CRF Optional assessment motion

Date of visit
Description

Date of visit

Alias
UMLS CUI-1
C1320303
Study-ID:
Description

study id

Data type

text

Alias
UMLS CUI [1]
C2826693
Visit:
Description

visit name

Data type

text

Alias
UMLS CUI [1]
C2826704
Date of visit
Description

date of visit

Data type

date

Alias
UMLS CUI [1]
C1320303
PD-NMS-Questionnaire
Description

PD-NMS-Questionnaire

Have you experienced any of the following in the last month? 1. Dribbling of saliva during the daytime
Description

Non-movement problems in Parkinson's The movement symptoms of Parkinson’s are well known. However, other problems can sometimes occur as part of the condition or its treatment. It is important that the doctor knows about these, particularly if they are troublesome for you. A range of problems is listed below. Please tick the box ‘Yes’ if you have experienced it during the past month. The doctor or nurse may ask you some questions to help decide. If you have not experienced the problem in the past month tick the ‘No’ box. You should answer ‘No’ even if you have had the problem in the past but not in the past month.

Data type

boolean

Alias
UMLS CUI [1]
C0848498
2. Loss or change in your ability to taste or smell
Description

loss or change in your ability to taste or smell

Data type

boolean

Alias
UMLS CUI [1]
C1301555
UMLS CUI [2]
C2712084
3. Difficulty swallowing food or drink or problems with choking.
Description

difficulty swallowing food or drink

Data type

boolean

Alias
UMLS CUI [1]
C0566362
UMLS CUI [2]
C0566279
4. Vomiting or feelings of sickness (nausea)
Description

vomiting or nausea

Data type

boolean

Alias
UMLS CUI [1]
C0027498
5. Constipation (less than 3 bowel movements a week) or having to strain to pass a stool (faeces)
Description

constipation

Data type

boolean

Alias
UMLS CUI [1]
C0009806
6. Bowel (fecal) incontinence
Description

bowel incontinence

Data type

boolean

Alias
UMLS CUI [1]
C0015732
7. Feeling that your bowel emptying is incomplete after having been to the toilet .
Description

ffeel#

Data type

text

7. Feeling that your bowel emptying is incomplete after having been to the toilet .
Description

feeling of incomplete bowel emptying

Data type

boolean

Alias
UMLS CUI [1]
C0423598
8. A sense of urgency to pass urine makes you rush to the toilet .
Description

sense of urgency to pass urine

Data type

boolean

Alias
UMLS CUI [1]
C0085606
9. Getting up regularly at night to pass urine
Description

getting up at night to pass urine

Data type

boolean

Alias
UMLS CUI [1,1]
C0042023
UMLS CUI [1,2]
C0240526
10. Unexplained pains (not due to known conditions such as arthritis)
Description

unexplained pains

Data type

boolean

Alias
UMLS CUI [1]
C0030193
11. Unexplained change in weight (not due to change in diet)
Description

unexplained change in weight

Data type

boolean

Alias
UMLS CUI [1]
C0005911
12. Problems remembering things that have happened recently or for getting to do things
Description

problems remembering things

Data type

boolean

Alias
UMLS CUI [1]
C0233794
13. Loss of interest in what is happening around you or doing things
Description

loss of interest

Data type

boolean

Alias
UMLS CUI [1]
C0679474
14. Seeing or hearing things that you know or are told are not there
Description

seeing or hearing things that are not there

Data type

boolean

Alias
UMLS CUI [1]
C3843989
15. Difficulty concentrating or staying focussed
Description

difficulty concentrating

Data type

boolean

Alias
UMLS CUI [1]
C0947509
16. Feeling sad, ‘low’ or ‘blue’
Description

feeling sad

Data type

boolean

Alias
UMLS CUI [1]
C3536794
17. Feeling anxious, frightened or panicky
Description

feeling anxious

Data type

boolean

Alias
UMLS CUI [1]
C0003467
18. Feeling less interested in sex or more interested in sex
Description

less or more interest in sex

Data type

boolean

Alias
UMLS CUI [1]
C3898951
UMLS CUI [2]
C3899191
19. Finding it difficult to have sex when you try
Description

difficulties having sex

Data type

boolean

Alias
UMLS CUI [1]
C0549622
20. Feeling light headed, dizzy or weak standing from sitting or lying
Description

dizziness

Data type

boolean

Alias
UMLS CUI [1]
C0012833
21. Falling
Description

falling

Data type

boolean

Alias
UMLS CUI [1]
C0085639
22. Finding it difficult to stay awake during activities such as working, driving or eating
Description

difficulties staying awake

Data type

boolean

Alias
UMLS CUI [1]
C0723446
23. Difficulty getting to sleep at night or staying asleep at night
Description

sleep disturbance

Data type

boolean

Alias
UMLS CUI [1]
C0037317
24. Intense, vivid dreams or frightening dreams
Description

vivid dreams

Data type

boolean

Alias
UMLS CUI [1]
C0541903
25. Talking or moving about in your sleep as if you are ‘acting’ out a dream
Description

