Item
1. It bothers me that my daily routine is altered.
integer
C2372028 (UMLS CUI [1])
Code List
1. It bothers me that my daily routine is altered.
Item
2. My sleep is less restful.
integer
C0037317 (UMLS CUI [1])
Code List
2. My sleep is less restful.
Item
3. My daily life is imposed upon.
integer
C0740765 (UMLS CUI [1])
Code List
3. My daily life is imposed upon.
Item
4. I am satisfied with my sex life.
integer
C2984060 (UMLS CUI [1])
Code List
4. I am satisfied with my sex life.
Item
5. It is a challenge to maintain my outside interests.
integer
C0019826 (UMLS CUI [1])
Code List
5. It is a challenge to maintain my outside interests.
Item
6. I am under a financial strain.
integer
C0549106 (UMLS CUI [1])
Code List
6. I am under a financial strain.
Item
7. I am concerned about our insurance coverage.
integer
C2699424 (UMLS CUI [1,1])
C0376629 (UMLS CUI [1,2])
Code List
7. I am concerned about our insurance coverage.
Item
8. My economic future is uncertain.
integer
C0087130 (UMLS CUI [1,1])
C0337781 (UMLS CUI [1,2])
Code List
8. My economic future is uncertain.
Item
9. I fear my loved one will die.
integer
C0015726 (UMLS CUI [1,1])
C0011065 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
Code List
9. I fear my loved one will die.
Item
10. I have more of a positive outlook on life since my loved one's illness.
integer
C0237428 (UMLS CUI [1,1])
C0021797 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
Code List
10. I have more of a positive outlook on life since my loved one's illness.
Item
11. My level of stress and worries has increased.
integer
C4062658 (UMLS CUI [1])
Code List
11. My level of stress and worries has increased.
Item
12. My sense of spirituality has increased.
integer
C0237104 (UMLS CUI [1])
Code List
12. My sense of spirituality has increased.
Item
13. It bothers me, limiting my focus to day-to-day.
integer
C0740765 (UMLS CUI [1])
Code List
13. It bothers me, limiting my focus to day-to-day.
Item
14. I feel sad.
integer
C3536794 (UMLS CUI [1])
Code List
14. I feel sad.
Item
15. I feel under increased mental strain.
integer
C0038443 (UMLS CUI [1])
Code List
15. I feel under increased mental strain.
Item
16. I get support from my friends and neighbors.
integer
C0037438 (UMLS CUI [1])
Code List
16. I get support from my friends and neighbors.
Item
17. I feel guilty.
integer
C0018379 (UMLS CUI [1])
Code List
17. I feel guilty.
Item
18. I feel frustrated.
integer
C0016770 (UMLS CUI [1])
Code List
18. I feel frustrated.
Item
19. I feel nervous.
integer
C0849963 (UMLS CUI [1])
Code List
19. I feel nervous.
Item
20. I worry about the impact my loved one's illness has had on my children or other family members.
integer
C0162468 (UMLS CUI [1,1])
C0021797 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
Code List
20. I worry about the impact my loved one's illness has had on my children or other family members.
Item
21. I have difficulty dealing with my loved one's changing eating habits.
integer
C0582154 (UMLS CUI [1,1])
C1266864 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
Code List
21. I have difficulty dealing with my loved one's changing eating habits.
Item
22. I have developed a closer relationship with my loved one.
integer
C0021797 (UMLS CUI [1])
Code List
22. I have developed a closer relationship with my loved one.
Item
23. I feel adequately informed about my loved one's illness.
integer
C1998726 (UMLS CUI [1,1])
C0021797 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
Code List
23. I feel adequately informed about my loved one's illness.
Item
24. It bothers me that I need to be available to chauffeur my loved one to appointments.
integer
C0018896 (UMLS CUI [1,1])
C0022107 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
Code List
24. It bothers me that I need to be available to chauffeur my loved one to appointments.
Item
25. I fear the adverse effects of treatment on my loved one.
integer
C0879626 (UMLS CUI [1,1])
C0015726 (UMLS CUI [1,2])
Code List
25. I fear the adverse effects of treatment on my loved one.
Item
26. The responsibility I have for my loved one's care at home is overwhelming.
integer
C0678341 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
Code List
26. The responsibility I have for my loved one's care at home is overwhelming.
Item
27. I am glad that my focus is on getting my loved one well.
integer
C0242428 (UMLS CUI [1,1])
C0004268 (UMLS CUI [1,2])
C0018896 (UMLS CUI [1,3])
C0021797 (UMLS CUI [1,4])
Code List
27. I am glad that my focus is on getting my loved one well.
Item
28. Family communication has increased.
integer
C0015576 (UMLS CUI [1,1])
C0009452 (UMLS CUI [1,2])
Code List
28. Family communication has increased.
Item
29. It bothers me that my priorities have changed.
integer
C0439607 (UMLS CUI [1,1])
C0392747 (UMLS CUI [1,2])
Code List
29. It bothers me that my priorities have changed.
Item
30. The need to protect my loved one bothers me.
integer
C1545588 (UMLS CUI [1,1])
C0021797 (UMLS CUI [1,2])
Code List
30. The need to protect my loved one bothers me.
Item
31. It upsets me to see my loved one deteriorate.
integer
C3887804 (UMLS CUI [1,1])
C1457868 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
Code List
31. It upsets me to see my loved one deteriorate.
Item
32. The need to manage my loved one's pain is overwhelming.
integer
C0002766 (UMLS CUI [1])
Code List
32. The need to manage my loved one's pain is overwhelming.
Item
33. I am discouraged about the future.
integer
C0150041 (UMLS CUI [1])
Code List
33. I am discouraged about the future.
Item
34. I am satisfied with the support I get from my family.
integer
C0037438 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
Code List
34. I am satisfied with the support I get from my family.
Item
35. It bothers me that other family members have not shown interest in taking care of my loved one.
integer
C0037438 (UMLS CUI [1,1])
C0016770 (UMLS CUI [1,2])
Code List
35. It bothers me that other family members have not shown interest in taking care of my loved one.