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ID
30238
Description
Electronic Case Report Forms for the "Safety of the Living Kidney Donor - German National Register" (SOLKID-GNR).
Keywords
Versions (4)
- 5/23/18 5/23/18 - Julian Varghese
- 1/23/19 1/23/19 - Sarah Riepenhausen
- 7/5/21 7/5/21 - Leonard Greulich
- 5/5/22 5/5/22 - Adrian Schulz
Copyright Holder
The SOLKID-GNR Consortium
Uploaded on
May 23, 2018
DOI
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License
Creative Commons BY-NC 3.0
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SOLKID-GNR
Donation factors
Similar models
Donation factors
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
CL Item
Spouse (Partner) (1)
CL Item
Child (2)
CL Item
Brother (3)
CL Item
Sister (4)
CL Item
Father (5)
CL Item
Mother (6)
CL Item
Other (7)
CL Item
From yourself (1)
CL Item
From a member of your family (2)
CL Item
From receiver (3)
CL Item
From relatives of the recipient (4)
CL Item
From a doctor (5)
CL Item
From others (6)
CL Item
Less than 3 months (1)
CL Item
3-6 months (2)
CL Item
6-12 months (3)
CL Item
More than 12 months (4)
CL Item
Less than 3 months (1)
CL Item
3-6 months (2)
CL Item
6-12 months (3)
CL Item
More than 12 months (4)
Item
Feedback regarding duration of preperation
integer
C0449238 (UMLS CUI [1,1])
C1521827 (UMLS CUI [1,2])
C1521827 (UMLS CUI [1,2])
CL Item
.... too long (1)
CL Item
.... too short (2)
CL Item
.... just right (3)
Item
Feedback regarding information on risks
integer
C1955348 (UMLS CUI [1,1])
C0332306 (UMLS CUI [1,2])
C0332306 (UMLS CUI [1,2])
CL Item
Very bad (1)
CL Item
Bad (2)
CL Item
Moderate (3)
CL Item
Good (4)
CL Item
Very good (5)
Item
Feedback of dependants regarding donation
integer
C0080103 (UMLS CUI [1,1])
C0871010 (UMLS CUI [1,2])
C0080231 (UMLS CUI [1,3])
C0871010 (UMLS CUI [1,2])
C0080231 (UMLS CUI [1,3])
CL Item
Very positive (1)
CL Item
positive (2)
CL Item
Neutral (3)
CL Item
Negative (4)
CL Item
Very negative (5)
CL Item
Not at all (1)
CL Item
A little bit (2)
CL Item
Moderate (3)
CL Item
Strong (4)
CL Item
Very strong (5)
Item
Self-Assessment regarding health of organ receiver
integer
C0018759 (UMLS CUI [1,1])
C0040732 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
C0040732 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
CL Item
Very bad (1)
CL Item
Bad (2)
CL Item
Moderate (3)
CL Item
Good (4)
CL Item
Very good (5)
CL Item
Very bad (1)
CL Item
Bad (2)
CL Item
Moderate (3)
CL Item
Good (4)
CL Item
Very good (5)
Item
Will the receiver treat the donated kidgney well
integer
C0022671 (UMLS CUI [1,1])
C0749659 (UMLS CUI [1,2])
C0749659 (UMLS CUI [1,2])
CL Item
Not at all (1)
CL Item
A little bit (2)
CL Item
Moderate (3)
CL Item
Good (4)
CL Item
Very good (5)
Item
Will your relation to organ receiver change after donation
integer
C2045651 (UMLS CUI [1,1])
C1709850 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,2])
CL Item
Very negative (1)
CL Item
Rather negative (2)
CL Item
Do not change (3)
CL Item
Rather positive (4)
CL Item
Very positive (5)
Item
Retrospectively, would you donate again
integer
C0080231 (UMLS CUI [1,1])
C0035110 (UMLS CUI [1,2])
C0035110 (UMLS CUI [1,2])
CL Item
In any case (1)
CL Item
Rather yes (2)
CL Item
Don't know (3)
CL Item
Rather not (4)
CL Item
Under no circumstances (5)
T2_4.1
Item
Retrospectively, would you donate again, why not free text
text
C0080231 (UMLS CUI [1,1])
C0035110 (UMLS CUI [1,2])
C2826287 (UMLS CUI [1,3])
C0035110 (UMLS CUI [1,2])
C2826287 (UMLS CUI [1,3])
Item
Retrospectively, how would you rate informed consent
integer
C1955348 (UMLS CUI [1,1])
C1514923 (UMLS CUI [1,2])
C1514923 (UMLS CUI [1,2])
CL Item
Very bad (1)
CL Item
Bad (2)
CL Item
Moderate (3)
CL Item
Good (4)
CL Item
Very good (5)
T2_6
Item
Is organ receiver alive
boolean
C1709850 (UMLS CUI [1,1])
C2584946 (UMLS CUI [1,2])
C2584946 (UMLS CUI [1,2])
T2_7
Item
Does organ receiver require dialysis?