talking or moving about in your sleep

Data type

boolean

Alias
UMLS CUI [1]
C0542313
26. Unpleasant sensations in your legs at night or while resting, and a feeling that you need to move
Description

unpleasant sensations in your legs

Data type

boolean

Alias
UMLS CUI [1]
C3887611
UMLS CUI [2]
C0877432
27. Swelling of your legs
Description

swelling of your legs

Data type

boolean

Alias
UMLS CUI [1]
C0581394
28. Excessive sweating
Description

excessive sweating

Data type

boolean

Alias
UMLS CUI [1]
C0700590
29. Double vision
Description

double vision

Data type

boolean

Alias
UMLS CUI [1]
C0012569
30. Believing things are happening to you that other people say are not true
Description

believing things are happening to you that are not true

Data type

boolean

Alias
UMLS CUI [1]
C0011253
NMS-Scale (section 1-5)
Description

NMS-Scale (section 1-5)

Domain 1: Cardiovascular including falls 1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? SEVERITY
Description

Symptoms assessed over the last month. Each symptom scored with respect to: Severity: 0 = None, 1 = Mild: symptoms present but causes little distress or disturbance to patient; 2 = Moderate: some distress or disturbance to patient; 3 = Severe: major source of distress or disturbance to patient. Frequency: 1 = Rarely (<1/wk); 2 = Often (1/wk); 3 = Frequent (several times per week); 4 = Very Frequent (daily or all the time). Domains will be weighed differentially. Yes/ No answers are not included in final frequency x severity calculation. (Bracketed text in questions within the scale is included as an explanatory aid).

Data type

integer

Alias
UMLS CUI [1]
C0220870
UMLS CUI [2]
C0012833
UMLS CUI [3]
C0576730
1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? FREQUENCY
Description

light-headedness changing position frequency

Data type

integer

Alias
UMLS CUI [1]
C0220870
UMLS CUI [2]
C0012833
UMLS CUI [3]
C0576730
1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? SCORE
Description

light-headedness changing position score

Data type

integer

Alias
UMLS CUI [1]
C0220870
UMLS CUI [2]
C0012833
UMLS CUI [3]
C0576730
2. Does the patient fall because of fainting or blacking out? SEVERITY
Description

falling because of fainting severity

Data type

integer

Alias
UMLS CUI [1,1]
C0085639
UMLS CUI [1,2]
C0039070
2. Does the patient fall because of fainting or blacking out? FREQUENCY
Description

falling because of fainting frequency

Data type

integer

Alias
UMLS CUI [1,1]
C0085639
UMLS CUI [1,2]
C0039070
2. Does the patient fall because of fainting or blacking out? SCORE
Description

falling because of fainting score

Data type

integer

Alias
UMLS CUI [1,1]
C0085639
UMLS CUI [1,2]
C0039070
Total score (SEVERITY x FREQUENCY)
Description

calculated

Data type

integer

Alias
UMLS CUI [1,1]
C0476270
UMLS CUI [1,2]
C2964552
Domain 2: Sleep/fatigue 3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). SEVERITY
Description

falling asleep unintentionally severity

Data type

integer

Alias
UMLS CUI [1]
C2037218
3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). FREQUENCY
Description

falling asleep unintentionally frequency

Data type

integer

Alias
UMLS CUI [1]
C2037218
3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). SCORE
Description

falling asleep unintentionally score

Data type

integer

Alias
UMLS CUI [1]
C2037218
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient’s daytime activities? SEVERITY
Description

tiredness limiting daytime activities severity

Data type

integer

Alias
UMLS CUI [1,1]
C0015672
UMLS CUI [1,2]
C0439801
UMLS CUI [1,3]
C0001288
UMLS CUI [2,1]
C3840634
UMLS CUI [2,2]
C0439801
UMLS CUI [2,3]
C0001288
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient<80><99>s daytime activities? FREQUENCY
Description

tiredness limiting daytime activities frequency

Data type

integer

Alias
UMLS CUI [1,1]
C0015672
UMLS CUI [1,2]
C0439801
UMLS CUI [1,3]
C0001288
UMLS CUI [2,1]
C3840634
UMLS CUI [2,2]
C0439801
UMLS CUI [2,3]
C0001288
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient<80><99>s daytime activities? SCORE
Description

tiredness limiting daytime activities score

Data type

integer

Alias
UMLS CUI [1,1]
C0015672
UMLS CUI [1,2]
C0439801
UMLS CUI [1,3]
C0001288
UMLS CUI [2,1]
C3840634
UMLS CUI [2,2]
C0439801
UMLS CUI [2,3]
C0001288
5. Does the patient have difficulties falling or staying asleep? SEVERITY
Description

difficulties falling or staying asleep severity

Data type

integer

Alias
UMLS CUI [1]
C0037317
5. Does the patient have difficulties falling or staying asleep? FREQUENCY
Description

