Study ID
Item
Study ID
text
C2348585 (UMLS CUI [1])
name
Item
name
text
C0027365 (UMLS CUI [1])
ID-nr Compos
Item
ID-nr Compos
text
rehabilitation unit
Item
rehabilitation unit
text
C0018704 (UMLS CUI [1,1])
C0034991 (UMLS CUI [1,2])
C1549700 (UMLS CUI [1,3])
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Family, Mother is biological parent
Item
Family, Mother is biological parent
boolean
C0026591 (UMLS CUI [1,1])
C0337465 (UMLS CUI [1,2])
Year of birth mother
Item
Year of birth mother
integer
C2319404 (UMLS CUI [1])
Family, Father is biological parent
Item
Family, Father is biological parent
boolean
C0015671 (UMLS CUI [1,1])
C0337465 (UMLS CUI [1,2])
Year of birth father
Item
Year of birth father
integer
C2136977 (UMLS CUI [1])
Mother is born in another country
Item
Mother is born in another country
boolean
C1300001 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
Mother immigrated from
Item
Mother immigrated from
text
C0026591 (UMLS CUI [1,1])
C0020942 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
Mother came to Sweden year
Item
Mother came to Sweden year
integer
C0020942 (UMLS CUI [1,1])
C0038995 (UMLS CUI [1,2])
C0026591 (UMLS CUI [1,3])
Mother needs an interpreter
Item
Mother needs an interpreter
boolean
C0150646 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
The father was born in another country
Item
The father was born in another country
boolean
C1300001 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
The father immigrated from
Item
The father immigrated from
text
C0015671 (UMLS CUI [1,1])
C0020942 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
The father came to Sweden year
Item
The father came to Sweden year
integer
C0020942 (UMLS CUI [1,1])
C0038995 (UMLS CUI [1,2])
C0015671 (UMLS CUI [1,3])
The father needs an interpreter
Item
The father needs an interpreter
boolean
C0150646 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
Item
The child lives with
integer
C2184149 (UMLS CUI [1])
Code List
The child lives with
CL Item
Exchange Housing (4)
Other accommodation
Item
Other accommodation
text
C2184149 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Sibling's birth year
Item
Sibling's birth year
integer
C0037047 (UMLS CUI [1,1])
C2826771 (UMLS CUI [1,2])
Social support, Care contribution
Item
Social support, Care contribution
boolean
C0037438 (UMLS CUI [1])
Item
How much care allowance
integer
C0017313 (UMLS CUI [1,1])
C0556660 (UMLS CUI [1,2])
Code List
How much care allowance
Actions according to SoL
Item
Actions according to SoL
boolean
What actions according to SoL
Item
What actions according to SoL
text
Actions according to LSS 9§
Item
Actions according to LSS 9§
boolean
Advice and other personal support
Item
If yes, check which ones Advice and other personal support
boolean
C1521721 (UMLS CUI [1])
Personal Assistant
Item
Personal Assistant
boolean
C0401893 (UMLS CUI [1])
Item
Personal Assistant Number of hours / week
integer
C0401893 (UMLS CUI [1])
Code List
Personal Assistant Number of hours / week
Attendant Service
Item
Attendant Service
boolean
C0554205 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Contact
Item
Contact
boolean
C0337611 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Relief service at home
Item
Relief service at home
boolean
C1521721 (UMLS CUI [1,1])
C0442519 (UMLS CUI [1,2])
Short-term stay outside of home
Item
Short-term stay outside of home
boolean
C0034993 (UMLS CUI [1,1])
