Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias

UMLS CUI [1]

C1269815

Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Data type

text

Alias

UMLS CUI [1,1]

C0439564

UMLS CUI [1,2]

C1442488

Description

This item is a partial score of items of MDS-UPDRS about non-motor functioning (1.1-1.6). Due to the need for a license for use of the original scale, the items are not part of this version of the standard set. In the original standard set the item-IDs are from MDSUPDRS_Q01 to MDSUPDRS_Q06. INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Clinical TYPE (original questions): Single answer (this version: numerical)

Data type

integer

Alias

UMLS CUI [1,1]

C3639714

UMLS CUI [1,2]

C0728938

UMLS CUI [1,3]

C0449820

UMLS CUI [2,1]

C0001288

UMLS CUI [2,2]

C1457887

UMLS CUI [2,3]

C0332300

UMLS CUI [2,4]

C0426980

UMLS CUI [3]

C0392335

UMLS CUI [4]

C0233402