Personal ID number
Item
Personal ID number
integer
C2348585 (UMLS CUI [1])
Item
Gender
integer
C0079399 (UMLS CUI [1])
Name
Item
Name
text
C1299487 (UMLS CUI [1])
Date of onset stroke
Item
Date of onset stroke
date
C0038454 (UMLS CUI [1,1])
C0574845 (UMLS CUI [1,2])
Diagnosis Code
Item
Diagnosis Code (I / G)
text
C1550350 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
Reporting hospital
Item
Reporting hospital
text
C0019994 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
Reporting Ward/department
Item
Reporting Ward/department
text
C0019961 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
name of person completing this form
Item
Completed by (name of person completing this form)
text
C1550483 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Date deceased
Item
Date deceased (Complete only if patient died during treatment period)
date
C1148348 (UMLS CUI [1])
admitted for treatment for this stroke episode
Item
Has the patient been admitted for treatment for this stroke episode?
boolean
C0038454 (UMLS CUI [1,1])
C0332189 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
already admitted at the hospital at the time of this stroke episode
Item
Was the patient already admitted at the hospital at the time of this stroke episode?
boolean
C3489408 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C0332189 (UMLS CUI [1,3])
Stroke time of onset
Item
Stroke time of onset
time
C0038454 (UMLS CUI [1,1])
C0449244 (UMLS CUI [1,2])
Item
Number of hours from onset to arrival at hospital
integer
C0038454 (UMLS CUI [1,1])
C0449244 (UMLS CUI [1,2])
C1320532 (UMLS CUI [1,3])
C0449238 (UMLS CUI [1,4])
Code List
Number of hours from onset to arrival at hospital
Item
Did the patient wake up with symptoms?
integer
C1457887 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C1170730 (UMLS CUI [1,3])
Code List
Did the patient wake up with symptoms?
Item
Thrombolysis alarm “save the brain/stroke alarm”
integer
C0040044 (UMLS CUI [1,1])
C2956061 (UMLS CUI [1,2])
Code List
Thrombolysis alarm “save the brain/stroke alarm”
Item
Did the patient arrive by ambulance?
integer
C0002422 (UMLS CUI [1,1])
C0150390 (UMLS CUI [1,2])
Code List
Did the patient arrive by ambulance?
Item
Initially admitted to another hospital at the time of this stroke episode
integer
C0038454 (UMLS CUI [1,1])
C0332189 (UMLS CUI [1,2])
C0184666 (UMLS CUI [1,3])
Code List
Initially admitted to another hospital at the time of this stroke episode
Date of arrival at hospital
Item
Date of arrival at hospital
date
C3263562 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Time of arrival at hospital
Item
Time of arrival at hospital
time
C1320532 (UMLS CUI [1])
Date of arrival at stroke unit
Item
Date of arrival at stroke unit
date
C0587502 (UMLS CUI [1,1])
C3263562 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Time of arrival at stroke unit
Item
Time of arrival at stroke unit
time
C0587502 (UMLS CUI [1,1])
C3263562 (UMLS CUI [1,2])
C0040223 (UMLS CUI [1,3])
Item
First admitted to a
integer
C0184666 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Code List
First admitted to a
CL Item
general ward or ward other than those specified in choice of response 2 or 3, 4 or 6 (1)
CL Item
admissions/obs. ward (3)
CL Item
intensive care unit (4)
CL Item
other (please specify) (5)
CL Item
Department of Neurosurgery (6)
department admitted to
Item
First admitted to "Other", please specify
text
C0184666 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Item
Continued care during the acute phase; also applies to care provided in other hospitals during the acute phase (You can choose more than one response)
integer
C0679878 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Code List
Continued care during the acute phase; also applies to care provided in other hospitals during the acute phase (You can choose more than one response)
CL Item
general ward or ward other than those specified in choice of response 2 or 3, 4 or 6 (1)
CL Item
admissions/obs. ward (3)
CL Item
intensive care unit (4)
CL Item
other (please specify) (5)
