English

Caregiver Burden Scale

1 forms  
  1. StudyEvent: ODM
    1. Caregiver Burden Scale
Someone with Alzheimer’s disease or a related disorder may need assistance in some of the following areas. For each characteristic for which the patient needed assistance DURING THE PAST MONTH, indicate if you have provided this assistance and if doing so added to your stress level, and why. All questions must be answered with a yes/no response; leave blank if not applicable. If no or blank, go to the next item.
Description

Someone with Alzheimer’s disease or a related disorder may need assistance in some of the following areas. For each characteristic for which the patient needed assistance DURING THE PAST MONTH, indicate if you have provided this assistance and if doing so added to your stress level, and why. All questions must be answered with a yes/no response; leave blank if not applicable. If no or blank, go to the next item.

Alias
UMLS CUI-1
C0085537
UMLS CUI-2
C2828008
Transportation
Description

Transportation

Alias
UMLS CUI-1
C0040756
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Housekeeping
Description

Housekeeping

Alias
UMLS CUI-1
C0020053
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Cooking
Description

Cooking

Alias
UMLS CUI-1
C1511504
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Shopping
Description

Shopping

Alias
UMLS CUI-1
C0150768
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Decision Making
Description

Decision Making

Alias
UMLS CUI-1
C0011109
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Financial Record Keeping
Description

Financial Record Keeping

Alias
UMLS CUI-1
C0016114
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Walking
Description

Walking

Alias
UMLS CUI-1
C0080331
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Making House Repairs
Description

Making House Repairs

Alias
UMLS CUI-1
C4319951
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Farming/Yard Work
Description

Farming/Yard Work

Alias
UMLS CUI-1
C0001829
UMLS CUI-2
C2986650
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Administering Medication
Description

Administering Medication

Alias
UMLS CUI-1
C1533734
UMLS CUI-2
C0013227
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Dressing
Description

Dressing

Alias
UMLS CUI-1
C0085671
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Bathing
Description

Bathing

Alias
UMLS CUI-1
C0150141
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Eating
Description

Eating

Alias
UMLS CUI-1
C0013470
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Toileting
Description

Toileting

Alias
UMLS CUI-1
C0150810
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
Leaving Patient Unattended
Description

Leaving Patient Unattended

Alias
UMLS CUI-1
C1301682
Patient Needs Assistance?
Description

Patient Needs Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1269765
Do You Provide Assistance?
Description

Do You Provide Assistance?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0557034
Does it Add to Your Stress Level?
Description

Does it Add to Your Stress Level?

Data type

boolean

Alias
UMLS CUI [1,1]
C0085537
UMLS CUI [1,2]
C0038435
Why?
Description

Why?

Data type

text

Alias
UMLS CUI [1]
C0681841
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Similar models

Caregiver Burden Scale

1 forms
  1. StudyEvent: ODM
    1. Caregiver Burden Scale
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Someone with Alzheimer’s disease or a related disorder may need assistance in some of the following areas. For each characteristic for which the patient needed assistance DURING THE PAST MONTH, indicate if you have provided this assistance and if doing so added to your stress level, and why. All questions must be answered with a yes/no response; leave blank if not applicable. If no or blank, go to the next item.
C0085537 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
Item Group
Transportation
C0040756 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Housekeeping
C0020053 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Cooking
C1511504 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Shopping
C0150768 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Decision Making
C0011109 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Financial Record Keeping
C0016114 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Walking
C0080331 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Making House Repairs
C4319951 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Farming/Yard Work
C0001829 (UMLS CUI-1)
C2986650 (UMLS CUI-2)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Administering Medication
C1533734 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Dressing
C0085671 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Bathing
C0150141 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Eating
C0013470 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Toileting
C0150810 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
Item Group
Leaving Patient Unattended
C1301682 (UMLS CUI-1)
Patient Needs Assistance?
Item
Patient Needs Assistance?
boolean
C0030705 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
Do You Provide Assistance?
Item
Do You Provide Assistance?
boolean
C0085537 (UMLS CUI [1,1])
C0557034 (UMLS CUI [1,2])
Does it Add to Your Stress Level?
Item
Does it Add to Your Stress Level?
boolean
C0085537 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Why?
Item
Why?
text
C0681841 (UMLS CUI [1])
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