Demographic factors
Recorded as year of birth Inclusion: All patients Timing: Baseline Reporting Source: Patient-reported Type: Date by YYYY
integer
Inclusion: All patients Timing: Baseline Reporting Source: Patient-reported Type: Single Answer
integer
Supporting Definition: Level of schooling defined in each country according to the International Standard Classification of Education Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer Response Option: 0 = None, 1 = Early Childhood Education, 2 = Primary Education, 3 = Lower Secondary Education, 4 = Upper Secondary Education, 5 = Short Cycle Tertiary Education, 6 = Bachelor’s or Equivalent Level, 7 = Master’s or Equivalent Level, 8 = Doctoral or Equivalent Level The original OID of this item was complemented by a numbering.
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer The original OID of this item was complemented by a numbering.
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer The original OID of this item was complemented by a numbering.
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer The original OID of this item was complemented by a numbering.
integer
Clinical Factors
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported
text
Lifestyle Factors
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer
integer
Supporting Definition: Physical activity is any activity that makes you breath hard, feel warm and feel your heart beat faster Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer
integer
Seeing
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
integer
Hearing
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single answer
integer
Patient-Reported Outcome Measures
As nihpromis.org is the official distribution site of PROMIS scores, the actual 10 questions of the PROMIS Scale v1.2- Global Health are not included in this version of the standard set. The ICHOM ID's are PROMIS-10_Q01 to PROMIS-10_Q010 Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
integer
As license is needed for adaption of this questionnaire for electronic systems, the actual 12 questions of the WHODAS 2.0 questionnaire are not included in this version of the standard set. The ICHOM ID's are WHODAS_Q01 to WHODAS_Q12 Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
integer
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
integer