English

Death and drop-out (tblLTFU)

26 forms  
Death and drop-out
Description

Death and drop-out

Alias
UMLS CUI-1
C0011065
UMLS CUI-2
C2348568
UMLS CUI-3
C0019682
Patient ID
Description

PATIENT

Data type

text

Alias
UMLS CUI [1]
C2348585
Has the patient DROPPED OUT?
Description

DROP_Y

Data type

integer

Alias
UMLS CUI [1]
C2348568
IF YES, Date of Last Visit
Description

DROP_D

Data type

date

Alias
UMLS CUI [1]
C1320303
IF YES, Reason for DROP
Description

DROP_RS

Data type

integer

Alias
UMLS CUI [1,1]
C2348568
UMLS CUI [1,2]
C1444662
UMLS CUI [1,3]
C0392360
Has the patient died?
Description

DEATH_Y

Data type

integer

Alias
UMLS CUI [1]
C0011065
Date of Death
Description

DEATH_D

Data type

date

Alias
UMLS CUI [1]
C1148348
Sudden Death?
Description

SUD_DEATH_Y

Data type

integer

Alias
UMLS CUI [1]
C0011071
Expected Death?
Description

EXP_DEATH_Y

Data type

integer

Alias
UMLS CUI [1]
C0011065
Was an autopsy performed?
Description

AUTOP_Y

Data type

integer

Alias
UMLS CUI [1]
C0004398
Cause of death
Description

DEATH_R1

Data type

text

Alias
UMLS CUI [1]
C0007465
Coding of causal relation of the code given in DEATH_R1 to the death
Description

DEATH_RC1

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0805701
Cause of death
Description

DEATH_R2

Data type

text

Alias
UMLS CUI [1]
C0007465
Coding of causal relation of the code given in DEATH_R2 to the death
Description

DEATH_RC2

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0805701
Cause of death
Description

DEATH_R3

Data type

text

Alias
UMLS CUI [1]
C0007465
Coding of causal relation of the code given in DEATH_R3 to the death
Description

DEATH_RC3

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0805701
Source of information for coding of death (e.g. CoDe within own cohort, CoDe from D:A:D, CoDe from ART-CC, etc.)
Description

DEATH_SOURCE

Data type

text

Alias
UMLS CUI [1,1]
C0449416
UMLS CUI [1,2]
C0007465
UMLS CUI [1,3]
C0805701
Cause of death as ICD-10 if available
Description

ICD10_1

Data type

text

Alias
UMLS CUI [1,1]
C2598420
UMLS CUI [1,2]
C0007465
Reason for death – other - description
Description

DEATH_OT

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0678257
Last date known to be alive
Description

L_ALIVE

Data type

date

Alias
UMLS CUI [1,1]
C3274947
UMLS CUI [1,2]
C0011008
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Similar models

Death and drop-out (tblLTFU)

