English

Complications post-intervention

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion criteria: Patients with craniofacial microsomia Timing: On all forms Reporting Source: Administrative data Type: Numerical Response Option: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Time relative to intervention
Description

Note: this item does not exist in the original form. As this form has to be filled in 30 days and 6 months post intervention, please tick for which time you'll fill in this form.

Data type

integer

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C0184661
Patient characteristics
Description

Patient characteristics

Alias
UMLS CUI-1
C0815172
Please calculate Asymmetry score?
Description

Supporting Definition: Tracked with PAT-CFM Inclusion criteria: Patients with craniofacial microsomia Timing: All time points Reporting Source: Clinician-reported Type: Numerical value Response option: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C0332514
UMLS CUI [1,2]
C0432131
Burden of care
Description

Burden of care

Alias
UMLS CUI-1
C0087111
UMLS CUI-2
C2828008
Indicate if the patient experienced any of the following complications: 0 = None
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0032787
UMLS CUI [1,2]
C0549184
Indicate if the patient experienced any of the following complications: 1 = Bleeding requiring unexpected return
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C0019080
UMLS CUI [2,2]
C1514873
UMLS CUI [2,3]
C4055646
UMLS CUI [2,4]
C0332156
UMLS CUI [2,5]
C0029064
Indicate if the patient experienced any of the following complications: 2 = Bleeding requiring unexpected transfusion
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C0019080
UMLS CUI [2,2]
C1514873
UMLS CUI [2,3]
C4055646
UMLS CUI [2,4]
C1879316
Indicate if the patient experienced any of the following complications: 3 = Infection: abscess
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2]
C0000833
Indicate if the patient experienced any of the following complications: 4 = Infection: graft material
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C0181074
UMLS CUI [2,2]
C3714514
Indicate if the patient experienced any of the following complications: 5 = Loss of vision
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2]
C0730512
Indicate if the patient experienced any of the following complications: 6 = Loss of globe
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C1517945
UMLS CUI [2,2]
C0015392
Indicate if the patient experienced any of the following complications: 7 = Wound: flap necrosis
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C1096106
UMLS CUI [2,2]
C4075512
Indicate if the patient experienced any of the following complications: 8 = Iatrogenic injury to cornea/globe
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C0854404
UMLS CUI [2,2]
C0010031
UMLS CUI [3,1]
C0854404
UMLS CUI [3,2]
C0015392
Indicate if the patient experienced any of the following complications: 9 = Iatrogenic injury to nerve(s)
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C0854404
UMLS CUI [2,2]
C0027740
Indicate if the patient experienced any of the following complications: 10 = Iatrogenic injury to permanent teeth
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C0854404
UMLS CUI [2,2]
C0348070
Indicate if the patient experienced any of the following complications: 11 = Respiratory distress requiring mechanical ventilation
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C0476273
UMLS CUI [2,2]
C1514873
UMLS CUI [2,3]
C0199470
Indicate if the patient experienced any of the following complications: 12 = Ankylosis of mandible/temporomandibular joints
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C0003090
UMLS CUI [2,2]
C0039493
Indicate if the patient experienced any of the following complications: 13 = Hardware failure: dentofacial orthopaedics
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C4035912
UMLS CUI [2,2]
C4544520
UMLS CUI [2,3]
C0029355
Indicate if the patient experienced any of the following complications: 14 = Hardware failure (exposure of infection)
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2,1]
C4035912
UMLS CUI [2,2]
C0332157
UMLS CUI [2,3]
C3714514
Indicate if the patient experienced any of the following complications: 15 = Death
Description

Supporting Definition: Select all that apply Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Clinical Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1]
C0032787
UMLS CUI [2]
C0011065
If patient was hospitalized please indicate the date the patient first arrived
Description

Supporting Definition: Date used to calculate total length of stay and post-procedure length of stay Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Administrative data Type: Date by DD/MM/YYYY Response option: DD/MM/YYYY at arrival

Data type

date

Alias
UMLS CUI [1,1]
C0205435
UMLS CUI [1,2]
C3263562
UMLS CUI [1,3]
C0011008
Indicate the date the patient was discharged
Description

Supporting Definition: Date used to calculate total length of stay Inclusion criteria: Patients with craniofacial microsomia Timing: 30 days and 6 months post-operatively Reporting Source: Administrative data Type: Date by DD/MM/YYYY Response option: DD/MM/YYYY at discharge

Data type

date

Alias
UMLS CUI [1]
C2361123
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Similar models

