Birth Date
Item
Birth Date
date
C0421451 (UMLS CUI [1])
Date of Diagnosis Day
Item
Date of Diagnosis: Day
partialDate
C2316983 (UMLS CUI [1,1])
C0439228 (UMLS CUI [1,2])
Item
Date of Diagnosis: Month
text
C2316983 (UMLS CUI [1,1])
C0439231 (UMLS CUI [1,2])
Code List
Date of Diagnosis: Month
Date of Diagnosis Year
Item
Date of Diagnosis: Year
partialDate
C2316983 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Date of diagnosis unknown
Item
Date of diagnosis unknown
boolean
C2316983 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
Item
Date of diagnosis not available but:
text
C0946385 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Code List
Date of diagnosis not available but:
CL Item
Less than 4 months (Less than 4 months)
CL Item
More than 4 months (More than 4 months)
Item
Patient's Diagnosis
integer
C0011900 (UMLS CUI [1])
Code List
Patient's Diagnosis
CL Item
Crohn's Disease (1)
C0010346 (UMLS CUI-1)
(Comment:en)
CL Item
Ulcerative Colitis (2)
C0009324 (UMLS CUI-1)
(Comment:en)
CL Item
Indeterminate Colitis (3)
C0341332 (UMLS CUI-1)
(Comment:en)
Item
Gender
integer
C0079399 (UMLS CUI [1])
CL Item
Male (1)
C0086582 (UMLS CUI-1)
(Comment:en)
CL Item
Female (2)
C0086287 (UMLS CUI-1)
(Comment:en)
Item
Ethnicity
integer
C0015031 (UMLS CUI [1])
CL Item
Hispanic (1)
C0086409 (UMLS CUI-1)
(Comment:en)
CL Item
Non-Hispanic (3)
C1518424 (UMLS CUI-1)
(Comment:en)
CL Item
Not Assessed/Collected (98)
(Comment:en)
Item
Race (Check all that apply)
integer
C0034510 (UMLS CUI [1])
Code List
Race (Check all that apply)
CL Item
American Indian or Alaska Native (1)
C0683984 (UMLS CUI-1)
(Comment:en)
CL Item
Asian (2)
C0078988 (UMLS CUI-1)
(Comment:en)
CL Item
Black or African American (4)
C0085756 (UMLS CUI-1)
(Comment:en)
CL Item
Native Hawaiian or Other Pacific Islander (3)
C0337920 (UMLS CUI-1)
(Comment:en)
CL Item
White (5)
C0007457 (UMLS CUI-1)
(Comment:en)
CL Item
Other (specify) (7)
C0205394 (UMLS CUI-1)
(Comment:en)
CL Item
Not Assessed/Collected (98)
(Comment:en)
Other Race
Item
Other Race
text
C0205394 (UMLS CUI [1,1])
C0034510 (UMLS CUI [1,2])
Item
Mother
integer
C0680057 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
CL Item
Did not graduate high school (1)
CL Item
Graduated high school/GED (2)
CL Item
Graduated College (4)
CL Item
Attended Graduate School (5)
Item
Father
integer
C0680057 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
CL Item
Did not graduate high school (1)
CL Item
Graduated high school/GED (2)
CL Item
Graduated College (4)
CL Item
Attended Graduate School (5)
Item
Recent Past Height from at least 6 months prior to this visit: Unit
text
C0005890 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
C0439148 (UMLS CUI [1,3])
Code List
Recent Past Height from at least 6 months prior to this visit: Unit
Height past
Item
Recent Past Height from at least 6 months prior to this visit (to the nearest tenth)
integer
C0005890 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
Unknown
Item
Unknown
boolean
C0439673 (UMLS CUI [1])
date height measurement Day
Item
Date the height was measured: Day
partialDate
C0011008 (UMLS CUI [1,1])
C1623590 (UMLS CUI [1,2])
C0439228 (UMLS CUI [1,3])
Item
Date the height was measured: Month
text
C0011008 (UMLS CUI [1,1])
C1623590 (UMLS CUI [1,2])
C0439231 (UMLS CUI [1,3])
Code List
Date the height was measured: Month
date height measurement Year
Item
Date the height was measured: Year
partialDate
C0011008 (UMLS CUI [1,1])
C1623590 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])
