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Follow-up - Administrative Form

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Time Relative to Baseline
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Demographic factors
Description

Demographic factors

Alias
UMLS CUI-1
C1704791
Geographic location where the patient resides, specified by country and country specific postal code.
Description

INCLUSION CRITERIA: All patients TIMING: Baseline and ongoing REPORTING SOURCE: Administrative data TYPE: Alphanumeric value

Data type

text

Alias
UMLS CUI [1]
C0237096
Treatment
Description

Treatment

Alias
UMLS CUI-1
C0087111
Indicate the age of transfer into your institution
Description

INCLUSION CRITERIA: All patients TIMING: Ongoing REPORTING SOURCE: Administrative data TYPE: Numerical value RESPONSE OPTIONS: Numerical value of age in years

Data type

integer

Measurement units
  • years
Alias
UMLS CUI [1,1]
C0030704
UMLS CUI [1,2]
C0001779
years
Indicate the age of transfer out of your institution
Description

INCLUSION CRITERIA: All patients TIMING: Ongoing REPORTING SOURCE: Administrative data TYPE: Numerical value RESPONSE OPTIONS: Numerical value of age in years

Data type

integer

Measurement units
  • years
Alias
UMLS CUI [1,1]
C0030704
UMLS CUI [1,2]
C0439787
UMLS CUI [1,3]
C0001779
years
Other
Description

Other

Alias
UMLS CUI-1
C0205394
Indicate the patient’s insurance status
Description

INCLUSION CRITERIA: All patients TIMING: Baseline and ongoing REPORTING SOURCE: Administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1548070
Specify the distance in km from treatment team
Description

SUPPORTING DEFINITION: Calculated from residence and hospital location INCLUSION CRITERIA: All patients TIMING: Baseline and ongoing REPORTING SOURCE: Administrative data TYPE: Numerical value RESPONSE OPTIONS: Numerical value of distance in km

Data type

integer

Measurement units
  • km
Alias
UMLS CUI [1]
C0012751
km
Degree of health
Description

Degree of health

Alias
UMLS CUI-1
C0018759
Indicate the number of interventions the patient underwent requiring anesthesia
Description

INCLUSION CRITERIA: Patients with cleft lip and palate, patients with cleft palate, patients with cleft lip and alveolus, patients with cleft lip TIMING: 22 years REPORTING SOURCE: Administrative data TYPE: Numerical RESPONSE OPTIONS: Numerical value of interventions for palate

Data type

integer

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0002903
UMLS CUI [1,3]
C0700374
Indicate the number of interventions the patient underwent requiring anesthesia
Description

INCLUSION CRITERIA: Patients with cleft lip and palate, patients with cleft palate, patients with cleft lip and alveolus, patients with cleft lip TIMING: 22 years REPORTING SOURCE: Administrative data TYPE: Numerical RESPONSE OPTIONS: Numerical value of interventions for palate

Data type

integer

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0002903
UMLS CUI [1,3]
C0023759
UMLS CUI [1,4]
C0028429
Indicate the number of interventions the patient underwent requiring anesthesia
Description

INCLUSION CRITERIA: Patients with cleft lip and palate, patients with cleft palate, patients with cleft lip and alveolus, patients with cleft lip TIMING: 22 years REPORTING SOURCE: Administrative data TYPE: Numerical RESPONSE OPTIONS: Numerical value of interventions for palate

Data type

integer

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0002903
UMLS CUI [1,3]
C0227130
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Similar models

Follow-up - Administrative Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Demographic factors
C1704791 (UMLS CUI-1)
Residence
Item
Geographic location where the patient resides, specified by country and country specific postal code.
text
C0237096 (UMLS CUI [1])
Item Group
Treatment
C0087111 (UMLS CUI-1)
Age of transfer into your institution
Item
Indicate the age of transfer into your institution
integer
C0030704 (UMLS CUI [1,1])
C0001779 (UMLS CUI [1,2])
Age of transfer out of your institution
Item
Indicate the age of transfer out of your institution
integer
C0030704 (UMLS CUI [1,1])
C0439787 (UMLS CUI [1,2])
C0001779 (UMLS CUI [1,3])
Item Group
Other
C0205394 (UMLS CUI-1)
Item
Indicate the patient’s insurance status
integer
C1548070 (UMLS CUI [1])
Lost to follow-up (perioperative)
Code List
Indicate the patient’s insurance status
CL Item
Uninsured (0)
C0087134 (UMLS CUI-1)
(Comment:en)
CL Item
Private insurance (1)
C3845555 (UMLS CUI-1)
(Comment:en)
CL Item
Governmental insurance (2)
C0021682 (UMLS CUI-1)
(Comment:en)
Distance from treatment team
Item
Specify the distance in km from treatment team
integer
C0012751 (UMLS CUI [1])
Item Group
Degree of health
C0018759 (UMLS CUI-1)
Number of interventions requiring anesthesia: Palate
Item
Indicate the number of interventions the patient underwent requiring anesthesia
integer
C0184661 (UMLS CUI [1,1])
C0002903 (UMLS CUI [1,2])
C0700374 (UMLS CUI [1,3])
Number of interventions requiring anesthesia: Lip and nose
Item
Indicate the number of interventions the patient underwent requiring anesthesia
integer
C0184661 (UMLS CUI [1,1])
C0002903 (UMLS CUI [1,2])
C0023759 (UMLS CUI [1,3])
C0028429 (UMLS CUI [1,4])
Number of interventions requiring anesthesia: Alveolus
Item
Indicate the number of interventions the patient underwent requiring anesthesia
integer
C0184661 (UMLS CUI [1,1])
C0002903 (UMLS CUI [1,2])
C0227130 (UMLS CUI [1,3])
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