Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item
Please indicate whether prednisolone has been used in the last 12 months
integer
C0281991 (UMLS CUI [1,1])
C3887293 (UMLS CUI [1,2])
Code List
Please indicate whether prednisolone has been used in the last 12 months
CL Item
No use of prednisolone in the last 12 months (0)
C0032950 (UMLS CUI-1)
C3887293 (UMLS CUI-2)
C1298908 (UMLS CUI-3)
(Comment:en)
CL Item
Use of prednisolone in the last 12 months of less than 3 months total duration (1)
C0032950 (UMLS CUI-1)
C3887293 (UMLS CUI-2)
C0449238 (UMLS CUI-3)
C1806781 (UMLS CUI-4)
(Comment:en)
CL Item
Use of prednisolone in the last 12 months for more than 3 months total duration (2)
C0032950 (UMLS CUI-1)
C3887293 (UMLS CUI-2)
C0449238 (UMLS CUI-3)
C0443252 (UMLS CUI-4)
(Comment:en)
Item
Indicate whether the patient experienced a (unexpected or expected) complication whist during IBD intervention (this can be any type of intervention) or 3 months following intervention
integer
C0009566 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C0184661 (UMLS CUI [1,3])
Code List
Indicate whether the patient experienced a (unexpected or expected) complication whist during IBD intervention (this can be any type of intervention) or 3 months following intervention
CL Item
No complication occurred (0)
C0009566 (UMLS CUI-1)
C1298908 (UMLS CUI-2)
(Comment:en)
CL Item
Yes, complication occurred (1)
C0009566 (UMLS CUI-1)
C1705108 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Outcome of the complication: no further intervention
Item
If a complication occurred, indicate the outcome of that complication 0 = No further intervention required
boolean
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C1298908 (UMLS CUI [2,1])
C1706712 (UMLS CUI [2,2])
Outcome of the complication: surgical intervention
Item
If a complication occurred, indicate the outcome of that complication 1 = Surgical intervention required
boolean
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0549433 (UMLS CUI [2])
Outcome of the complication: radiological intervention
Item
If a complication occurred, indicate the outcome of that complication 2 = Radiological intervention required
boolean
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C2733119 (UMLS CUI [2])
Outcome of the complication: endoscopic intervention
Item
If a complication occurred, indicate the outcome of that complication 3 = Endoscopic intervention required
boolean
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0014245 (UMLS CUI [2,1])
C0184661 (UMLS CUI [2,2])
Outcome of the complication: medical intervention
Item
If a complication occurred, indicate the outcome of that complication 4 = Medical intervention required
boolean
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0184661 (UMLS CUI [2])
Item
Did the complication lead to prolonged hospitalization
integer
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0745041 (UMLS CUI [2])
Code List
Did the complication lead to prolonged hospitalization
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Outcome of the complication - hospitalization
Item
If the complication lead to prolonged hospitalization, indicate the total number of days the patient was hospitalized for
integer
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0745041 (UMLS CUI [2,1])
C3640790 (UMLS CUI [2,2])
Item
Did the complication lead to an unplanned admission
integer
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0030673 (UMLS CUI [2,1])
C3854240 (UMLS CUI [2,2])
Code List
Did the complication lead to an unplanned admission
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Outcome of the complication - unplanned admission days
Item
If the complication lead to an unplanned admission, indicate the total length of stay for all unplanned admissions due to complication within 1 year
integer
C0184788 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0030673 (UMLS CUI [2,1])
C3854240 (UMLS CUI [2,2])
C3640790 (UMLS CUI [2,3])
C0439810 (UMLS CUI [2,4])
Admissions and readmissions to hospitals
Item
How many times has the person with inflammatory bowel disease been admitted and readmitted to hospital in the last 12 months?
integer
C0600290 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C3887293 (UMLS CUI [1,3])
C0184666 (UMLS CUI [2,1])
C0449788 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])
All IBD-related admission to hospitals
Item
How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months (IBD-related)?
integer
C0184666 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C3887293 (UMLS CUI [1,4])
All IBD-related planned admissions to hospitals
Item
How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months ( IBD-related) for a planned admission?
integer
C0184666 (UMLS CUI [1,1])
C1301732 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C0021390 (UMLS CUI [1,4])
C3887293 (UMLS CUI [1,5])
All IBD-related unplanned admissions to hospitals
Item
How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months (IBD-related) for a unplanned admission?
integer
C0184666 (UMLS CUI [1,1])
C3854240 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C0021390 (UMLS CUI [1,4])
C3887293 (UMLS CUI [1,5])
Total number of emergency room visits related to IBD
Item
Total number of emergency room or emergency department visits realted to IBD within 1 year
integer
C0449788 (UMLS CUI [1,1])
C0583237 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C3887293 (UMLS CUI [1,4])
Item
Indicate if there is evidence of anaemia?
integer
C0002871 (UMLS CUI [1])
Code List
Indicate if there is evidence of anaemia?
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Is the patient clinically in remission?
integer
C0544452 (UMLS CUI [1,1])
C0205210 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
Code List
Is the patient clinically in remission?
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Is the patient in biological remission?
integer
C0544452 (UMLS CUI [1,1])
C0205460 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
Code List
Is the patient in biological remission?
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Disease activity - method of determining biological remission: Endoscopy
Item
If the patient is in biological remission, how was this determined? 0= Endoscopically (e.g. endoscopy, colonoscopy)
boolean
C0544452 (UMLS CUI [1,1])
C0205460 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C2911685 (UMLS CUI [1,4])
C0014245 (UMLS CUI [2])
Disease activity - method of determining biological remission: Radiological
Item
If the patient is in biological remission, how was this determined? 1= Radiologically (e.g. fluoroscopy, CT, MRI)
boolean
C0544452 (UMLS CUI [1,1])
C0205460 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C2911685 (UMLS CUI [1,4])
C0011923 (UMLS CUI [2])
Disease activity - method of determining biological remission: Biochemistry
Item
If the patient is in biological remission, how was this determined? 2= Biochemistry (e.g. CRP, faecal calprotectin)
boolean
C0544452 (UMLS CUI [1,1])
C0205460 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C2911685 (UMLS CUI [1,4])
C0005477 (UMLS CUI [2])
Disease activity - method of determining biological remission: Histologically
Item
If the patient is in biological remission, how was this determined? 3=Histologically (tissue analysis)
boolean
C0544452 (UMLS CUI [1,1])
C0205460 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C2911685 (UMLS CUI [1,4])
C0205462 (UMLS CUI [2])
Item
Has colorectal cancer been diagnosed?
integer
C0009402 (UMLS CUI [1])
Code List
Has colorectal cancer been diagnosed?
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
If colorectal cancer has been diagnosed, had colorectal dysplasia previously been diagnosed?
integer
C0555952 (UMLS CUI [1,1])
C0334044 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C0009402 (UMLS CUI [1,4])
Code List
If colorectal cancer has been diagnosed, had colorectal dysplasia previously been diagnosed?
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Patient died, regardless of cause
integer
C0011065 (UMLS CUI [1])
Code List
Patient died, regardless of cause
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of death
Item
Indicate the date of death
date
C1148348 (UMLS CUI [1])
Item
Indicate if death was attributable to IBD
integer
C0007465 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
Code List
Indicate if death was attributable to IBD
CL Item
No (0)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)