C0023303 (UMLS CUI [1,2])
Short-term supervision for schoolchildren over 12 years
Item
Short-term supervision for schoolchildren over 12 years
boolean
C0038842 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
Accommodation
Item
Accommodation in a family home or in a residence with special service for children and adolescents
boolean
C0595920 (UMLS CUI [1])
Personal assistance according to LASS
Item
Personal assistance according to LASS
boolean
C1521721 (UMLS CUI [1])
Item
Number of hours / week personal assistant according to LASS
integer
C1521721 (UMLS CUI [1])
Code List
Number of hours / week personal assistant according to LASS
Coordinated plan according to SOFS§2008: 20
Item
Coordinated plan according to SOFS§2008: 20
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Transportation service
Item
Transportation service
boolean
C2003850 (UMLS CUI [1])
car allowance
Item
car allowance
boolean
C0556660 (UMLS CUI [1,1])
C0004381 (UMLS CUI [1,2])
Individual plan according to LSS 10§
Item
Individual plan according to LSS 10§
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
HSL Habilitation Plan
Item
HSL Habilitation Plan
boolean
C0018459 (UMLS CUI [1,1])
C0178916 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
Coordinated Individual Plan (SIP)
Item
Coordinated Individual Plan (SIP)
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Home all day
Item
Stay daytime: Home all day
boolean
C0442519 (UMLS CUI [1,1])
C0332169 (UMLS CUI [1,2])
Preschool
Item
Stay daytime: Preschool
boolean
C0681405 (UMLS CUI [1,1])
C0332169 (UMLS CUI [1,2])
Family day
Item
Stay daytime: Family day
boolean
C0015576 (UMLS CUI [1,1])
C0332169 (UMLS CUI [1,2])
special Preschool
Item
Stay daytime: special Preschool
boolean
C0557805 (UMLS CUI [1,1])
C0681405 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,3])
school childcare/leisure
Item
school childcare/leisure
boolean
C0036375 (UMLS CUI [1,1])
C0683807 (UMLS CUI [1,2])
C0086542 (UMLS CUI [2])
Additional resources
Item
Additional resources in school / childcare
boolean
C0035201 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C0683807 (UMLS CUI [2])
Support of specialist teacher
Item
If yes, what: Support of special educator / specialist teacher
boolean
C0221457 (UMLS CUI [1,1])
C0871403 (UMLS CUI [1,2])
C1521721 (UMLS CUI [2])
Assistant
Item
If yes, what: Assistant / resource appointed by preschool / school
boolean
C0401893 (UMLS CUI [1])
C1521721 (UMLS CUI [2])
Personal Assistance according to LSS
Item
If yes, what: Personal Assistance according to LSS / LASS
boolean
C0401893 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Date of data collection:
Item
Date of data collection:
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Spastic Bilateral Diplegia
Item
Spastic Bilateral Diplegia (= G80.1) ?
boolean
C0270804 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
Spastic Unilateral Hemiplegia
Item
Spastic Unilateral Hemiplegia (=G80.2) ?
boolean
C0270804 (UMLS CUI [1,1])
C0205092 (UMLS CUI [1,2])
dyskinetic
Item
Dyskinetic (=G80.3) ?
boolean
C0013384 (UMLS CUI [1])
Dyskinetic Tonic Change
Item
Dyskinetic Tonic Change (=G80.3A) ?
boolean
C0013384 (UMLS CUI [1,1])
C1836825 (UMLS CUI [1,2])
Dyskinetic
Item
Dyskinetic Koreo-atetos (=G80.3B) ?
boolean
C0013384 (UMLS CUI [1])
ataxia
Item
Ataxia (=G80.4) ?
boolean
C0004134 (UMLS CUI [1])
Spastic Bilateral Tetraplegia
Item
Spastic Bilateral Tetraplegia (=G80.8) ?