26 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Death and drop-out
C0011065 (UMLS CUI-1)
C2348568 (UMLS CUI-2)
C0019682 (UMLS CUI-3)
PATIENT
Item
Patient ID
text
C2348585 (UMLS CUI [1])
Item
Has the patient DROPPED OUT?
integer
C2348568 (UMLS CUI [1])
SRCDOC_Y
Code List
Has the patient DROPPED OUT?
CL Item
No (0)
CL Item
Yes (1)
DROP_D
Item
IF YES, Date of Last Visit
date
C1320303 (UMLS CUI [1])
Item
IF YES, Reason for DROP
integer
C2348568 (UMLS CUI [1,1])
C1444662 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,3])
DROP_RS
Code List
IF YES, Reason for DROP
CL Item
Patient was not infected (mainly for children) (0)
CL Item
Patient lost to follow-up / not known to be dead (1)
CL Item
Patient has not had visit within required amount of time (2)
CL Item
Patient did not respond to several invitations (2.1)
CL Item
Patient moved away (3)
CL Item
Patient moved to another country (3.1)
CL Item
Patient moved and is followed by another centre (4)
CL Item
Paediatric patient transferred to adult care (4.1)
CL Item
Patients decision (5)
CL Item
Patients caretaker wanted to discontinue (for children) (5.1)
CL Item
Consent withdrawn (6)
CL Item
Incarceration/jail (7)
CL Item
Institutionalisation (drug treatment, psychological …etc.) (8)
CL Item
Other (9)
Item
Has the patient died?
integer
C0011065 (UMLS CUI [1])
SRCDOC_Y
Code List
Has the patient died?
CL Item
No (0)
CL Item
Yes (1)
DEATH_D
Item
Date of Death
date
C1148348 (UMLS CUI [1])
Item
Sudden Death?
integer
C0011071 (UMLS CUI [1])
CEP_Y
Code List
Sudden Death?
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
Item
Expected Death?
integer
C0011065 (UMLS CUI [1])
CEP_Y
Code List
Expected Death?
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
Item
Was an autopsy performed?
integer
C0004398 (UMLS CUI [1])
CEP_Y
Code List
Was an autopsy performed?
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
Item
Cause of death
text
C0007465 (UMLS CUI [1])
DEATH_R1
Code List
Cause of death
CL Item
AIDS (ongoing active disease) (01)
CL Item
Infection (01.1)
CL Item
Malignancy (01.2)
CL Item
Infection (other than 01.1) (02)
CL Item
Bacterial (02.1)
CL Item
Bacterial with sepsis (02.1.1)
CL Item
Others (02.2)
CL Item
Others with sepsis (02.2.1)
CL Item
Unknown aetiology (02.3)
CL Item
Unknown with sepsis (02.3.1)
CL Item
Chronic viral hepatitis (progression of/complication to) (03)
CL Item
HCV (03.1)
CL Item
HCV with cirrhosis (03.1.1)
CL Item
HCV with liver failure (03.1.2)
CL Item
HBV (03.2)
CL Item
HBV with cirrhosis (03.2.1)
CL Item
HBV with liver failure (03.2.2)
CL Item
Malignancy (other than 01.2 and 03, 03.1, 03.2) (04)
CL Item
ANUS - Anal cancer (04.03)
CL Item
BLAD - Bladder cancer (04.04)
CL Item
BONE - Bone cancer (04.05)
CL Item
BRAC - Brain cancer (04.06)
CL Item
BRCA - Breast cancer (04.07)
CL Item
ALL - Leukaemia: Acute lymphoid (04.10.1)
CL Item
AML - Leukaemia: Acute myeloid (04.10.2)
CL Item
CLL - Leukaemia: Chronic lymphoid (04.10.3)
CL Item
CML - Leukaemia: Chronic myeloid (04.10.4)
CL Item
LEUK - Leukaemia: unspecified (04.10.9)
CL Item
COLO - Colon cancer (04.18)
CL Item
COTC - Connective tissue cancer (04.11)
CL Item
ESOP - Esophagus cancer (04.12)
CL Item
GALL - Gallbladder cancer (04.13)
CL Item
GYCA - Gynaecologic cancer (04.14)
CL Item
HDL - Hodgkin lymphoma (04.15)
CL Item
HENE - Head and neck (incl. face) cancers (04.16)
CL Item
KIDN - Kidney cancer (04.17)
CL Item
LIPC - Lip cancer (04.19)
CL Item
LIVR - Liver cancer (04.20)
CL Item
LUNG - Lung cancer (04.21)
CL Item
MALM - Malignant melanoma (04.22)
CL Item
MULM - Multiple myeloma (04.27)
CL Item
PANC - Pancreas cancer (04.29)
CL Item
PENC - Penile cancer (04.31)
CL Item
PROS - Prostate cancer (04.32)
CL Item
RECT - Rectum cancer (04.33)
CL Item
STOM - Stomach cancer (04.34)
CL Item
TESE - Testicular seminoma (04.35)
CL Item