CL Item
Department of Neurosurgery (6)
Continued care during the acute phase department
Item
Continued care during the acute phase department "Other", please specify
text
C0679878 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Date of discharge
Item
Date of discharge
date
C2361123 (UMLS CUI [1])
Number of days at stroke unit, intensive care unit or department of neurosurgery
Item
Number of days at stroke unit, intensive care unit or department of neurosurgery
integer
C4019086 (UMLS CUI [1])
C0021708 (UMLS CUI [2])
C0587502 (UMLS CUI [3])
C1552762 (UMLS CUI [4])
Item
After acute care the patient is discharged to
integer
C0030685 (UMLS CUI [1,1])
C1550391 (UMLS CUI [1,2])
C0679878 (UMLS CUI [2])
Code List
After acute care the patient is discharged to
CL Item
own accommodation (1)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, old people's home or nursing home) (2)
CL Item
other acute-care department (=complete Aftercare) (3)
CL Item
Geriatrics/Rehab (=complete Aftercare) (4)
CL Item
deceased during treatment (5)
CL Item
other (e.g. the patient is resident in another country) (6)
CL Item
still in hospital (8)
CL Item
other stroke unit for aftercare (= complete Aftercare) (9)
CL Item
health centre with emergency beds (= complete Aftercare) (10)
Address and phone number of the place to which the patient is discharged
Item
Address and phone number of the place to which the patient is discharged
text
C1550391 (UMLS CUI [1])
C1515258 (UMLS CUI [2])
C1442065 (UMLS CUI [3])
C0679878 (UMLS CUI [4])
Item
PLANNED REHABILITATION after discharge from ACUTE CARE
integer
C0034991 (UMLS CUI [1])
C0679878 (UMLS CUI [2])
Code List
PLANNED REHABILITATION after discharge from ACUTE CARE
CL Item
home rehabilitation provided by a multidisciplinary rehabilitation team (including available doctor) with specialist knowledge in stroke care (1)
CL Item
other home rehabilitation (2)
CL Item
day rehabilitation or equivalent (refers to team-based rehabilitation for a defined period of time) (3)
CL Item
polyclinical rehabilitation (refers to rehabilitation with individual visits) (4)
CL Item
no need for rehabilitation in team's opinion (5)
CL Item
care accommodation with rehab (e.g. arranged accommodation, service flat with full board, temporary accommodation or nursing home) (6)
CL Item
patient does not want the rehabilitation offered (7)
CL Item
rehabilitation is needed but not available (8)
Date of arrival aftercare
Item
Date of arrival aftercare
date
C0001758 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
Date of discharge Aftercare
Item
Date of discharge Aftercare
date
C0001758 (UMLS CUI [1,1])
C2361123 (UMLS CUI [1,2])
Item
When AFTERCARE is complete THE PATIENT IS DISCHARGED TO
integer
C0030685 (UMLS CUI [1,1])
C1550391 (UMLS CUI [1,2])
C0001758 (UMLS CUI [2])
Code List
When AFTERCARE is complete THE PATIENT IS DISCHARGED TO
CL Item
own accommodation (1)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, old people's home or nursing home) (2)
CL Item
other acute-care department (3)
CL Item
deceased during treatment (4)
CL Item
other (e.g. the patient is resident in another country) (5)
CL Item
still in hospital (7)
Address and phone number of the place to which the patient is discharged
Item
Address and phone number of the place to which the patient is discharged
text
C1550391 (UMLS CUI [1])
C1515258 (UMLS CUI [2])
C1442065 (UMLS CUI [3])
C0001758 (UMLS CUI [4])
Item
PLANNED REHABILITATION after discharge from AFTERCARE (you can choose more than one response)
integer
C0034991 (UMLS CUI [1])
C0001758 (UMLS CUI [2])
Code List
PLANNED REHABILITATION after discharge from AFTERCARE (you can choose more than one response)
CL Item
home rehabilitation provided by a multidisciplinary rehabilitation team (including available doctor) with specialist knowledge in stroke care (1)
CL Item
other home rehabilitation (2)
CL Item
day rehabilitation or equivalent (refers to team-based rehabilitation for a defined period of time) (3)
CL Item
polyclinical rehabilitation (refers to rehabilitation with individual visits) (4)
