Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: Patients with craniofacial microsomia TIMING: On all forms REPORTING SOURCE: Administrative data RESPONSE OPTIONS: According to institution

Data type

integer

Alias

UMLS CUI [1]

C1269815

Description

As the source of the distress thermometer questions are not sure, the actual 50 questions are not part of this version of the standard set. ICHOM OID's are: DT-P_Q01 to DT-P_Q50. Inclusion criteria: Parents of patients with craniofacial microsomia Timing: 2, 5, 8, 12 years Reporting Source: Parent-reported Type: Single answer

Data type

text

Alias

UMLS CUI [1,1]

C0231303

UMLS CUI [1,2]

C0034394

Description

Inclusion criteria: Patients with craniofacial microsomia Timing: 2, 5, 8, 12, 22 years Reporting Source: Parent-reported Type: Single answer

Data type

integer

Alias

UMLS CUI [1,1]

C0008059

UMLS CUI [1,2]

C0521116

UMLS CUI [1,3]

C1514873

UMLS CUI [1,4]

C0040590

Description

Inclusion criteria: Patients with craniofacial microsomia Timing: 2, 5, 8, 12, 22 years Reporting Source: Parent-reported Type: Single answer

Data type

integer

Alias

UMLS CUI [1,1]

C0008059

UMLS CUI [1,2]

C0521116

UMLS CUI [1,3]

C1514873

UMLS CUI [1,4]

C0150683