Reporting hospital
Item
Reporting hospital / clinic
text
C0019994 (UMLS CUI [1])
Reporting doctor
Item
Reporting doctor
text
C0031831 (UMLS CUI [1])
reporting date
Item
Rapporteringsdatum
date
C1302584 (UMLS CUI [1])
patient number
Item
Personnummer
text
C1830427 (UMLS CUI [1])
Name
Item
Patient Name
text
C1299487 (UMLS CUI [1])
Assessment date
Item
date
C2985720 (UMLS CUI [1])
Follow-up 1 year
Item
boolean
C0420338 (UMLS CUI [1])
Follow-up 3 years
Item
boolean
C1522577 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0205449 (UMLS CUI [1,3])
Hb
Item
float
C0019046 (UMLS CUI [1])
MCV
Item
text
C1948043 (UMLS CUI [1])
White blood cells
Item
float
C0023508 (UMLS CUI [1])
Neutrophil granulocytes
Item
float
C0018183 (UMLS CUI [1])
Neutrophil granulocytes
Item
float
C0018183 (UMLS CUI [1])
Monocytes
Item
float
C0026473 (UMLS CUI [1])
Monocytes
Item
float
C0026473 (UMLS CUI [1])
Blasts in blood
Item
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Blasts in blood
Item
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Platelets
Item
float
C0005821 (UMLS CUI [1])
LDH
Item
float
C0202113 (UMLS CUI [1])
Erythropoetin
Item
float
C0014822 (UMLS CUI [1])
Ferritin
Item
float
C0015879 (UMLS CUI [1])
Item
integer
C2347027 (UMLS CUI [1,1])
C0370003 (UMLS CUI [1,2])
C1515023 (UMLS CUI [1,3])
Code List
Samples to national biobank sent
CL Item
No (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Scheduled but not yet completed (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Patient rejects the biobank / cannot ask (3)
(Comment:en)
C1880386 (UMLS CUI-1)
(Comment:sv)
Code List
Samples are also sent to another biobank
CL Item
Ja (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Which biobank
Item
text
C2347027 (UMLS CUI [1])
Item
integer
C0005957 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Code List
New bone marrow test since diagnosis
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Bone marrow examination date
Item
date
C0005957 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
integer
C0007634 (UMLS CUI [1,1])
C0456205 (UMLS CUI [1,2])
CL Item
100% (1)
C3817553 (UMLS CUI-1)
(Comment:en)
CL Item
90% (2)
(Comment:en)
CL Item
80% (3)
(Comment:en)
CL Item
70% (4)
(Comment:en)
CL Item
60% (5)
(Comment:en)
CL Item
50% (6)
C3842586 (UMLS CUI-1)
(Comment:en)
CL Item
40% (7)
(Comment:en)
CL Item
30% (8)
(Comment:en)
CL Item
20% (9)
(Comment:en)
CL Item
10% (10)
(Comment:en)
CL Item
Cell content missing (11)
(Comment:en)
CL Item
Exact cell content not specified (12)
(Comment:en)
CL Item
Lower cell contents than normal (13)
(Comment:en)
CL Item
Normal cell contents (14)
(Comment:en)
CL Item
Higher cell contents than normal (15)
(Comment:en)
Percentage of blasts in bone marrow
Item
float
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
no blast increase
Item
Exact blast fraction bone marrow not indicated; no blast increase
boolean
C1982687 (UMLS CUI [1,1])
C1518422 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
Proportion of blasts missing
Item
Proportion of blasts missing / cannot be assessed
boolean
C0587348 (UMLS CUI [1,1])
C1705492 (UMLS CUI [1,2])
Item
integer
C0432608 (UMLS CUI [1,1])
C0205217 (UMLS CUI [1,2])
Code List
Ring sideroblasts >=15% of erythropoietic cells
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Fibrosis grade 2-3
integer
C0016059 (UMLS CUI [1])
Code List
Fibrosis grade 2-3
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
integer
C0005957 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0420338 (UMLS CUI [1,3])
Code List
New bone marrow test since year 1 follow-up
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Bone marrow examination date
Item
date
C0005957 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
integer
C0007634 (UMLS CUI [1,1])
C0456205 (UMLS CUI [1,2])
CL Item
100% (1)
C3817553 (UMLS CUI-1)
(Comment:en)
CL Item
90% (2)
(Comment:en)
CL Item
80% (3)
(Comment:en)
CL Item
70% (4)
(Comment:en)
CL Item
60% (5)
(Comment:en)
CL Item
50% (6)