boolean
C0837207 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
CP other
Item
CP other (=G80.9)
boolean
C0007789 (UMLS CUI [1])
GMFCS
Item
= GMFCS (I - V):
integer
C0677549 (UMLS CUI [1,1])
C0456079 (UMLS CUI [1,2])
CT / MR brain
Item
CT / MR brain
boolean
C0412585 (UMLS CUI [1])
C0412675 (UMLS CUI [2])
Date of X-ray
Item
Date of X-ray
date
C0011923 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
result diagnostic imaging
Item
result diagnostic imaging
text
C1274040 (UMLS CUI [1,1])
C0011923 (UMLS CUI [1,2])
Prenatal damage
Item
Prenatal damage
boolean
C0270611 (UMLS CUI [1,1])
C2735348 (UMLS CUI [1,2])
Perinatal damage
Item
Perinatal damage
boolean
C0270611 (UMLS CUI [1,1])
C0178795 (UMLS CUI [1,2])
Postnatal damage
Item
Postnatal damage
boolean
C0270611 (UMLS CUI [1,1])
C0443281 (UMLS CUI [1,2])
Unclear time
Item
Unclear time
boolean
C0270611 (UMLS CUI [1,1])
C2348792 (UMLS CUI [1,2])
C3845108 (UMLS CUI [1,3])
Item
Sight:
integer
C3665347 (UMLS CUI [1])
CL Item
Cortical Visual Impairment (2)
CL Item
Visible 0.1-0.3 (4)
CL Item
Blind less than 0.1 (5)
Item
Hearing:
integer
C1384666 (UMLS CUI [1])
CL Item
Impaired hearing (2)
Language / speech impairments
Item
Language / speech impairments
boolean
C0233715 (UMLS CUI [1,1])
C0564649 (UMLS CUI [1,2])
Dysphagia / difficulty swallowing
Item
Dysphagia / difficulty swallowing
boolean
C0973461 (UMLS CUI [1])
C0566355 (UMLS CUI [2])
Epilepsy
Item
Epilepsy (OBS diagnosis above)
boolean
C0014544 (UMLS CUI [1])
resistant to therapy
Item
Therapeutic resistance > 1g / month, despite 2 years of treatment
boolean
C0332325 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Autism
Item
Autism
boolean
C0004352 (UMLS CUI [1])
Autism Spectrum Disorders
Item
Autism Spectrum Disorders
boolean
C1510586 (UMLS CUI [1])
Incontinence
Item
Bladder function: Incontinence
boolean
C0021167 (UMLS CUI [1])
emptying disorder
Item
Bladder function: emptying disorder
boolean
C0429805 (UMLS CUI [1])
intestinal incontinence
Item
Gastrointestinal function: intestinal incontinence
boolean
C0021167 (UMLS CUI [1,1])
C0516983 (UMLS CUI [1,2])
Constipation
Item
Gastrointestinal function: Constipation
boolean
C0009806 (UMLS CUI [1])
dislocated hip
Item
dislocated hip (clicky hips)
boolean
C0019554 (UMLS CUI [1])
dislocated hip bilateral
Item
dislocated hip bilateral
boolean
C0019554 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
scoliosis
Item
dislocated hip: scoliosis
boolean
C0036439 (UMLS CUI [1])
C0019554 (UMLS CUI [2])
dislocated hip degree
Item
dislocated hip: Degree
integer
C0019554 (UMLS CUI [1,1])
C0439792 (UMLS CUI [1,2])
Gastrostomy / tube
Item
Gastrostomy / tube
boolean
C0017196 (UMLS CUI [1])
C0041281 (UMLS CUI [2])
Date of data collection
Item
Date of data collection:
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
height
Item
height
integer
C0005890 (UMLS CUI [1])
Weight
Item
Weight
float
C0005910 (UMLS CUI [1])
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Item
At home or in preschool: To maintain attention (d160 according to ICF)
integer
C0004268 (UMLS CUI [1])
Code List
At home or in preschool: To maintain attention (d160 according to ICF)
CL Item
No difficulty (1)
CL Item
Easy difficulty (2)
CL Item
Moderate difficulty (3)
CL Item
Great difficulty (4)
CL Item
Total difficulty (5)
CL Item
Not specified (6)
CL Item
Not applicable (7)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Manual Ability
Item
Manual Ability Classification System (MACS)
integer
C0175674 (UMLS CUI [1,1])
C0085732 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,3])
Gross Motor Function Classification System (GMFCS-ER)
Item
Gross Motor Function Classification System (GMFCS-ER)
integer
C0677549 (UMLS CUI [1,1])
C0456079 (UMLS CUI [1,2])
Item
GMFM-66 not tested because of
integer
C0677549 (UMLS CUI [1])
Code List
GMFM-66 not tested because of
CL Item
Less than the measuring range (1)
CL Item
Greater than the measuring range (2)
Gross Motor Function Measure (GMFM-66) score
Item
Gross Motor Function Measure (GMFM-66) score
float
C0677549 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
GMFM
Item
GMFM-66 confidence interval (95 percent) lower than
float
C0677549 (UMLS CUI [1,1])
C0009667 (UMLS CUI [1,2])
GMFM
Item
GMFM-66 confidence interval (95 percent) higher than
float
C0677549 (UMLS CUI [1,1])
C0009667 (UMLS CUI [1,2])
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Item
PEDI not tested because of
integer
C0012605 (UMLS CUI [1,1])
