Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Cleft-Q Social Function, total score
Item
Cleft-Q Social Function, total score
integer
C4321245 (UMLS CUI [1,1])
C0008925 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0728831 (UMLS CUI [2,1])
C0542341 (UMLS CUI [2,2])
Pediatric Sleep Questionnaire, total score
Item
Pediatric Sleep Questionnaire, total score
integer
C1521725 (UMLS CUI [1,1])
C0037313 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
Item
Has your child/have you required surgery on their/your jaw for their/your airway?
integer
C0407713 (UMLS CUI [1])
Code List
Has your child/have you required surgery on their/your jaw for their/your airway?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Does your child/do you require airway support when sleeping – CPAP?
integer
C0199451 (UMLS CUI [1,1])
C0037313 (UMLS CUI [1,2])
Code List
Does your child/do you require airway support when sleeping – CPAP?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Has the patient had surgery for the airway?
integer
C0458827 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
Code List
Has the patient had surgery for the airway?
CL Item
Tonsillectomy (1)
C0040423 (UMLS CUI-1)
(Comment:en)
CL Item
Adenoidectomy (2)
C0001425 (UMLS CUI-1)
(Comment:en)
CL Item
Mandibular distraction (3)
C0024687 (UMLS CUI-1)
C0524975 (UMLS CUI-2)
(Comment:en)
Cleft-Q Eating and Drinking, total score
Item
Cleft-Q Eating and Drinking, total score
integer
C4321245 (UMLS CUI [1,1])
C0008925 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0013470 (UMLS CUI [2,1])
C0684271 (UMLS CUI [2,2])
Item
The following questions are also related to appearance, but in more detail. We would like you to answer by giving a score from 1 to 5, using the scale below. Section A: We've marked out 9 key areas of a 'normal' ear below. We'd like you to find them on your reconstructed ear and give them a score using the scale above. 1) Helical rim
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0229304 (UMLS CUI [2,1])
C4554553 (UMLS CUI [2,2])
Code List
The following questions are also related to appearance, but in more detail. We would like you to answer by giving a score from 1 to 5, using the scale below. Section A: We've marked out 9 key areas of a 'normal' ear below. We'd like you to find them on your reconstructed ear and give them a score using the scale above. 1) Helical rim
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
2) Scaphoid fossa
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0458629 (UMLS CUI [2])
Code List
2) Scaphoid fossa
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
3) Conchal bowl
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0229316 (UMLS CUI [2])
Code List
3) Conchal bowl
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
4) Anti-tragus
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0229314 (UMLS CUI [2])
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
5) Triangular fossa
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0931624 (UMLS CUI [2])
Code List
5) Triangular fossa
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
6) Anti-helix
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0229308 (UMLS CUI [2])
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
7) Tragus
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C1000996 (UMLS CUI [2])
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
8) Incisura
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0229313 (UMLS CUI [2])
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
9) Lobe
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C4068922 (UMLS CUI [2])
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
Section B: How satisfied are you with the following (again please use the scale above): 10) The size of your ear? (Big or small)
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0013443 (UMLS CUI [2,1])
C0456389 (UMLS CUI [2,2])
Code List
Section B: How satisfied are you with the following (again please use the scale above): 10) The size of your ear? (Big or small)
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
11) The projection of your ear? (How much it sticks out)
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0849820 (UMLS CUI [2])
Code List
11) The projection of your ear? (How much it sticks out)
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
12) The position of your ear? (Too high or low; see Picture I)
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0013443 (UMLS CUI [2,1])
C0733755 (UMLS CUI [2,2])
Code List
12) The position of your ear? (Too high or low; see Picture I)
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
13) The rotation of your ear? (How much your ear tilts)
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0013443 (UMLS CUI [2,1])
C0035868 (UMLS CUI [2,2])
Code List
13) The rotation of your ear? (How much your ear tilts)
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
14) The skin covering your ear? (quality, colour, hair)
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C1123023 (UMLS CUI [2,1])
C0013443 (UMLS CUI [2,2])
C0332306 (UMLS CUI [2,3])
C1123023 (UMLS CUI [3,1])
C0013443 (UMLS CUI [3,2])
C0009393 (UMLS CUI [3,3])
C1123023 (UMLS CUI [4,1])
C0013443 (UMLS CUI [4,2])
C0018494 (UMLS CUI [4,3])
Code List
14) The skin covering your ear? (quality, colour, hair)
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Item
15) The scars around your ear and scalp?
integer
C0013443 (UMLS CUI [1,1])
C4279947 (UMLS CUI [1,2])
C0681889 (UMLS CUI [1,3])
C0241158 (UMLS CUI [2,1])
C0013443 (UMLS CUI [2,2])
C0241158 (UMLS CUI [3,1])
C0036270 (UMLS CUI [3,2])
Code List
15) The scars around your ear and scalp?
CL Item
Very dissatisfied (1)
C3843339 (UMLS CUI-1)
(Comment:en)
CL Item
Quite dissatisfied (2)
C2984080 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)
CL Item
Alright (3)
C3843337 (UMLS CUI-1)
(Comment:en)
CL Item
Quite satisfied (4)
C2984080 (UMLS CUI-1)
C4084799 (UMLS CUI-2)
(Comment:en)
CL Item
Very satisfied (5)
C3840671 (UMLS CUI-1)
(Comment:en)
Cleft-Q Appearance of the Face, total score
Item
Cleft-Q Appearance of the Face, total score
integer
C4321245 (UMLS CUI [1,1])
C0008925 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0700364 (UMLS CUI [2,1])
C0015450 (UMLS CUI [2,2])
Cleft-Q Appearance of the Teeth, total score
Item
Cleft-Q Appearance of the Teeth, total score
integer
C4321245 (UMLS CUI [1,1])
C0008925 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0700364 (UMLS CUI [2,1])
C0040426 (UMLS CUI [2,2])