difficulties falling or staying asleep frequency

Data type

integer

Alias
UMLS CUI [1]
C0037317
5. Does the patient have difficulties falling or staying asleep? SCORE
Description

difficulties falling or staying asleep score

Data type

integer

Alias
UMLS CUI [1]
C0037317
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? SEVERITY
Description

restlessness severity

Data type

integer

Alias
UMLS CUI [1]
C0085631
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? FREQUENCY
Description

restlessness frequency

Data type

integer

Alias
UMLS CUI [1]
C0085631
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? SCORE
Description

restlessness score

Data type

integer

Alias
UMLS CUI [1]
C0085631
Total score (SEVERITY x FREQUENCY)
Description

calculated

Data type

integer

Alias
UMLS CUI [1,1]
C0015672
UMLS CUI [1,2]
C2964552
Domain 3: Mood/cognition 7. Has the patient lost interest in his/her surroundings? SEVERITY
Description

lost interest in surroundings severity

Data type

integer

Alias
UMLS CUI [1,1]
C0424091
UMLS CUI [1,2]
C0014406
7. Has the patient lost interest in his/her surroundings? FREQUENCY
Description

lost interest in surroundings frequency

Data type

integer

Alias
UMLS CUI [1,1]
C0424091
UMLS CUI [1,2]
C0014406
7. Has the patient lost interest in his/her surroundings? SCORE
Description

lost interest in surroundings score

Data type

integer

Alias
UMLS CUI [1,1]
C0424091
UMLS CUI [1,2]
C0014406
8. Has the patient lost interest in doing things or lack motivation to start new activities? SEVERITY
Description

lack motivation to start new activities severity

Data type

integer

Alias
UMLS CUI [1]
C0679474
8. Has the patient lost interest in doing things or lack motivation to start new activities? FREQUENCY
Description

lack motivation to start new activities frequency

Data type

integer

Alias
UMLS CUI [1]
C0679474
8. Has the patient lost interest in doing things or lack motivation to start new activities? SCORE
Description

lack motivation to start new activities score

Data type

integer

Alias
UMLS CUI [1]
C0679474
9. Does the patient feel nervous, worried or frightened for no apparent reason? SEVERITY
Description

nervous worried or frightened severity

Data type

integer

Alias
UMLS CUI [1]
C3639606
9. Does the patient feel nervous, worried or frightened for no apparent reason? FREQUENCY
Description

nervous worried or frightened frequency

Data type

integer

Alias
UMLS CUI [1]
C3639606
9. Does the patient feel nervous, worried or frightened for no apparent reason? SCORE
Description

nervous worried or frightened score

Data type

integer

Alias
UMLS CUI [1]
C3639606
10. Does the patient seem sad or depressed or has he/she reported such feelings? SEVERITY
Description

feeling sad or depressed severity

Data type

integer

Alias
UMLS CUI [1]
C3845528
10. Does the patient seem sad or depressed or has he/she reported such feelings? FREQUENCY
Description

feeling sad or depressed frequency

Data type

integer

Alias
UMLS CUI [1]
C3845528
10. Does the patient seem sad or depressed or has he/she reported such feelings? SCORE
Description

feeling sad or depressed score

Data type

integer

Alias
UMLS CUI [1]
C3845528
11. Does the patient have flat moods without the normal “highs” and “ lows” ? SEVERITY
Description

flat moods severity

Data type

integer

Alias
UMLS CUI [1]
C0344315
11. Does the patient have flat moods without the normal <80><9c>highs<80><9d> and <80><9c> lows<80><9d> ? FREQUENCY
Description

flat moods frequency

Data type

integer

Alias
UMLS CUI [1]
C0344315
11. Does the patient have flat moods without the normal <80><9c>highs<80><9d> and <80><9c> lows<80><9d> ? SCORE
Description

flat moods score

Data type

integer

Alias
UMLS CUI [1]
C0344315
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? SEVERITY
Description

difficulty in experiencing pleasure severity

Data type

integer

Alias
UMLS CUI [1]
C1822596
UMLS CUI [2]
C0860653
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? FREQUENCY
Description

difficulty in experiencing pleasure frequency

Data type

integer

Alias
UMLS CUI [1]
C1822596
UMLS CUI [2]
C0860653
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? SCORE
Description

difficulty in experiencing pleasure score

Data type

integer

Alias
UMLS CUI [1]
C1822596
UMLS CUI [2]
C0860653
Total score (SEVERITY x FREQUENCY)
Description

calculated

Data type

integer

Alias
UMLS CUI [1,1]
C0026516
UMLS CUI [1,2]
C2964552
Domain 4: Perceptual problems/hallucinations 13. Does the patient indicate that he/she sees things that are not there? SEVERITY
Description

see things that are not there severity

Data type

integer

Alias
UMLS CUI [1]
C3843989
13. Does the patient indicate that he/she sees things that are not there? FREQUENCY
Description

see things that are not there frequency

Data type

integer

Alias
UMLS CUI [1]
C3843989
13. Does the patient indicate that he/she sees things that are not there? SCORE
Description

