Investigator
Item
Investigator
text
C2826892 (UMLS CUI [1])
Study contact
Item
Study contact
text
C0332158 (UMLS CUI [1,1])
C0008976 (UMLS CUI [1,2])
Telephone (daytime)
Item
Telephone (daytime)
integer
C1515258 (UMLS CUI [1,1])
C0332169 (UMLS CUI [1,2])
Telephone (evening/weekends)
Item
Telephone (evening/weekends)
integer
C1515258 (UMLS CUI [1,1])
C0587117 (UMLS CUI [1,2])
C1515258 (UMLS CUI [2,1])
C0680190 (UMLS CUI [2,2])
Address
Item
Address
text
C1442065 (UMLS CUI [1])
Item
Have you registered on the CF Questionnaire website?
text
C0010674 (UMLS CUI [1,1])
C3890583 (UMLS CUI [1,2])
C0159028 (UMLS CUI [1,3])
C2349146 (UMLS CUI [1,4])
C1514821 (UMLS CUI [1,5])
Code List
Have you registered on the CF Questionnaire website?
Item
Dosing day
integer
C0439228 (UMLS CUI [1,1])
C0178602 (UMLS CUI [1,2])
C0304229 (UMLS CUI [1,3])
Other dosing day
Item
If other dosing day, please specify
text
C0205394 (UMLS CUI [1,1])
C0439228 (UMLS CUI [1,2])
C0178602 (UMLS CUI [1,3])
C0304229 (UMLS CUI [1,4])
Date of Dose
Item
Date of Dose
date
C0304229 (UMLS CUI [1,1])
C0178602 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Time of Dose
Item
Time of Dose
time
C0304229 (UMLS CUI [1,1])
C0178602 (UMLS CUI [1,2])
C0040223 (UMLS CUI [1,3])
No. of Tablets from Bottle A
Item
No. of Tablets from Bottle A
integer
C0237753 (UMLS CUI [1,1])
C0039225 (UMLS CUI [1,2])
C0179376 (UMLS CUI [1,3])
No. of Tablets from Bottle B
Item
No. of Tablets from Bottle B
integer
C0237753 (UMLS CUI [1,1])
C0039225 (UMLS CUI [1,2])
C0179376 (UMLS CUI [1,3])
Item
Exacerbation event, record
integer
C4086268 (UMLS CUI [1,1])
C0010674 (UMLS CUI [1,2])
C0332127 (UMLS CUI [1,3])
Code List
Exacerbation event, record
Date of Exacerbation of CF Onset
Item
Date of Exacerbation Onset
date
C0574845 (UMLS CUI [1,1])
C0010674 (UMLS CUI [1,2])
C4086268 (UMLS CUI [1,3])
Time of Exacerbation of CF Onset
Item
Time of Exacerbation Onset
time
C0449244 (UMLS CUI [1,1])
C0010674 (UMLS CUI [1,2])
C4086268 (UMLS CUI [1,3])
Date of Exacerbation of CF Resolution
Item
Date of Exacerbation Resolution
date
C0011008 (UMLS CUI [1,1])
C2699488 (UMLS CUI [1,2])
C0010674 (UMLS CUI [1,3])
C4086268 (UMLS CUI [1,4])
Time of Exacerbation of CF Resolution
Item
Time of Exacerbation Resolution
time
C0040223 (UMLS CUI [1,1])
C2699488 (UMLS CUI [1,2])
C0010674 (UMLS CUI [1,3])
C4086268 (UMLS CUI [1,4])
Item
Were antibiotics prescribed for the exacerbation?
text
C0003232 (UMLS CUI [1,1])
C0033080 (UMLS CUI [1,2])
C0010674 (UMLS CUI [1,3])
C4086268 (UMLS CUI [1,4])
Code List
Were antibiotics prescribed for the exacerbation?
Item
Did the exacerbation require hospitalization?
text
C0010674 (UMLS CUI [1,1])
C4086268 (UMLS CUI [1,2])
C1514873 (UMLS CUI [1,3])
C0019993 (UMLS CUI [1,4])
Code List
Did the exacerbation require hospitalization?
Item
Medication record
integer
C0013227 (UMLS CUI [1,1])
C0332127 (UMLS CUI [1,2])
Code List
Medication record
Drug Name
Item
Drug Name
text
C0013227 (UMLS CUI [1])
Units of medication
Item
Units
text
C1519795 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Amount Taken of medication
Item
Amount Taken
integer
C1265611 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Reason for medication
Item
Reason for medication
text
C0392360 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Start Date of medication
Item
Start Date
date
C0013227 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
Start Time of medication
Item
Start Time
time
C0013227 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
Stop Date of medication
Item
Stop Date
date
C0013227 (UMLS CUI [1,1])
C0806020 (UMLS CUI [1,2])
Stop Time of medication
Item
Stop Time
time
C0013227 (UMLS CUI [1,1])
C1522314 (UMLS CUI [1,2])
Item
Changes in health, record.
integer
C0392747 (UMLS CUI [1,1])
C0018759 (UMLS CUI [1,2])
C0332127 (UMLS CUI [1,3])
Code List
Changes in health, record.
Event
Item
Event
text
C0441471 (UMLS CUI [1])
Start Date of event
Item
Start Date
date
C0441471 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
Start Time of event
Item
Start Time
time
C0441471 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
Stop Date of event
Item
Stop Date
date
C0441471 (UMLS CUI [1,1])
C0806020 (UMLS CUI [1,2])
Stop Time of event
Item
Stop Time
time
C0441471 (UMLS CUI [1,1])
C1522314 (UMLS CUI [1,2])
Item
Maximum intensity of event
integer
C0441471 (UMLS CUI [1,1])
C0518690 (UMLS CUI [1,2])
Code List
Maximum intensity of event
Result of questionnaires/ indices
Item
Result
text
C1274040 (UMLS CUI [1,1])
C0034394 (UMLS CUI [1,2])