C3842586 (UMLS CUI-1)
(Comment:en)
CL Item
40% (7)
(Comment:en)
CL Item
30% (8)
(Comment:en)
CL Item
20% (9)
(Comment:en)
CL Item
10% (10)
(Comment:en)
CL Item
Cell content missing (11)
(Comment:en)
CL Item
Exact cell content not specified (12)
(Comment:en)
CL Item
Lower cell contents than normal (13)
(Comment:en)
CL Item
Normal cell contents (14)
(Comment:en)
CL Item
Higher cell contents than normal (15)
(Comment:en)
Percentage of blasts in bone marrow
Item
float
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
no blast increase
Item
Exact blast fraction bone marrow not indicated; no blast increase
boolean
C1982687 (UMLS CUI [1,1])
C1518422 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
Proportion of blasts missing
Item
Proportion of blasts missing / cannot be assessed
boolean
C0587348 (UMLS CUI [1,1])
C1705492 (UMLS CUI [1,2])
Item
integer
C0432608 (UMLS CUI [1,1])
C0205217 (UMLS CUI [1,2])
Code List
Ring sideroblasts >=15% of erythropoietic cells
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Fibrosis grade 2-3
integer
C0016059 (UMLS CUI [1])
Code List
Fibrosis grade 2-3
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Cytogenetik utförd
integer
C0010802 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Code List
Cytogenetik utförd
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ja men ej bedömbar (3)
C1707258 (UMLS CUI-1)
(Comment:en)
Cytogenetics date
Item
date
C0010802 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Result of cytogenetics
integer
C0008625 (UMLS CUI [1])
Code List
Result of cytogenetics
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
-Y (2)
(Comment:en)
CL Item
Inv(3),t(3q),del(3q) (3)
(Comment:en)
CL Item
del(5q) (4)
C1521461 (UMLS CUI-1)
(Comment:en)
CL Item
Del(7q) (5)
C1517990 (UMLS CUI-1)
(Comment:en)
CL Item
-7 (6)
(Comment:en)
CL Item
+8 (7)
(Comment:en)
CL Item
Del(11q) (8)
(Comment:en)
CL Item
del(12p) (9)
(Comment:en)
CL Item
i(17q) (10)
(Comment:en)
CL Item
+19 (11)
(Comment:sv)
(Comment:en)
CL Item
del(20q) (12)
(Comment:sv)
(Comment:en)
CL Item
1 deviation (not listed above) (13)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including del(5q) (14)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including -7 or del(7q) (15)
(Comment:sv)
(Comment:en)
CL Item
2 other deviations (16)
(Comment:sv)
(Comment:en)
CL Item
Complex with 3 deviations (17)
(Comment:sv)
(Comment:en)
CL Item
Complex with >3 deviations (18)
(Comment:sv)
(Comment:en)
Karyotype text
Item
text
C1261273 (UMLS CUI [1])
Item
Cytogenetik utförd
integer
C0010802 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0420338 (UMLS CUI [1,3])
Code List
Cytogenetik utförd
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ja men ej bedömbar (3)
C1707258 (UMLS CUI-1)
(Comment:en)
Cytogenetics date
Item
date
C0010802 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
integer
C0008625 (UMLS CUI [1])
Code List
Chromosome aberration
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
-Y (2)
(Comment:en)
CL Item
Inv(3),t(3q),del(3q) (3)
(Comment:en)
CL Item
del(5q) (4)
C1521461 (UMLS CUI-1)
(Comment:en)
CL Item
Del(7q) (5)
C1517990 (UMLS CUI-1)
(Comment:en)
CL Item
-7 (6)
(Comment:en)
CL Item
+8 (7)
(Comment:en)
CL Item
Del(11q) (8)
(Comment:en)
CL Item
del(12p) (9)
(Comment:en)
CL Item
i(17q) (10)
(Comment:en)
CL Item
+19 (11)
(Comment:sv)
(Comment:en)
CL Item
del(20q) (12)
(Comment:sv)
(Comment:en)
CL Item
1 deviation (not listed above) (13)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including del(5q) (14)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including -7 or del(7q) (15)
(Comment:sv)
(Comment:en)
CL Item
2 other deviations (16)
(Comment:sv)
(Comment:en)
CL Item
Complex with 3 deviations (17)
(Comment:sv)
(Comment:en)
CL Item
Complex with >3 deviations (18)
(Comment:sv)
(Comment:en)
Karyotype text
Item
text
C1261273 (UMLS CUI [1])
Item
Referral written
integer
C1963864 (UMLS CUI [1,1])
C0023467 (UMLS CUI [1,2])
Code List
Referral written
