English

Baseline - Clinical Form

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

text

Alias
UMLS CUI [1]
C1269815
Patient Demographic Factors
Description

Patient Demographic Factors

Alias
UMLS CUI-1
C1704791
Indicate the age at each clinical evaluation
Description

Inclusion Criteria: All patients Timing: On all forms Data Source: Clinical, parent-reported, or patient-reported Type: Single answer Response Options: Years and fractions

Data type

text

Measurement units
  • years
Alias
UMLS CUI [1]
C0001779
years
Indicate the patient’s sex at birth
Description

Inclusion Criteria: All patients Inclusion Criteria: All patients Timing: Baseline Data Source: Clinical, parent-reported, or patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0079399
Indicate the patient’s insurance status
Description

Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1548070
Baseline Clinical Status
Description

Baseline Clinical Status

Alias
UMLS CUI-1
C0449440
UMLS CUI-2
C1442488
Indicate the cause of the facial paralysis using the following groupings:
Description

Inclusion Criteria: All patients Timing: Baseline Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0427055
UMLS CUI [1,2]
C1314792
Indicate whether the facial paralysis is unilateral or bilateral
Description

Inclusion Criteria: All patients Timing: Baseline Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0427055
UMLS CUI [1,2]
C0925205
Indicate whether the facial paralysis involves multiple or a single facial nerve branch territory
Description

Inclusion Criteria: If "1 = Unilateral" to FP_LAT Timing: Baseline Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0427055
UMLS CUI [1,2]
C0205092
UMLS CUI [1,3]
C0205146
Indicate whether the facial nerve branch territory is symetrical or asymetrical
Description

Inclusion Criteria: If "2 = Bilateral" to FP_LAT Timing: Baseline Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0427055
UMLS CUI [1,2]
C0238767
UMLS CUI [1,3]
C0205146
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
Description

Supporting Definition: Based on eFACE Inclusion Criteria: All patients >3y Timing: Baseline Data Source: Clinician Type: Single answer Response Options: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C3846158
UMLS CUI [1,2]
C0427055
UMLS CUI [1,3]
C0439793
UMLS CUI [1,4]
C0034394
UMLS CUI [1,5]
C0449820
Indicate whether the patient has any comorbidities
Description

Inclusion Criteria: All patients Timing: On all forms Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0009488
Indicate if the patient has any of the following comorbidities 0 = No other diseases
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C2359476
Indicate if the patient has any of the following comorbidities 1 = Cardiac anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C3277906
UMLS CUI [3,1]
C0018787
UMLS CUI [3,2]
C1704258
Indicate if the patient has any of the following comorbidities 2 = GU anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0042066
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0042066
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 3 = Developmental delay or learning difficulty
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0424605
UMLS CUI [3]
C0851265
Indicate if the patient has any of the following comorbidities 4 = Psychiatric or behavior disorder
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0004936
UMLS CUI [3]
C0004930
Indicate if the patient has any of the following comorbidities 5 = Infection or toxin mediated disease
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0009450
UMLS CUI [3,1]
C0040549
UMLS CUI [3,2]
C0012634
Indicate if the patient has any of the following comorbidities 6 = GI anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0521362
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0521362
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 7 = Other musculoskeletal anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0026860
UMLS CUI [2,2]
C3887504
UMLS CUI [3,1]
C0026860
UMLS CUI [3,2]
C1704258
Indicate if the patient has any of the following comorbidities 8 = Other craniomaxillofacial anomalies
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0205394
UMLS CUI [2,2]
C0037303
UMLS CUI [2,3]
C0024947
UMLS CUI [2,4]
C1704258
Indicate if the patient has any of the following comorbidities 9 = Pulmonary anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C2709248
UMLS CUI [2,2]
C1704258
UMLS CUI [3]
C1709770
Indicate if the patient has any of the following comorbidities 10 = Hematological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0279810
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0279810
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 11 = Immunological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0205470
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0205470
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 12 = Neurological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0027853
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0027853
UMLS CUI [3,2]
C3887504
Other
Description

Other

Alias
UMLS CUI-1
C0205394
Indicate if the patient has been transferred to your institution after care was begun elsewhere
Description