see things that are not there score

Data type

integer

Alias
UMLS CUI [1]
C3843989
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) SEVERITY
Description

beliefs that are not true severity

Data type

integer

Alias
UMLS CUI [1]
C0011253
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) FREQUENCY
Description

beliefs that are not true frequency

Data type

integer

Alias
UMLS CUI [1]
C0011253
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) SCORE
Description

beliefs that are not true score

Data type

integer

Alias
UMLS CUI [1]
C0011253
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) SEVERITY
Description

double vision severity

Data type

integer

Alias
UMLS CUI [1]
C0012569
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) FREQUENCY
Description

double vision frequency

Data type

integer

Alias
UMLS CUI [1]
C0012569
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) SCORE
Description

double vision score

Data type

integer

Alias
UMLS CUI [1]
C0012569
Total score (SEVERITY x FREQUENCY)
Description

calculated

Data type

integer

Alias
UMLS CUI [1,1]
C0018524
UMLS CUI [1,2]
C2964552
Domain 5: Attention/memory 16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) SEVERITY
Description

problems sustaining concentration severity

Data type

integer

Alias
UMLS CUI [1]
C0424099
16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) FREQUENCY
Description

problems sustaining concentration frequency

Data type

integer

Alias
UMLS CUI [1]
C0424099
16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) SCORE
Description

problems sustaining concentration score

Data type

integer

Alias
UMLS CUI [1]
C0424099
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? SEVERITY
Description

impaired memory severity

Data type

integer

Alias
UMLS CUI [1]
C2363813
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? FREQUENCY
Description

impaired memory frequency

Data type

integer

Alias
UMLS CUI [1]
C2363813
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? SCORE
Description

impaired memory score

Data type

integer

Alias
UMLS CUI [1]
C2363813
Total score (SEVERITY x FREQUENCY)
Description

calculated

Data type

integer

Alias
UMLS CUI [1,1]
C3843050
UMLS CUI [1,2]
C2964552
Functional Activities Questionnaire (FAQ)
Description

Functional Activities Questionnaire (FAQ)

Alias
UMLS CUI-1
C3827007
Informations are reported by: (only one answer possible)
Description

How did the participant get along in the following domains during the past four weeks?

Data type

text

Alias
UMLS CUI [1,1]
C3827007
UMLS CUI [1,2]
C1550484
Other informant:
Description

FAQ informant other

Data type

text

Alias
UMLS CUI [1,1]
C3827007
UMLS CUI [1,2]
C1550484
UMLS CUI [1,3]
C0205394
1. Writing checks, paying bills, balancing checkbook
Description

financial management

Data type

integer

Alias
UMLS CUI [1]
C3830181
2. Assembling tax records, business affairs, or papers
Description

managing business affairs

Data type

integer

Alias
UMLS CUI [1]
C3830202
3. Shopping alone for clothes, household necessities, or groceries
Description

shopping independent

Data type

integer

Alias
UMLS CUI [1]
C3830184
4. Playing a game of skill, working on a hobby
Description

game of skill or hobby

Data type

integer

Alias
UMLS CUI [1]
C3830188
5. Heating water, making a cup of coffee, turning off stove after use
Description

heating water

Data type

integer

6. Preparing a balanced meal
Description

preparing a meal

Data type

integer

Alias
UMLS CUI [1]
C3830195
7. Keeping track of current events
Description

keeping track

Data type

integer

Alias
UMLS CUI [1]
C3830197
8. Paying attention to, understanding, discussing TV, book, magazin
Description

paying attention

Data type

integer

Alias
UMLS CUI [1]
C3830196
9. Remembering appointments, family occasions, holidays, medications
Description

remembering

Data type

integer

Alias
UMLS CUI [1]
C3830185
10. Traveling out of neighborhood, driving, arranging to take buses
Description

traveling out of neighborhood

Data type

integer

Alias
UMLS CUI [1]
C3830191
FAQ - Total Score
Description

calculated

Data type

integer

Specific Famlily History - Parkinson's disease
Description

Specific Famlily History - Parkinson's disease

Alias
UMLS CUI-1
C0574092
Does your relative suffer from Parkinson's disease? Referring to tremor of the hand occurring at most resting, slowness of gait, bent posture and shuffling gait?
Description

relative suffers from Parkinsons disease

Data type

text

Alias
UMLS CUI [1]
C0574092
Relative:
Description

relative suffering from PD

Data type

text

Alias
UMLS CUI [1,1]
C0080103
UMLS CUI [1,2]
C0030567
Family side:
Description

relative family side

Data type

text

Alias
UMLS CUI [1]
C2347452
UMLS CUI [2]
C2347083
Remarks
Description

family history remarks

Data type

text

Alias
UMLS CUI [1,1]
C0574092
UMLS CUI [1,2]
C0947611
1.1. Resting tremor
Description

