Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
General Information
C1508263 (UMLS CUI-1)
Your name or ID number
Item
Your name or ID number
text
C1299487 (UMLS CUI [1])
C1269815 (UMLS CUI [2])
Today’s Date
Item
Today’s Date
date
C0011008 (UMLS CUI [1])
Item
Your Gender
text
C0079399 (UMLS CUI [1])
Your Age
Item
Your Age
text
C0001779 (UMLS CUI [1])
Age of first OCD Symptoms (y)
Item
Age of first OCD Symptoms (y): refers to your OCD-affected relative
integer
C0150907 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Item Group
What is your relationship to your OCD-affected relative? I am his/her:
C0015608 (UMLS CUI-1)
C0028768 (UMLS CUI-2)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
Other: Specify
Item
Other: Specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Item Group
Whom do you live with? “YOU” refers to your OCD-affected relative
C2184149 (UMLS CUI-1)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Friend
Item
Friend
boolean
C0079382 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
Other: Specify
Item
Other: Specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
I live alone
Item
I live alone
boolean
C0439044 (UMLS CUI [1])
Item Group
What types of treatment(s) have you tried for your OCD? (check all that apply) “YOU” refers to your OCD-affected relative:
C0028768 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
None
Item
None
boolean
C0549184 (UMLS CUI [1])
Talking Therapy
Item
Talking Therapy
boolean
C0033968 (UMLS CUI [1])
Medication
Item
Medication
boolean
C0013227 (UMLS CUI [1])
Family Therapy
Item
Family Therapy
boolean
C0015618 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
Behavior Therapy
Item
Behavior Therapy
boolean
C0004933 (UMLS CUI [1])
Item Group
Have any of the following people been diagnosed with OCD? If so, who? “YOU” refers to your OCD-affected relative
C0011900 (UMLS CUI-1)
C0028768 (UMLS CUI-2)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
N/A
Item
N/A
boolean
C1272460 (UMLS CUI [1])
Item Group
Do any of the following people have suspected OCD or Obsessive Compulsive symptoms? If so, who? “YOU” refers to your OCD-affected relative
C0028768 (UMLS CUI-1)
C1457887 (UMLS CUI-2)
C0332147 (UMLS CUI-3)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
N/A
Item
N/A
boolean
C1272460 (UMLS CUI [1])
Item Group
Please complete this to the best of your ability with regards to his/her OCD. There are no right or wrong answers. If none of the options applies, please choose the closest option.
Item Group
How OFTEN does his/her Current OCD interfere with family:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
Item
1. Morning routines
integer
C0332170 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Code List
1. Morning routines
Item
2. Lateness to work/school
integer
C0205087 (UMLS CUI [1,1])
C0043227 (UMLS CUI [1,2])
C0205087 (UMLS CUI [2,1])
C0036375 (UMLS CUI [2,2])
Code List
2. Lateness to work/school
Item
3. Mealtimes
integer
C0587119 (UMLS CUI [1])
Item
4. Social/family functions
integer
C0037420 (UMLS CUI [1])
C0015608 (UMLS CUI [2])
Code List
4. Social/family functions
Item
5. Planning/scheduling
integer
C0032074 (UMLS CUI [1])
Code List
5. Planning/scheduling
Item
6. Going to restaurants
integer
C4289683 (UMLS CUI [1])
Code List
6. Going to restaurants
Item
7. Shopping/going to the mall
integer
C0150768 (UMLS CUI [1])
Code List
7. Shopping/going to the mall
Item
8. Trips/vacations
integer
C0680199 (UMLS CUI [1])
Code List
8. Trips/vacations
Item
9. Keeping appointments
integer
C4534524 (UMLS CUI [1])
Code List
9. Keeping appointments
Item
10. Bedtime routines
integer
C0521112 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Code List
10. Bedtime routines
Item
11. Religious/spiritual worship
integer
C0518645 (UMLS CUI [1])
Code List
11. Religious/spiritual worship
Item Group
How OFTEN does his/her Worst Ever OCD interfere with family:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
Item
1. Morning routines
integer
C0332170 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Code List
1. Morning routines
Item
2. Lateness to work/school
integer
C0205087 (UMLS CUI [1,1])
C0043227 (UMLS CUI [1,2])
C0205087 (UMLS CUI [2,1])
C0036375 (UMLS CUI [2,2])
Code List
2. Lateness to work/school
Item
