Personal ID number
Item
Personal ID number
integer
C2348585 (UMLS CUI [1])
Name
Item
Name
text
C1299487 (UMLS CUI [1])
Municipality code for follow-up
Item
Municipality code for follow-up
integer
C0421454 (UMLS CUI [1])
County code for follow-up
Item
County code for follow-up
integer
C0079170 (UMLS CUI [1,1])
C1442065 (UMLS CUI [1,2])
C0805701 (UMLS CUI [1,3])
Reporting hospital
Item
Reporting hospital
text
C0019994 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
Reporting department
Item
Reporting department
text
C0019961 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
Planned follow-up date questionnaire
Item
Planned follow-up date for this questionnaire (year, month, day)
date
C0034394 (UMLS CUI [1,1])
C3694716 (UMLS CUI [1,2])
Item
Where are you living currently?
integer
C2184149 (UMLS CUI [1])
Code List
Where are you living currently?
CL Item
Live in my own home, without home help service. (Home help service does not refer to home nursing or advanced home nursing) (1)
CL Item
Live in my own home, with home help service. (Home help service does not refer to home nursing or advanced home nursing) (2)
CL Item
Special housing (e.g. nursing home, service flat, short-term housing, sheltered housing, transitional care unit, respite care or equivalent). (3)
CL Item
Emergency hospital (e.g. medical, neurology, surgical ward) (4)
CL Item
Geriatric/Rehab clinic (5)
living alone
Item
Do you live alone?
boolean
C2184149 (UMLS CUI [1,1])
C0439044 (UMLS CUI [1,2])
Item
Are you still having problems after your stroke?
integer
C0038454 (UMLS CUI [1,1])
C2987487 (UMLS CUI [1,2])
Code List
Are you still having problems after your stroke?
CL Item
All problems have completely gone (1)
CL Item
I am still having problems (2)
Item
Have you been able to return to the life and activities you had before you had the stroke?
integer
C0001288 (UMLS CUI [1])
Code List
Have you been able to return to the life and activities you had before you had the stroke?
CL Item
Yes, but not quite like before (2)
Item
How is your mobility now?
integer
C0449580 (UMLS CUI [1])
Code List
How is your mobility now?
CL Item
I can get around both indoors and out without the help of another person (1)
CL Item
I can get around indoors, but not outdoors without the help of another person (2)
CL Item
I get help from someone else to move around both indoors and out (3)
Item
Do you need help from someone to visit the toilet?
integer
C0562816 (UMLS CUI [1])
Code List
Do you need help from someone to visit the toilet?
CL Item
I can manage to visit the toilet by myself (1)
CL Item
I need help to visit the toilet (2)
Item
Do you need help getting dressed and undressed?
integer
C0518459 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Code List
Do you need help getting dressed and undressed?
CL Item
I can manage to get dressed and undressed by myself (1)
CL Item
I need help to get dressed and undressed (2)
Item
Since you were discharged from hospital after your stroke, have you been to a follow- up appointment or been given a date for a follow-up appointment with a doctor?
integer
C0589121 (UMLS CUI [1,1])
C0586344 (UMLS CUI [1,2])
Code List
Since you were discharged from hospital after your stroke, have you been to a follow- up appointment or been given a date for a follow-up appointment with a doctor?
CL Item
Yes, at the hospital (in the general surgery or the ward) (1)
CL Item
Yes, at the health centre or equivalent (e.g. private doctor's surgery) (2)
CL Item
Yes, at the day rehabilitation centre (3)
CL Item
Yes, in my own home or at my special housing (4)
Item
What type of support or assistance have you had from the health service or the municipality after your stroke?
integer
C1521721 (UMLS CUI [1,1])
C0018747 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])
Code List
What type of support or assistance have you had from the health service or the municipality after your stroke?