1. Symptoms that the relative showed

Data type

text

Alias
UMLS CUI [1,1]
C0234379
UMLS CUI [1,2]
C0080103
1.2. Shuffling gait
Description

shuffling gait relative

Data type

text

Alias
UMLS CUI [1,1]
C0231688
UMLS CUI [1,2]
C0080103
1.3. Bent posture
Description

bent posture

Data type

text

Alias
UMLS CUI [1,1]
C0231471
UMLS CUI [1,2]
C0080103
1.4. Muscle rigidity
Description

muscle rigidity

Data type

text

Alias
UMLS CUI [1,1]
C0026837
UMLS CUI [1,2]
C0080103
2.1. Neurologist
Description

2. Diagnosis of relative was approved by:

Data type

text

Alias
UMLS CUI [1,1]
C0237426
UMLS CUI [1,2]
C0080103
2.2. Non-neurologist:
Description

non-neurologist diagnosed relative

Data type

text

Alias
UMLS CUI [1,1]
C0237426
UMLS CUI [1,2]
C0560182
UMLS CUI [1,3]
C0080103
3.1. Intake of Levodopa
Description

3. Anti-Parkinson medication taken by relative

Data type

text

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0023570
UMLS CUI [1,3]
C0030567
UMLS CUI [1,4]
C0080103
Certainty of diagnosis, please stage:
Description

certainty of diagnosis relative

Data type

text

Alias
UMLS CUI [1,1]
C0332146
UMLS CUI [1,2]
C0080103
Test of ability to smell (12 Sniffin' Sticks)
Description

Test of ability to smell (12 Sniffin' Sticks)

Do you have currently problems smelling?
Description

If 'Yes' please fill out the smell anamnesis on this side

Data type

boolean

Alias
UMLS CUI [1,1]
C0481703
UMLS CUI [1,2]
C0521116
Sniffin stick 1:
Description

sniffin stick 1

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 2:
Description

sniffin stick 2

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 3:
Description

sniffin stick 3

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 4:
Description

sniffin stick 4

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 5:
Description

sniffin stick 5

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 6:
Description

sniffin stick 6

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 7:
Description

sniffin stick 7

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 8:
Description

sniffin stick 8

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 9:
Description

sniffin stick 9

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 10:
Description

sniffin stick 10

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 11:
Description

sniffin stick 11

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
Sniffin stick 12:
Description

sniffin stick 12

Data type

text

Alias
UMLS CUI [1,1]
C0037361
UMLS CUI [1,2]
C0392366
1, Sum of correctly identificated scents
Description

calculated

Data type

integer

2. Sum of correctly identified scents %
Description

pct correct answers

Data type

integer

Measurement units
  • %
%
Anamnesis of smelling ability
Description

Anamnesis of smelling ability

Do you suffer currently from a severe cold or inflammation of nose, resp. paranasal sinuses, with significant impairment of smelling ability?
Description

severe cold or sinusitis causing smelling problem

Data type

boolean

Alias
UMLS CUI [1]
C0030469
UMLS CUI [2]
C0009443
UMLS CUI [3]
C0553757
Do you suffer currently from allergies like hay fever, that impair your smelling ability?
Description

allergies impairing smelling

Data type

boolean

Alias
UMLS CUI [1,1]
C0020517
UMLS CUI [1,2]
C0553757
Do you suffer from chronic asthma or another chronic inflammatory disease of nose, paranasal sinus, that significantly impairs your smelling ability.
Description

chronic inflammatory disease

Data type

boolean

Alias
UMLS CUI [1,1]
C1290886
UMLS CUI [1,2]
C0553757
Did you have regular contact with following substances in the past, for example in context of your occupation? Solvent
Description

contact with substances

Data type

boolean

Alias
UMLS CUI [1]
C2220469
Wood, metal dust or fume
Description

exposure substances wood metal dust fume

Data type

boolean

Alias
UMLS CUI [1,1]
C0332157
UMLS CUI [1,2]
C0043217
UMLS CUI [2,1]
C0332157
UMLS CUI [2,2]
C0458047
UMLS CUI [3,1]
C0332157
UMLS CUI [3,2]
C0457553
Did you have surgery on your nose as an adult, child or teenager, e.g. nasal polypectomy ?
Description

medical history of nose surgery

Data type

boolean

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0188970
Was a tying of internal nose artery performed in the past because of severe nose bleeding?
Description

tying of internal nose artery

Data type

boolean

Alias
UMLS CUI [1]
C3513217
Did you have an accident with head injury causing significant impairment of smelling ability?
Description

head injury causing impairment of smelling

Data type

boolean

Alias
UMLS CUI [1,1]
C0018674
UMLS CUI [1,2]
C0553757
Do you suffer from another condition concerning nose or pharynx which significantly impairs your smelling ability?
Description

another condition concerning nose or pharynx impairing smelling ability

Data type

boolean

Alias
UMLS CUI [1,1]
C0264217
UMLS CUI [1,2]
C0553757
Do you suffer from another condition concerning nose or pharynx which significantly impairs your smelling ability? Which one?
Description

other condition name

Data type

text

Alias
UMLS CUI [1,1]
C0264217
UMLS CUI [1,2]
C0553757
UMLS CUI [1,3]
C0205394
Gait time measurement: 8-meter-walking-test (8MWT)
Description