Item
Recent Past Weight from at least 4 months prior to this visit: Unit
text
C0005910 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
C0439148 (UMLS CUI [1,3])
Code List
Recent Past Weight from at least 4 months prior to this visit: Unit
Weight past
Item
Recent Past Weight from at least 4 months prior to this visit (to the nearest tenth)
integer
C0005910 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
Unknown
Item
Unknown
boolean
C0439673 (UMLS CUI [1])
Date Body Weight Measurement Day
Item
Date the weight was measured: Day
partialDate
C0011008 (UMLS CUI [1,1])
C2985231 (UMLS CUI [1,2])
C0439228 (UMLS CUI [1,3])
Item
Date the weight was measured: Month
text
C0011008 (UMLS CUI [1,1])
C2985231 (UMLS CUI [1,2])
C0439231 (UMLS CUI [1,3])
Code List
Date the weight was measured: Month
Date Body Weight Measurement Year
Item
Date the weight was measured: Year
partialDate
C0011008 (UMLS CUI [1,1])
C2985231 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])
Item
Macroscopic Lower GI Disease
integer
C0012242 (UMLS CUI [1,1])
C1548802 (UMLS CUI [1,2])
C1551402 (UMLS CUI [1,3])
Code List
Macroscopic Lower GI Disease
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Ileal only (1)
C0020885 (UMLS CUI-1)
(Comment:en)
CL Item
Colonic only (2)
C0009368 (UMLS CUI-1)
(Comment:en)
CL Item
Ileocolonic (3)
C0677648 (UMLS CUI-1)
(Comment:en)
CL Item
Not Assessed (8)
(Comment:en)
CL Item
Don’t Know (9)
(Comment:en)
Item
Macroscopic Upper GI Disease proximal to the ligament of Treitz
integer
C0012242 (UMLS CUI [1,1])
C1551402 (UMLS CUI [1,2])
C1261087 (UMLS CUI [1,3])
C0205107 (UMLS CUI [1,4])
Code List
Macroscopic Upper GI Disease proximal to the ligament of Treitz
Item
Macroscopic Upper GI Disease distal to the ligament of Treitz
integer
C0012242 (UMLS CUI [1,1])
C1551402 (UMLS CUI [1,2])
C1261087 (UMLS CUI [1,3])
C0205108 (UMLS CUI [1,4])
Code List
Macroscopic Upper GI Disease distal to the ligament of Treitz
Item
What is the Crohn’s Disease Phenotype? (Select one)
integer
C0010346 (UMLS CUI [1,1])
C0031437 (UMLS CUI [1,2])
Code List
What is the Crohn’s Disease Phenotype? (Select one)
CL Item
Inflammatory, non-penetrating, non-stricturing (1)
C0333348 (UMLS CUI-1)
(Comment:en)
CL Item
Stricturing only (2)
C1261287 (UMLS CUI-1)
(Comment:en)
CL Item
Penetrating only (3)
C0205321 (UMLS CUI-1)
(Comment:en)
CL Item
Both stricturing and penetrating (5)
(Comment:en)
CL Item
Don't Know (4)
(Comment:en)
Item
Perianal Phenotype
integer
C0747465 (UMLS CUI [1,1])
C0031437 (UMLS CUI [1,2])
Code List
Perianal Phenotype
Item
Extent of disease
integer
C0449279 (UMLS CUI [1])
Code List
Extent of disease
CL Item
Ulcerative Procitis (rectum only) (1)
(Comment:en)
CL Item
Left sided Ulcerative Colitis (distal to the splenic flexure only) (2)
(Comment:en)
CL Item
Extensive Ulcerative Colitis (extends proximal to the splenic flexure) (3)
(Comment:en)
CL Item
Pancolitis (the entire colon) (4)
C2063754 (UMLS CUI-1)
(Comment:en)
CL Item
Not Assessed completely (colonoscopy incomplete) (6)
(Comment:en)
CL Item
Don’t Know (7)
(Comment:en)
Item
Ulcerative Colitis Behavior: Has the patient ever had severe disease (defined as PUCAI ≥ 65 or severe disease determined by PGA) as an inpatient or outpatient?
integer
C0009324 (UMLS CUI [1,1])
C0004927 (UMLS CUI [1,2])
Code List
Ulcerative Colitis Behavior: Has the patient ever had severe disease (defined as PUCAI ≥ 65 or severe disease determined by PGA) as an inpatient or outpatient?