Time Relative to Baseline
Item
Time Relative to Baseline (e.g. Baseline, 1 year follow-up, 2 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Item
Indicate the diagnosis
integer
C0011900 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
Code List
Indicate the diagnosis
CL Item
Crohn's disease (0)
CL Item
Ulcerative colitis (1)
CL Item
Indeterminate IBD or colitis unclassified (2)
Date of diagnosis
Item
Indicate the date of diagnosis
partialDate
C2316983 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
Item
Tracked via Montreal Classification
integer
C0206132 (UMLS CUI [1,1])
C0021390 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,3])
Code List
Tracked via Montreal Classification
CL Item
A1 -- Age of onset 16 yr or younger (0)
CL Item
A2 -- Age of onset 17--40 yr (1)
CL Item
A3 -- Age of onset over 40 (2)
Disease location and behavior: L1 Terminal Ileum
Item
Tracked via Montreal Classification 0=L1 CD Localisation - terminal Ileum
boolean
C0450429 (UMLS CUI [1,1])
C0341278 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,3])
Disease location and behavior: L2 Colon
Item
Tracked via Montreal Classification 1=L2 CD Localisation - colon
boolean
C0450429 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
C0156147 (UMLS CUI [1,3])
Disease location and behavior: L3 Terminal Ileum
Item
Tracked via Montreal Classification 3=L3 CD Localisation - terminal Ileum
boolean
C0450429 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
C1112567 (UMLS CUI [1,3])
Disease location and behavior: L4 upper gastrointestinal
Item
Tracked via Montreal Classification 4=L4 CD Localisation - upper gastrointestinal
boolean
C0450429 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
C4544979 (UMLS CUI [1,3])
Disease location and behavior: B1 Non-Stricturing, non-penetrating
Item
Tracked via Montreal Classification 5=B1 Behaviour -‐ Nonstricturing, nonpenetrating
boolean
C0008902 (UMLS CUI [1,1])
C0474325 (UMLS CUI [1,2])
C0010346 (UMLS CUI [1,3])
C0333188 (UMLS CUI [1,4])
C0332288 (UMLS CUI [1,5])
C0205321 (UMLS CUI [1,6])
C0332288 (UMLS CUI [1,7])
Disease location and behavior: B2 Stricturing
Item
Tracked via Montreal Classification 6=B2 Behaviour -‐ Stricturing
boolean
C0008902 (UMLS CUI [1,1])
C0474325 (UMLS CUI [1,2])
C0010346 (UMLS CUI [1,3])
C0333188 (UMLS CUI [1,4])
Disease location and behavior: B3 Penetrating
Item
Tracked via Montreal Classification 7=B3 Behaviour -‐ penetrating
boolean
C0008902 (UMLS CUI [1,1])
C0474325 (UMLS CUI [1,2])
C0010346 (UMLS CUI [1,3])
C0205321 (UMLS CUI [1,4])
Disease location and behavior: P Perianal
Item
Tracked via Montreal Classification 14/8=P - perianal disease
boolean
C0450429 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
C0341395 (UMLS CUI [1,3])
Disease extent and severity: S0 Remission, no symptoms
Item
Tracked via Montreal Classification 0=S0 Disease Severity -- Remission, no symptoms
boolean
C0008902 (UMLS CUI [1,1])
C0521117 (UMLS CUI [1,2])
C3697010 (UMLS CUI [1,3])
Disease extent and severity: S1 Mild UC
Item
Tracked via Montreal Classification 1=S1 Disease Severity -- Mild UC, passage of four or fewer stools/day (with or without blood), absence of any systemic illness, and normal inflammatory markers (ESR)
boolean
C0008902 (UMLS CUI [1,1])
C0521117 (UMLS CUI [1,2])
C0267385 (UMLS CUI [1,3])
Disease extent and severity: S2 Moderate UC
Item
Tracked via Montreal Classification 2=S2 Disease Severity -- Moderate UC, passage of more than four stools per day but with minimal signs of systemic toxicity
boolean
C0008902 (UMLS CUI [1,1])
C0521117 (UMLS CUI [1,2])
C0267386 (UMLS CUI [1,3])
Disease extent and severity: S3 Severe UC
Item
Tracked via Montreal Classification 3=S3 Disease Severity -- Severe UC, passage of at least six bloody stools daily, pulse rate of at least 90 beats per minute, temperature of at least 37.5°C, haemoglobin or less than 10.5g/100mL, and ESR of at least 30 mm/h
boolean
C0008902 (UMLS CUI [1,1])
C0521117 (UMLS CUI [1,2])
C0267387 (UMLS CUI [1,3])
Disease extent and severity: E1 Ulcerative proctitis
Item
Tracked via Montreal Classification 4=UC extent -- E1 Ulcerative proctitis, Involvement limited to the rectum (that is, proximal extent of inflammation is distal to the rectosigmoid junction)
boolean
C0008902 (UMLS CUI [1,1])
C0449279 (UMLS CUI [1,2])
C2937222 (UMLS CUI [1,3])
Disease extent and severity: E2 Left-Sided UC
Item
Tracked via Montreal Classification 5=UC extent -- E2 Left--sided UC (distal UC), Involvement limited to a proportion of the colorectal distal to the splenic flexure
boolean
C0008902 (UMLS CUI [1,1])
C0449279 (UMLS CUI [1,2])
C2919576 (UMLS CUI [1,3])
Disease extent and severity: E3 Extensice UC (Pancolitis)
Item
Tracked via Montreal Classification 6 = UC extent -- E3 Extensive UC (pancolitis), Involvement extends proximal to the splenic flexure
boolean
C0008902 (UMLS CUI [1,1])
C0449279 (UMLS CUI [1,2])
C2711681 (UMLS CUI [1,3])
Presence of extra-intestinal manifestations: None
Item
Eye, skin, joint, hepatobiliary or other 0=None
boolean
C0549184 (UMLS CUI [1,1])
C4518482 (UMLS CUI [1,2])
C1280464 (UMLS CUI [1,3])
C0021390 (UMLS CUI [1,4])
Presence of extra-intestinal manifestations: Skin
Item
Eye, skin, joint, hepatobiliary or other 1=Skin
boolean
C4518482 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0037284 (UMLS CUI [1,4])
Presence of extra-intestinal manifestations: Joint
Item
Eye, skin, joint, hepatobiliary or other 2=Joint
boolean
C4518482 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0151435 (UMLS CUI [1,4])
C0151435 (UMLS CUI [1,5])
Presence of extra-intestinal manifestations: Hepatobiliary
Item
Eye, skin, joint, hepatobiliary or other 3=Hepatobiliary
boolean
C4518482 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0267792 (UMLS CUI [1,4])
Presence of extra-intestinal manifestations: Eye
Item
Eye, skin, joint, hepatobiliary or other 4=Eye
boolean
C4518482 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0015392 (UMLS CUI [1,4])
Presence of extra-intestinal manifestations: Other
Item
Eye, skin, joint, hepatobiliary or other 5=Other
boolean
C4518482 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
C0021390 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])