ID

28732

Description

HICDEP stands for HIV Cohorts Data Exchange Protocol. The HIV Cohorts Data Exchange Protocol (HICDEP) is a protocol that allows for simple sharing of data from HIV cohorts by providing a standard format for datasets. It is used by several major HIV Cohort Collaborations such as CASCADE, COHERE, EuroSIDA, PENTA, EPPICC ART-CC and D:A:D. Its first version was presented at the 7th International Workshop on HIV Observational Databases in March 29–30, 2003, Fiuggi, Italy, and a summary was published in Antiviral Therapy. The specification currently consists of 27 tables in a relational structure which cover most medical aspects of HIV patient histories used in clinical research, including pediatric aspects. Subform Descriptions: -tblCEP - Clinical Events and Procedures: holds type and date of adverse events including serious non-AIDS conditions -tblART- Antiretroviral treatment: holds type of antiretroviral drug, start and stop dates and reason for stopping -tblBAS - Basic clinical, background and demographic information: holds basic information such as demographics, basic clinical information, date of AIDS diagnosis, death and drop-out information -tblDELIVERY_CHILD - Delivery information related to the child(ren): This table holds information about a delivery specific to a child. Mother-specific data is kept in tblDELIVERY_MUM. -tblDELIVERY_MUM - Delivery information related to the mother: This table contains information about the delivery specific to the mother. Child-specific information is recorded in tblDELIVERY_CHILD instead. -tblDIS - Opportunistic infections: holds type and date of CDC-C diseases. -tblLAB - Laboratory values: holds type, date, value and unit of laboratory tests -tblLAB_BP - Laboratory values - Blood pressure: holds date, diastolic and systolic values and unit of blood pressure measurements. -tblLAB_CD4 - Laboratory values: holds date and value of CD4 measurements. -tblLAB_RNA - Laboratory values: holds date, value, detection limit and type of viral assay. -tblLAB_RES - Resistance testing: holds background information on the resistance test, laboratory, library, kit, software and type of test -tblLAB_RES_LVL_1 - Nucleotide sequences (PRO, RT, GP41, GP120): holds nucleoside sequence for the PRO and RT sequences. No entry is made if the test was a phenotype test. -tblLAB_RES_LVL_2 - Mutations: holds mutations and positions of PRO and RT sequences. -tblLAB_RES_LVL_3 - Resistance test result: holds resistance result in relation to antiretroviral drug. tblLAB_VIRO - Laboratory values - viro-/serology: holds test results for viro-/serological tests (hepatitis etc.) -tblLTFU - Death and drop-out: holds data in death and drop-out -tblMED - Other medication: holds type, start and stop dates for other medication/treatments. -tblNEWBORN - Newborn: holds information related to newborns -tblNEWBORN_ABNORM - Abnormalities: Abnormalities in newborns are recorded here, one abnormality per row. The absence of a record is to be interpreted as "unknown whether the abnormality existed" since most cohorts only record positive events. -tblOVERLAP - Cross-cohort identification: holds information on the patient's participation in other cohorts -tblPREG - Pregnancy: holds general pregnancy-related information -tblPREG_OBS - Obstetrical problems during pregnancy: This table describes problems during a pregnancy. Abnormalities in newborns are recorded in tblNEWBORN_ABNORM instead. -tblPREG_OUT - Pregnancy outcome: This table describes outcomes of pregnancies described in tblPREG. -tblREFILL - Prescription refill data: holds drug, refill date and supply of prescriptions -tblSAMPLES - Blood Samples: This table contains information on the storage of blood, urine and other samples stored in a laboratory. -tblVIS - Basic follow-up/visit related data: holds visit related information such as weight, wasting, smoking, occupational status etc.