3. Mealtimes
integer
C0587119 (UMLS CUI [1])
Item
4. Social/family functions
integer
C0037420 (UMLS CUI [1])
C0015608 (UMLS CUI [2])
Code List
4. Social/family functions
Item
5. Planning/scheduling
integer
C0032074 (UMLS CUI [1])
Code List
5. Planning/scheduling
Item
6. Going to restaurants
integer
C4289683 (UMLS CUI [1])
Code List
6. Going to restaurants
Item
7. Shopping/going to the mall
integer
C0150768 (UMLS CUI [1])
Code List
7. Shopping/going to the mall
Item
8. Trips/vacations
integer
C0680199 (UMLS CUI [1])
Code List
8. Trips/vacations
Item
9. Keeping appointments
integer
C4534524 (UMLS CUI [1])
Code List
9. Keeping appointments
Item
10. Bedtime routines
integer
C0521112 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Code List
10. Bedtime routines
Item
11. Religious/spiritual worship
integer
C0518645 (UMLS CUI [1])
Code List
11. Religious/spiritual worship
Item Group
How OFTEN does his/her Current OCD impact the social life of:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C0815198 (UMLS CUI-4)
Item
12. You
integer
C0036588 (UMLS CUI [1])
Item
13. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Code List
13. Other family members with OCD
Item
14. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Code List
14. Other family members without OCD
Item Group
How OFTEN does his/her Worst Ever OCD impact the social life of:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C0815198 (UMLS CUI-4)
Item
12. You
integer
C0036588 (UMLS CUI [1])
Item
13. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Code List
13. Other family members with OCD
Item
14. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Code List
14. Other family members without OCD
Item Group
How OFTEN does his/her Current OCD impact the work/school performance of:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C1286385 (UMLS CUI-4)
C0036373 (UMLS CUI-5)
Item
15. You
integer
C0036588 (UMLS CUI [1])
Item
16. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Code List
16. Other family members with OCD
Item
17. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Code List
17. Other family members without OCD
Item Group
How OFTEN does his/her Worst Ever OCD impact the work/school performance of:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C1286385 (UMLS CUI-4)
C0036373 (UMLS CUI-5)
Item
15. You
integer
C0036588 (UMLS CUI [1])
Item
16. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Code List
16. Other family members with OCD
Item
17. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Code List
17. Other family members without OCD
Item Group
When Current OCD has interfered with family functioning, have you felt:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
C1527305 (UMLS CUI-5)
Item
18. Stressed/anxious
integer
C0003467 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Code List
18. Stressed/anxious
Item
19. Frustrated/angry
integer
C0002957 (UMLS CUI [1,1])
C0016770 (UMLS CUI [1,2])
Code List
19. Frustrated/angry
Item
20. Sad
integer
C3536794 (UMLS CUI [1])
Item
21. Guilty
integer
C0018379 (UMLS CUI [1])
Item Group
When Worst Ever OCD has interfered with family functioning, have you felt:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
C1527305 (UMLS CUI-5)
Item
18. Stressed/anxious
integer
C0003467 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Code List
18. Stressed/anxious
Item
19. Frustrated/angry
integer
C0002957 (UMLS CUI [1,1])
C0016770 (UMLS CUI [1,2])
Code List
19. Frustrated/angry
Item
20. Sad
integer
C3536794 (UMLS CUI [1])
Item
21. Guilty
integer
C0018379 (UMLS CUI [1])
Item Group
How often have the following OCD symptoms interfered with your family functioning? Current OCD:
C0009595 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C1457887 (UMLS CUI-3)
C0521102 (UMLS CUI-4)
C0680051 (UMLS CUI-5)
Item
22. Cleaning
integer
C1947930 (UMLS CUI [1])
Item
23. Contamination
integer
C0259846 (UMLS CUI [1])
Code List
23. Contamination
Item
24. Hoarding/collecting things
integer
C0424337 (UMLS CUI [1])
C1516698 (UMLS CUI [2])
Code List
24. Hoarding/collecting things
Item
25. Scrupulosity/morality/right and wrong
integer
C0026531 (UMLS CUI [1])
Code List
25. Scrupulosity/morality/right and wrong
Item
26. Intrusive unwelcome thoughts
integer
C0558066 (UMLS CUI [1])
