Patient ID
Item
Indicate the patient's medical record number
text
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Age
Item
Indicate the age at each clinical evaluation
integer
C0001779 (UMLS CUI [1])
Item
Indicate the patient’s insurance status
integer
C1548070 (UMLS CUI [1])
Code List
Indicate the patient’s insurance status
CL Item
Uninsured (0)
C0087134 (UMLS CUI-1)
(Comment:en)
CL Item
Private insurance (1)
C3845555 (UMLS CUI-1)
(Comment:en)
CL Item
Governmental insurance (2)
C0021682 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the patient has any comorbidities
integer
C0009488 (UMLS CUI [1])
Code List
Indicate whether the patient has any comorbidities
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Comorbidities of paediatric patient: No other disease
Item
Indicate if the patient has any of the following comorbidities 0 = No other diseases
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C1298908 (UMLS CUI [2,1])
C2359476 (UMLS CUI [2,2])
Comorbidities of paediatric patient: Cardiac anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 1 = Cardiac anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C3277906 (UMLS CUI [2])
C0232164 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
Comorbidities of paediatric patient: GU anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 2 = GU anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0042066 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0042066 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Developmental delay or learning difficulty
Item
Indicate if the patient has any of the following comorbidities 3 = Developmental delay or learning difficulty
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0424605 (UMLS CUI [2])
C0851265 (UMLS CUI [3])
Comorbidities of paediatric patient: Psychiatric or behavior disorder
Item
Indicate if the patient has any of the following comorbidities 4 = Psychiatric or behavior disorder
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0004936 (UMLS CUI [2])
C0004930 (UMLS CUI [3])
Comorbidities of paediatric patient: Infection or toxin mediated disease
Item
Indicate if the patient has any of the following comorbidities 5 = Infection or toxin mediated disease
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0009450 (UMLS CUI [2])
C0040549 (UMLS CUI [3,1])
C0012634 (UMLS CUI [3,2])
Comorbidities of paediatric patient: GI anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 6 = GI anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0521362 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0521362 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Other musculoskeletal anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 7 = Other musculoskeletal anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0026860 (UMLS CUI [2,1])
C3887504 (UMLS CUI [2,2])
C0026860 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Other craniomaxillofacial anomalies
Item
Indicate if the patient has any of the following comorbidities 8 = Other craniomaxillofacial anomalies
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C0037303 (UMLS CUI [2,2])
C0024947 (UMLS CUI [2,3])
C1704258 (UMLS CUI [2,4])
Comorbidities of paediatric patient: Pulmonary anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 9 = Pulmonary anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C2709248 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C1709770 (UMLS CUI [3])
Comorbidities of paediatric patient: Hematological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 10 = Hematological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0279810 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0279810 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Immunological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 11 = Immunological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0205470 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0205470 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Neurological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 12 = Neurological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0027853 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0027853 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Item
Indicate if the patient has not presented for routine scheduled follow-up in the perioperative period (“no-show”) despite 3 attempts
integer
C1302313 (UMLS CUI [1,1])
C1518988 (UMLS CUI [1,2])
Code List
Indicate if the patient has not presented for routine scheduled follow-up in the perioperative period (“no-show”) despite 3 attempts
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Intervention type: Medical treatment
Item
Indicate intervention type 1 = Medical treatment (systemic medical treatments in the management of their facial paralysis examples include oral steroids and oral antivirals)
boolean
C0184661 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0199171 (UMLS CUI [2,1])
C1515119 (UMLS CUI [2,2])
C0038317 (UMLS CUI [3,1])
C1527415 (UMLS CUI [3,2])
C0003451 (UMLS CUI [4,1])
C1527415 (UMLS CUI [4,2])
Intervention type: Non-surgical eye protection
Item
Indicate intervention type 2 = Non-surgical eye protection (examples include eye taping and ocular lubricants)
boolean
C0184661 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C2363849 (UMLS CUI [2,1])
C0412787 (UMLS CUI [2,2])
C0015392 (UMLS CUI [3,1])
C0343138 (UMLS CUI [3,2])
C0717951 (UMLS CUI [4])
Intervention type: Facial rehabiliatation therapy
Item
Indicate intervention type 3 = Facial rehabiliatation therapy
boolean
C0184661 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0015450 (UMLS CUI [2,1])
C0034991 (UMLS CUI [2,2])
Intervention type: Psychological therapy
Item
Indicate intervention type 4 = Psychological therapy including occupational therapy) in the management of their facial paralysis
boolean
C0184661 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0841584 (UMLS CUI [2])
C1318464 (UMLS CUI [3])
Intervention type: Surgical treatments
Item
Indicate intervention type 5 = Surgical treatments
boolean
C0184661 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0543467 (UMLS CUI [2])
Intervention type: Botulinum toxin
Item
Indicate intervention type 6 = Botulinum toxin
boolean
C0184661 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0006055 (UMLS CUI [2])
Item
Indicate the type of surgical treatment
integer
C0332307 (UMLS CUI [1,1])
C0549433 (UMLS CUI [1,2])
C0015469 (UMLS CUI [1,3])
Code List
Indicate the type of surgical treatment
CL Item
Periocular procedure (non-FFMT) (1)
C0230064 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
C1298908 (UMLS CUI-3)
C1996904 (UMLS CUI-4)
C0205245 (UMLS CUI-5)
C0026845 (UMLS CUI-6)
C1705822 (UMLS CUI-7)
(Comment:en)
CL Item
Non-periocular static procedure (2)
C1298908 (UMLS CUI-1)
C0230064 (UMLS CUI-2)
C0441463 (UMLS CUI-3)
C0087111 (UMLS CUI-4)
(Comment:en)
CL Item
Non-periocular regional muscle transfer (3)
C1298908 (UMLS CUI-1)
C0230064 (UMLS CUI-2)
C0026845 (UMLS CUI-3)
C1705822 (UMLS CUI-4)
(Comment:en)
CL Item
Free functional muscle transfer (FFMT) (4)
C1996904 (UMLS CUI-1)
C0205245 (UMLS CUI-2)
C0026845 (UMLS CUI-3)
C1705822 (UMLS CUI-4)
(Comment:en)
CL Item
Direct nerve repair (5)
C1947931 (UMLS CUI-1)
C0196775 (UMLS CUI-2)
(Comment:en)
CL Item
Interpositional nerve graft (6)
C1717970 (UMLS CUI-1)
C0702123 (UMLS CUI-2)
(Comment:en)
CL Item
Cross facial nerve graft (7)
C0015450 (UMLS CUI-1)
C0702123 (UMLS CUI-2)
(Comment:en)
CL Item
Nerve transfer and cross face nerve graft (8)
C0079896 (UMLS CUI-1)
C0015450 (UMLS CUI-2)
C0702123 (UMLS CUI-3)
(Comment:en)
CL Item
Nerve transfer (9)
C0079896 (UMLS CUI-1)
(Comment:en)
Date of intervention
Item
Indicate the date of intervention
date
C2584899 (UMLS CUI [1])
Item
Indicate who is completing the PROMs
integer
C4038447 (UMLS CUI [1])
Code List
Indicate who is completing the PROMs
CL Item
Patient (1)
C0030705 (UMLS CUI-1)
(Comment:en)
CL Item
Parent/proxy (2)
C0030551 (UMLS CUI-1)
C0600420 (UMLS CUI-2)
(Comment:en)
eFACE scoring
Item
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
integer
C3846158 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0439793 (UMLS CUI [1,3])
C0015469 (UMLS CUI [1,4])
C0517048 (UMLS CUI [2])