Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
General Information
C1508263 (UMLS CUI-1)
Your name or ID number
Item
Your name or ID number
text
C1299487 (UMLS CUI [1])
C1269815 (UMLS CUI [2])
Today’s Date
Item
Today’s Date
date
C0011008 (UMLS CUI [1])
Item
Your Gender
text
C0079399 (UMLS CUI [1])
Your Age
Item
Your Age
text
C0001779 (UMLS CUI [1])
Age of first OCD Symptoms (y)
Item
Age of first OCD Symptoms (y)
integer
C0150907 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Age at Worst Ever OCD Severity (y)
Item
Age at Worst Ever OCD Severity (y)
integer
C0001779 (UMLS CUI [1,1])
C1522166 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
C0392364 (UMLS CUI [1,4])
Item Group
Whom do you live with?
C2184149 (UMLS CUI-1)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Friend
Item
Friend
boolean
C0079382 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
Other: Specify
Item
Other: Specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
I live alone
Item
I live alone
boolean
C0439044 (UMLS CUI [1])
Item Group
What types of treatment(s) have you tried for your OCD? (check all that apply)
C0028768 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
None
Item
None
boolean
C0549184 (UMLS CUI [1])
Talking Therapy
Item
Talking Therapy
boolean
C0033968 (UMLS CUI [1])
Medication
Item
Medication
boolean
C0013227 (UMLS CUI [1])
Family Therapy
Item
Family Therapy
boolean
C0015618 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
Behavior Therapy
Item
Behavior Therapy
boolean
C0004933 (UMLS CUI [1])
Item Group
Have any of the following people been diagnosed with OCD? If so, who?
C0011900 (UMLS CUI-1)
C0028768 (UMLS CUI-2)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
N/A
Item
N/A
boolean
C1272460 (UMLS CUI [1])
Item Group
Do any of the following people have suspected OCD or Obsessive Compulsive symptoms? If so, who?
C0028768 (UMLS CUI-1)
C1457887 (UMLS CUI-2)
C0332147 (UMLS CUI-3)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
N/A
Item
N/A
boolean
C1272460 (UMLS CUI [1])
Item Group
Please complete this to the best of your ability with regards to your OCD. There are no right or wrong answers. If none of the options applies, please choose the closest option.
Item Group
How OFTEN does your Current OCD interfere with family:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
Item
1. Morning routines
integer
C0332170 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Code List
1. Morning routines
Item
2. Lateness to work/school
integer
C0205087 (UMLS CUI [1,1])
C0043227 (UMLS CUI [1,2])
C0205087 (UMLS CUI [2,1])
C0036375 (UMLS CUI [2,2])
Code List
2. Lateness to work/school
Item
3. Mealtimes
integer
C0587119 (UMLS CUI [1])
Item
4. Social/family functions
integer
C0037420 (UMLS CUI [1])
C0015608 (UMLS CUI [2])
Code List
4. Social/family functions
Item
5. Planning/scheduling
integer
C0032074 (UMLS CUI [1])
Code List
5. Planning/scheduling
Item
6. Going to restaurants
integer
C4289683 (UMLS CUI [1])
Code List
6. Going to restaurants
Item
7. Shopping/going to the mall
integer
C0150768 (UMLS CUI [1])
Code List
7. Shopping/going to the mall
Item
8. Trips/vacations
integer
C0680199 (UMLS CUI [1])
Code List
8. Trips/vacations
Item
9. Keeping appointments
integer
C4534524 (UMLS CUI [1])
Code List
9. Keeping appointments
Item
10. Bedtime routines
integer
C0521112 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Code List
10. Bedtime routines
Item
11. Religious/spiritual worship
integer
C0518645 (UMLS CUI [1])
Code List
11. Religious/spiritual worship
Item Group
How OFTEN does your Worst Ever OCD interfere with family:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
Item
1. Morning routines
integer
C0332170 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Code List
1. Morning routines
Item
2. Lateness to work/school
integer
C0205087 (UMLS CUI [1,1])
C0043227 (UMLS CUI [1,2])
C0205087 (UMLS CUI [2,1])
C0036375 (UMLS CUI [2,2])
Code List
2. Lateness to work/school
Item
3. Mealtimes
integer
C0587119 (UMLS CUI [1])
Item
4. Social/family functions
integer
C0037420 (UMLS CUI [1])
C0015608 (UMLS CUI [2])
Code List
4. Social/family functions
Item
5. Planning/scheduling
