Demographic factors
Supporting Definition: The level of schooling is defined in each country as per ISCED [International Standard Classification] Inclusion Criteria: All patients Timing: Baseline Reporting Source: Patient-reported Type: Single answer
integer
Clinical Factors
Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Patient-reported Type: Single answer
integer
Inclusion Criteria: If answered 'no' to smoking status (SMOKE) Timing: Baseline and annually Reporting Source: Patient-reported Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline Reporting Source: Patient‐reported or clinician‐reported Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Patient-reported Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Patient-reported Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Patient-reported Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Patient-reported Type: Single answer
integer
Supporting Definition: Please precede the question with the following introduction from the survey: "We are interested in finding out about the kinds of physical activities that people do as part of their everyday lives. The questions will ask you about the time you spent being physically active in the last 7 days. Please answer each question even if you do not consider yourself to be an active person. Please think about the activities you do at work, as part of your house and yard work, to get from place to place, and in your spare time for recreation, exercise or sport. Think about all the vigorous activities that you did in the last 7 days. Vigorous physical activities refer to activities that take hard physical effort and make you breathe much harder than normal. Think only about those physical activities that you did for at least 10 minutes at a time." Inclusion Criteria: All patients Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Single answer
integer
Inclusion Criteria: If answered '1-7' to vigorous physical activity ('IPAQ_Q01') Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Numerical response Response Option: Numerical value between 0 and 7 (use 000 if "don't know" or "unsure")
integer
Inclusion Criteria: All patients Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Single answer
integer
Supporting definition: Please precede this question with the following text: "Think about all the moderate activities that you did in the last 7 days. Moderate activities refer to activities that take moderate physical effort and make you breathe somewhat harder than normal. Think only about those physical activities that you did for at least 10 minutes at a time." Inclusion Criteria: All patients Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Single answer
integer
Inclusion Criteria: If answered '1-7' to moderate physical activity ('IPAQ_Q04') Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Numerical response Response Option: Numerical value (use 000 if "don't know" or "unsure")
integer
Inclusion Criteria: All patients Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Single answer
integer
Supporting Definition: Please precede this question with the following text: " Think about the time you spent walking in the last 7 days. This includes at work and at home, walking to travel from place to place, and any other walking that you have done solely for recreation, sport, exercise, or leisure." Inclusion Criteria: All patients Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Single answer
integer
Inclusion Criteria: If answered '1-7' to walking ('IPAQ_Q05') Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Numerical response Response Option: Numerical value (use 000 if "don't know" or "unsure")
integer
Inclusion Criteria: If answered '1-7' to walking ('IPAQ_Q05') Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Single answer
integer
Supporting Definition: Please precede this question with the following text: "The last question is about the time you spent sitting on weekdays during the last 7 days. Include time spent at work, at home, while doing course work and during leisure time. This may include time spent sitting at a desk, visiting friends, reading, or sitting or lying down to watch television." Inclusion Criteria: All patients Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Numerical response Response Option: Numerical value (use 000 if "don't know" or "unsure")
integer
Inclusion Criteria: All patients Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Single answer
integer
Patient-reported health status
Supporting Definition: The Working Group recommends the EQ-5D, but understands that some organisations may prefer to use alternative tools to assess Health‐Related Quality of Life. The following tools are also acceptable for use: PROMIS Global 10, VR‐12 or SF-12. Inclusion Criteria: If answered '1 = EQ5D3L' to Health-‐related Quality of Life ('HRQOL') Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient-reported
text
Supporting Definition: The Working Group recommends the EQ-5D, but understands that some organisations may prefer to use alternative tools to assess Health-‐Related Quality of Life. The following tools are also acceptable for use: PROMIS Global 10, VR‐12 or SF‐12. Inclusion Criteria: If answered '2 = SF12' to Health-‐related Quality of Life ('HRQOL') Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported
text
Supporting Definition: The Working Group recommends the EQ-5D, but understands that some organisations may prefer to use alternative tools to assess Health‐Related Quality of Life. The following tools are also acceptable for use: PROMIS Global 10, VR‐12 or SF-12. Inclusion Criteria: If answered '3 = VR12' to Health-‐related Quality of Life ('HRQOL') Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported
text
Supporting Definition: The Working Group recommends the EQ-5D, but understands that some organisations may prefer to use alternative tools to assess Health-Related Quality of Life. The following tools are also acceptable for use: PROMIS Global 10, VR-12 or SF-12. Inclusion Criteria: If answered '4 = PROMIS10' to Health-‐related Quality of Life ('HRQOL') Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported
text
As there is an official distribution site for PROMIS questionnaires and translations, this question is not included in this version of the standard set. Inclusion Criteria: If responded "1=male" to SEX Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient‐reported Type: Single answer
text
Inclusion Criteria: All patients Timing: Annually (included here due to the timeline information in the reference guide obtainable from ICHOM.org) Reporting Source: Patient-reported Type: Single answer
integer