Patientenname
Item
Patient Name
text
C1299487 (UMLS CUI [1])
Patiententitel
Item
Patient title
text
C0421450 (UMLS CUI [1])
Patienten-Namenszusatz
Item
Patient name suffix
text
C0030705 (UMLS CUI [1,1])
C1718089 (UMLS CUI [1,2])
Patienten-Vorname
Item
Patient given name
text
C1443235 (UMLS CUI [1])
Patienten-Geburtsname
Item
Patient birth name
text
C1549652 (UMLS CUI [1])
Patient - frühere Namen
Item
Patient previous names
text
C0205156 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Item
Patient gender
integer
C0079399 (UMLS CUI [1])
CL Item
male (1)
C0086582 (UMLS CUI-1)
CL Item
female (2)
C0086287 (UMLS CUI-1)
CL Item
other/intersexual (3)
C0205394 (UMLS CUI-1)
CL Item
unknown (4)
C0439673 (UMLS CUI-1)
Patienten-Geburtsdatum
Item
Patient Birth Date
date
C0421451 (UMLS CUI [1])
Körpergröße
Item
Patient body height
integer
C0005890 (UMLS CUI [1])
Körperoberfläche
Item
Patient body surface area
integer
C0005902 (UMLS CUI [1])
Körpergewicht
Item
Patient body weight
integer
C0005910 (UMLS CUI [1])
Patient - Alter
Item
Patient age (in years)
integer
C0001779 (UMLS CUI [1])
Item
Classification of the diagnosed chronic lymphatic leukemia/ hairy cell leukemia
integer
C0008902 (UMLS CUI [1,1])
C0023418 (UMLS CUI [1,2])
Code List
Classification of the diagnosed chronic lymphatic leukemia/ hairy cell leukemia
CL Item
Chronic lymphatic leukemia (C91.1) (1)
(Comment:de)
C0023434 (UMLS CUI-1)
(Comment:en)
CL Item
B-cell prolymphocytic leukemia (C91.3) (2)
(Comment:de)
C1292769 (UMLS CUI-1)
(Comment:en)
CL Item
T-cell prolymphocytic leukemia (C91.6) (3)
(Comment:de)
C1961099 (UMLS CUI-1)
(Comment:en)
CL Item
Atypical chronic lymphatic leukemia (4)
(Comment:de)
C0023434 (UMLS CUI-1)
C0205182 (UMLS CUI-2)
(Comment:en)
CL Item
Hairy cell leukemia (C91.4) (5)
(Comment:de)
C0023443 (UMLS CUI-1)
(Comment:en)
CL Item
Hairy cell leukemia variant (6)
(Comment:de)
C0023443 (UMLS CUI-1)
C0205419 (UMLS CUI-2)
(Comment:en)
Erstdiagnose des Lymphoms
Item
Date of initial diagnosis
date
C2316983 (UMLS CUI [1,1])
C0024299 (UMLS CUI [1,2])
Item
Initial disease: leukemic
integer
C1457887 (UMLS CUI [1,1])
C0439659 (UMLS CUI [1,2])
C1513041 (UMLS CUI [1,3])
C0023418 (UMLS CUI [1,4])
Code List
Initial disease: leukemic
Item
Initial disease: nodal involvement
integer
C1457887 (UMLS CUI [1,1])
C0439659 (UMLS CUI [1,2])
C1513041 (UMLS CUI [1,3])
C0441949 (UMLS CUI [1,4])
Code List
Initial disease: nodal involvement
Item
Present B symptoms: fever
integer
C1706867 (UMLS CUI [1,1])
C0015967 (UMLS CUI [1,2])
Code List
Present B symptoms: fever
Item
Present B symptoms: night sweats
integer
C1706867 (UMLS CUI [1,1])
C0028081 (UMLS CUI [1,2])
Code List
Present B symptoms: night sweats
Item
Present B symptoms: weight loss
integer
C1706867 (UMLS CUI [1,1])
C1262477 (UMLS CUI [1,2])
Code List
Present B symptoms: weight loss
Item
Is there extranodal involvement?
integer
C3899187 (UMLS CUI [1])
Code List
Is there extranodal involvement?
Item
Staging according to Binet staging system
text
C1511118 (UMLS CUI [1])
Code List
Staging according to Binet staging system
CL Item
less than 3 enlarged Lymphnodenregions (A)
(Comment:de)
(Comment:en)
CL Item
more than or equal to 3 enlarged Lymphnodenregions (B)
(Comment:de)
(Comment:en)
CL Item
Hb less than 10,0 g/dl and/or Thrombocytopenia less than 100.000/µl, Lymphnode status irrelevant (C)
(Comment:de)
(Comment:en)
Item
IGHV mutation status
integer
C0021034 (UMLS CUI [1,1])
C0026882 (UMLS CUI [1,2])
Code List
IGHV mutation status
CL Item
mutated (1)
C0026882 (UMLS CUI-1)
(Comment:en)
CL Item
not mutated (2)
C1883559 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
TP53 mutation status
integer
C3897380 (UMLS CUI [1])
Code List
TP53 mutation status
CL Item
mutated (1)
C0026882 (UMLS CUI-1)
(Comment:en)
CL Item
not mutated (2)
C1883559 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
17p deletion
integer
C1517965 (UMLS CUI [1])
CL Item
Existing (1)
C0150312 (UMLS CUI-1)
(Comment:en)
CL Item
Non-existent (2)
C0332197 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
BRAF mutation
integer
C1511021 (UMLS CUI [1])
Spezielle Charakteristika
Item
Special characteristics
text
C1521970 (UMLS CUI [1])
Nebendiagnosen
Item
Please note down the patient´s secondary diagnoses.