CL Item
no need for rehabilitation in team's opinion (5)
CL Item
care accommodation with rehab (e.g. arranged accommodation, service flat with full board, temporary accommodation or nursing home) (6)
CL Item
patient does not want the rehabilitation offered (7)
CL Item
rehabilitation is needed but not available (8)
Item
Accommodation
integer
C0595920 (UMLS CUI [1])
CL Item
own accommodation without home help (home help does not mean home nursing or advanced home nursing) (1)
CL Item
own accommodation with home help (home help does not mean home nursing or advanced home nursing) (2)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, nursing home or equivalent) (3)
CL Item
other (please specify) (4)
Item
Those living alone
integer
C0439044 (UMLS CUI [1])
Code List
Those living alone
CL Item
patient lives entirely on his/her own (1)
CL Item
patient shares his/her household with spouse/partner or other person e.g. sibling, child or parents (2)
Item
Need for assistance
integer
C1521721 (UMLS CUI [1,1])
C3840284 (UMLS CUI [1,2])
Code List
Need for assistance
CL Item
patient can cope on his/her own without assistance (1)
CL Item
patient requires assistance from another person (2)
Item
Mobility
integer
C0449580 (UMLS CUI [1])
CL Item
patient could move around without supervision both indoors and outdoors (use (1)
CL Item
of walking-aid permitted) (2)
CL Item
patient was able to move around by himself/herself indoors but not outdoors (2)
CL Item
patient was assisted by another person when moving around, or was bedridden (3)
Item
Toilet visits
integer
C0562816 (UMLS CUI [1])
CL Item
patient managed toilet visits without any help (1)
CL Item
patient was unable to get to the bathroom or go to the toilet without help, (2)
Item
Clothes
integer
C0518459 (UMLS CUI [1])
CL Item
patient was able to get dressed without help, including outdoor clothes, socks and shoes, or only needed help when tying shoelaces (1)
CL Item
patient needed someone to fetch his/her clothes or needed help with dressing/undressing, or remained undressed (2)
Item
Previous stroke
integer
C0559159 (UMLS CUI [1])
Code List
Previous stroke
Item
Previous TIA / Amaurosis fugax?
integer
C0149793 (UMLS CUI [1])
C0007787 (UMLS CUI [2])
Code List
Previous TIA / Amaurosis fugax?
Item
Auricular fibrillation, previously diagnosed
integer
C0004238 (UMLS CUI [1])
Code List
Auricular fibrillation, previously diagnosed
Item
Auricular fibrillation, recently identified on arrival at hospital or during treatment
integer
C0004238 (UMLS CUI [1])
Code List
Auricular fibrillation, recently identified on arrival at hospital or during treatment
Item
Diabetes, previously diagnosed or recently identified
integer
C0011849 (UMLS CUI [1])
Code List
Diabetes, previously diagnosed or recently identified
Item
Treated for hypertension at onset of stroke
integer
C0020538 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Code List
Treated for hypertension at onset of stroke
Item
Smoker (>1 cigarette/day, or quit during the last three months)
integer
C0543414 (UMLS CUI [1])
Code List
Smoker (>1 cigarette/day, or quit during the last three months)
Item
Level of consciousness on arrival at hospital
integer
C0234425 (UMLS CUI [1])
Code List
Level of consciousness on arrival at hospital
CL Item
fully awake (RLS 1) (1)
CL Item
drowsy but responding to stimulus (RLS 2-3) (2)
CL Item
unconscious (RLS 4-8) (3)
NIHSS at admission
Item
First NIHSS (National Institute of Health Stroke Scale) at admission (within 24 hrs) using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Item
Has the ability to swallow been tested?
integer
C0566355 (UMLS CUI [1,1])
C0430022 (UMLS CUI [1,2])
Code List
Has the ability to swallow been tested?
CL Item
not examined due to patient's reduced consciousness (3)
Item
Has the patient been evaluated by a speech therapist for difficulties with speech?
integer
C0233715 (UMLS CUI [1,1])
C0679830 (UMLS CUI [1,2])
C0402015 (UMLS CUI [1,3])
Code List
Has the patient been evaluated by a speech therapist for difficulties with speech?