Complications post-intervention

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Item
Time relative to intervention
integer
C0439564 (UMLS CUI [1,1])
C0184661 (UMLS CUI [1,2])
Time relative to intervention
Code List
Time relative to intervention
CL Item
30 days post-intervention (1)
CL Item
6 months post-intervention (2)
Item Group
Patient characteristics
C0815172 (UMLS CUI-1)
Phenotype: Asymmetry
Item
Please calculate Asymmetry score?
integer
C0332514 (UMLS CUI [1,1])
C0432131 (UMLS CUI [1,2])
Item Group
Burden of care
C0087111 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
Post-operative complications: None
Item
Indicate if the patient experienced any of the following complications: 0 = None
boolean
C0032787 (UMLS CUI [1,1])
C0549184 (UMLS CUI [1,2])
Post-operative complications: Bleeding requiring unexpected return
Item
Indicate if the patient experienced any of the following complications: 1 = Bleeding requiring unexpected return
boolean
C0032787 (UMLS CUI [1])
C0019080 (UMLS CUI [2,1])
C1514873 (UMLS CUI [2,2])
C4055646 (UMLS CUI [2,3])
C0332156 (UMLS CUI [2,4])
C0029064 (UMLS CUI [2,5])
Post-operative complications: Bleeding requiring unexpected transfusion
Item
Indicate if the patient experienced any of the following complications: 2 = Bleeding requiring unexpected transfusion
boolean
C0032787 (UMLS CUI [1])
C0019080 (UMLS CUI [2,1])
C1514873 (UMLS CUI [2,2])
C4055646 (UMLS CUI [2,3])
C1879316 (UMLS CUI [2,4])
Post-operative complications: Infection: abscess
Item
Indicate if the patient experienced any of the following complications: 3 = Infection: abscess
boolean
C0032787 (UMLS CUI [1])
C0000833 (UMLS CUI [2])
Post-operative complications: Infection: graft material
Item
Indicate if the patient experienced any of the following complications: 4 = Infection: graft material
boolean
C0032787 (UMLS CUI [1])
C0181074 (UMLS CUI [2,1])
C3714514 (UMLS CUI [2,2])
Post-operative complications: Loss of vision
Item
Indicate if the patient experienced any of the following complications: 5 = Loss of vision
boolean
C0032787 (UMLS CUI [1])
C0730512 (UMLS CUI [2])
Post-operative complications: Loss of globe
Item
Indicate if the patient experienced any of the following complications: 6 = Loss of globe
boolean
C0032787 (UMLS CUI [1])
C1517945 (UMLS CUI [2,1])
C0015392 (UMLS CUI [2,2])
Post-operative complications: Wound: flap necrosis
Item
Indicate if the patient experienced any of the following complications: 7 = Wound: flap necrosis
boolean
C0032787 (UMLS CUI [1])
C1096106 (UMLS CUI [2,1])
C4075512 (UMLS CUI [2,2])
Post-operative complications: Iatrogenic injury to cornea/globe
Item
Indicate if the patient experienced any of the following complications: 8 = Iatrogenic injury to cornea/globe
boolean
C0032787 (UMLS CUI [1])
C0854404 (UMLS CUI [2,1])
C0010031 (UMLS CUI [2,2])
C0854404 (UMLS CUI [3,1])
C0015392 (UMLS CUI [3,2])
Post-operative complications: Iatrogenic injury to nerve(s)
Item
Indicate if the patient experienced any of the following complications: 9 = Iatrogenic injury to nerve(s)
boolean
C0032787 (UMLS CUI [1])
C0854404 (UMLS CUI [2,1])
C0027740 (UMLS CUI [2,2])
Post-operative complications: Iatrogenic injury to permanent teeth
Item
Indicate if the patient experienced any of the following complications: 10 = Iatrogenic injury to permanent teeth
boolean
C0032787 (UMLS CUI [1])
C0854404 (UMLS CUI [2,1])
C0348070 (UMLS CUI [2,2])
Post-operative complications: Respiratory distress requiring mechanical ventilation
Item
Indicate if the patient experienced any of the following complications: 11 = Respiratory distress requiring mechanical ventilation
boolean
C0032787 (UMLS CUI [1])
C0476273 (UMLS CUI [2,1])
C1514873 (UMLS CUI [2,2])
C0199470 (UMLS CUI [2,3])
Post-operative complications: Ankylosis of mandible/temporomandibular joints
Item
Indicate if the patient experienced any of the following complications: 12 = Ankylosis of mandible/temporomandibular joints
boolean
C0032787 (UMLS CUI [1])
C0003090 (UMLS CUI [2,1])
C0039493 (UMLS CUI [2,2])
Post-operative complications: Hardware failure: dentofacial orthopaedics
Item
Indicate if the patient experienced any of the following complications: 13 = Hardware failure: dentofacial orthopaedics
boolean
C0032787 (UMLS CUI [1])
C4035912 (UMLS CUI [2,1])
C4544520 (UMLS CUI [2,2])
C0029355 (UMLS CUI [2,3])
Post-operative complications: Hardware failure (exposure of infection)
Item
Indicate if the patient experienced any of the following complications: 14 = Hardware failure (exposure of infection)
boolean
C0032787 (UMLS CUI [1])
C4035912 (UMLS CUI [2,1])
C0332157 (UMLS CUI [2,2])
C3714514 (UMLS CUI [2,3])
Post-operative complications: Death
Item
Indicate if the patient experienced any of the following complications: 15 = Death
boolean
C0032787 (UMLS CUI [1])
C0011065 (UMLS CUI [2])
Date of arrival
Item
If patient was hospitalized please indicate the date the patient first arrived
date
C0205435 (UMLS CUI [1,1])
C3263562 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Date of discharge
Item
Indicate the date the patient was discharged
date
C2361123 (UMLS CUI [1])
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