text
C0009488 (UMLS CUI [1,1])
C0332138 (UMLS CUI [1,2])
Histopathologischer Befund
Item
Please note down the histopathologic findings.
text
C0428093 (UMLS CUI [1])
Item
Where has the histopathologic examination been performed?
integer
C0677043 (UMLS CUI [1,1])
C0677043 (UMLS CUI [1,2])
C0038951 (UMLS CUI [1,3])
Code List
Where has the histopathologic examination been performed?
CL Item
internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
external (2)
C3844314 (UMLS CUI-1)
(Comment:en)
FISH Befund
Item
Please note down the results of the FISH examination.
text
C0162789 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Item
Where has the FISH examination been performed?
integer
C0162789 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C0450429 (UMLS CUI [1,3])
C0038951 (UMLS CUI [1,4])
Code List
Where has the FISH examination been performed?
CL Item
internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
external (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Durchflusszytometrie Befund
Item
Please note down the results of FACS.
text
C0079366 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Item
Where has the FACS examination been performed?
integer
C0079366 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C0450429 (UMLS CUI [1,3])
Code List
Where has the FACS examination been performed?
CL Item
internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
external (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Knochenmarkpunktion
Item
Please note down the results of the bone marrow biopsy.
text
C0005957 (UMLS CUI [1])
Molekularbiologie
Item
Please note down the results of the molecular-biological examination.
text
C1513388 (UMLS CUI [1])
Immunzytologie
Item
Please note down the immunocytologic results.
text
C0010819 (UMLS CUI [1,1])
C0079611 (UMLS CUI [1,2])
Symptomassessment
Item
Please note down the symptoms of the patient.
text
C3494437 (UMLS CUI [1])
Item
Where have the patient´s symptoms been assessed?
integer
C3494437 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Code List
Where have the patient´s symptoms been assessed?
CL Item
internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
external (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Bildgebung
Item
Please note down the results of diagnostic imaging.
text
C0011923 (UMLS CUI [1])
Item
Where has the diagnostic imaging been performed?
integer
C0011923 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Code List
Where has the diagnostic imaging been performed?
CL Item
internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
external (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Item
Modality of diagnostic imaging
integer
C0332307 (UMLS CUI [1,1])
C0449851 (UMLS CUI [1,2])
C0011923 (UMLS CUI [1,3])
Code List
Modality of diagnostic imaging
CL Item
CT (1)
(Comment:en)
C0040405 (UMLS CUI-1)
(Comment:de)
CL Item
MRT (2)
(Comment:en)
C0024485 (UMLS CUI-1)
(Comment:de)
CL Item
Ultrasound (3)
(Comment:en)
C1456803 (UMLS CUI-1)
(Comment:de)
CL Item
PET (4)
(Comment:en)
C0032743 (UMLS CUI-1)
(Comment:de)
CL Item
Other (5)
(Comment:en)
C0205394 (UMLS CUI-1)
(Comment:de)
Bildgebung - alternative Modalität
Item
Please note down the modality of diagnostic imaging if not listed above.
text
C0332307 (UMLS CUI [1,1])
C0449851 (UMLS CUI [1,2])
C0011923 (UMLS CUI [1,3])
Klassische Zytogenetik
Item
Please note down the results of classic cytogenetics.
text
C0010802 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Item
Where has the classical cytogenetical examination been performed?
integer
C0010802 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Code List
Where has the classical cytogenetical examination been performed?
CL Item
internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
external (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Blutwerte
Item
Please note down the results of blood tests.
text
C0018941 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Item
Where have the blood tests been performed?
integer
C0018941 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Code List
Where have the blood tests been performed?
CL Item
internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
external (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Andere Diagnostik
Item
Please note down the results of other diagnostic procedures performed.
text
C0430022 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Where has the other diagnostic procedure been performed?
integer
C0430022 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Code List
Where has the other diagnostic procedure been performed?
