English

Post intervention - Clinical Form

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

text

Alias
UMLS CUI [1]
C1269815
Time Relative to Baseline
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Treatment
Description

Treatment

Alias
UMLS CUI-1
C0087111
Indicate intervention type
Description

Inclusion Criteria: All patients Timing: Ongoing Data Source: Clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0332307
Indicate the date of intervention
Description

Inclusion Criteria: All patients Timing: Ongoing Data Source: Clinical Type: Date by DD/MM/YYYY Response Options: DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C2584899
DD/MM/YYYY
Clinical Status
Description

Clinical Status

Alias
UMLS CUI-1
C0449440
Indicate whether the patient has any comorbidities
Description

Inclusion Criteria: All patients Timing: On all forms Data Source: Clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0009488
Indicate if the patient has any of the following comorbidities 0 = No other diseases
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C2359476
Indicate if the patient has any of the following comorbidities 1 = Cardiac anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C3277906
UMLS CUI [3,1]
C0018787
UMLS CUI [3,2]
C1704258
Indicate if the patient has any of the following comorbidities 2 = GU anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0042066
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0042066
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 3 = Developmental delay or learning difficulty
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0424605
UMLS CUI [3]
C0851265
Indicate if the patient has any of the following comorbidities 4 = Psychiatric or behavior disorder
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0004936
UMLS CUI [3]
C0004930
Indicate if the patient has any of the following comorbidities 5 = Infection or toxin mediated disease
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0009450
UMLS CUI [3,1]
C0040549
UMLS CUI [3,2]
C0012634
Indicate if the patient has any of the following comorbidities 6 = GI anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0521362
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0521362
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 7 = Other musculoskeletal anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0026860
UMLS CUI [2,2]
C3887504
UMLS CUI [3,1]
C0026860
UMLS CUI [3,2]
C1704258
Indicate if the patient has any of the following comorbidities 8 = Other craniomaxillofacial anomalies
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0205394
UMLS CUI [2,2]
C0037303
UMLS CUI [2,3]
C0024947
UMLS CUI [2,4]
C1704258
Indicate if the patient has any of the following comorbidities 9 = Pulmonary anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C2709248
UMLS CUI [2,2]
C1704258
UMLS CUI [3]
C1709770
Indicate if the patient has any of the following comorbidities 10 = Hematological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0279810
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0279810
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 11 = Immunological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0205470
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0205470
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 12 = Neurological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinical Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0027853
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0027853
UMLS CUI [3,2]
C3887504
Burden of Care to Patient
Description

Burden of Care to Patient

Alias
UMLS CUI-1
C0087111
UMLS CUI-2
C2828008
Indicate if the patient experienced any of the following complications 1 = Bleeding requiring return to Operating Room
Description

Supporting Definition: - Bleeding requiring return to Operating Room: Active bleeding requiring operative re-exploration to establish haemostasis; or a hematoma of sufficient size to require evacuation and washout in the operating room Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2,1]
C0019080
UMLS CUI [2,2]
C1514873
UMLS CUI [2,3]
C0332156
UMLS CUI [2,4]
C0029064
Indicate if the patient experienced any of the following complications 2 = Bleeding requiring transfusion
Description

Supporting Definition: - Bleeding requiring transfusion: Bleeding sufficient to cause hemodynamic stress or appreciable drop in Hgb. / Hct., requiring transfusion of blood for treatment Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2,1]
C0019080
UMLS CUI [2,2]
C1514873
UMLS CUI [2,3]
C1879316
Indicate if the patient experienced any of the following complications 3 = Cellulitis
Description

Supporting Definition: - Cellulitis: Infection of the deep dermis and subcutaneous tissue, presenting with expanding erythema, warmth, tenderness, and swelling. Oral or parenteral antibiotic therapy is required. Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2]
C0007642
Indicate if the patient experienced any of the following complications 4 = Abscess
Description

Supporting Definition: - Abscess: Infection of subcutaneous or deeper tissues, with an enclosed collection of liquefied tissue (pus). Requires drainage, local wound care, and oral or parenteral antibiotic therapy Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2]
C0000833
Indicate if the patient experienced any of the following complications 5 = Material major infection
Description

