Demographic factors
Supporting Definition: Height and weight are used to calculate BMI Inclusion Criteria: All patients Timing: Baseline Annually Data Source: Clinical Type: Numerical value Response Options: Numerical value of body mass index in kg/m2
float
Associated clinical history
Supporting Definition: Has the patient had a cardiovascular death, non‐fatal myocardial infarction, sustained ventricular arrhythmia, any coronary intervention, hospitalization for congestive heart failure, angina requiring hospital admission, peripheral vascular or cerebrovascular event in the last year Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-reported, clinical or administrative Type: Single answer
integer
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
boolean
Medication variables
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical or administrative data Type: Numerical value
integer
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical or administrative data Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical or administrative data Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical or administrative data Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical or administrative data Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical or administrative data Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical or administrative data Type: Single answer
integer
Supporting Definition: All cause mortality Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Administrative (e.g. death registry) Type: Single answer
integer
Inclusion Criteria: All patients if answered ‘yes’ to overall survival (OVERALLSURV) Timing: Annually Data Source: Administrative (e.g. death registry) Type: Date by DD/MM/YYYY or by MM/YYYY (in case exact date is unknown) Response Options: DD/MM/YYYY or MM/YYYY
date
Outcome
Neuropsychiatric
As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_D, NPI_C_D1 to NPI_C_D8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Options: Delusions (0‐24)
integer
As permission for use is required, the 8 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_H, NPI_C_H1 to NPI_C_H7. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Option: Hallucinations (0-21)
integer
As permission for use is required, the 14 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_AGI, NPI_C_AGI1 to NPI_C_AGI13. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Option: Agitation (0-39)
integer
As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_AGG, NPI_C_AGG1 to NPI_C_AGG8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Option: Aggression (0-24)
integer
As permission for use is required, the 14 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_DYS, NPI_C_DYS1 to NPI_C_DYS13. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Option: Dysphoria (0-39)
integer
As permission for use is required, the 15 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_ANX, NPI_C_ANX1 to NPI_C_ANX14. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Option: Anxiety (0-42)
integer
As permission for use is required, the 13 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_APA_IND, NPI_C_APA_IND1 to NPI_C_APA_IND12. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Option: Apathy (0-36)
integer
As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_SLEEPDIS, NPI_C_SLEEPDIS1 to NPI_C_SLEEPDIS8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Option: Sleep (0-24)
integer
As permission for use is required, the 10 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_APP_ EAT_DIS, NPI_C_APP_ EAT_DIS1 to NPI_C_APP_ EAT_DIS9. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Option: Appetite (0-27)
integer
Clinical Dementia Rating
As this questionaire is copyrighted, the 16 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_INFOR_MEM1 to CDR_INFOR_MEM15. Additionnaly the MEN1 question has a subquestion: CDR_INFOR_MEM1A Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver or Clinical Impression Type: Single answer
text
As this questionaire is copyrighted, the 8 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_INFOR_ORIENT1 to CDR_INFOR_ORIENT8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver or Clinical Impression Type: Single answer
text
As this questionaire is copyrighted, the 6 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_INFOR_JUDGE_PROB1 to CDR_INFOR_JUDGE_PROB6. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver or Clinical Impression Type: Single answer
text
As this questionaire is copyrighted, the 27 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_INFOR_COMMAFF, CDR_INFOR_COMMAFF1 to CDR_INFOR_COMMAFF10. Additionnaly some questions have subquestions: CDR_INFOR_COMMAFF4A, CDR_INFOR_COMMAFF4B, CDR_INFOR_COMMAFF8A, CDR_INFOR_COMMAFF10_1A, CDR_INFOR_COMMAFF10_1B, CDR_INFOR_COMMAFF10_2A, CDR_INFOR_COMMAFF10_2B, CDR_INFOR_COMMAFF10_3, CDR_INFOR_COMMAFF10_4, CDR_INFOR_COMMAFF10_4A, CDR_INFOR_COMMAFF10_5, CDR_INFOR_COMMAFF10_6, CDR_INFOR_COMMAFF10_6A to CDR_INFOR_COMMAFF10_6D Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver or Clinical Impression Type: Single answer
text
Daily Living
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical Type: Numerical Response Options: 0-60
integer
Cognitive