UTER - Uterus cancer (04.36)
CL Item
MEAC - Metastasis: of adenocarcinoma (04.40.1)
CL Item
MEOC - Metastasis: of other cancer type (04.40.2)
CL Item
MESC - Metastasis: of squamuos cell carcinoma (04.40.3)
CL Item
META - Metastasis: unspecified (04.40.9)
CL Item
OTH - Other Malignancy Type (04.90)
CL Item
UNKP - Unknown Malignancy Type (04.99)
CL Item
Diabetes Mellitus (complication to) (05)
CL Item
Pancreatitis (06)
CL Item
Lactic acidosis (07)
CL Item
MI or other ischemic heart disease (08)
CL Item
AMI (08.1)
CL Item
Definitive AMI (Dundee 1) (08.1.1)
CL Item
Possible AMI (Dundee 2/9) (08.1.2)
CL Item
Other ischemic heart disease (08.2)
CL Item
Stroke (09)
CL Item
Gastro-intestinal haemorrhage (if chosen, specify underlying cause) (10)
CL Item
Primary pulmonary hypertension (11)
CL Item
Lung embolus (12)
CL Item
Chronic obstructive lung disease (13)
CL Item
Liver failure (other than 03, 03.1, 03.2) (14)
CL Item
Renal failure (15)
CL Item
Accident or other violent death (not suicide) (16)
CL Item
Suicide (17)
CL Item
Euthenasia (18)
CL Item
Substrance abuse (active) (19)
CL Item
Chronic Alcohol abuse (19.1)
CL Item
Chronic intravenous drug-use (19.2)
CL Item
Acute intoxication (19.3)
CL Item
Haematological disease (other causes) (20)
CL Item
Endocrine disease (other causes) (21)
CL Item
Psychiatric disease (other causes) (22)
CL Item
CNS disease (other causes) (23)
CL Item
Heart or vascular (other causes) (24)
CL Item
Respiratory disease (other causes) (25)
CL Item
Digestive system disease (other causes) (26)
CL Item
Skin and motor system disease (other causes) (27)
CL Item
Urogential disease (other causes) (28)
CL Item
Obstetric complications (29)
CL Item
Congenital disorders (30)
CL Item
Symptoms caused by mitochondrial toxicity (other than 06, 07) (31)
CL Item
Bleeding (haemophilia) (32)
CL Item
Sudden infant death (33)
CL Item
Child abuse (33.1)
CL Item
Other causes (90)
CL Item
Unclassifiable causes (91)
CL Item
Unknown (92)
CL Item
Unknown, Competing risks (92.1)
Item
Coding of causal relation of the code given in DEATH_R1 to the death
text
C0007465 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
DEATH_RC1
Code List
Coding of causal relation of the code given in DEATH_R1 to the death
CL Item
Immediate cause (I)
CL Item
Underlying cause/condition (U)
CL Item
Contributing cause (C)
CL Item
Not available (N)
Item
Cause of death
text
C0007465 (UMLS CUI [1])
DEATH_R1
Code List
Cause of death
CL Item
AIDS (ongoing active disease) (01)
CL Item
Infection (01.1)
CL Item
Malignancy (01.2)
CL Item
Infection (other than 01.1) (02)
CL Item
Bacterial (02.1)
CL Item
Bacterial with sepsis (02.1.1)
CL Item
Others (02.2)
CL Item
Others with sepsis (02.2.1)
CL Item
Unknown aetiology (02.3)
CL Item
Unknown with sepsis (02.3.1)
CL Item
Chronic viral hepatitis (progression of/complication to) (03)
CL Item
HCV (03.1)
CL Item
HCV with cirrhosis (03.1.1)
CL Item
HCV with liver failure (03.1.2)
CL Item
HBV (03.2)
CL Item
HBV with cirrhosis (03.2.1)
CL Item
HBV with liver failure (03.2.2)
CL Item
Malignancy (other than 01.2 and 03, 03.1, 03.2) (04)
CL Item
ANUS - Anal cancer (04.03)
CL Item
BLAD - Bladder cancer (04.04)
CL Item
BONE - Bone cancer (04.05)
CL Item
BRAC - Brain cancer (04.06)
CL Item
BRCA - Breast cancer (04.07)
CL Item
ALL - Leukaemia: Acute lymphoid (04.10.1)
CL Item
AML - Leukaemia: Acute myeloid (04.10.2)
CL Item
CLL - Leukaemia: Chronic lymphoid (04.10.3)
CL Item
CML - Leukaemia: Chronic myeloid (04.10.4)
CL Item
LEUK - Leukaemia: unspecified (04.10.9)
CL Item
COLO - Colon cancer (04.18)
CL Item
COTC - Connective tissue cancer (04.11)
CL Item
ESOP - Esophagus cancer (04.12)
CL Item
GALL - Gallbladder cancer (04.13)
CL Item
GYCA - Gynaecologic cancer (04.14)
CL Item
HDL - Hodgkin lymphoma (04.15)
CL Item
HENE - Head and neck (incl. face) cancers (04.16)
CL Item
KIDN - Kidney cancer (04.17)