Inclusion Criteria: All patients Timing: Baseline Data Source: Clinician/Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0030704
UMLS CUI [1,2]
C0184681
Indicate the age of transfer into your institution
Description

Inclusion Criteria: If "1 = Yes" to TOCIN Timing: T0 Data Source: Clinician/Administrative data Type: Numerical value Response Options: Numerical value of years and fractions

Data type

integer

Alias
UMLS CUI [1,1]
C0030704
UMLS CUI [1,2]
C0439786
UMLS CUI [1,3]
C0001779
Degree of Health
Description

Degree of Health

Alias
UMLS CUI-1
C0018759
Indicate who is completing the PROMs
Description

Supporting Definition: PROMs refer to patient-, parent- or proxy-reported tools Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C4038447
UMLS CUI [1,2]
C4277735
Indicate the distance visual acuity measured uncorrected in the right eye
Description

Supporting Definition: Use Snellen Chart to measure visual acuity Inclusion Criteria: Age >6y Timing: Baseline, 5 and 11 ages Follow-up, End of study Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0183370
UMLS CUI [1,2]
C0429537
UMLS CUI [1,3]
C4072785
UMLS CUI [1,4]
C0229089
Indicate the distance visual acuity measured best corrected in the right eye
Description

Supporting Definition: Use Snellen Chart to measure visual acuity Inclusion Criteria: Age >6y Timing: Baseline, 5 and 11 ages Follow-up, End of study Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0183370
UMLS CUI [1,2]
C0429537
UMLS CUI [1,3]
C1690532
UMLS CUI [1,4]
C0229089
Indicate the distance visual acuity measured uncorrected in the left eye
Description

Supporting Definition: Use Snellen Chart to measure visual acuity Inclusion Criteria: Age >6y Timing: Baseline, 5 and 11 ages Follow-up, End of study Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0183370
UMLS CUI [1,2]
C0429537
UMLS CUI [1,3]
C4072785
UMLS CUI [1,4]
C0229090
Indicate the distance visual acuity measured best corrected in the left eye
Description

Supporting Definition: Use Snellen Chart to measure visual acuity Inclusion Criteria: Age >6y Timing: Baseline, 5 and 11 ages Follow-up, End of study Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0183370
UMLS CUI [1,2]
C0429537
UMLS CUI [1,3]
C1690532
UMLS CUI [1,4]
C0229090
Has the patient been evaluated to rule out ambliopia?
Description

Inclusion Criteria: All patients Timing: Baseline, 5 and 11 ages Follow-up Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0002418
UMLS CUI [1,2]
C0220825
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
Description

Supporting Definition: Based on eFACE Inclusion Criteria: Age >3y Timing: On all forms Data Source: Clinician/Administrative data Type: Numerical value Response Options: Numerical

Data type

integer

Alias
UMLS CUI [1,1]
C3846158
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0439793
UMLS CUI [1,4]
C0015469
UMLS CUI [2]
C0517048
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Similar models

