Time Relative to Baseline
Item
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
IBD-related surgeries: None
Item
Indicate if the patient has had any IBD-related surgeries 0=No IBD-related surgery
boolean
C0549184 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
IBD-related surgeries: Small Bowel Resection
Item
Indicate if the patient has had any IBD-related surgeries 1=Small bowel resection
boolean
C0543467 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C0192601 (UMLS CUI [1,3])
IBD-related surgeries: Strictureplasty
Item
Indicate if the patient has had any IBD-related surgeries 2=Strictureplasty
boolean
C0543467 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C3665868 (UMLS CUI [1,3])
IBD-related surgeries: Segmental colectomy
Item
Indicate if the patient has had any IBD-related surgeries 3=Segmental colectomy (with or without stoma)
boolean
C0543467 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C0149750 (UMLS CUI [1,3])
IBD-related surgeries: Total Colectomy
Item
Indicate if the patient has had any IBD-related surgeries 4=Total colectomy and ileostomy (this operation usually is for acute UC)
boolean
C0543467 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C0192871 (UMLS CUI [1,3])
IBD-related surgeries: Ileorectal anastomosis
Item
Indicate if the patient has had any IBD-related surgeries 5=Creation of ileorectal anastomosis
boolean
C0543467 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C0192754 (UMLS CUI [1,3])
IBD-related surgeries: Total proctocolectomy and ileostomy
Item
Indicate if the patient has had any IBD-related surgeries 6=Total proctocolectomy and ileostomy
boolean
C0543467 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C0843044 (UMLS CUI [1,3])
IBD-related surgeries: Ileocecal resection
Item
Indicate if the patient has had any IBD-related surgeries 7=Ileocecal resection
boolean
C0543467 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C2409568 (UMLS CUI [1,3])
IBD-related surgeries: Other
Item
Indicate if the patient has had any IBD-related surgeries 8=other
boolean
C0543467 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
If the patient has received IBD-related surgery indicate the method of surgical procedure
integer
C0021390 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])
Code List
If the patient has received IBD-related surgery indicate the method of surgical procedure
CL Item
single-port laparoscopic surgery (0)
CL Item
multiport laparoscopic surgery (1)
CL Item
conventional open surgery (2)
Date of IBD-related surgery
Item
Please indicate the date of surgery
date
C0021390 (UMLS CUI [1,1])
C1628561 (UMLS CUI [1,2])
Item
Indicate whether the patient currently has a stoma in situ at this point in time
integer
C1955856 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
C0009274 (UMLS CUI [2])
Code List
Indicate whether the patient currently has a stoma in situ at this point in time
CL Item
Patient has not had colectomy (0)
CL Item
No stoma in situ (1)
CL Item
Yes, stoma in situ (2)
Current medication: No
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 0=no IBD medication currently taken
boolean
C0021390 (UMLS CUI [1,1])
C0746468 (UMLS CUI [1,2])
Current medication: Steroids
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 1=Steroids
boolean
C0021390 (UMLS CUI [1,1])
C0746467 (UMLS CUI [1,2])
C0038317 (UMLS CUI [1,3])
Current medication: Anti-TNF Agents
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 2=biologics – Anti-TNF Agents ( e.g. Adalimumab (Humira®), Certolizumab pegol (Cimzia®) Golimumab (Simponi®), Infliximab (Remicade®), Infliximab-dyyb (Inflectra®))
boolean
C0021390 (UMLS CUI [1,1])
C0746467 (UMLS CUI [1,2])
C0281481 (UMLS CUI [1,3])
Current medication: Integrin Receptor Antagonists
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 3=biologics - Integrin receptor antagonists (e.g. Natalizumab (Tysabri®), Vedolizumab (Entyvio™))
boolean
C0021390 (UMLS CUI [1,1])
C0746467 (UMLS CUI [1,2])
C2917367 (UMLS CUI [1,3])
Current medication: Interleukin-antagonists
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 4=biologics - interleukin-antagonists (e.g. ustekinumab (Stelara®))
boolean
C0021390 (UMLS CUI [1,1])
C0746467 (UMLS CUI [1,2])
C3653320 (UMLS CUI [1,3])
Current medication: Mesalamine
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 5=mesalamine (or mesalazine)
boolean
C0021390 (UMLS CUI [1,1])
C0746467 (UMLS CUI [1,2])
C0127615 (UMLS CUI [1,3])
Current medication: Thiopurines or Methotrexate
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 6=thiopurines (e.g. azathioprine, 6-mercaptopurine) or methotrexate
boolean
C0021390 (UMLS CUI [1,1])
C0746467 (UMLS CUI [1,2])
C0597573 (UMLS CUI [1,3])
C0021390 (UMLS CUI [2,1])
C0746467 (UMLS CUI [2,2])
C0025677 (UMLS CUI [2,3])
Current medication: other immunomodulators
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 7=other immunomodulators (e.g. mycophenylate, cyclosporine, tacrolimus)
boolean
C0021390 (UMLS CUI [1,1])
C0746467 (UMLS CUI [1,2])
C1527392 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
Current medication: other
Item
What type of medication for IBD does the patient currently take (regardless of when started)? 8=others (including probiotics, cellular therapy, nutritional, symptom control)
boolean
C0021390 (UMLS CUI [1,1])
C0746467 (UMLS CUI [1,2])
C1115771 (UMLS CUI [1,3])
Item
Was the patient in a colorectal cancer surveillance programme prior to their diagnosis of colorectal cancer?
integer
C0009402 (UMLS CUI [1,1])
C4316665 (UMLS CUI [1,2])
Code List
Was the patient in a colorectal cancer surveillance programme prior to their diagnosis of colorectal cancer?
CL Item
No (programme is available) (1)
CL Item
No (no surveillance programme available) (2)