Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. 3 months follow-up, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item
Which Patient-Reported Outcome Measure are you using to measure pain?
integer
C0030193 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
Code List
Which Patient-Reported Outcome Measure are you using to measure pain?
CL Item
Numerical Rating Scale (1)
C1518471 (UMLS CUI-1)
(Comment:en)
CL Item
Visual Analogue Scale (2)
C0042815 (UMLS CUI-1)
(Comment:en)
CL Item
SF-36 Bodily Pain (3)
C0451287 (UMLS CUI-1)
C3890602 (UMLS CUI-2)
Alternative code: C3828407 RAND-36 Bodily Pain (Comment:en)
CL Item
PROMIS Pain Interference (4)
C3836323 (UMLS CUI-1)
(Comment:en)
CL Item
PedsQL Pain and Hurt (5)
C2698752 (UMLS CUI-1)
C0030193 (UMLS CUI-2)
(Comment:en)
Pain Numerical Rating Scale
Item
Circle the number that best describes the pain you felt due to your arthritis during the last week.
integer
C1518471 (UMLS CUI [1])
Item
Which Patient-Reported Outcome Measure are you using to measure fatigue?
integer
C0015672 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
Code List
Which Patient-Reported Outcome Measure are you using to measure fatigue?
CL Item
Numerical Rating Scale (1)
C4050142 (UMLS CUI-1)
C0015672 (UMLS CUI-2)
(Comment:en)
CL Item
Visual Analogue Scale (2)
C3826867 (UMLS CUI-1)
(Comment:en)
CL Item
FACIT-F (3)
C3272505 (UMLS CUI-1)
(Comment:en)
CL Item
BRAF (4)
C0003873 (UMLS CUI-1)
C0015672 (UMLS CUI-2)
C0681889 (UMLS CUI-3)
(Comment:en)
CL Item
PROMIS Fatigue (5)
C3836324 (UMLS CUI-1)
(Comment:en)
CL Item
PedsQL4.0 Fatigue Total Score (6)
C4331931 (UMLS CUI-1)
(Comment:en)
Fatigue Numerical Rating Scale
Item
Circle the number that best describes how much fatigue you felt due to your arthritis during the last week.
integer
C4050142 (UMLS CUI [1,1])
C0015672 (UMLS CUI [1,2])
Item
Which Patient-Reported Outcome Measure are you using to measure activity limitations?
integer
C0026606 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
Code List
Which Patient-Reported Outcome Measure are you using to measure activity limitations?
CL Item
HAQ-II (1)
C2697568 (UMLS CUI-1)
(Comment:en)
CL Item
HAQ-DI (2)
C4321476 (UMLS CUI-1)
(Comment:en)
CL Item
MHAQ (3)
C0451209 (UMLS CUI-1)
(Comment:en)
CL Item
MD-HAQ (4)
C0451208 (UMLS CUI-1)
C2347299 (UMLS CUI-2)
(Comment:en)
CL Item
PROMIS Physical Function (5)
C3836322 (UMLS CUI-1)
(Comment:en)
CL Item
BASFI (6)
C2711260 (UMLS CUI-1)
(Comment:en)
CL Item
C-HAQ (7)
C2732494 (UMLS CUI-1)
(Comment:en)
CL Item
JAMAR (8)
C3495559 (UMLS CUI-1)
C0450973 (UMLS CUI-2)
C2347299 (UMLS CUI-3)
(Comment:en)
Item
We are interested in learning how your illness affects your ability to function in daily life. Place an X in the box which best describes your usual abilities OVER THE PAST WEEK: Are you able to:…Stand up from a straight chair?
integer
C2697568 (UMLS CUI [1,1])
C4329245 (UMLS CUI [1,2])
Code List
We are interested in learning how your illness affects your ability to function in daily life. Place an X in the box which best describes your usual abilities OVER THE PAST WEEK: Are you able to:…Stand up from a straight chair?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Walk outdoors on flat ground?
integer
C2697568 (UMLS CUI [1,1])
C4055526 (UMLS CUI [1,2])
Code List
Are you able to:… Walk outdoors on flat ground?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Get on/off toilet?
integer
C2697568 (UMLS CUI [1,1])
C0578228 (UMLS CUI [1,2])
Code List
Are you able to:… Get on/off toilet?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Reach and get down a 5 pound object (such as a bag of sugar) from just above your head?
integer
C2697568 (UMLS CUI [1,1])
C4329244 (UMLS CUI [1,2])
Code List
Are you able to:… Reach and get down a 5 pound object (such as a bag of sugar) from just above your head?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Open car doors?
integer
C2697568 (UMLS CUI [1,1])
C4329242 (UMLS CUI [1,2])
Code List
Are you able to:… Open car doors?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Do outside work (such as yard work)?
integer
C2697568 (UMLS CUI [1,1])
C3869579 (UMLS CUI [1,2])
Code List
Are you able to:… Do outside work (such as yard work)?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Wait in line for 15 minutes?
integer
C2697568 (UMLS CUI [1,1])
C3869578 (UMLS CUI [1,2])
Code List
Are you able to:… Wait in line for 15 minutes?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Lift heavy objects?