Baseline - Clinical Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
text
C1269815 (UMLS CUI [1])
Item Group
Patient Demographic Factors
C1704791 (UMLS CUI-1)
Age
Item
Indicate the age at each clinical evaluation
text
C0001779 (UMLS CUI [1])
Item
Indicate the patient’s sex at birth
integer
C0079399 (UMLS CUI [1])
Sex at birth
Code List
Indicate the patient’s sex at birth
CL Item
Male (1)
C1706180 (UMLS CUI-1)
(Comment:en)
CL Item
Female (2)
C0086287 (UMLS CUI-1)
(Comment:en)
CL Item
Undisclosed (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate the patient’s insurance status
integer
C1548070 (UMLS CUI [1])
Education level
Code List
Indicate the patient’s insurance status
CL Item
Uninsured (0)
C0087134 (UMLS CUI-1)
(Comment:en)
CL Item
Private insurance (1)
C3845555 (UMLS CUI-1)
(Comment:en)
CL Item
Governmental insurance (2)
C0021682 (UMLS CUI-1)
(Comment:en)
Item Group
Baseline Clinical Status
C0449440 (UMLS CUI-1)
C1442488 (UMLS CUI-2)
Item
Indicate the cause of the facial paralysis using the following groupings:
integer
C0427055 (UMLS CUI [1,1])
C1314792 (UMLS CUI [1,2])
Facial palsy aetiology
Code List
Indicate the cause of the facial paralysis using the following groupings:
CL Item
Syndromic congenital (1)
C0039082 (UMLS CUI-1)
C0000768 (UMLS CUI-2)
(Comment:en)
CL Item
Isolated congenital (2)
C0205409 (UMLS CUI-1)
C0000768 (UMLS CUI-2)
(Comment:en)
CL Item
Infective acquired (3)
C0009450 (UMLS CUI-1)
C0439661 (UMLS CUI-2)
(Comment:en)
CL Item
Traumatic acquired (4)
C3263723 (UMLS CUI-1)
C0439661 (UMLS CUI-2)
(Comment:en)
CL Item
Neoplasm/compressive acquired (5)
C0027651 (UMLS CUI-1)
C0439661 (UMLS CUI-2)
C0332459 (UMLS CUI-3)
C0439661 (UMLS CUI-4)
(Comment:en)
CL Item
Iatrogenic acquired (6)
C0439669 (UMLS CUI-1)
C0439661 (UMLS CUI-2)
(Comment:en)
CL Item
Bell’s acquired (7)
C0376175 (UMLS CUI-1)
(Comment:en)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the facial paralysis is unilateral or bilateral
integer
C0427055 (UMLS CUI [1,1])
C0925205 (UMLS CUI [1,2])
Facial palsy laterality
Code List
Indicate whether the facial paralysis is unilateral or bilateral
CL Item
Unilateral (1)
C0205092 (UMLS CUI-1)
(Comment:en)
CL Item
Bilateral (2)
C0238767 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the facial paralysis involves multiple or a single facial nerve branch territory
integer
C0427055 (UMLS CUI [1,1])
C0205092 (UMLS CUI [1,2])
C0205146 (UMLS CUI [1,3])
Facial palsy territory (unilateral)
Code List
Indicate whether the facial paralysis involves multiple or a single facial nerve branch territory
CL Item
Single (1)
C0205171 (UMLS CUI-1)
(Comment:en)
CL Item
Multi-territory (2)
C0439064 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the facial nerve branch territory is symetrical or asymetrical
integer
C0427055 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
C0205146 (UMLS CUI [1,3])
Facial palsy territory (unilateral)
Code List
Indicate whether the facial nerve branch territory is symetrical or asymetrical
CL Item
Symmetrical single (1)
C0332516 (UMLS CUI-1)
C0205171 (UMLS CUI-2)
(Comment:en)
CL Item
Symmetrical multi-territory (2)
C0332516 (UMLS CUI-1)
C0439064 (UMLS CUI-2)
(Comment:en)
CL Item
Asymmetrical (3)
C0332514 (UMLS CUI-1)
(Comment:en)
Facial palsy severity
Item
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
integer
C3846158 (UMLS CUI [1,1])
C0427055 (UMLS CUI [1,2])
C0439793 (UMLS CUI [1,3])
C0034394 (UMLS CUI [1,4])
C0449820 (UMLS CUI [1,5])
Item
Indicate whether the patient has any comorbidities
integer
C0009488 (UMLS CUI [1])
Patient Comorbidities
Code List
Indicate whether the patient has any comorbidities
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Comorbidities of paediatric patient: No other disease
Item
Indicate if the patient has any of the following comorbidities 0 = No other diseases
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C1298908 (UMLS CUI [2,1])
C2359476 (UMLS CUI [2,2])
Comorbidities of paediatric patient: Cardiac anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 1 = Cardiac anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C3277906 (UMLS CUI [2])
C0018787 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
Comorbidities of paediatric patient: GU anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 2 = GU anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0042066 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0042066 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Developmental delay or learning difficulty
Item
Indicate if the patient has any of the following comorbidities 3 = Developmental delay or learning difficulty
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0424605 (UMLS CUI [2])
C0851265 (UMLS CUI [3])
Comorbidities of paediatric patient: Psychiatric or behavior disorder
Item