Supporting Definition: - Material major: Pin severe infection: Severe soft tissue infection involving several pins ± pin loosening, osteolysis. Ex. Fix. must be discontinued, debridement and IV antibiotics are required / severe soft tissue infection, osteomyelitis or exposure of any implanted material, requiring intravenous antibiotics and additional unplanned operative procedures Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2]
C3532546
Indicate if the patient experienced any of the following complications 6 = Complete Dehiscence
Description

Supporting Definition: - Complete dehiscence: All layers of the wound thickness are separated, revealing the underlying tissue Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2,1]
C0259768
UMLS CUI [2,2]
C0205197
Indicate if the patient experienced any of the following complications 7 = Skin graft or flap necrosis
Description

Supporting Definition: - Skin graft or flap necrosis: Complication that results in the death of the skin tissue Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2,1]
C0161955
UMLS CUI [2,2]
C0027540
UMLS CUI [3]
C4075512
Indicate if the patient experienced any of the following complications 8 = Hypertrophic or Keloid scars
Description

Supporting Definition: - Hypertrophic or Keloid scars: Keloid scars, which extend beyond the original defect/scar and persist for many years. Hypertrophic scars, remain confined to the initial defect/scar and tend to improve with time Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2,1]
C0241158
UMLS CUI [2,2]
C0333959
UMLS CUI [3]
C1546770
Indicate if the patient experienced any of the following complications 9 = Drug adverse reaction
Description

Supporting Definition: - Drug adverse reaction: Undesirable experience associated with the use of a drug in a patient during the perioperative period or hospitalisation due to CULA-related condition Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2]
C0041755
Indicate if the patient experienced any of the following complications 10 = Death
Description

Supporting Definition: - Death: Loss of life from any cause. Death within the postoperative period should be specially designated, and cause of death should be specified Inclusion Criteria: All patients Timing: Updated 6 months after first intervention Data Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0687676
UMLS CUI [1,3]
C0184661
UMLS CUI [2]
C0011065
Number of appointments with the clinical team (e.g. hospital, rehabilitation) for management of CULA
Description

Inclusion Criteria: All patients Timing: Ongoing Data Source: Administrative Type: Numerical Response Options: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C0237753
UMLS CUI [1,2]
C0030675
UMLS CUI [1,3]
C0749794
Time spent in hospital from date of admission to date of discharge (days)
Description

Inclusion Criteria: All patients Timing: Ongoing Data Source: Administrative Type: Numerical Response Options: Numerical value

Data type

integer

Measurement units
  • days
Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0023303
days
Length of postoperative rehabilitation from date of surgery to date of discharge (days)
Description

Inclusion Criteria: All patients Timing: Ongoing Data Source: Administrative Type: Numerical Response Options: Numerical value

Data type

integer

Measurement units
  • days
Alias
UMLS CUI [1,1]
C1444754
UMLS CUI [1,2]
C0034991
UMLS CUI [1,3]
C0332282
UMLS CUI [1,4]
C0032790
days
Number of unplanned 30-day hospital readmissions after the first reconstructive surgery for CULA
Description

Inclusion Criteria: All patients Timing: Ongoing Data Source: Administrative Type: Numerical Response Options: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C0600290
UMLS CUI [1,2]
C3854240
UMLS CUI [1,3]
C0749794
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Similar models