integer
C0032074 (UMLS CUI [1])
Code List
5. Planning/scheduling
Item
6. Going to restaurants
integer
C4289683 (UMLS CUI [1])
Code List
6. Going to restaurants
Item
7. Shopping/going to the mall
integer
C0150768 (UMLS CUI [1])
Code List
7. Shopping/going to the mall
Item
8. Trips/vacations
integer
C0680199 (UMLS CUI [1])
Code List
8. Trips/vacations
Item
9. Keeping appointments
integer
C4534524 (UMLS CUI [1])
Code List
9. Keeping appointments
Item
10. Bedtime routines
integer
C0521112 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Code List
10. Bedtime routines
Item
11. Religious/spiritual worship
integer
C0518645 (UMLS CUI [1])
Code List
11. Religious/spiritual worship
Item Group
How OFTEN does your Current OCD impact the social life of:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C0815198 (UMLS CUI-4)
Item
12. You
integer
C0036588 (UMLS CUI [1])
Item
13. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Code List
13. Other family members with OCD
Item
14. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Code List
14. Other family members without OCD
Item Group
How OFTEN does your Worst Ever OCD impact the social life of:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C0815198 (UMLS CUI-4)
Item
12. You
integer
C0036588 (UMLS CUI [1])
Item
13. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Code List
13. Other family members with OCD
Item
14. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Code List
14. Other family members without OCD
Item Group
How OFTEN does your Current OCD impact the work/school performance of:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C1286385 (UMLS CUI-4)
C0036373 (UMLS CUI-5)
Item
15. You
integer
C0036588 (UMLS CUI [1])
Item
16. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Code List
16. Other family members with OCD
Item
17. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Code List
17. Other family members without OCD
Item Group
How OFTEN does your Worst Ever OCD impact the work/school performance of:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C1286385 (UMLS CUI-4)
C0036373 (UMLS CUI-5)
Item
15. You
integer
C0036588 (UMLS CUI [1])
Item
16. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Code List
16. Other family members with OCD
Item
17. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Code List
17. Other family members without OCD
Item Group
When Current OCD has interfered with family functioning, have you felt:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
C1527305 (UMLS CUI-5)
Item
18. Stressed/anxious
integer
C0003467 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Code List
18. Stressed/anxious
Item
19. Frustrated/angry
integer
C0002957 (UMLS CUI [1,1])
C0016770 (UMLS CUI [1,2])
Code List
19. Frustrated/angry
Item
20. Sad
integer
C3536794 (UMLS CUI [1])
Item
21. Guilty
integer
C0018379 (UMLS CUI [1])
Item Group
When Worst Ever OCD has interfered with family functioning, have you felt:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
C1527305 (UMLS CUI-5)
Item
18. Stressed/anxious
integer
C0003467 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Code List
18. Stressed/anxious
Item
19. Frustrated/angry
integer
C0002957 (UMLS CUI [1,1])
C0016770 (UMLS CUI [1,2])
Code List
19. Frustrated/angry
Item
20. Sad
integer
C3536794 (UMLS CUI [1])
Item
21. Guilty
integer
C0018379 (UMLS CUI [1])
Item Group
How often have the following OCD symptoms interfered with your family functioning? Current OCD:
C0009595 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C1457887 (UMLS CUI-3)
C0521102 (UMLS CUI-4)
C0680051 (UMLS CUI-5)
Item
22. Cleaning
integer
C1947930 (UMLS CUI [1])
Item
23. Contamination
integer
C0259846 (UMLS CUI [1])
Code List
23. Contamination
Item
24. Hoarding/collecting things
integer
C0424337 (UMLS CUI [1])
C1516698 (UMLS CUI [2])
Code List
24. Hoarding/collecting things
Item
25. Scrupulosity/morality/right and wrong
integer
C0026531 (UMLS CUI [1])
Code List
25. Scrupulosity/morality/right and wrong
Item
26. Intrusive unwelcome thoughts
integer
C0558066 (UMLS CUI [1])
Code List
26. Intrusive unwelcome thoughts
Item
27. Perfectionism
integer
C0815110 (UMLS CUI [1])