Code List
26. Intrusive unwelcome thoughts
Item
27. Perfectionism
integer
C0815110 (UMLS CUI [1])
Code List
27. Perfectionism
Item
28. Symmetry/making things even or balanced
integer
C0332516 (UMLS CUI [1])
Code List
28. Symmetry/making things even or balanced
Ordering
Item
29. Ordering
boolean
C0683313 (UMLS CUI [1])
Item
30. Repeating
integer
C0205341 (UMLS CUI [1])
Item
31. Checking
integer
C1283174 (UMLS CUI [1])
Item
32. Counting
integer
C0750480 (UMLS CUI [1])
Item
33. Religious
integer
C0035039 (UMLS CUI [1])
Item
34. Somatic/body or illness worries
integer
C2986476 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
C0221423 (UMLS CUI [2,1])
C0233481 (UMLS CUI [2,2])
Code List
34. Somatic/body or illness worries
Item
35. Sexual
integer
C0036864 (UMLS CUI [1])
Item
36. Need to do things until they feel “just right”
integer
C0815110 (UMLS CUI [1])
Code List
36. Need to do things until they feel “just right”
Item
37. Obsessive slowness
integer
C0028765 (UMLS CUI [1,1])
C1398207 (UMLS CUI [1,2])
Code List
37. Obsessive slowness
Item Group
How often have the following OCD symptoms interfered with your family functioning? Worst Ever OCD:
C0009595 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C1457887 (UMLS CUI-3)
C0521102 (UMLS CUI-4)
C0680051 (UMLS CUI-5)
Item
22. Cleaning
integer
C1947930 (UMLS CUI [1])
Item
23. Contamination
integer
C0259846 (UMLS CUI [1])
Code List
23. Contamination
Item
24. Hoarding/collecting things
integer
C0424337 (UMLS CUI [1])
C1516698 (UMLS CUI [2])
Code List
24. Hoarding/collecting things
Item
25. Scrupulosity/morality/right and wrong
integer
C0026531 (UMLS CUI [1])
Code List
25. Scrupulosity/morality/right and wrong
Item
26. Intrusive unwelcome thoughts
integer
C0558066 (UMLS CUI [1])
Code List
26. Intrusive unwelcome thoughts
Item
27. Perfectionism
integer
C0815110 (UMLS CUI [1])
Code List
27. Perfectionism
Item
28. Symmetry/making things even or balanced
integer
C0332516 (UMLS CUI [1])
Code List
28. Symmetry/making things even or balanced
Ordering
Item
29. Ordering
boolean
C0683313 (UMLS CUI [1])
Item
30. Repeating
integer
C0205341 (UMLS CUI [1])
Item
31. Checking
integer
C1283174 (UMLS CUI [1])
Item
32. Counting
integer
C0750480 (UMLS CUI [1])
Item
33. Religious
integer
C0035039 (UMLS CUI [1])
Item
34. Somatic/body or illness worries
integer
C2986476 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
C0221423 (UMLS CUI [2,1])
C0233481 (UMLS CUI [2,2])
Code List
34. Somatic/body or illness worries
Item
35. Sexual
integer
C0036864 (UMLS CUI [1])
Item
36. Need to do things until they feel “just right”
integer
C0815110 (UMLS CUI [1])
Code List
36. Need to do things until they feel “just right”
Item
37. Obsessive slowness
integer
C0028765 (UMLS CUI [1,1])
C1398207 (UMLS CUI [1,2])
Code List
37. Obsessive slowness
Item Group
How much has his/her Current OCD impacted your ability to be:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
Item
38. A mother or father
integer
C0015671 (UMLS CUI [1])
C0026591 (UMLS CUI [2])
Code List
38. A mother or father
Item
39. A husband/wife or partner
integer
C0682323 (UMLS CUI [1])
C0242664 (UMLS CUI [2])
C0242665 (UMLS CUI [3])
Code List
39. A husband/wife or partner
Item
40. A child/parent
integer
C0030551 (UMLS CUI [1])
C0008059 (UMLS CUI [2])
Code List
40. A child/parent
Item
41. A brother or sister
integer
C0337514 (UMLS CUI [1])
C0337527 (UMLS CUI [2])
Code List
41. A brother or sister
Item
42. Another relative type
integer
C3174795 (UMLS CUI [1])
Code List
42. Another relative type
Item Group
How much has his/her Worst Ever OCD impacted your ability to be:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
Item
38. A mother or father
integer
C0015671 (UMLS CUI [1])
C0026591 (UMLS CUI [2])
Code List
38. A mother or father
Item
39. A husband/wife or partner
integer
C0682323 (UMLS CUI [1])
C0242664 (UMLS CUI [2])
C0242665 (UMLS CUI [3])
Code List
39. A husband/wife or partner
Item
40. A child/parent
integer
C0030551 (UMLS CUI [1])
C0008059 (UMLS CUI [2])
Code List
40. A child/parent
Item
41. A brother or sister
integer
C0337514 (UMLS CUI [1])
C0337527 (UMLS CUI [2])
Code List
41. A brother or sister
Item
42. Another relative type
integer
C3174795 (UMLS CUI [1])
Code List
42. Another relative type