integer
C2697568 (UMLS CUI [1,1])
C3869577 (UMLS CUI [1,2])
Code List
Are you able to:… Lift heavy objects?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Move heavy objects?
integer
C2697568 (UMLS CUI [1,1])
C3869576 (UMLS CUI [1,2])
Code List
Are you able to:… Move heavy objects?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Go up two or more flights of stairs?
integer
C2697568 (UMLS CUI [1,1])
C3869575 (UMLS CUI [1,2])
Code List
Are you able to:… Go up two or more flights of stairs?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Which Patient-Reported Outcome Measure are you using to measure overall emotional and physical health impact?
integer
C4277735 (UMLS CUI [1,1])
C3641833 (UMLS CUI [1,2])
C0517226 (UMLS CUI [1,3])
Code List
Which Patient-Reported Outcome Measure are you using to measure overall emotional and physical health impact?
CL Item
Numerical Rating Scale (Patient Global Assessment) (1)
C4054229 (UMLS CUI-1)
C4050142 (UMLS CUI-2)
(Comment:en)
CL Item
Visual Analogue Scale (Patient Global Assessment) (2)
C4054229 (UMLS CUI-1)
C3536884 (UMLS CUI-2)
(Comment:en)
CL Item
PROMIS Global Health (3)
C3836333 (UMLS CUI-1)
(Comment:en)
CL Item
EQ-5D-5L (4)
C3640517 (UMLS CUI-1)
(Comment:en)
CL Item
SF-6D (5)
C3846158 (UMLS CUI-1)
(Comment:en)
CL Item
Raid (6)
C0003873 (UMLS CUI-1)
C4049986 (UMLS CUI-2)
C0034394 (UMLS CUI-3)
(Comment:en)
CL Item
Psaid (7)
C0003872 (UMLS CUI-1)
C4049986 (UMLS CUI-2)
C0034394 (UMLS CUI-3)
(Comment:en)
CL Item
PedsQL3.0 (8)
C2698752 (UMLS CUI-1)
(Comment:en)
CL Item
PedsQL4.0 (9)
C4054219 (UMLS CUI-1)
(Comment:en)
CL Item
PROMIS Global Health Paediatric (10)
C3836333 (UMLS CUI-1)
C0030755 (UMLS CUI-2)
(Comment:en)
CL Item
EQ-5D-Y (11)
C3896676 (UMLS CUI-1)
(Comment:en)
Overall Emotional and Physical Health Impact Numerical Rating Scale
Item
Circle the number that best describes how your arthritis has affected you overall during the last week.
integer
C4050142 (UMLS CUI [1,1])
C3641833 (UMLS CUI [1,2])
C0517226 (UMLS CUI [1,3])
Item
Which Patient-Reported Outcome Measure are you using to measure work/school/housework ability and productivity?
integer
C4329245 (UMLS CUI [1,1])
C0563673 (UMLS CUI [1,2])
C0518076 (UMLS CUI [1,3])
Code List
Which Patient-Reported Outcome Measure are you using to measure work/school/housework ability and productivity?
CL Item
WPAI (1)
C4053845 (UMLS CUI-1)
(Comment:en)
CL Item
PedsQL4.0 - School Function (2)
C4054212 (UMLS CUI-1)
(Comment:en)
Item
Are you currently employed (working for pay)?
integer
C4053845 (UMLS CUI [1,1])
C0242271 (UMLS CUI [1,2])
Code List
Are you currently employed (working for pay)?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 2
Item
The next questions are about the past seven days, not including today. During the past seven days, how many hours did you miss from work because of your health problems? Include hours you missed on sick days, times you went in late, left early, etc., because of your health problems. Do not include time you missed to participate in this study.
integer
C4053845 (UMLS CUI [1,1])
C4054768 (UMLS CUI [1,2])
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 3
Item
During the past seven days, how many hours did you miss from work because of any other reason, such as vacation, holidays, time off to participate in this study?
integer
C4053845 (UMLS CUI [1,1])
C4054769 (UMLS CUI [1,2])
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 4
Item
During the past seven days, how many hours did you actually work?
integer
C4053845 (UMLS CUI [1,1])
C4054767 (UMLS CUI [1,2])
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 5
Item
During the past seven days, how much did your health problems affect your productivity while you were working? Think about days you were limited in the amount or kind of work you could do, days you accomplished less than you would like, or days you could not do your work as carefully as usual. If health problems affected your work only a little, choose a low number. Choose a high number if health problems affected your work a great deal. Consider only how much health problems affected productivity while you were working
integer
C4053845 (UMLS CUI [1,1])
C4054828 (UMLS CUI [1,2])
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 6
Item
During the past seven days, how much did your health problems affect your ability to do your regular daily activities, other than work at a job? By regular activities, we mean the usual activities you do, such as work around the house, shopping, childcare, exercising, studying, etc. Think about times you were limited in the amount or kind of activities you could do and times you accomplished less than you would like. If health problems affected your activities only a little, choose a low number. Choose a high number if health problems affected your activities a great deal Consider only how much health problems affected your ability to do your regular daily activities, other than work at a job.
integer
C4053845 (UMLS CUI [1,1])
C4054829 (UMLS CUI [1,2])