CL Item
LIPC - Lip cancer (04.19)
CL Item
LIVR - Liver cancer (04.20)
CL Item
LUNG - Lung cancer (04.21)
CL Item
MALM - Malignant melanoma (04.22)
CL Item
MULM - Multiple myeloma (04.27)
CL Item
PANC - Pancreas cancer (04.29)
CL Item
PENC - Penile cancer (04.31)
CL Item
PROS - Prostate cancer (04.32)
CL Item
RECT - Rectum cancer (04.33)
CL Item
STOM - Stomach cancer (04.34)
CL Item
TESE - Testicular seminoma (04.35)
CL Item
UTER - Uterus cancer (04.36)
CL Item
MEAC - Metastasis: of adenocarcinoma (04.40.1)
CL Item
MEOC - Metastasis: of other cancer type (04.40.2)
CL Item
MESC - Metastasis: of squamuos cell carcinoma (04.40.3)
CL Item
META - Metastasis: unspecified (04.40.9)
CL Item
OTH - Other Malignancy Type (04.90)
CL Item
UNKP - Unknown Malignancy Type (04.99)
CL Item
Diabetes Mellitus (complication to) (05)
CL Item
Pancreatitis (06)
CL Item
Lactic acidosis (07)
CL Item
MI or other ischemic heart disease (08)
CL Item
AMI (08.1)
CL Item
Definitive AMI (Dundee 1) (08.1.1)
CL Item
Possible AMI (Dundee 2/9) (08.1.2)
CL Item
Other ischemic heart disease (08.2)
CL Item
Stroke (09)
CL Item
Gastro-intestinal haemorrhage (if chosen, specify underlying cause) (10)
CL Item
Primary pulmonary hypertension (11)
CL Item
Lung embolus (12)
CL Item
Chronic obstructive lung disease (13)
CL Item
Liver failure (other than 03, 03.1, 03.2) (14)
CL Item
Renal failure (15)
CL Item
Accident or other violent death (not suicide) (16)
CL Item
Suicide (17)
CL Item
Euthenasia (18)
CL Item
Substrance abuse (active) (19)
CL Item
Chronic Alcohol abuse (19.1)
CL Item
Chronic intravenous drug-use (19.2)
CL Item
Acute intoxication (19.3)
CL Item
Haematological disease (other causes) (20)
CL Item
Endocrine disease (other causes) (21)
CL Item
Psychiatric disease (other causes) (22)
CL Item
CNS disease (other causes) (23)
CL Item
Heart or vascular (other causes) (24)
CL Item
Respiratory disease (other causes) (25)
CL Item
Digestive system disease (other causes) (26)
CL Item
Skin and motor system disease (other causes) (27)
CL Item
Urogential disease (other causes) (28)
CL Item
Obstetric complications (29)
CL Item
Congenital disorders (30)
CL Item
Symptoms caused by mitochondrial toxicity (other than 06, 07) (31)
CL Item
Bleeding (haemophilia) (32)
CL Item
Sudden infant death (33)
CL Item
Child abuse (33.1)
CL Item
Other causes (90)
CL Item
Unclassifiable causes (91)
CL Item
Unknown (92)
CL Item
Unknown, Competing risks (92.1)
Item
Coding of causal relation of the code given in DEATH_R2 to the death
text
C0007465 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
DEATH_RC1
Code List
Coding of causal relation of the code given in DEATH_R2 to the death
CL Item
Immediate cause (I)
CL Item
Underlying cause/condition (U)
CL Item
Contributing cause (C)
CL Item
Not available (N)
Item
Cause of death
text
C0007465 (UMLS CUI [1])
DEATH_R1
Code List
Cause of death
CL Item
AIDS (ongoing active disease) (01)
CL Item
Infection (01.1)
CL Item
Malignancy (01.2)
CL Item
Infection (other than 01.1) (02)
CL Item
Bacterial (02.1)
CL Item
Bacterial with sepsis (02.1.1)
CL Item
Others (02.2)
CL Item
Others with sepsis (02.2.1)
CL Item
Unknown aetiology (02.3)
CL Item
Unknown with sepsis (02.3.1)
CL Item
Chronic viral hepatitis (progression of/complication to) (03)
CL Item
HCV (03.1)
CL Item
HCV with cirrhosis (03.1.1)
CL Item
HCV with liver failure (03.1.2)
CL Item
HBV (03.2)
CL Item
HBV with cirrhosis (03.2.1)
CL Item
HBV with liver failure (03.2.2)
CL Item
Malignancy (other than 01.2 and 03, 03.1, 03.2) (04)
CL Item
ANUS - Anal cancer (04.03)
CL Item
BLAD - Bladder cancer (04.04)
CL Item
BONE - Bone cancer (04.05)
CL Item
BRAC - Brain cancer (04.06)
CL Item
BRCA - Breast cancer (04.07)
CL Item
ALL - Leukaemia: Acute lymphoid (04.10.1)
CL Item
AML - Leukaemia: Acute myeloid (04.10.2)
CL Item
CLL - Leukaemia: Chronic lymphoid (04.10.3)
