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Myelodysplastic Syndrome (MDS) - Baseline

1 forms  
Registration form and Cancer notification
Description

Registration form and Cancer notification

Alias
UMLS CUI-1
C1514821
Reporting hospital / clinic
Description

Reporting hospital

Data type

text

Alias
UMLS CUI [1]
C0019994
Reporting doctor
Description

Reporting doctor

Data type

text

Alias
UMLS CUI [1]
C0031831
Rapporteringsdatum
Description

reporting date

Data type

date

Alias
UMLS CUI [1]
C1302584
Personnummer
Description

patient number

Data type

text

Alias
UMLS CUI [1]
C1830427
Patient Name
Description

Name

Data type

text

Alias
UMLS CUI [1]
C1299487
lead times
Description

lead times

Referral written
Description

Referral written

Data type

date

Alias
UMLS CUI [1]
C2735614
Referral written
Description

Referral written

Data type

integer

Alias
UMLS CUI [1]
C2735614
Referral received
Description

Referral received

Data type

date

Alias
UMLS CUI [1]
C2735614
Referral received
Description

Referral received

Data type

integer

Alias
UMLS CUI [1]
C2735614
First patient visit to reporting unit
Description

First patient visit to reporting unit

Data type

date

Alias
UMLS CUI [1]
C4287881
Diagnosis
Description

Diagnosis

Alias
UMLS CUI-1
C0011900
Date of diagnosis
Description

If bone marrow tests provide a safe diagnosis, the date of diagnosis is the date on which the bone marrow test was taken. In other cases, the date when MDS was determined based on the inquiry / clinic

Data type

date

Alias
UMLS CUI [1]
C2316983
Diagnosis according to WHO classification
Description

Diagnosis WHO classification

Data type

integer

Alias
UMLS CUI [1]
C1301142
Diagnosis comment
Description

Diagnosis comment

Data type

text

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C0947611
MDS category
Description

MDS category

Data type

integer

Alias
UMLS CUI [1,1]
C3463824
UMLS CUI [1,2]
C0683312
Biobank
Description

Biobank

Alias
UMLS CUI-1
C2347027
Samples to national biobank sent
Description

Samples to national biobank sent

Data type

integer

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0370003
UMLS CUI [1,3]
C1515023
Samples are also sent to another biobank
Description

Samples are also sent to another biobank

Data type

integer

Which biobank
Description

Which biobank

Data type

text

Alias
UMLS CUI [1]
C2347027
PREVIOUS DISEASE
Description

PREVIOUS DISEASE

Alias
UMLS CUI-1
C0683519
History of cytostatics for malignant disease
Description

History of cytostatics for malignant disease

Data type

integer

Alias
UMLS CUI [1,1]
C0010858
UMLS CUI [1,2]
C0455471
History of cytostatics for non-malignant disease
Description

History of cytostatics for non-malignant disease

Data type

integer

Alias
UMLS CUI [1,1]
C0010858
UMLS CUI [1,2]
C0262926
UMLS CUI [1,3]
C1518371
undefined item
Description

undefined item

Data type

integer

Alias
UMLS CUI [1,1]
C1522449
UMLS CUI [1,2]
C0262926
History of hematological disease
Description

History of hematological disease

Data type

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0262926
Previous hematological disease
Description

Previous hematological disease

Data type

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0205156
Other previous hematological disease
Description

Other previous hematological disease

Data type

text

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0205156
UMLS CUI [1,3]
C0205394
Diagnosis year and month of previous hematological disease
Description

Diagnosis year and month of previous hematological disease

Data type

partialDate

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C2316983
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Similar models