CL Item
no; no speech therapist available (3)
CL Item
no, but arranged for period after discharge (4)
Item
Has the patient been evaluated by a speech therapist or another dysphagia specialist for difficulties with swallowing during the period of treatment?
integer
C0566355 (UMLS CUI [1,1])
C0679830 (UMLS CUI [1,2])
C0402015 (UMLS CUI [1,3])
Code List
Has the patient been evaluated by a speech therapist or another dysphagia specialist for difficulties with swallowing during the period of treatment?
CL Item
no; no speech therapist or other dysphagia specialist available (3)
CL Item
okänt eller patient avböjer bedömning (9)
Item
CT brain scan during treatment
integer
C0412585 (UMLS CUI [1])
Code List
CT brain scan during treatment
Item
MRI brain scan during treatment
integer
C0412675 (UMLS CUI [1])
Code List
MRI brain scan during treatment
Item
If yes, MR brain scan during acute phase:
integer
C0412675 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
Code List
If yes, MR brain scan during acute phase:
CL Item
shows new cerebral infarction (1)
CL Item
shows no new cerebral infarction (2)
CL Item
examination result uncertain or not known (3)
Item
Carotid ultrasound performed
integer
C0948945 (UMLS CUI [1])
Code List
Carotid ultrasound performed
CL Item
examination performed no more than 28 days before onset (3)
Carotid ultrasound date
Item
If yes, examination date
date
C0948945 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
CT angiography performed
integer
C1536105 (UMLS CUI [1])
Code List
CT angiography performed
CL Item
not examined due to patient's reduced consciousness (3)
CT angiography date
Item
If yes, examination date
date
C0085532 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
MR angiography performed
integer
C0002978 (UMLS CUI [1])
Code List
MR angiography performed
CL Item
examination performed no more than 28 days before onset (3)
MR angiography date
Item
If yes, examination date
date
C0002978 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
CT or MR angiography performed of vessels affected
integer
C0002978 (UMLS CUI [1])
Code List
CT or MR angiography performed of vessels affected
CL Item
carotid vessels (1)
CL Item
intracranial vessels (2)
CL Item
both carotid and intracranial vessels (3)
Item
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
integer
C0430461 (UMLS CUI [1])
Code List
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
CL Item
no, but arranged for period after discharge (3)
Item
Antihypertensive agents: At onset?
integer
C0003364 (UMLS CUI [1])
Code List
Antihypertensive agents: At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Antihypertensive agents: At discharge?
integer
C0003364 (UMLS CUI [1])
Code List
Antihypertensive agents: At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
integer
C0360714 (UMLS CUI [1])
Code List
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
integer
C0360714 (UMLS CUI [1])
Code List
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
ASA (e.g. Trombyl): At onset?
integer
C0004057 (UMLS CUI [1])
Code List
ASA (e.g. Trombyl): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
ASA (e.g. Trombyl): At discharge?
integer
C0004057 (UMLS CUI [1])
Code List
ASA (e.g. Trombyl): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Clopidogrel (e.g. Plavix): At onset?
integer
C0070166 (UMLS CUI [1])
Code List
Clopidogrel (e.g. Plavix): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Clopidogrel (e.g. Plavix): At discharge?
integer
C0070166 (UMLS CUI [1])
Code List
Clopidogrel (e.g. Plavix): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
ASA + dipyridamole (Asasantin): At onset?
integer
C0626271 (UMLS CUI [1])
Code List
ASA + dipyridamole (Asasantin): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
ASA + dipyridamole (Asasantin): At discharge?
integer
C0626271 (UMLS CUI [1])
Code List
ASA + dipyridamole (Asasantin): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Dipyridamole (Persantin): At onset?
integer
C0012582 (UMLS CUI [1])
Code List
Dipyridamole (Persantin): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Dipyridamole (Persantin): At discharge?
integer
C0012582 (UMLS CUI [1])
Code List
Dipyridamole (Persantin): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
integer
C1704311 (UMLS CUI [1])
Code List
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
integer
C1704311 (UMLS CUI [1])
Code List
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Warfarin (Waran): At onset?