Gait time measurement: 8-meter-walking-test (8MWT)

Alias
UMLS CUI-1
C0430506
1. Gait time test performed?
Description

gait time test performed

Data type

boolean

Alias
UMLS CUI [1,1]
C0430506
UMLS CUI [1,2]
C1254545
1.1.
Description

reason test not performed

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
2. Does the participant need gait aid?
Description

gait aid

Data type

text

Alias
UMLS CUI [1]
C0427136
3. Time measurement of walking: 3.1. First try:
Description

gait time measurement first try

Data type

float

Measurement units
  • sec
Alias
UMLS CUI [1,1]
C0430506
UMLS CUI [1,2]
C1254545
sec
3.2. Second try:
Description

gait time measurement second try

Data type

float

Measurement units
  • sec
Alias
UMLS CUI [1,1]
C0430506
UMLS CUI [1,2]
C1254545
sec
4. Was a repetition of the walking test necessary?
Description

repetition necessary

Data type

boolean

Alias
UMLS CUI [1,1]
C0205341
UMLS CUI [1,2]
C0430506
UMLS CUI [1,3]
C1254545
4.1. Repetition because of:
Description

reason for repetition

Data type

text

Alias
UMLS CUI [1,1]
C0205341
UMLS CUI [1,2]
C0430506
UMLS CUI [1,3]
C1254545
UMLS CUI [1,4]
C0392360
Other reason:
Description

other reason for repetition

Data type

text

Alias
UMLS CUI [1,1]
C0205341
UMLS CUI [1,2]
C0430506
UMLS CUI [1,3]
C1254545
UMLS CUI [1,4]
C0392360
UMLS CUI [1,5]
C0205394
Examination of gait (GaitRite®)
Description

Examination of gait (GaitRite®)

1. Instrument-based gait analysis performed?
Description

instrument-based gait analysis performed

Data type

boolean

Alias
UMLS CUI [1]
C0558820
1.1.
Description

reasons examination of gait not performed

Data type

text

Alias
UMLS CUI [1,1]
C0558820
UMLS CUI [1,2]
C0392360
UMLS CUI [1,3]
C3841220
Reason for physical impairment:
Description

e.g. knee prothesis, OP

Data type

text

Alias
UMLS CUI [1]
C0231171
Other reason:
Description

reasons examination of gait not performed other

Data type

text

Alias
UMLS CUI [1,1]
C0558820
UMLS CUI [1,2]
C0392360
UMLS CUI [1,3]
C3841220
UMLS CUI [1,4]
C0205394
2.1. Gait single task 2.1.1. Preferred speed NOT DONE
Description

2. Testing phase: Gait analysis

Data type

boolean

Alias
UMLS CUI [1,1]
C2009910
UMLS CUI [1,2]
C1272696
Reason:
Description

reasons gait speed not done

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
UMLS CUI [1,3]
C2009910
Number of runs
Description

gait speed number of runs

Data type

integer

Alias
UMLS CUI [1,1]
C2009910
UMLS CUI [1,2]
C0449788
2.1.2 Walking slowly NOT DONE
Description

slowly walking NOT DONE

Data type

boolean

Alias
UMLS CUI [1,1]
C1851908
UMLS CUI [1,2]
C1272696
Reason:
Description

reasons walking slowly not done

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
UMLS CUI [1,3]
C1851908
Number of runs
Description

walking slowly number of runs

Data type

integer

Alias
UMLS CUI [1,1]
C1851908
UMLS CUI [1,2]
C0449788
2.1.3 Walking fast NOT DONE
Description

walking fast NOT DONE

Data type

boolean

Alias
UMLS CUI [1,1]
C0080331
UMLS CUI [1,2]
C0456962
UMLS CUI [1,3]
C1272696
Reason:
Description

reasons walking slowly not done

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
UMLS CUI [1,3]
C0080331
UMLS CUI [1,4]
C0456962
Number of runs
Description

walking fast number of runs

Data type

integer

Alias
UMLS CUI [1,1]
C0080331
UMLS CUI [1,2]
C0456962
UMLS CUI [1,3]
C0449788
2.2. Gait dual task 2.2.1. Single serial subtraction NOT DONE
Description