Indicate if the patient has any of the following comorbidities 4 = Psychiatric or behavior disorder
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0004936 (UMLS CUI [2])
C0004930 (UMLS CUI [3])
Comorbidities of paediatric patient: Infection or toxin mediated disease
Item
Indicate if the patient has any of the following comorbidities 5 = Infection or toxin mediated disease
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0009450 (UMLS CUI [2])
C0040549 (UMLS CUI [3,1])
C0012634 (UMLS CUI [3,2])
Comorbidities of paediatric patient: GI anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 6 = GI anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0521362 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0521362 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Other musculoskeletal anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 7 = Other musculoskeletal anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0026860 (UMLS CUI [2,1])
C3887504 (UMLS CUI [2,2])
C0026860 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Other craniomaxillofacial anomalies
Item
Indicate if the patient has any of the following comorbidities 8 = Other craniomaxillofacial anomalies
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C0037303 (UMLS CUI [2,2])
C0024947 (UMLS CUI [2,3])
C1704258 (UMLS CUI [2,4])
Comorbidities of paediatric patient: Pulmonary anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 9 = Pulmonary anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C2709248 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C1709770 (UMLS CUI [3])
Comorbidities of paediatric patient: Hematological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 10 = Hematological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0279810 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0279810 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Immunological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 11 = Immunological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0205470 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0205470 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Neurological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 12 = Neurological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0027853 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0027853 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Item Group
Other
C0205394 (UMLS CUI-1)
Item
Indicate if the patient has been transferred to your institution after care was begun elsewhere
integer
C0030704 (UMLS CUI [1,1])
C0184681 (UMLS CUI [1,2])
Patient Comorbidities
Code List
Indicate if the patient has been transferred to your institution after care was begun elsewhere
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Age of transfer into your institution
Item
Indicate the age of transfer into your institution
integer
C0030704 (UMLS CUI [1,1])
C0439786 (UMLS CUI [1,2])
C0001779 (UMLS CUI [1,3])
Item Group
Degree of Health
C0018759 (UMLS CUI-1)
Item
Indicate who is completing the PROMs
integer
C4038447 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
Reporting source of PROM
Code List
Indicate who is completing the PROMs
CL Item
Patient (1)
C0030705 (UMLS CUI-1)
(Comment:en)
CL Item
Parent/proxy (2)
C0030551 (UMLS CUI-1)
C0600420 (UMLS CUI-2)
(Comment:en)
Visual acuity using Snellen chart, uncorrected right eye
Item
Indicate the distance visual acuity measured uncorrected in the right eye
integer
C0183370 (UMLS CUI [1,1])
C0429537 (UMLS CUI [1,2])
C4072785 (UMLS CUI [1,3])
C0229089 (UMLS CUI [1,4])
Visual acuity using Snellen chart, best corrected right eye
Item
Indicate the distance visual acuity measured best corrected in the right eye
integer
C0183370 (UMLS CUI [1,1])
C0429537 (UMLS CUI [1,2])
C1690532 (UMLS CUI [1,3])
C0229089 (UMLS CUI [1,4])
Visual acuity using Snellen chart, uncorrected left eye
Item
Indicate the distance visual acuity measured uncorrected in the left eye
integer
C0183370 (UMLS CUI [1,1])
C0429537 (UMLS CUI [1,2])
C4072785 (UMLS CUI [1,3])
C0229090 (UMLS CUI [1,4])
Visual acuity using Snellen chart, best corrected left eye
Item
Indicate the distance visual acuity measured best corrected in the left eye
integer
C0183370 (UMLS CUI [1,1])
C0429537 (UMLS CUI [1,2])
C1690532 (UMLS CUI [1,3])
C0229090 (UMLS CUI [1,4])
Item
Has the patient been evaluated to rule out ambliopia?
integer
C0002418 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
Patient Comorbidities
Code List
Has the patient been evaluated to rule out ambliopia?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
eFACE scoring
Item
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
integer
C3846158 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0439793 (UMLS CUI [1,3])
C0015469 (UMLS CUI [1,4])
C0517048 (UMLS CUI [2])
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