Follow-up, Annually post index event - Administrative data

Administrative data
Description

Administrative data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Survival and disease control
Description

Survival and disease control

Alias
UMLS CUI-1
C1148433
UMLS CUI-2
C0012634
UMLS CUI-3
C0243148
Indicate if the patient has died
Description

Supporting Definition: All cause mortality Inclusion Criteria: All patients Timing: Discharge; 90 days post admission for index event; One year after index event; Tracked ongoing annually for 5 years (when hospital is able to track this ongoing) Data Source: Administrative data (e.g. death registry) Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C1148433
UMLS CUI [1,2]
C0282416
Indicate date of death
Description

Inclusion Criteria: If "1 = Yes" to OVERALLSURV Timing: Discharge; 90 days post admission for index event; One year after index event; Tracked ongoing annually for 5 years (when hospital is able to track this ongoing) Data Source: Administrative data (e.g. death registry) Type: Date by DD/MM/YYYY Response Options: DD/MM/YYYY 99/99/9999 = Unknown

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C1148348
DD/MM/YYYY

Similar models

Follow-up, Annually post index event - Administrative data

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Survival and disease control
C1148433 (UMLS CUI-1)
C0012634 (UMLS CUI-2)
C0243148 (UMLS CUI-3)
Item
Indicate if the patient has died
integer
C1148433 (UMLS CUI [1,1])
C0282416 (UMLS CUI [1,2])
Code List
Indicate if the patient has died
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of death
Item
Indicate date of death
date
C1148348 (UMLS CUI [1])