CL Item
CML - Leukaemia: Chronic myeloid (04.10.4)
CL Item
LEUK - Leukaemia: unspecified (04.10.9)
CL Item
COLO - Colon cancer (04.18)
CL Item
COTC - Connective tissue cancer (04.11)
CL Item
ESOP - Esophagus cancer (04.12)
CL Item
GALL - Gallbladder cancer (04.13)
CL Item
GYCA - Gynaecologic cancer (04.14)
CL Item
HDL - Hodgkin lymphoma (04.15)
CL Item
HENE - Head and neck (incl. face) cancers (04.16)
CL Item
KIDN - Kidney cancer (04.17)
CL Item
LIPC - Lip cancer (04.19)
CL Item
LIVR - Liver cancer (04.20)
CL Item
LUNG - Lung cancer (04.21)
CL Item
MALM - Malignant melanoma (04.22)
CL Item
MULM - Multiple myeloma (04.27)
CL Item
PANC - Pancreas cancer (04.29)
CL Item
PENC - Penile cancer (04.31)
CL Item
PROS - Prostate cancer (04.32)
CL Item
RECT - Rectum cancer (04.33)
CL Item
STOM - Stomach cancer (04.34)
CL Item
TESE - Testicular seminoma (04.35)
CL Item
UTER - Uterus cancer (04.36)
CL Item
MEAC - Metastasis: of adenocarcinoma (04.40.1)
CL Item
MEOC - Metastasis: of other cancer type (04.40.2)
CL Item
MESC - Metastasis: of squamuos cell carcinoma (04.40.3)
CL Item
META - Metastasis: unspecified (04.40.9)
CL Item
OTH - Other Malignancy Type (04.90)
CL Item
UNKP - Unknown Malignancy Type (04.99)
CL Item
Diabetes Mellitus (complication to) (05)
CL Item
Pancreatitis (06)
CL Item
Lactic acidosis (07)
CL Item
MI or other ischemic heart disease (08)
CL Item
AMI (08.1)
CL Item
Definitive AMI (Dundee 1) (08.1.1)
CL Item
Possible AMI (Dundee 2/9) (08.1.2)
CL Item
Other ischemic heart disease (08.2)
CL Item
Stroke (09)
CL Item
Gastro-intestinal haemorrhage (if chosen, specify underlying cause) (10)
CL Item
Primary pulmonary hypertension (11)
CL Item
Lung embolus (12)
CL Item
Chronic obstructive lung disease (13)
CL Item
Liver failure (other than 03, 03.1, 03.2) (14)
CL Item
Renal failure (15)
CL Item
Accident or other violent death (not suicide) (16)
CL Item
Suicide (17)
CL Item
Euthenasia (18)
CL Item
Substrance abuse (active) (19)
CL Item
Chronic Alcohol abuse (19.1)
CL Item
Chronic intravenous drug-use (19.2)
CL Item
Acute intoxication (19.3)
CL Item
Haematological disease (other causes) (20)
CL Item
Endocrine disease (other causes) (21)
CL Item
Psychiatric disease (other causes) (22)
CL Item
CNS disease (other causes) (23)
CL Item
Heart or vascular (other causes) (24)
CL Item
Respiratory disease (other causes) (25)
CL Item
Digestive system disease (other causes) (26)
CL Item
Skin and motor system disease (other causes) (27)
CL Item
Urogential disease (other causes) (28)
CL Item
Obstetric complications (29)
CL Item
Congenital disorders (30)
CL Item
Symptoms caused by mitochondrial toxicity (other than 06, 07) (31)
CL Item
Bleeding (haemophilia) (32)
CL Item
Sudden infant death (33)
CL Item
Child abuse (33.1)
CL Item
Other causes (90)
CL Item
Unclassifiable causes (91)
CL Item
Unknown (92)
CL Item
Unknown, Competing risks (92.1)
Item
Coding of causal relation of the code given in DEATH_R3 to the death
text
C0007465 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
DEATH_RC1
Code List
Coding of causal relation of the code given in DEATH_R3 to the death
CL Item
Immediate cause (I)
CL Item
Underlying cause/condition (U)
CL Item
Contributing cause (C)
CL Item
Not available (N)
DEATH_SOURCE
Item
Source of information for coding of death (e.g. CoDe within own cohort, CoDe from D:A:D, CoDe from ART-CC, etc.)
text
C0449416 (UMLS CUI [1,1])
C0007465 (UMLS CUI [1,2])
C0805701 (UMLS CUI [1,3])
ICD10_1
Item
Cause of death as ICD-10 if available
text
C2598420 (UMLS CUI [1,1])
C0007465 (UMLS CUI [1,2])
DEATH_OT
Item
Reason for death – other - description
text
C0007465 (UMLS CUI [1,1])
C0678257 (UMLS CUI [1,2])
L_ALIVE
Item
Last date known to be alive
date
C3274947 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
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