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
AML transformation date
Item
Referral written
date
C0011008 (UMLS CUI [1,1])
C1963864 (UMLS CUI [1,2])
C0023467 (UMLS CUI [1,3])
Item
Referral received
integer
C0005957 (UMLS CUI [1,1])
C0521091 (UMLS CUI [1,2])
C1963864 (UMLS CUI [1,3])
Code List
Referral received
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Aspirate
Item
Referral received
boolean
C0398523 (UMLS CUI [1])
Laboratory / Clinic
Item
First patient visit to reporting unit
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
text
C1299222 (UMLS CUI [1])
Sample year
Item
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Biopsy
Item
Referral received
boolean
C0005558 (UMLS CUI [1])
Laboratory / Clinic
Item
First patient visit to reporting unit
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
text
C1299222 (UMLS CUI [1])
Sample year
Item
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item
integer
C0472699 (UMLS CUI [1,1])
C0205197 (UMLS CUI [1,2])
Code List
Transplant completed
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Transplant not applicable (2)
C0472699 (UMLS CUI-1)
C1272460 (UMLS CUI-2)
(Comment:en)
CL Item
Planned but not carried out e.g. because of progression (3)
C1301732 (UMLS CUI-1)
C0445106 (UMLS CUI-2)
(Comment:en)
CL Item
Planned (4)
C1301732 (UMLS CUI-1)
(Comment:en)
CL Item
HLA typing performed (5)
C0242318 (UMLS CUI-1)
C0884358 (UMLS CUI-2)
(Comment:en)
CL Item
HLA typing not performed (6)
C0242318 (UMLS CUI-1)
C0445106 (UMLS CUI-2)
(Comment:en)
CL Item
Yes (7)
C1705108 (UMLS CUI-1)
(Comment:en)
HLA typing Date
Item
date
C0242318 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Transplantation Date
Item
date
C0040732 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Code List
Blast-reducing treatment before transplantation
CL Item
(1)
C0392920 (UMLS CUI-1)
(Comment:sv)
CL Item
(2)
C0004475 (UMLS CUI-1)
C0049065 (UMLS CUI-2)
(Comment:sv)
CL Item
(3)
C0205394 (UMLS CUI-1)
(Comment:sv)
CL Item
(4)
C0549184 (UMLS CUI-1)
(Comment:sv)
Item
integer
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
C0040732 (UMLS CUI [1,3])
Code List
Percentage of bone marrow blasts at transplantation
CL Item
(5)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0013018 (UMLS CUI [1])
CL Item
(1)
C0080103 (UMLS CUI-1)
C0019721 (UMLS CUI-2)
C0205280 (UMLS CUI-3)
(Comment:sv)
CL Item
(2)
C0080103 (UMLS CUI-1)
C3829897 (UMLS CUI-2)
(Comment:sv)
CL Item
(3)
C0375877 (UMLS CUI-1)
C0080103 (UMLS CUI-2)
(Comment:sv)
CL Item
(4)
C3179133 (UMLS CUI-1)
(Comment:sv)
CL Item
(5)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0018956 (UMLS CUI [1,1])
C0449416 (UMLS CUI [1,2])
Code List
Stem Cell Source
CL Item
(1)
C1518999 (UMLS CUI-1)
(Comment:sv)
CL Item
(2)
C0005953 (UMLS CUI-1)
(Comment:sv)
CL Item
(3)
C0162371 (UMLS CUI-1)
(Comment:sv)
CL Item
(4)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0376450 (UMLS CUI [1])
Code List
Type of conditioning
CL Item
(1)
C1513784 (UMLS CUI-1)
(Comment:sv)
CL Item
(2)
C1831742 (UMLS CUI-1)
(Comment:sv)
CL Item
(3)
C3829897 (UMLS CUI-1)
(Comment:sv)
CL Item
(4)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0376450 (UMLS CUI [1])
CL Item
(1)
C0006463 (UMLS CUI-1)
(Comment:sv)
CL Item
(2)
C0076959 (UMLS CUI-1)
(Comment:sv)
CL Item
(3)
C0010583 (UMLS CUI-1)
(Comment:sv)
CL Item
(4)
C0025241 (UMLS CUI-1)
(Comment:sv)
CL Item
(5)
C0059985 (UMLS CUI-1)
(Comment:sv)
CL Item
(6)
C0003442 (UMLS CUI-1)
(Comment:sv)
CL Item
(7)
C1880386 (UMLS CUI-1)
(Comment:sv)
CL Item
(8)
C0205394 (UMLS CUI-1)
(Comment:sv)
Other conditioning
Item
text
C0376450 (UMLS CUI [1])
Patient deceased
Item
boolean
C1555024 (UMLS CUI [1])
Death date
Item
date
C1148348 (UMLS CUI [1])
Item
integer
C0007465 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
Code List
MDS related death
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Follow-Up Hospital
Item
text
C1522577 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
Clinic
Item
text
C0442592 (UMLS CUI [1])