CL Item
internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
external (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Item
The patient´s status
integer
C0449437 (UMLS CUI [1])
Code List
The patient´s status
CL Item
Alive (1)
(Comment:de)
C2584946 (UMLS CUI-1)
(Comment:en)
CL Item
Dead (2)
(Comment:de)
C0011065 (UMLS CUI-1)
(Comment:en)
Item
The primary tumor´s status
text
C0677930 (UMLS CUI [1,1])
C0475752 (UMLS CUI [1,2])
Code List
The primary tumor´s status
CL Item
No tumor detectable (K)
C0006826 (UMLS CUI-1)
C3830527 (UMLS CUI-2)
C1298908 (UMLS CUI-3)
(Comment:en)
CL Item
Remaining tumor (residual tumor) (T)
C0543478 (UMLS CUI-1)
(Comment:en)
CL Item
Remaining tumor (residual tumor) progress (P)
C0543478 (UMLS CUI-1)
C0242656 (UMLS CUI-2)
(Comment:en)
CL Item
Remaining tumor (residual tumor) no changes (N)
C0543478 (UMLS CUI-1)
C0442739 (UMLS CUI-2)
(Comment:en)
CL Item
Local relapse (R)
C0277556 (UMLS CUI-1)
C1517927 (UMLS CUI-2)
(Comment:en)
CL Item
Questionable finding (F)
C0459423 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (U)
C0439673 (UMLS CUI-1)
(Comment:en)
CL Item
Missing information (X)
C1533716 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Letzter Kontakt
Item
Date of last contact
date
C0805839 (UMLS CUI [1])
Item
Karnofsky score
integer
C0206065 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
Code List
Karnofsky score
Item
Performance status
integer
C1520224 (UMLS CUI [1])
Code List
Performance status
CL Item
Fully Active, Able To Carry On All Pre-disease Performance Without Restriction. (Karnofsky 90-100%) (0)
C1828078 (UMLS CUI-1)
(Comment:en)
CL Item
Restricted In Physically Strenuous Activity But Ambulatory And Able To Carry Out Work Of A Light Or Sedentary Nature, E.g., Light Housework, Office Work. (Karnofsky 70-80%) (1)
C1827388 (UMLS CUI-1)
(Comment:en)
CL Item
Ambulatory And Capable Of All Selfcare But Unable To Carry Out Any Work Activities. Up And About More Than 50% Of Waking Hours. (Karnofsky 50-60%) (2)
C1828242 (UMLS CUI-1)
(Comment:en)
CL Item
Capable Of Only Limited Selfcare, Confined To Bed Or Chair More Than 50% Of Waking Hours. (Karnofsky 30-40%) (3)
C1827126 (UMLS CUI-1)
(Comment:en)
CL Item
Completely Disabled. Cannot Carry On Any Selfcare. Totally Confined To Bed Or Chair. (Karnofsky 10-20%) (4)
C1827528 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (5)
C0439673 (UMLS CUI-1)
(Comment:en)
Erkrankung - Therapie
Item
Please note down the disease which has indicated the therapy.
text
C0087111 (UMLS CUI [1,1])
C1314792 (UMLS CUI [1,2])
C0012634 (UMLS CUI [1,3])
Item
Is the therapy ...?
integer
C0087111 (UMLS CUI [1,1])
C1444656 (UMLS CUI [1,2])
C0087111 (UMLS CUI [2,1])
C0549178 (UMLS CUI [2,2])
C0520253 (UMLS CUI [3])
Code List
Is the therapy ...?
CL Item
Indicated (1)
C1444656 (UMLS CUI-1)
(Comment:en)
CL Item
Currently continuing (2)
C0549178 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
(Comment:en)
CL Item
Completed (3)
C0205197 (UMLS CUI-1)
(Comment:en)
Item
Intention of systemic therapy
text
C0162425 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Code List
Intention of systemic therapy
CL Item
Curative (K)
C1276305 (UMLS CUI-1)
(Comment:en)
CL Item
Palliative (P)
C1285530 (UMLS CUI-1)
(Comment:en)
CL Item
Other (S)
C0205394 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (X)
C0439673 (UMLS CUI-1)
(Comment:en)
Startdatum der Therapie
Item
Systemic therapy start date
date
C3173309 (UMLS CUI [1])
Art der Therapie
Item
Type of therapy
text
C0087111 (UMLS CUI [1])
Therapieschema
Item
Systemic therapy protocol. Please give the name of protocol in usual abbreviations.
text
C0949634 (UMLS CUI [1])
Anzahl der durchgeführten Zyklen
Item
Number of therapeutic cycles performed
integer
C0949634 (UMLS CUI [1,1])
C1265611 (UMLS CUI [1,2])
Enddatum der Therapie
Item
Systemic therapy end date
date
C1531784 (UMLS CUI [1])
Therapieansprechen
Item
Please describe the response to treatment.
text
C0521982 (UMLS CUI [1])
Item
Was the therapy part of a study?
integer
C0949266 (UMLS CUI [1])
Code List
Was the therapy part of a study?
Studienbezeichnung
Item
Please note down the name of the study.
text
C2348560 (UMLS CUI [1])
Kommentar
Item
Comments
text
C0947611 (UMLS CUI [1])