Post intervention - Clinical Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
text
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Treatment
C0087111 (UMLS CUI-1)
Item
Indicate intervention type
integer
C0184661 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Intervention type
Code List
Indicate intervention type
CL Item
Amputation  (1)
C0002688 (UMLS CUI-1)
(Comment:en)
CL Item
Anlage Excision  (2)
C4248567 (UMLS CUI-1)
C0728940 (UMLS CUI-2)
(Comment:en)
CL Item
Arthrodesis  (3)
C0003881 (UMLS CUI-1)
(Comment:en)
CL Item
Correction/rotational osteotomy  (4)
C1947976 (UMLS CUI-1)
C0029468 (UMLS CUI-2)
C0445237 (UMLS CUI-3)
C0029468 (UMLS CUI-4)
(Comment:en)
CL Item
Direct closure of constriction rings  (5)
C1521802 (UMLS CUI-1)
C4021261 (UMLS CUI-2)
(Comment:en)
CL Item
Debulking surgery  (6)
C1706406 (UMLS CUI-1)
C0543467 (UMLS CUI-2)
(Comment:en)
CL Item
Free phalangeal transfer  (7)
C0408917 (UMLS CUI-1)
(Comment:en)
CL Item
joint contraction release  (8)
C0009918 (UMLS CUI-1)
C0012625 (UMLS CUI-2)
(Comment:en)
CL Item
Pollicisation  (9)
C0473697 (UMLS CUI-1)
(Comment:en)
CL Item
Radialisation (10)
C0408942 (UMLS CUI-1)
(Comment:en)
CL Item
Serial casting  (11)
C2348188 (UMLS CUI-1)
C2014382 (UMLS CUI-2)
(Comment:en)
CL Item
Splinting therapy  (12)
C1534709 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
(Comment:en)
CL Item
Syndactyly separation and web space widening  (13)
C0039075 (UMLS CUI-1)
C0678621 (UMLS CUI-2)
C2091684 (UMLS CUI-3)
(Comment:en)
CL Item
Tendon transfer  (14)
C0039508 (UMLS CUI-1)
C1705822 (UMLS CUI-2)
(Comment:en)
CL Item
Toe to Hand transfer  (15)
C0040357 (UMLS CUI-1)
C0018563 (UMLS CUI-2)
C1705822 (UMLS CUI-3)
(Comment:en)
CL Item
Vascularised joint transfer  (16)
C0042382 (UMLS CUI-1)
C0022417 (UMLS CUI-2)
(Comment:en)
CL Item
Cryoablation  (17)
C0010408 (UMLS CUI-1)
(Comment:en)
CL Item
Embolisation  (18)
C0013931 (UMLS CUI-1)
(Comment:en)
CL Item
Endovascular laser treatment  (19)
C2936204 (UMLS CUI-1)
C0850168 (UMLS CUI-2)
(Comment:en)
CL Item
Rehabilitation  (20)
C0034991 (UMLS CUI-1)
(Comment:en)
CL Item
Sclerotherapy  (21)
C0036435 (UMLS CUI-1)
(Comment:en)
CL Item
Other (22)
C0205394 (UMLS CUI-1)
(Comment:en)
Date of intervention
Item
Indicate the date of intervention
date
C2584899 (UMLS CUI [1])
Item Group
Clinical Status
C0449440 (UMLS CUI-1)
Item
Indicate whether the patient has any comorbidities
integer
C0009488 (UMLS CUI [1])
Patient Comorbidities
Code List
Indicate whether the patient has any comorbidities
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Comorbidities of paediatric patient: No other disease
Item
Indicate if the patient has any of the following comorbidities 0 = No other diseases
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C1298908 (UMLS CUI [2,1])
C2359476 (UMLS CUI [2,2])
Comorbidities of paediatric patient: Cardiac anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 1 = Cardiac anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C3277906 (UMLS CUI [2])
C0018787 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
Comorbidities of paediatric patient: GU anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 2 = GU anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0042066 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0042066 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Developmental delay or learning difficulty
Item
Indicate if the patient has any of the following comorbidities 3 = Developmental delay or learning difficulty
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0424605 (UMLS CUI [2])
C0851265 (UMLS CUI [3])
Comorbidities of paediatric patient: Psychiatric or behavior disorder
Item
Indicate if the patient has any of the following comorbidities 4 = Psychiatric or behavior disorder
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0004936 (UMLS CUI [2])
C0004930 (UMLS CUI [3])
Comorbidities of paediatric patient: Infection or toxin mediated disease
Item
Indicate if the patient has any of the following comorbidities 5 = Infection or toxin mediated disease
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0009450 (UMLS CUI [2])
C0040549 (UMLS CUI [3,1])
C0012634 (UMLS CUI [3,2])
Comorbidities of paediatric patient: GI anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 6 = GI anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0521362 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0521362 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Other musculoskeletal anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 7 = Other musculoskeletal anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0026860 (UMLS CUI [2,1])
C3887504 (UMLS CUI [2,2])
C0026860 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Other craniomaxillofacial anomalies
Item
Indicate if the patient has any of the following comorbidities 8 = Other craniomaxillofacial anomalies