integer
C0043031 (UMLS CUI [1])
Code List
Warfarin (Waran): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
PK (INR) value
Item
If yes, treatment with warfarin at onset state PK (INR) value regardless of diagnosis
float
C0525032 (UMLS CUI [1])
Item
Apixaban (Eliquis): At onset?
integer
C1831808 (UMLS CUI [1])
Code List
Apixaban (Eliquis): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Apixaban (Eliquis): At discharge?
integer
C1831808 (UMLS CUI [1])
Code List
Apixaban (Eliquis): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Dabigatran (Pradaxa): At onset?
integer
C2348066 (UMLS CUI [1])
Code List
Dabigatran (Pradaxa): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Dabigatran (Pradaxa): At discharge?
integer
C2348066 (UMLS CUI [1])
Code List
Dabigatran (Pradaxa): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Rivaroxaban (Xarelto): At onset?
integer
C1739768 (UMLS CUI [1])
Code List
Rivaroxaban (Xarelto): At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Rivaroxaban (Xarelto): At discharge?
integer
C1739768 (UMLS CUI [1])
Code List
Rivaroxaban (Xarelto): At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Peroral anticoagulants other than the above: At onset?
integer
C0354604 (UMLS CUI [1])
Code List
Peroral anticoagulants other than the above: At onset?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Peroral anticoagulants other than the above: At discharge?
integer
C0354604 (UMLS CUI [1])
Code List
Peroral anticoagulants other than the above: At discharge?
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
Item
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
integer
C0354604 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
Code List
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
CL Item
insertion planned after discharge 2= contraindications (in accordance with FASS) (1)
CL Item
interactions with other drugs/neuropathy (in accordance with FASS) (3)
CL Item
caution (in accordance with FASS) (4)
CL Item
patient refuses treatment (7)
CL Item
kontraindicerat (enl. FASS) (2)
Item
Thrombolysis – performed for stroke e.g. Actilyse
integer
C0040044 (UMLS CUI [1])
Code List
Thrombolysis – performed for stroke e.g. Actilyse
CL Item
yes, included in study (3)
Item
Reason thrombolysis not performed
integer
C1272236 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
Code List
Reason thrombolysis not performed
CL Item
cerebral haemorrhage (1)
CL Item
symptoms too mild (2)
CL Item
symptoms too severe (3)
CL Item
not possible to administer treatment in time (within 4.5 hrs) (4)
CL Item
other contraindications for thrombolysis (5)
CL Item
no “save the brain” alarm (7)
CL Item
necessary expertise not available (e.g. doctor with thrombolysis experience, assessment of scans) (8)
Start date thrombolytic therapy
Item
Start date thrombolytic therapy
date
C0040044 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
Start time thrombolytic therapy
Item
Start time thrombolytic therapy
time
C0040044 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
NIHSS at thrombolysis
Item
NIHSS (National Institute of Health Stroke Scale) at thrombolysis start using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
NIHSS after thrombolysis
Item
NIHSS 24 hours after thrombolysis using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Item
Complete symptom regression after thrombolysis within 24 hours of onset?
integer
C0684320 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C0040044 (UMLS CUI [1,3])
Code List
Complete symptom regression after thrombolysis within 24 hours of onset?
Item
Cerebral haemorrhage with clinical deterioration <36 hrs after start of therapy
integer
C2937358 (UMLS CUI [1,1])
C1279889 (UMLS CUI [1,2])
C0040044 (UMLS CUI [2])
Code List
Cerebral haemorrhage with clinical deterioration <36 hrs after start of therapy
Riks-Stroke hospital code
Item
Enter Riks-Stroke hospital code where thrombolysis was performed
integer
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0040044 (UMLS CUI [2])
Item
Thrombectomy or other catheter-based (endovascular) stroke therapy
integer
C0162578 (UMLS CUI [1])
Code List
Thrombectomy or other catheter-based (endovascular) stroke therapy
CL Item
yes, included in study (3)
state date of thrombectomy
Item
state date of a thrombectomy or other catheter-based (endovascular) therapy
date
C0162578 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
state time of thrombectomy
Item
state time of a thrombectomy or other catheter-based (endovascular) therapy
time
C0162578 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
NIHSS at start of thrombectomy
Item
NIHSS at start of thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
NIHSS 24 hours after thrombectomy
Item
NIHSS 24 hours after thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Item
Complete symptom regression after thrombolysis or other catheter-based (endovascular) therapy within 24 hours of onset?
integer
C0684320 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C0162578 (UMLS CUI [2])
Code List
Complete symptom regression after thrombolysis or other catheter-based (endovascular) therapy within 24 hours of onset?