CL Item
Did not need/want any support or assistance (1)
CL Item
Have not received any support or assistance although needed (2)
CL Item
Home rehabilitation (rehabilitation/training in the home from physiotherapist, occupational therapist or nurse) (3)
CL Item
Day rehabilitation/or equivalent (refers to team-based rehabilitation over a defined period of time) (4)
CL Item
Other rehabilitation (refers to rehabilitation outside the home on individual occasions) I___I = Short-term housing (5)
CL Item
Home help service (6)
CL Item
Personal alarm (7)
CL Item
Mobility service (9)
CL Item
Other support (e.g. from doctor, nurse, physiotherapist, occupational therapist, social worker or speech therapist) (10)
Item
Do you think that your need for support or assistance from the health service or municipality has been met after your stroke?
integer
C1521721 (UMLS CUI [1,1])
C0018747 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
Do you think that your need for support or assistance from the health service or municipality has been met after your stroke?
CL Item
Did not need/want any support or assistance (1)
CL Item
Yes, completely met (2)
CL Item
Yes, partly met (3)
CL Item
No, not met at all (4)
Item
Do you need help from someone to look after the house?
integer
C0150250 (UMLS CUI [1])
Code List
Do you need help from someone to look after the house?
CL Item
Not relevant, I didn't look after the house before I had the stroke either (applicable also for assisted living conditions) (3)
Item
Has your current need for daily living aids and adaptations in the home been met?
integer
C1283236 (UMLS CUI [1])
Code List
Has your current need for daily living aids and adaptations in the home been met?
CL Item
Have/had no need of daily living aids or adaptation in my home (1)
CL Item
Yes, completely met (2)
CL Item
Yes, partly met (3)
CL Item
No, not met at all (4)
Item
Are you currently dependent on support or assistance from relatives/friends?
integer
C0344211 (UMLS CUI [1,1])
C0581904 (UMLS CUI [1,2])
Code List
Are you currently dependent on support or assistance from relatives/friends?
CL Item
Have no relatives/friends or have no contact with relatives/friends (1)
CL Item
Yes, completely dependent (2)
CL Item
Yes, partly dependent (3)
CL Item
No, not at all (4)
Item
Do you currently have difficulty...?
integer
C0033213 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C0947509 (UMLS CUI [2])
Code List
Do you currently have difficulty...?
CL Item
Understanding speech (2)
CL Item
Keeping your balance (7)
CL Item
Remembering things (8)
CL Item
None of the above (10)
Item
During your time in hospital, or since you were discharged, have you seen a speech therapist about your ability to speak, swallow or write?
integer
C0402015 (UMLS CUI [1])
Code List
During your time in hospital, or since you were discharged, have you seen a speech therapist about your ability to speak, swallow or write?
CL Item
Yes, for assessment (1)
CL Item
Yes, for assessment and treatment (2)
Item
Do you smoke?
integer
C0543414 (UMLS CUI [1])
CL Item
Yes, smoke one or more cigarettes every day (1)
Item
Have you been offered help to stop smoking after your stroke?
integer
C0037369 (UMLS CUI [1,1])
C2746065 (UMLS CUI [1,2])
C1269765 (UMLS CUI [1,3])
Code List
Have you been offered help to stop smoking after your stroke?
CL Item
Not applicable, did not smoke before the stroke (1)
Item
Do you feel depressed?
integer
C0497307 (UMLS CUI [1])
Code List
Do you feel depressed?
CL Item
Never or almost never (1)
Item
Are you having treatment for depression?
integer
C0011581 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Code List
Are you having treatment for depression?
CL Item
Yes, medication (1)
CL Item
Yes, talking therapy (2)
CL Item
Yes, medication and talking therapy (3)
CL Item
No, I am not having any treatment (4)
Item
Are you taking any medication for high blood pressure?
integer
C0020538 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Code List
Are you taking any medication for high blood pressure?
Item
How would you assess your general health?
integer
C0516984 (UMLS CUI [1])
Code List
How would you assess your general health?