Code List
27. Perfectionism
Item
28. Symmetry/making things even or balanced
integer
C0332516 (UMLS CUI [1])
Code List
28. Symmetry/making things even or balanced
Ordering
Item
29. Ordering
boolean
C0683313 (UMLS CUI [1])
Item
30. Repeating
integer
C0205341 (UMLS CUI [1])
Item
31. Checking
integer
C1283174 (UMLS CUI [1])
Item
32. Counting
integer
C0750480 (UMLS CUI [1])
Item
33. Religious
integer
C0035039 (UMLS CUI [1])
Item
34. Somatic/body or illness worries
integer
C2986476 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
C0221423 (UMLS CUI [2,1])
C0233481 (UMLS CUI [2,2])
Code List
34. Somatic/body or illness worries
Item
35. Sexual
integer
C0036864 (UMLS CUI [1])
Item
36. Need to do things until they feel “just right”
integer
C0815110 (UMLS CUI [1])
Code List
36. Need to do things until they feel “just right”
Item
37. Obsessive slowness
integer
C0028765 (UMLS CUI [1,1])
C1398207 (UMLS CUI [1,2])
Code List
37. Obsessive slowness
Item Group
How often have the following OCD symptoms interfered with your family functioning? Worst Ever OCD:
C0009595 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C1457887 (UMLS CUI-3)
C0521102 (UMLS CUI-4)
C0680051 (UMLS CUI-5)
Item
22. Cleaning
integer
C1947930 (UMLS CUI [1])
Item
23. Contamination
integer
C0259846 (UMLS CUI [1])
Code List
23. Contamination
Item
24. Hoarding/collecting things
integer
C0424337 (UMLS CUI [1])
C1516698 (UMLS CUI [2])
Code List
24. Hoarding/collecting things
Item
25. Scrupulosity/morality/right and wrong
integer
C0026531 (UMLS CUI [1])
Code List
25. Scrupulosity/morality/right and wrong
Item
26. Intrusive unwelcome thoughts
integer
C0558066 (UMLS CUI [1])
Code List
26. Intrusive unwelcome thoughts
Item
27. Perfectionism
integer
C0815110 (UMLS CUI [1])
Code List
27. Perfectionism
Item
28. Symmetry/making things even or balanced
integer
C0332516 (UMLS CUI [1])
Code List
28. Symmetry/making things even or balanced
Ordering
Item
29. Ordering
boolean
C0683313 (UMLS CUI [1])
Item
30. Repeating
integer
C0205341 (UMLS CUI [1])
Item
31. Checking
integer
C1283174 (UMLS CUI [1])
Item
32. Counting
integer
C0750480 (UMLS CUI [1])
Item
33. Religious
integer
C0035039 (UMLS CUI [1])
Item
34. Somatic/body or illness worries
integer
C2986476 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
C0221423 (UMLS CUI [2,1])
C0233481 (UMLS CUI [2,2])
Code List
34. Somatic/body or illness worries
Item
35. Sexual
integer
C0036864 (UMLS CUI [1])
Item
36. Need to do things until they feel “just right”
integer
C0815110 (UMLS CUI [1])
Code List
36. Need to do things until they feel “just right”
Item
37. Obsessive slowness
integer
C0028765 (UMLS CUI [1,1])
C1398207 (UMLS CUI [1,2])
Code List
37. Obsessive slowness
Item Group
How much has your Current OCD impacted your ability to be:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
Item
38. A mother or father
integer
C0015671 (UMLS CUI [1])
C0026591 (UMLS CUI [2])
Code List
38. A mother or father
Item
39. A husband/wife or partner
integer
C0682323 (UMLS CUI [1])
C0242664 (UMLS CUI [2])
C0242665 (UMLS CUI [3])
Code List
39. A husband/wife or partner
Item
40. A child/parent
integer
C0030551 (UMLS CUI [1])
C0008059 (UMLS CUI [2])
Code List
40. A child/parent
Item
41. A brother or sister
integer
C0337514 (UMLS CUI [1])
C0337527 (UMLS CUI [2])
Code List
41. A brother or sister
Item
42. Another relative type
integer
C3174795 (UMLS CUI [1])
Code List
42. Another relative type
Item Group
How much has your Worst Ever OCD impacted your ability to be:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
Item
38. A mother or father
integer
C0015671 (UMLS CUI [1])
C0026591 (UMLS CUI [2])
Code List
38. A mother or father
Item
39. A husband/wife or partner
integer
C0682323 (UMLS CUI [1])
C0242664 (UMLS CUI [2])
C0242665 (UMLS CUI [3])
Code List
39. A husband/wife or partner
Item
40. A child/parent
integer
C0030551 (UMLS CUI [1])
C0008059 (UMLS CUI [2])
Code List
40. A child/parent
Item
41. A brother or sister
integer
C0337514 (UMLS CUI [1])
C0337527 (UMLS CUI [2])
Code List
41. A brother or sister
Item
42. Another relative type
integer
C3174795 (UMLS CUI [1])
Code List
42. Another relative type