boolean
C1709850 (UMLS CUI [1,1])
C0011946 (UMLS CUI [1,2])
C0011946 (UMLS CUI [1,2])
Item
Self-assessment health of organ receiver
integer
C0018759 (UMLS CUI [1,1])
C0040732 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
C0040732 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
CL Item
Very bad (1)
CL Item
Bad (2)
CL Item
Moderate (3)
CL Item
Good (4)
CL Item
Very good (5)
Item
Does organ receiver treat the donated kidney well
integer
C0022671 (UMLS CUI [1,1])
C0749659 (UMLS CUI [1,2])
C0749659 (UMLS CUI [1,2])
CL Item
Not at all (1)
CL Item
A little bit (2)
CL Item
Moderate (3)
CL Item
Good (4)
CL Item
Very good (5)
Item
Has your relation to organ receiver changed
integer
C2045651 (UMLS CUI [1,1])
C1709850 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,2])
CL Item
Very negative (1)
CL Item
Rather negative (2)
CL Item
Not changed (3)
CL Item
Rather positive (4)
CL Item
Very positive (5)
Item
Limited in everyday life due to illness of organ receiver
integer
C0221423 (UMLS CUI [1,1])
C0443288 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
C0443288 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
CL Item
Not at all (1)
CL Item
A little bit (2)
CL Item
Moderate (3)
CL Item
Strong (4)
CL Item
Very strong (5)
Item
Limited in everyday life due to the donation
integer
C0443288 (UMLS CUI [1,1])
C0001288 (UMLS CUI [1,2])
C0080231 (UMLS CUI [1,3])
C0001288 (UMLS CUI [1,2])
C0080231 (UMLS CUI [1,3])
CL Item
Not at all (1)
CL Item
A little bit (2)
CL Item
Moderate (3)
CL Item
Strong (4)
CL Item
Very strong (5)
Item
Satisfied with result of the donation
integer
C0242428 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
C0080231 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
CL Item
Very satisfied (1)
CL Item
Rather satisfied (2)
CL Item
Neutral (3)
CL Item
Rather dissatisfied (4)
CL Item
Very dissatisfied (5)
Item
Physical strain due to donation
integer
C1142435 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C0566251 (UMLS CUI [1,3])
C0080231 (UMLS CUI [1,2])
C0566251 (UMLS CUI [1,3])
CL Item
Not at all (1)
CL Item
A little bit (2)
CL Item
Moderate (3)
CL Item
Strong (4)
CL Item
Very strong (5)
Item
Psychic strain due to donation
integer
C0038443 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C0566251 (UMLS CUI [1,3])
C0080231 (UMLS CUI [1,2])
C0566251 (UMLS CUI [1,3])
CL Item
Not at all (1)
CL Item
A little bit (2)
CL Item
Moderate (3)
CL Item
Strong (4)
CL Item
Very strong (5)
T2_16
Item
Complications after donation
boolean
C0009566 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C0080231 (UMLS CUI [1,2])
T2_17
Item
Complications for organ receiver after donation
boolean
C0009566 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
C0080231 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
T2_18
Item
Week unable to week after donation
integer
C0449238 (UMLS CUI [1,1])
C0849751 (UMLS CUI [1,2])
C0849751 (UMLS CUI [1,2])
CL Item
Not at all (0 %) (1)
CL Item
25 % of the time (2)
CL Item
50 % of the time (3)
CL Item
75% of the time (4)
CL Item
Complete (100%) (5)
CL Item
Yes (1)
CL Item
No, I didn't want (2)
CL Item
No, I was not offered one (3)
CL Item
No, because the health insurance company refused (4)
Item
Taking cure has helped physically
integer
C2986411 (UMLS CUI [1,1])
C0031808 (UMLS CUI [1,2])
C0018740 (UMLS CUI [1,3])
C0031808 (UMLS CUI [1,2])
C0018740 (UMLS CUI [1,3])
CL Item
yes (1)
CL Item
no (2)
CL Item
do not know (3)
Item
The cure has helped emotionally
integer
C2984554 (UMLS CUI [1,1])
C2986411 (UMLS CUI [1,2])
C0018740 (UMLS CUI [1,3])
C2986411 (UMLS CUI [1,2])
C0018740 (UMLS CUI [1,3])
CL Item
yes (1)
CL Item
no (2)
CL Item
do not know (3)
T3_21
Item
Taking cure again
boolean
C0018740 (UMLS CUI [1,1])
C0205341 (UMLS CUI [1,2])
C0205341 (UMLS CUI [1,2])
T3_22
Item
Attended follow-up testing last year
boolean
C0001758 (UMLS CUI [1])
CL Item
family doctor: (1)
CL Item
established kidney specialist (nephrologist) (2)
CL Item
Transplantation centre (3)
Item
Frequency follow-up testing
integer
C0439603 (UMLS CUI [1,1])
C0001758 (UMLS CUI [1,2])
C0001758 (UMLS CUI [1,2])
CL Item
1 time (1)
CL Item
2 times (2)
CL Item
3 times (3)
CL Item
more than 4 times (4)
T3_23
Item
Pregnant after donation?
boolean
C0080231 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
C0032961 (UMLS CUI [1,2])
CL Item
Hypertension (1)
CL Item
Diabetes (2)
CL Item
miscarriages (3)