Myelodysplastic Syndrome (MDS) - Baseline

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Registration form and Cancer notification
C1514821 (UMLS CUI-1)
Reporting hospital
Item
Reporting hospital / clinic
text
C0019994 (UMLS CUI [1])
Reporting doctor
Item
Reporting doctor
text
C0031831 (UMLS CUI [1])
reporting date
Item
Rapporteringsdatum
date
C1302584 (UMLS CUI [1])
patient number
Item
Personnummer
text
C1830427 (UMLS CUI [1])
Name
Item
Patient Name
text
C1299487 (UMLS CUI [1])
Item Group
lead times
Referral written
Item
Referral written
date
C2735614 (UMLS CUI [1])
Item
Referral written
integer
C2735614 (UMLS CUI [1])
undefined item
Code List
Referral written
CL Item
Not applicable (1)
C1272460 (UMLS CUI-1)
(Comment:en)
CL Item
Data not available (2)
C1883066 (UMLS CUI-1)
(Comment:en)
Referral received
Item
Referral received
date
C2735614 (UMLS CUI [1])
Item
Referral received
integer
C2735614 (UMLS CUI [1])
undefined item
Code List
Referral received
CL Item
Not applicable (1)
C1272460 (UMLS CUI-1)
(Comment:en)
CL Item
Data not available (2)
C1883066 (UMLS CUI-1)
(Comment:en)
First patient visit to reporting unit
Item
First patient visit to reporting unit
date
C4287881 (UMLS CUI [1])
Item Group
Diagnosis
C0011900 (UMLS CUI-1)
Date of diagnosis
Item
Date of diagnosis
date
C2316983 (UMLS CUI [1])
Item
Diagnosis according to WHO classification
integer
C1301142 (UMLS CUI [1])
undefined item
Code List
Diagnosis according to WHO classification
CL Item
RA (1)
C0002893 (UMLS CUI-1)
SNOMED - 99803 (Comment:sv)
CL Item
RN (2)
C2826320 (UMLS CUI-1)
SNOMED - 99803 (Comment:sv)
CL Item
RT (3)
C2826321 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
CL Item
RCMD (4)
C0796466 (UMLS CUI-1)
SNOMED - 99853 (Comment:sv)
CL Item
RARS (5)
C1264195 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
CL Item
RAEB-1 (6)
C1318550 (UMLS CUI-1)
SNOMED - 99833 (Comment:sv)
CL Item
RAEB-2 (7)
C1318551 (UMLS CUI-1)
SNOMED - 99833 (Comment:sv)
CL Item
5q-syndrom (8)
C0740302 (UMLS CUI-1)
SNOMED - 99863 (Comment:sv)
CL Item
MDS,UNS (9)
C3463824 (UMLS CUI-1)
C0205370 (UMLS CUI-2)
SNOMED - 99893 (Comment:sv)
CL Item
CMML (10)
C0023480 (UMLS CUI-1)
SNOMED - 99453 (Comment:sv)
CL Item
Atypisk kronisk myeloid leukemi (11)
C1292772 (UMLS CUI-1)
SNOMED - 98763 (Comment:sv)
CL Item
Juvenil myelomonocytisk leukemi (12)
C0349639 (UMLS CUI-1)
SNOMED - 99463 (Comment:sv)
CL Item
Myelodysplastisk/myeloproliferativ neoplasi,oklassificerbar (13)
C1301355 (UMLS CUI-1)
C0205426 (UMLS CUI-2)
SNOMED - 99753 (Comment:sv)
CL Item
RARS-T (14)
C2826330 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
Diagnosis comment
Item
Diagnosis comment
text
C0011900 (UMLS CUI [1,1])
C0947611 (UMLS CUI [1,2])
Item
MDS category
integer
C3463824 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
MDS category
Code List
MDS category
CL Item
Therapy-related (1)
(Comment:sv)
C0877578 (UMLS CUI-1)
(Comment:en)
CL Item
De novo (2)
(Comment:sv)
C1515568 (UMLS CUI-1)
(Comment:en)
Item Group
Biobank
C2347027 (UMLS CUI-1)
Item
integer
C2347027 (UMLS CUI [1,1])
C0370003 (UMLS CUI [1,2])
C1515023 (UMLS CUI [1,3])
Samples to national biobank sent
Code List
Samples to national biobank sent
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Scheduled but not yet completed (2)
(Comment:sv)
C0424237 (UMLS CUI-1)
(Comment:en)
CL Item
Patient rejects the biobank / cannot ask (3)
(Comment:sv)
C0420590 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (4)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
Samples are also sent to another biobank
Code List
Samples are also sent to another biobank
CL Item
Ja (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Do not know (2)
C1880386 (UMLS CUI-1)
(Comment:en)
Which biobank
Item
text
C2347027 (UMLS CUI [1])
Item Group
PREVIOUS DISEASE
C0683519 (UMLS CUI-1)
Item
integer
C0010858 (UMLS CUI [1,1])
C0455471 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
History of cytostatics for malignant disease
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Missing Data (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
integer
C0010858 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C1518371 (UMLS CUI [1,3])
history of cytostatics for malignant disease
Code List
History of cytostatics for non-malignant disease
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Missing Data (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
integer
C1522449 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
undefined item
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Missing Data (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
integer
C0018939 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
History of hematological disease
CL Item
No (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Missing Data (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
integer
C0018939 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
Previous hematological disease
Code List
Previous hematological disease
CL Item
ALL (1)
(Comment:sv)
C0023449 (UMLS CUI-1)
(Comment:en)
CL Item
AML (2)
(Comment:sv)
C0023467 (UMLS CUI-1)
(Comment:en)
CL Item
CML (3)
(Comment:sv)
C0023473 (UMLS CUI-1)
(Comment:en)
CL Item
Myeloma (4)
(Comment:sv)
C0026764 (UMLS CUI-1)
(Comment:en)
CL Item
MPN (5)
(Comment:sv)
C0027022 (UMLS CUI-1)
(Comment:en)
CL Item
Lymphoma (6)
(Comment:sv)
C0024299 (UMLS CUI-1)
(Comment:en)
CL Item
CLL (7)
(Comment:sv)
C0023434 (UMLS CUI-1)
(Comment:en)
CL Item
MGUS (8)
(Comment:sv)
C0026470 (UMLS CUI-1)
(Comment:en)
CL Item
Other (9)
(Comment:sv)
C0205394 (UMLS CUI-1)
(Comment:en)
Other previous hematological disease
Item
text
C0018939 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Diagnosis year and month of previous hematological disease
Item
partialDate
C0018939 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
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