10. The data table (n=21 variables) contains information from AREDS participants' lens photographs, including degree of nuclear sclerosis, cortical and posterior subcapsular opacities, and iris pigmentation. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    11. The data table (n=7 variables) contains information about AREDS participant deaths (e.g. cause, time from randomization) during the entire study. A search using the National Death Index (NDI) yielded additional deaths not identified during the study. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    12. The data table (n=44 variables) contains information about AREDS participants' use (e.g. type, frequency, dose, duration) of non-steroidal anti-inflammatory drugs (e.g. aspirin, ibuprofen, acetaminophen, naproxen). Data were collected at in-clinic visits starting in October 2004. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    13. The data table (n=16 variables) contains information about AREDS participants' general vision status (e.g. general vision score, ocular pain score, VFQ overall score), and its effect on participants' behavior (e.g. near and distant activities, social activities, driving, mental health score) as obtained through the VFQ-25 questionnaire. Note: In version 3, the ID has been replaced by ID2 identifier for all subjects.
    14. Subject - Consent Information
    15. Subject - Sample Mapping (including mapping to Coriell IDs)
    16. The data table (n=2 variables) contains information on subjects' annual exposure to sunlight (hours; April through September).
    17. This dataset provides refractive error values obtained from control subjects of the AREDS study (phs000001.v3.p1) and represents a substudy of AREDS ; data of n=7 new variables are provided in addition to basic sociodemographic data. Subject - consent and subject - sample mapping information is available through phs000001.v3.p1.
    18. This dataset provides refractive error values obtained from control subjects of the AREDS study (phs000001.v3.p1) and represents a substudy of AREDS ; data of n=7 new variables are provided in addition to basic sociodemographic data. Subject - consent and subject - sample mapping information is available through phs000001.v3.p1.
    19. This dataset provides refractive error values obtained from control subjects of the AREDS study (phs000001.v3.p1) and represents a substudy of AREDS ; data of n=7 new variables are provided in addition to basic sociodemographic data. Subject - consent and subject - sample mapping information is available through phs000001.v3.p1.
Name
Type
Description | Question | Decode (Coded Value)
Type de données
Alias
Item Group
pht000379.v2.p1
ID2
Item
DUMMY ID NUMBER
string
Item
STUDY VISIT NUMBER (ALL PARTICIPANTS)
text
VISNO
Code List
STUDY VISIT NUMBER (ALL PARTICIPANTS)
CL Item
Baseline visit (00)
CL Item
0.5-year (01)
CL Item
1-year (02)
CL Item
1.5-years (03)
CL Item
2-years (04)
CL Item
2.5-years (05)
CL Item
3-years (06)
CL Item
3.5-years (07)
CL Item
4-years (08)
CL Item
4.5-years (09)
CL Item
5-years (10)
CL Item
5.5-years (11)
CL Item
6-years (12)
CL Item
6.5-years (13)
CL Item
7-years (14)
CL Item
7.5-years (15)
CL Item
8-years (16)
CL Item
8.5-years (17)
CL Item
9-years (18)
CL Item
9.5-years (19)
CL Item
10-years (20)
CL Item
10.5-years (21)
CL Item
11-years (22)
CL Item
11.5-years (23)
CL Item
12-years (24)
CL Item
12.5-years (25)
CL Item
13-years (26)
Item
IRIS PIGMENTATION RT EYE (ALL PARTICIPANTS)
text
REIRISCO
Code List
IRIS PIGMENTATION RT EYE (ALL PARTICIPANTS)
CL Item
Less than or equal to Std. 1 (1)
CL Item
Less than or equal to Std. 2 (2)
CL Item
Less than or equal to Std. 3 (3)
CL Item
More than Std. 3 (4)
CL Item
Cannot grade (8)
Item
NUCLEAR COLOR RT EYE (ALL PARTICIPANTS)
text
RENUCCOL
Code List
NUCLEAR COLOR RT EYE (ALL PARTICIPANTS)
CL Item
Less than or equal to Std. 2 (1)
CL Item
Less than or equal to Std. 4 (2)
CL Item
Less than or equal to Std. 8 (3)
CL Item
More than Std. 8 (4)
CL Item
Cannot grade (8)
Item
NUCLEAR SCLEROSIS RT EYE (ALL PARTICIPANTS)
float
RENUCSCL
Code List
NUCLEAR SCLEROSIS RT EYE (ALL PARTICIPANTS)
CL Item
Cannot grade (8.8)
REPCTCOL
Item
CORTICAL OPACITY W/IN 5 MM RT EYE (ALL PARTICIPANTS)
float
REPCTPSC
Item
PSC OPACITY W/IN 5 MM RT EYE (ALL PARTICIPANTS)
float
REPCTCOA
Item
CORTICAL OPACITY IN WHOLE FIELD RT EYE (ALL PARTICIPANTS)
float
Item
IRIS PIGMENTATION LT EYE (ALL PARTICIPANTS)
text
LEIRISCO
Code List
IRIS PIGMENTATION LT EYE (ALL PARTICIPANTS)
CL Item
Less than or equal to Std. 1 (1)
CL Item
Less than or equal to Std. 2 (2)
CL Item
Less than or equal to Std. 3 (3)
CL Item
More than Std. 3 (4)
CL Item
Cannot grade (8)
Item
NUCLEAR COLOR LT EYE (ALL PARTICIPANTS)
text
LENUCCOL
Code List
NUCLEAR COLOR LT EYE (ALL PARTICIPANTS)
CL Item
Less than or equal to Std. 2 (1)
CL Item
Less than or equal to Std. 4 (2)
CL Item
Less than or equal to Std. 8 (3)
CL Item
More than Std. 8 (4)
CL Item
Cannot grade (8)
Item
NUCLEAR SCLEROSIS LT EYE (ALL PARTICIPANTS)
float
LENUCSCL
Code List
NUCLEAR SCLEROSIS LT EYE (ALL PARTICIPANTS)
CL Item
Cannot grade (8.8)
LEPCTCOL
Item
CORTICAL OPACITY W/IN 5 MM LT EYE (ALL PARTICIPANTS)
float
LEPCTPSC
Item
PSC OPACITY W/IN 5 MM LT EYE (ALL PARTICIPANTS)
float
LEPCTCOA
Item
CORTICAL OPACITY IN WHOLE FIELD LT EYE (ALL PARTICIPANTS)
float
RENUCADJ
Item
NUCLEAR SCLEROSIS RT EYE - RESCALED (ALL PARTICIPANTS)
float
LENUCADJ
Item
NUCLEAR SCLEROSIS LT EYE - RESCALED (ALL PARTICIPANTS)
float
RENZTIME
Item
YEARS FROM RANDOMIZATION TO DATE OF NEITZ PHOTO RT EYE (ALL PARTICIPANTS)
float
RESLTIME
Item
YEARS FROM RANDOMIZATION TO DATE OF SLIT LAMP PHOTO RT EYE (ALL PARTICIPANTS)
float
LENZTIME
Item
YEARS FROM RANDOMIZATION TO DATE OF NEITZ PHOTO LT EYE (ALL PARTICIPANTS)
float
LESLTIME
Item
YEARS FROM RANDOMIZATION TO DATE OF SLIT LAMP PHOTO LT EYE (ALL PARTICIPANTS)
float
Item
LAST PHOTO IN CLINICAL TRIAL (ALL PARTICIPANTS)
text
LASTCLINL
Code List
LAST PHOTO IN CLINICAL TRIAL (ALL PARTICIPANTS)
CL Item
Yes (Y)
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