Keywords

  1. 1/29/18 1/29/18 -
  2. 1/29/18 1/29/18 -
Copyright Holder

HICDEP

Uploaded on

January 29, 2018

DOI

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License

Creative Commons BY-NC 3.0

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HICDEP

Opportunistic infections (tblDIS)

Opportunistic infections
Description

Opportunistic infections

Alias
UMLS CUI-1
C0029118
UMLS CUI-2
C0019682
Patient ID
Description

PATIENT

Data type

text

Alias
UMLS CUI [1]
C2348585
Code to identify event
Description

DIS_ID

Data type

text

Alias
UMLS CUI [1,1]
C0877248
UMLS CUI [1,2]
C0805701
UMLS CUI [2]
C0029118
Date of event
Description

DIS_D

Data type

date

Alias
UMLS CUI [1,1]
C0877248
UMLS CUI [1,2]
C0011008
UMLS CUI [2]
C0029118
Means of diagnosis
Description

DIS_WD

Data type

integer

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C0029118
Other location, only to be filled out if code alone is not sufficient
Description

DIS_OTH

Data type

text

Alias
UMLS CUI [1,1]
C1515974
UMLS CUI [1,2]
C0029118
End of opportunistic infection
Description

DIS_ED

Data type

date

Alias
UMLS CUI [1,1]
C0029118
UMLS CUI [1,2]
C0806020

Similar models

Opportunistic infections (tblDIS)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Opportunistic infections
C0029118 (UMLS CUI-1)
C0019682 (UMLS CUI-2)
PATIENT
Item
Patient ID
text
C2348585 (UMLS CUI [1])
Item
Code to identify event
text
C0877248 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
C0029118 (UMLS CUI [2])
Code List
Code to identify event
CL Item
AIDS dementia complex (DEM)
CL Item
Bacterial pneumonia, recurrent (>2 episodes within 1 year) (BCNE)
CL Item
Candidiasis, oesophageal, bronchi, trachea, or lungs (CANO)
CL Item
Coccidioidomycosis, disseminated or extrapulmonary (COCC)
CL Item
Cryptococcosis, extrapulm. (CRCO)
CL Item
Cryptosporidiosis (duration > 1 month) (CRSP)
CL Item
Cytomegalovirus (CMV) chorioretinitis (CMVR)
CL Item
CMV – other location (CMVO)
CL Item
Herpes simplex virus ulcers (duration > 1 month) or pneumonitis/esophagitis (HERP)
CL Item
Histoplasmosis, extrapulm. (HIST)
CL Item
HIV Wasting Syndrome (WAST)
CL Item
Isosporiasis diarrhoea (duration > 1 month) (ISDI)
CL Item
Mycobact. avium complex (MAC) or Kanasii, extrapulm. (MC)
CL Item
Mycobact. tuberculosis pulm. (MCP)
CL Item
Mycobact. tuberculosis extrapulm (MCX)
CL Item
Mycobact. pulm., other (MCPO)
CL Item
Mycobact. extrapulm., other (MCXO)
CL Item
Pneumocystis carinii pneumonia (PCP) (PCP)
CL Item
Progressive multifocal leucoencephalopathy (LEU)
CL Item
Salmonella bacteriaemia (non-tyhpoid) (recurrent) (SAM)
CL Item
Toxoplasmosis, brain (TOX)
CL Item
Focal Brain lesion (FBLS)
CL Item
Kaposi Sarcoma (KS)
CL Item
Non-Hodgkin Lymphoma -not specified (NHG)
CL Item
Non-Hodgkin Lymphoma – Burkitt (Classical or Atypical) (NHGB)
CL Item
Non-Hodgkin Lymphoma – Diffuse large B-cell lymphoma (Immunoblastic or Centroblastic) (NHGI)
CL Item
Non-Hodgkin Lymphoma - Unknown/other histology (NHGU)
CL Item
Non-Hodgkin Lymphoma - Primary Brain Lymphoma (NHGP)
CL Item
Cervical Cancer (CRVC)
DIS_D
Item
Date of event
date
C0877248 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0029118 (UMLS CUI [2])
Item
Means of diagnosis
integer
C0011900 (UMLS CUI [1,1])
C0029118 (UMLS CUI [1,2])
Code List
Means of diagnosis
CL Item
Definitive diagnosis (1)
CL Item
Presumptive diagnosis (2)
CL Item
Diagnosis from autopsy (3)
CL Item
Diagnosis from registry (4)
DIS_OTH
Item
Other location, only to be filled out if code alone is not sufficient
text
C1515974 (UMLS CUI [1,1])
C0029118 (UMLS CUI [1,2])
DIS_ED
Item
End of opportunistic infection
date
C0029118 (UMLS CUI [1,1])
C0806020 (UMLS CUI [1,2])

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