2.Test phase: Gait analysis

Data type

boolean

Alias
UMLS CUI [1,1]
C0038603
UMLS CUI [1,2]
C1272696
Reason:
Description

reason single serial subtraction not done

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
UMLS CUI [1,3]
C0038603
Time:
Description

time single serial subtraction

Data type

float

Measurement units
  • sec
Alias
UMLS CUI [1,1]
C1254545
UMLS CUI [1,2]
C0038603
sec
Number of mistakes:
Description

mistakes single serial subtraction

Data type

integer

Alias
UMLS CUI [1,1]
C0038603
UMLS CUI [1,2]
C0743559
Subtraction chosen:
Description

subtraction chosen

Data type

text

Alias
UMLS CUI [1]
C0038603
2.2.2 Serial subtraction + walking fast NOT DONE
Description

serial subtraction and walking fast NOT DONE

Data type

boolean

Alias
UMLS CUI [1]
C2371313
UMLS CUI [2,1]
C0080331
UMLS CUI [2,2]
C0456962
UMLS CUI [3]
C0038603
Reason:
Description

reason dual task not done

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
UMLS CUI [1,3]
C2371313
Number of runs
Description

dual task number of runs

Data type

integer

Alias
UMLS CUI [1,1]
C2371313
UMLS CUI [1,2]
C0449788
Subtraction chosen:
Description

subtraction chosen dual task

Data type

text

Alias
UMLS CUI [1]
C0038603
Number of subtractions
Description

number of subtractions

Data type

integer

Alias
UMLS CUI [1,1]
C0038603
UMLS CUI [1,2]
C0449788
Number of mistakes:
Description

mistakes dual task

Data type

integer

Alias
UMLS CUI [1,1]
C2371313
UMLS CUI [1,2]
C0743559
3. Tandem/Turn 3.1. Tandem gait
Description

3. Test phase: Gait analysis (optional)

Data type

text

Alias
UMLS CUI [1]
C1142033
3.2. 180° turn
Description

turning around

Data type

text

Alias
UMLS CUI [1]
C1997729
Please only comment if one or several examinations not done
Description

comment gait analysis

Data type

text

Alias
UMLS CUI [1,1]
C0947611
UMLS CUI [1,2]
C0558820
Examination of human resting and activity profiles (Somno-Module)
Description

Examination of human resting and activity profiles (Somno-Module)

1. Examinations of somno module performed?
Description

somno module performed

Data type

boolean

Alias
UMLS CUI [1]
C1706477
1.1.
Description

reasons somno module not performed

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
UMLS CUI [1,3]
C1706477
Other reason:
Description

other reason somno module not performed

Data type

text

Alias
UMLS CUI [1,1]
C1706477
UMLS CUI [1,2]
C0392360
UMLS CUI [1,3]
C3841220
UMLS CUI [1,4]
C0205394
2. Test performance and duration of somno module Start of examination:
Description

datetime start examination

Data type

datetime

Alias
UMLS CUI [1,1]
C1706477
UMLS CUI [1,2]
C1301880
End of examination:
Description

datetime end of examination

Data type

datetime

Alias
UMLS CUI [1,1]
C1706477
UMLS CUI [1,2]
C1522314
Dominant hand
Description

dominant hand

Data type

integer

Alias
UMLS CUI [1]
C0449722
Assembly: Activity
Description

assembly activity

Data type

boolean

Alias
UMLS CUI [1]
C0026606
Actigraph applied?
Description

actigraph applied

Data type

text

Alias
UMLS CUI [1]
C3176845
Tremor
Description

assembly tremor

Data type

boolean

Alias
UMLS CUI [1]
C0040822
Actigraph applied?
Description

actigraph tremor

Data type

text

Alias
UMLS CUI [1]
C3176845
PLM
Description

assembly PLM

Data type

boolean

Actigraph applied?
Description

actigraph PLM

Data type

text

Alias
UMLS CUI [1]
C3176845
Storage of data on file server?
Description

data on fileserver

Data type

boolean

Alias
UMLS CUI [1]
C0242578
Comment
Description

comment somno module

Data type

text

Alias
UMLS CUI [1,1]
C0947611
UMLS CUI [1,2]
C1706477
Examination of eye movements (oculography)
Description

Examination of eye movements (oculography)

1. Examination of eye movements performed?
Description

oculography performed

Data type

boolean

Alias
UMLS CUI [1]
C0013854
1.1.
Description

reasons oculography not performed

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
UMLS CUI [1,3]
C0013854
Other Reason:
Description

other reasons oculography not performed

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C3841220
UMLS CUI [1,3]
C0013854
UMLS CUI [1,4]
C0205394
dominant eye
Description

2. Test performance: Oculography

Data type

text

Alias
UMLS CUI [1]
C0576477
UMLS CUI [2]
C0576478
Visus, close, uncorrected
Description

35cm

Data type

float

Alias
UMLS CUI [1]
C0042793
visus test monitor
Description

70cm

Data type

float

Alias
UMLS CUI [1]
C0042793
Visual impairment known?
Description

visual impairment

Data type

boolean

Alias
UMLS CUI [1]
C3665347
Diopter right (+/-)
Description

Diopter right (+/-)