C1521725 (UMLS CUI [1,2])
Code List
PEDI not tested because of
CL Item
Less than the measuring range (1)
CL Item
Greater than the range (2)
Personal care score
Item
Personal care raw score
integer
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care Normative points
Item
Functional skills Personal care Normative points
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Personal care Normative points
Item
Functional skills Personal care Normative points Below 10 <
boolean
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Personal care Normative points
Item
Functional skills Personal care Normative points Above 90 >
boolean
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Personal care mean error
Item
Functional skills Personal care mean error (1 SE)
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Personal care scale score
Item
Functional skills Personal care scale score
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care Average mean error
Item
Functional skills Personal care Average mean error (1 SE)
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
mobility score
Item
mobility score
integer
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility Normative points
Item
mobility Normative points
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
mobility Normative points
Item
mobility Normative points Below 10 <
boolean
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
mobility Normative points
Item
mobility Normative points Above 90 >
boolean
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
mobility mean error (1 SE)
Item
mobility mean error (1 SE)
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
mobility scale score
Item
mobility scale score
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility Average mean error
Item
mobility Average mean error (1 SE)
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Social ability score
Item
Social ability raw score
integer
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability Normative points
Item
Social ability Normative points
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Social ability Normative points
Item
Social ability Normative points Below 10 <
boolean
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Social ability Normative points
Item
Social ability Normative points Above 90 >
boolean
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Social ability mean error (1 SE)
Item
Social ability mean error (1 SE)
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Social ability scale score
Item
Social ability scale score
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability Average mean error
Item
Social ability Average mean error
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Item
help Requirements
integer
C1521721 (UMLS CUI [1,1])
C1514873 (UMLS CUI [1,2])
C0007789 (UMLS CUI [1,3])
Code List
help Requirements
Personal care score
Item
Personal care raw score
integer
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care Normative points
Item
Functional skills Personal care Normative points
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Personal care Normative points
Item
Functional skills Personal care Normative points Below 10 <
boolean
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Personal care Normative points
Item
Functional skills Personal care Normative points Above 90 >
boolean
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Personal care mean error
Item
Functional skills Personal care mean error (1 SE)
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Personal care scale score
Item
Functional skills Personal care scale score
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care Average mean error
Item
Functional skills Personal care Average mean error (1 SE)
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
mobility score
Item
mobility score
integer
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility Normative points
Item
mobility Normative points
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
mobility Normative points
Item
mobility Normative points Below 10 <
boolean
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
mobility Normative points
Item
mobility Normative points Above 90 >
boolean
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
mobility mean error (1 SE)
Item
mobility mean error (1 SE)
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
mobility scale score
Item
mobility scale score
