C9Q01
Item
The next question is about the amount of money paid (during the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] since (his/her) birth) for (S.C.)’s medical care. Please do not include health insurance premiums or costs that were or will be reimbursed by insurance or another source. But do include out-of-pocket payments for all types of health-related needs such as co-payments, dental or vision care, medications, special foods, adaptive clothing, durable equipment, home modifications, and any kind of therapy. (During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth), would you say that the family paid more than $500, $250-$500, less than $250, or nothing for (S.C.)’s medical care?
integer
C0085552 (UMLS CUI [1])
C9Q01_A
Item
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth), would you say that the family paid more than $5000, $1000 to $5000, or less than $1000 for (S.C.)’s medical care?
integer
C0085552 (UMLS CUI [1])
C9Q02
Item
Many families provide health care at home such as changing bandages, care of feeding or breathing equipment, and giving medication and therapies. Do you or other family members provide health care at home for (S.C.)?
integer
C0204977 (UMLS CUI [1,1])
C9Q03
Item
How many hours per week do you or other family members spend providing this kind of care?
integer
C0204977 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
C9Q03A
Item
How many hours per week do you or other family members spend providing this kind of care?
integer
C0204977 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
C9Q04
Item
How many hours per week do you or other family members spend arranging or coordinating (S.C.)’s care? By this I mean making appointments, making sure that care providers are exchanging information, and following up on (S.C.)’s care needs.
text
C1739530 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
C9Q04
Item
How many hours per week do you or other family members spend arranging or coordinating (S.C.)’s care? By this I mean making appointments, making sure that care providers are exchanging information, and following up on (S.C.)’s care needs.
integer
C1739530 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
C9Q05
Item
Have (S.C.)’s health conditions caused financial problems for your family?
integer
C0348080 (UMLS CUI [1,1])
C0015127 (UMLS CUI [1,2])
C0549106 (UMLS CUI [1,3])
C9Q10
Item
Have you or other family members stopped working because of (S.C.)’s health conditions?
integer
C0348080 (UMLS CUI [1,1])
C0015127 (UMLS CUI [1,2])
C0425082 (UMLS CUI [1,3])
C9Q06
Item
Have you or other family members cut down on the hours you work because of (S.C.)’s health conditions?
integer
C0348080 (UMLS CUI [1,1])
C0015127 (UMLS CUI [1,2])
C3899484 (UMLS CUI [1,3])
C9Q11
Item
Have you or other family members avoided changing jobs because of concerns about maintaining health insurance for (S.C.)?
integer
C0348080 (UMLS CUI [1,1])
C0015127 (UMLS CUI [1,2])
C1261323 (UMLS CUI [1,3])