Study ID
Item
Study ID
integer
C2826693 (UMLS CUI [1])
Study site name
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
integer
C2348585 (UMLS CUI [1])
Item
Breast fed?
text
C0438100 (UMLS CUI [1])
Breast fed
Item
If Yes, indicate duration in months
integer
C0438100 (UMLS CUI [1])
Item
Formula fed?
text
C4062867 (UMLS CUI [1])
Item
If Yes, indicate duration: months and formula type:
text
C4062867 (UMLS CUI [1])
Code List
If Yes, indicate duration: months and formula type:
Item
Did patient walk by 17 months old?
text
C0080331 (UMLS CUI [1])
Code List
Did patient walk by 17 months old?
Item
Did patient speak his/her first words by 12 months?
text
C0234856 (UMLS CUI [1])
Code List
Did patient speak his/her first words by 12 months?
Item
Did patient speak in two word combinations by 2 years?
text
Code List
Did patient speak in two word combinations by 2 years?
Item
Did patient speak in completed sentences by 3 years?
text
C0871341 (UMLS CUI [1])
Code List
Did patient speak in completed sentences by 3 years?
Item
Did patient have a cognitive/learning ?
text
C0009241 (UMLS CUI [1])
Code List
Did patient have a cognitive/learning ?
Item
Did patient attend a day care group (with > 5 other children)?
text
C0237555 (UMLS CUI [1])
Code List
Did patient attend a day care group (with > 5 other children)?
Item
Has participant/subject ever had a menstrual period?
text
C0025344 (UMLS CUI [1])
Code List
Has participant/subject ever had a menstrual period?
menstrual period
Item
If so, youngest age the female participant/subject had a menstrual period? years
integer
C0025329 (UMLS CUI [1])
Item
Type of educational services received:
text
C0013658 (UMLS CUI [1])
Code List
Type of educational services received:
CL Item
Special education (1)
CL Item
Regular education (2)
CL Item
Early intervention (3)
Item
Has the participant/subject ever repeated a grade in school?
text
C0036373 (UMLS CUI [1])
Code List
Has the participant/subject ever repeated a grade in school?
school grade
Item
Above average (receives mostly As in school)
boolean
C3244287 (UMLS CUI [1])
school grade
Item
Normal (functions well in school, receives mostly Bs, Cs)
boolean
C3244287 (UMLS CUI [1])
school performance
Item
Minimal difficulty (struggling but obtains passing grades)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Moderate difficulty (needs assistance with school work such as an Educational Assistant)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Special needs class setting, actively participating in learning
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Severe (unable to function in regular classroom even in special class setting, not an active participant in learning activities)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Limited cognition (unrelated to demyelination or predates demyelination)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
N/A (patient is too young for school)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Unknown
boolean
C0036373 (UMLS CUI [1])
Item
Routine: Measles, mumps, rubella
text
C0065828 (UMLS CUI [1])
Code List
Routine: Measles, mumps, rubella
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Routine: Tetanus, pertussis, diptheria, polio
text
C0260392 (UMLS CUI [1])
Code List
Routine: Tetanus, pertussis, diptheria, polio
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Hepatitis B
text
C0474232 (UMLS CUI [1])
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Haemophilus Influenza Type B
text
C0062082 (UMLS CUI [1])
Code List
Haemophilus Influenza Type B
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Chicken Pox Vaccine
text
C3703980 (UMLS CUI [1])
Code List
Chicken Pox Vaccine
CL Item
natural infection, specify age: yrs (5)
Chicken Pox
Item
Specify age in years
integer
C0008049 (UMLS CUI [1])
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Vaccination within one month of 1 st demyelinating attack
text
C0042196 (UMLS CUI [1])
Code List
Vaccination within one month of 1 st demyelinating attack
Vaccination
Item
Specify vaccine
text
C0042196 (UMLS CUI [1])
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])