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility Average mean error
Item
mobility Average mean error (1 SE)
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Social ability score
Item
Social ability raw score
integer
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability Normative points
Item
Social ability Normative points
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Social ability Normative points
Item
Social ability Normative points Below 10 <
boolean
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Social ability Normative points
Item
Social ability Normative points Above 90 >
boolean
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])
Social ability mean error (1 SE)
Item
Social ability mean error (1 SE)
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Social ability scale score
Item
Social ability scale score
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability Average mean error
Item
Social ability Average mean error
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Item
Number of adjustments: Personal care
integer
C0376209 (UMLS CUI [1,1])
C0563471 (UMLS CUI [1,2])
Code List
Number of adjustments: Personal care
Item
Number of adjustments: mobility
integer
C0376209 (UMLS CUI [1,1])
C0449580 (UMLS CUI [1,2])
Code List
Number of adjustments: mobility
Item
Number of adjustments: Social ability
integer
C0376209 (UMLS CUI [1,1])
C0679005 (UMLS CUI [1,2])
Code List
Number of adjustments: Social ability
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Item
Communication - Language - Eating
integer
C0870313 (UMLS CUI [1])
C1145677 (UMLS CUI [2])
C0566304 (UMLS CUI [3])
Code List
Communication - Language - Eating
CL Item
Formal testing (3)
Impairment Speech and language
Item
Impairment Speech and language
float
C0233715 (UMLS CUI [1])
C1145677 (UMLS CUI [2])
Impairment phonology
Item
Impairment phonology
float
C1865893 (UMLS CUI [1])
Impairment dysarthria
Item
Impairment dysarthria
float
C0013362 (UMLS CUI [1])
Impairment dysphagia
Item
Impairment dysphagia
text
C0011168 (UMLS CUI [1])
Activity Speech and language
Item
Activity Speech and language
float
C0564649 (UMLS CUI [1,1])
C0441655 (UMLS CUI [1,2])
Activity phonology
Item
Activity phonology
float
C0597725 (UMLS CUI [1,1])
C0441655 (UMLS CUI [1,2])
Activity dysarthria
Item
Activity dysarthria
float
C0013362 (UMLS CUI [1,1])
C0441655 (UMLS CUI [1,2])
Activity dysphagia
Item
Activity dysphagia
float
C0011168 (UMLS CUI [1,1])
C0441655 (UMLS CUI [1,2])
Activity Appendix Communicative efficiency
Item
Activity Appendix Communicative efficiency
text
C0870313 (UMLS CUI [1,1])
C0441655 (UMLS CUI [1,2])
Participation Speech and language
Item
Participation Speech and language
float
C0564649 (UMLS CUI [1,1])
C0679823 (UMLS CUI [1,2])
Participation dysphagia
Item
Participation dysphagia
float
C0011168 (UMLS CUI [1,1])
C0679823 (UMLS CUI [1,2])
Participation Appendix Communicative efficiency
Item
Participation Appendix Communicative efficiency
float
C0870313 (UMLS CUI [1,1])
C0679823 (UMLS CUI [1,2])
Date of assessment
Item
Date of assessment:
date
C0034394 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Form Answered by:
integer
C0034394 (UMLS CUI [1,1])
C0508431 (UMLS CUI [1,2])
Code List
Form Answered by:
help from relatives
Item
1.A How much help do you get from parents / guardians from close associates around your / yours children?
integer
C1521721 (UMLS CUI [1,1])
C0581904 (UMLS CUI [1,2])
satisfied with this amount of help from relatives
Item
1.B How satisfied are you / you as parents / guardians with this amount of help from related?
integer
C0581904 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
help from non-family members eg friends
Item
2.A How much help do you / you receive as parents / guardians from non-family members eg friends?
integer
C0557462 (UMLS CUI [1])
satisfied with this amount of help from non-family members
Item
2.B How satisfied are you / you as parents / guardians with this amount of help from non-family members around your / your child?
integer
C0557462 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
Item
3. How easy or difficult do you / you think as a parent / guardian is to arrange a babysitter when you / you want / need it?
integer
C0337606 (UMLS CUI [1])
Code List
3. How easy or difficult do you / you think as a parent / guardian is to arrange a babysitter when you / you want / need it?
CL Item
Very difficult (1)
CL Item
Sometimes easy / sometimes difficult (3)