Riks-Stroke hospital code
Item
Enter Riks-Stroke hospital code where the thrombectomy or other catheter-based (endovascular) therapy was performed
integer
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0162578 (UMLS CUI [2])
Item
Hemicraniectomy performed for expansive ischaemic stroke
integer
C0195897 (UMLS CUI [1])
Code List
Hemicraniectomy performed for expansive ischaemic stroke
date of hemicraniectomy
Item
Please state date of hemicraniectomy
date
C0195897 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
hospital code
Item
Enter Riks-Stroke hospital code where thrombolysis was performed
text
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0195897 (UMLS CUI [2])
C0040044 (UMLS CUI [3])
Item
Smoker informed at onset of need to quit smoking
integer
C1273715 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
Code List
Smoker informed at onset of need to quit smoking
CL Item
not relevant given patient's condition (3)
Item
Information provided regarding driving
integer
C0004379 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,3])
Code List
Information provided regarding driving
CL Item
not relevant/no driving licence (3)
Item
Has a follow-up appointment on the basis of this stroke episode been made with a nurse or doctor?
integer
C0589121 (UMLS CUI [1,1])
C0586344 (UMLS CUI [1,2])
Code List
Has a follow-up appointment on the basis of this stroke episode been made with a nurse or doctor?
CL Item
yes, at a special stroke unit (at or outside the hospital) (1)
CL Item
yes, at another hospital admissions ward/department (2)
CL Item
yes, at a health centre/equivalent (3)
CL Item
yes, at arranged accommodation (4)
CL Item
yes, at day rehab (5)
Item
Did an occupational therapist evaluate the patient after arrival in the ward/department?
integer
C1444296 (UMLS CUI [1,1])
C0028807 (UMLS CUI [1,2])
Code List
Did an occupational therapist evaluate the patient after arrival in the ward/department?
CL Item
yes, ≤ 24 hrs (1)
CL Item
yes, > 24 hrs but ≤ 48 hrs (2)
CL Item
yes, > 48 hrs (3)
Item
Has the patient received occupational therapy?
integer
C0949766 (UMLS CUI [1,1])
C1318464 (UMLS CUI [1,2])
Code List
Has the patient received occupational therapy?
CL Item
no, but has needed it (3)
CL Item
no, has needed but not been able to take advantage of rehabilitation 5= no, has not needed it (4)
CL Item
patient has refused (6)
Item
Has patient in need of occupational therapy who received care on a non-weekday received occupational therapy?
integer
C0949766 (UMLS CUI [1,1])
C1318464 (UMLS CUI [1,2])
Code List
Has patient in need of occupational therapy who received care on a non-weekday received occupational therapy?
CL Item
yes, part of weekend (1)
CL Item
yes, entire weekend (2)
Item
Did a physiotherapist evaluate the patient after arrival in the ward/department?
integer
C0679830 (UMLS CUI [1,1])
C2362565 (UMLS CUI [1,2])
Code List
Did a physiotherapist evaluate the patient after arrival in the ward/department?
CL Item
yes, ≤ 24 hrs (1)
CL Item
yes, > 24 hrs but ≤ 48 hrs (2)
CL Item
yes, > 48 hrs (3)
Item
Has the patient received physiotherapy?
integer
C0949766 (UMLS CUI [1])
Code List
Has the patient received physiotherapy?
CL Item
no, but has needed it (3)
CL Item
no, has needed but not been able to take advantage of rehabilitation 5= no, has not needed it (4)
CL Item
patient has refused (6)
Item
Has patient in need of physiotherapy who received care on a non-weekday received physiotherapy?
integer
C0949766 (UMLS CUI [1])
Code List
Has patient in need of physiotherapy who received care on a non-weekday received physiotherapy?
CL Item
yes, part of weekend (1)
CL Item
yes, entire weekend (2)