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C0037303 (UMLS CUI [2,2])
C0024947 (UMLS CUI [2,3])
C1704258 (UMLS CUI [2,4])
Comorbidities of paediatric patient: Pulmonary anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 9 = Pulmonary anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C2709248 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C1709770 (UMLS CUI [3])
Comorbidities of paediatric patient: Hematological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 10 = Hematological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0279810 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0279810 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Immunological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 11 = Immunological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0205470 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0205470 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Neurological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 12 = Neurological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0027853 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0027853 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Item Group
Burden of Care to Patient
C0087111 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
Post-intervention complications: Bleeding requiring return to OR
Item
Indicate if the patient experienced any of the following complications 1 = Bleeding requiring return to Operating Room
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0019080 (UMLS CUI [2,1])
C1514873 (UMLS CUI [2,2])
C0332156 (UMLS CUI [2,3])
C0029064 (UMLS CUI [2,4])
Post-intervention complications: Bleeding requiring transfusion
Item
Indicate if the patient experienced any of the following complications 2 = Bleeding requiring transfusion
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0019080 (UMLS CUI [2,1])
C1514873 (UMLS CUI [2,2])
C1879316 (UMLS CUI [2,3])
Post-intervention complications: Cellulitis
Item
Indicate if the patient experienced any of the following complications 3 = Cellulitis
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0007642 (UMLS CUI [2])
Post-intervention complications: Abscess
Item
Indicate if the patient experienced any of the following complications 4 = Abscess
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0000833 (UMLS CUI [2])
Post-intervention complications: Material major infection
Item
Indicate if the patient experienced any of the following complications 5 = Material major infection
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C3532546 (UMLS CUI [2])
Post-intervention complications: Complete Dehiscence
Item
Indicate if the patient experienced any of the following complications 6 = Complete Dehiscence
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0259768 (UMLS CUI [2,1])
C0205197 (UMLS CUI [2,2])
Post-intervention complications: Skin graft or flap necrosis
Item
Indicate if the patient experienced any of the following complications 7 = Skin graft or flap necrosis
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0161955 (UMLS CUI [2,1])
C0027540 (UMLS CUI [2,2])
C4075512 (UMLS CUI [3])
Post-intervention complications: Hypertrophic or Keloid scars
Item
Indicate if the patient experienced any of the following complications 8 = Hypertrophic or Keloid scars
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0241158 (UMLS CUI [2,1])
C0333959 (UMLS CUI [2,2])
C1546770 (UMLS CUI [3])
Post-intervention complications: Drug adverse reaction
Item
Indicate if the patient experienced any of the following complications 9 = Drug adverse reaction
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0041755 (UMLS CUI [2])
Post-intervention complications: Death
Item
Indicate if the patient experienced any of the following complications 10 = Death
boolean
C0009566 (UMLS CUI [1,1])
C0687676 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
C0011065 (UMLS CUI [2])
Number of hospital appointments
Item
Number of appointments with the clinical team (e.g. hospital, rehabilitation) for management of CULA
integer
C0237753 (UMLS CUI [1,1])
C0030675 (UMLS CUI [1,2])
C0749794 (UMLS CUI [1,3])
Length of hospital stay
Item
Time spent in hospital from date of admission to date of discharge (days)
integer
C0019994 (UMLS CUI [1,1])
C0023303 (UMLS CUI [1,2])
Length of post-operative rehabilitation
Item
Length of postoperative rehabilitation from date of surgery to date of discharge (days)
integer
C1444754 (UMLS CUI [1,1])
C0034991 (UMLS CUI [1,2])
C0332282 (UMLS CUI [1,3])
C0032790 (UMLS CUI [1,4])
Hospital readmissions
Item
Number of unplanned 30-day hospital readmissions after the first reconstructive surgery for CULA
integer
C0600290 (UMLS CUI [1,1])
C3854240 (UMLS CUI [1,2])
C0749794 (UMLS CUI [1,3])
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