birthdt
Item
Birth Date
date
diagday
Item
Date of Diagnosis: Day
integer
Item
Date of Diagnosis: Month
text
Code List
Date of Diagnosis: Month
diagyear
Item
Date of Diagnosis: Year
integer
Date of diagnosis unknown
Item
Date of diagnosis unknown
boolean
Item
Date of diagnosis not available but:
text
Code List
Date of diagnosis not available but:
CL Item
Less than 4 months (Less than 4 months)
CL Item
More than 4 months (More than 4 months)
Item
Patient's Diagnosis
integer
Code List
Patient's Diagnosis
CL Item
Crohn's Disease (1)
CL Item
Ulcerative Colitis (2)
CL Item
Indeterminate Colitis (3)
CL Item
Not Assessed/Collected (98)
Item
Race (Check all that apply)
integer
Code List
Race (Check all that apply)
CL Item
American Indian or Alaska Native (1)
CL Item
Black or African American (4)
CL Item
Native Hawaiian or Other Pacific Islander (3)
CL Item
Other (specify) (7)
CL Item
Not Assessed/Collected (98)
e_racespec
Item
Other Race
text
Item
Recent Past Height from at least 6 months prior to this visit: Unit
text
Code List
Recent Past Height from at least 6 months prior to this visit: Unit
e_prevht
Item
Recent Past Height from at least 6 months prior to this visit (to the nearest tenth)
integer
e_prevht unknown
Item
Unknown
boolean
htday
Item
Date the height was measured: Day
integer
Item
Date the height was measured: Month
text
Code List
Date the height was measured: Month
htyear
Item
Date the height was measured: Year
integer
Item
Recent Past Weight from at least 4 months prior to this visit: Unit
text
Code List
Recent Past Weight from at least 4 months prior to this visit: Unit
e_prevwt
Item
Recent Past Weight from at least 4 months prior to this visit (to the nearest tenth)
integer
e_prevwt unknown
Item
Unknown
boolean
wtday
Item
Date the weight was measured: Day
integer
Item
Date the weight was measured: Month
text
Code List
Date the weight was measured: Month
wtyear
Item
Date the weight was measured: Year
integer
Item
Macroscopic Lower GI Disease
integer
Code List
Macroscopic Lower GI Disease
Item
Macroscopic Upper GI Disease proximal to the ligament of Treitz
integer
Code List
Macroscopic Upper GI Disease proximal to the ligament of Treitz
Item
Macroscopic Upper GI Disease distal to the ligament of Treitz
integer
Code List
Macroscopic Upper GI Disease distal to the ligament of Treitz
Item
What is the Crohn’s Disease Phenotype? (Select one)
integer
Code List
What is the Crohn’s Disease Phenotype? (Select one)
CL Item
Inflammatory, non-penetrating, non-stricturing (1)
CL Item
Stricturing only (2)
CL Item
Penetrating only (3)
CL Item
Both stricturing and penetrating (5)
Item
Perianal Phenotype
integer
Code List
Perianal Phenotype
Item
Extent of disease
integer
Code List
Extent of disease
CL Item
Ulcerative Procitis (rectum only) (1)
CL Item
Left sided Ulcerative Colitis (distal to the splenic flexure only) (2)
CL Item
Extensive Ulcerative Colitis (extends proximal to the splenic flexure) (3)
CL Item
Pancolitis (the entire colon) (4)
CL Item
Not Assessed completely (colonoscopy incomplete) (6)
Item
Ulcerative Colitis Behavior: Has the patient ever had severe disease (defined as PUCAI ≥ 65 or severe disease determined by PGA) as an inpatient or outpatient?
integer
Code List
Ulcerative Colitis Behavior: Has the patient ever had severe disease (defined as PUCAI ≥ 65 or severe disease determined by PGA) as an inpatient or outpatient?