Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

integer

Alias

UMLS CUI [1]

C2348585

Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Data type

text

Alias

UMLS CUI [1,1]

C0439564

UMLS CUI [1,2]

C1442488

Description

As a license is needed for use of this questionnaire, the 30 actual questions are not included in this version of the standard set. ICHOM IDs are EORTCQLQC30_Q01 up to EORTCQLQC30_Q30. Inclusion Criteria: All patients Timing: Baseline 3 months post initiation of treatment 6 months post initiation of treatment 1 year post initiation of treatment Tracked ongoing annually for life Data Source: Patient-­‐reported Type: Single answer

Data type

integer

Alias

UMLS CUI [1,1]

C0451149

UMLS CUI [1,2]

C2964552

Description

As a license is needed for use of this questionnaire, the 13 actual questions are not included in this version of the standard set. ICHOM IDs are EORTCQLQLC13_Q01 up to EORTCQLQLC30_Q13. EORTCQLQLC30_Q12 and EORTCQLQLC30_Q13 have each an additionally ID: EORTCQLQLC30_Q12SUB and EORTCQLQLC30_Q13SUB. Inclusion Criteria: All patients Timing: Baseline 3 months post initiation of treatment 6 months post initiation of treatment 1 year post initiation of treatment Tracked ongoing annually for life Data Source: Patient-­‐reported Type: Single answer

Data type

integer

Alias

UMLS CUI [1,1]

C0451149

UMLS CUI [1,2]

C2964552