Item
Do you feel tired?
integer
C0557875 (UMLS CUI [1])
Code List
Do you feel tired?
CL Item
Never or almost never (1)
Item
Do you have any pain?
integer
C0030193 (UMLS CUI [1])
Code List
Do you have any pain?
CL Item
Never or almost never (1)
Item
Are your needs for pain relief being met?
integer
C0451615 (UMLS CUI [1])
Code List
Are your needs for pain relief being met?
CL Item
Not applicable, do/did not have any need for pain relief (1)
CL Item
Yes, completely (2)
CL Item
No, not at all (4)
Item
How satisfied or dissatisfied are you with the care you received in hospital in connection with your stroke?
integer
C0017313 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with the care you received in hospital in connection with your stroke?
CL Item
Very satisfied (1)
CL Item
Very dissatisfied (4)
Item
How satisfied or dissatisfied are you with the way staff dealt with you in hospital in connection with your stroke?
integer
C0028698 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with the way staff dealt with you in hospital in connection with your stroke?
CL Item
Very satisfied (1)
CL Item
Very dissatisfied (4)
Item
How satisfied or dissatisfied are you with the discharge consultation with the doctor on the ward where you received care for your stroke?
integer
C0009818 (UMLS CUI [1,1])
C1710470 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with the discharge consultation with the doctor on the ward where you received care for your stroke?
CL Item
Very satisfied (1)
CL Item
Very dissatisfied (4)
Item
Were you given information about stopping driving in connection with your stroke?
integer
C0004379 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C0038454 (UMLS CUI [2])
Code List
Were you given information about stopping driving in connection with your stroke?
CL Item
Not applicable, since I didn't drive before I had the stroke or driving is no longer an (1)
Item
How satisfied or dissatisfied are you with the stroke information provided?
integer
C0038454 (UMLS CUI [1,1])
C0518629 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
Code List
How satisfied or dissatisfied are you with the stroke information provided?
CL Item
Very satisfied (1)
CL Item
Very dissatisfied (4)
Item
Do you know where to turn if you need support or assistance after your stroke?
integer
C1521721 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
Code List
Do you know where to turn if you need support or assistance after your stroke?
Item
How satisfied or dissatisfied are you with the rehabilitation or training in hospital in connection with your stroke?
integer
C0034991 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with the rehabilitation or training in hospital in connection with your stroke?
CL Item
Very satisfied (1)
CL Item
Very dissatisfied (4)
CL Item
I did not need rehabilitation or training during my stay in hospital (5)
CL Item
I needed but did not get rehabilitation or training during my stay in hospital (6)
Item
How satisfied or dissatisfied are you with the rehabilitation or training after you were discharged from hospital for your stroke?
integer
C0034991 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with the rehabilitation or training after you were discharged from hospital for your stroke?
CL Item
Very satisfied (1)
CL Item
Very dissatisfied (4)
CL Item
I did not need rehabilitation or training after my stay in hospital (5)
CL Item
I needed but did not get rehabilitation or training after my stay in hospital (6)
Item
Are you undergoing rehabilitation or training right now?
integer
C0034991 (UMLS CUI [1])
C0038454 (UMLS CUI [2])
Code List
Are you undergoing rehabilitation or training right now?
CL Item
No, do not need rehabilitation or training or have declined the offer (2)
CL Item
No, have the need but not receiving any rehabilitation or training (3)
Item
Who answered this questionnaire?
integer
C0034394 (UMLS CUI [1,1])
C0508431 (UMLS CUI [1,2])
C0027361 (UMLS CUI [1,3])
Code List
Who answered this questionnaire?
CL Item
Myself alone in writing (1)
CL Item
Myself with the assistance of a relative/friend or nursing staff (2)
CL Item
Myself (the patient) by telephone (3)
CL Item
Myself (the patient) on return visit to hospital/health centre (4)
CL Item
Nursing staff only (5)
CL Item
Relative only (6)
CL Item
Someone else (e.g guardian) (7)