Data type

float

Alias
UMLS CUI [1,1]
C0439484
UMLS CUI [1,2]
C0229089
Diopter left (+/-)
Description

diopter left

Data type

float

Alias
UMLS CUI [1,1]
C0439484
UMLS CUI [1,2]
C0229090
Test using visual aid?
Description

use of visual aid

Data type

boolean

Alias
UMLS CUI [1]
C0449877
Optical aid
Description

optical aid

Data type

text

Alias
UMLS CUI [1]
C0449877
Test protocol used
Description

test protocol used

Data type

text

Alias
UMLS CUI [1]
C0449876
Other:
Description

test protocol used other

Data type

text

Alias
UMLS CUI [1,1]
C0449876
UMLS CUI [1,2]
C0205394
Testing successfully performed?
Description

test successfully performed

Data type

boolean

Alias
UMLS CUI [1,1]
C3258067
UMLS CUI [1,2]
C0013854
Not successful performed?
Description

test not successful

Data type

text

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C0231175
Storage of data on file server?
Description

data on fileserver

Data type

boolean

Alias
UMLS CUI [1]
C0242578
Comment:
Description

comment oculography

Data type

text

Alias
UMLS CUI [1,1]
C0947611
UMLS CUI [1,2]
C0013854

Similar models

CRF Optional assessment motion

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Date of visit
C1320303 (UMLS CUI-1)
study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
visit name
Item
Visit:
text
C2826704 (UMLS CUI [1])
date of visit
Item
Date of visit
date
C1320303 (UMLS CUI [1])
Item Group
PD-NMS-Questionnaire
dribbling of saliva
Item
Have you experienced any of the following in the last month? 1. Dribbling of saliva during the daytime
boolean
C0848498 (UMLS CUI [1])
loss or change in your ability to taste or smell
Item
2. Loss or change in your ability to taste or smell
boolean
C1301555 (UMLS CUI [1])
C2712084 (UMLS CUI [2])
difficulty swallowing food or drink
Item
3. Difficulty swallowing food or drink or problems with choking.
boolean
C0566362 (UMLS CUI [1])
C0566279 (UMLS CUI [2])
vomiting or nausea
Item
4. Vomiting or feelings of sickness (nausea)
boolean
C0027498 (UMLS CUI [1])
constipation
Item
5. Constipation (less than 3 bowel movements a week) or having to strain to pass a stool (faeces)
boolean
C0009806 (UMLS CUI [1])
bowel incontinence
Item
6. Bowel (fecal) incontinence
boolean
C0015732 (UMLS CUI [1])
ffeel#
Item
7. Feeling that your bowel emptying is incomplete after having been to the toilet .
text
feeling of incomplete bowel emptying
Item
7. Feeling that your bowel emptying is incomplete after having been to the toilet .
boolean
C0423598 (UMLS CUI [1])
sense of urgency to pass urine
Item
8. A sense of urgency to pass urine makes you rush to the toilet .
boolean
C0085606 (UMLS CUI [1])
getting up at night to pass urine
Item
9. Getting up regularly at night to pass urine
boolean
C0042023 (UMLS CUI [1,1])
C0240526 (UMLS CUI [1,2])
unexplained pains
Item
10. Unexplained pains (not due to known conditions such as arthritis)
boolean
C0030193 (UMLS CUI [1])
unexplained change in weight
Item
11. Unexplained change in weight (not due to change in diet)
boolean
C0005911 (UMLS CUI [1])
problems remembering things
Item
12. Problems remembering things that have happened recently or for getting to do things
boolean
C0233794 (UMLS CUI [1])
loss of interest
Item
13. Loss of interest in what is happening around you or doing things
boolean
C0679474 (UMLS CUI [1])
seeing or hearing things that are not there
Item
14. Seeing or hearing things that you know or are told are not there
boolean
C3843989 (UMLS CUI [1])
difficulty concentrating
Item
15. Difficulty concentrating or staying focussed
boolean
C0947509 (UMLS CUI [1])
feeling sad
Item
16. Feeling sad, ‘low’ or ‘blue’
boolean
C3536794 (UMLS CUI [1])
feeling anxious
Item
17. Feeling anxious, frightened or panicky
boolean
C0003467 (UMLS CUI [1])
less or more interest in sex
Item
18. Feeling less interested in sex or more interested in sex
boolean
C3898951 (UMLS CUI [1])
C3899191 (UMLS CUI [2])
difficulties having sex
Item
19. Finding it difficult to have sex when you try
boolean
C0549622 (UMLS CUI [1])
dizziness
Item
20. Feeling light headed, dizzy or weak standing from sitting or lying
boolean
C0012833 (UMLS CUI [1])
falling
Item
21. Falling
boolean
C0085639 (UMLS CUI [1])
difficulties staying awake
Item
22. Finding it difficult to stay awake during activities such as working, driving or eating
boolean
C0723446 (UMLS CUI [1])
sleep disturbance
Item
23. Difficulty getting to sleep at night or staying asleep at night
boolean
C0037317 (UMLS CUI [1])
vivid dreams
Item
24. Intense, vivid dreams or frightening dreams
boolean
C0541903 (UMLS CUI [1])
talking or moving about in your sleep
Item
25. Talking or moving about in your sleep as if you are ‘acting’ out a dream
boolean
C0542313 (UMLS CUI [1])
unpleasant sensations in your legs
Item
26. Unpleasant sensations in your legs at night or while resting, and a feeling that you need to move
boolean
C3887611 (UMLS CUI [1])
C0877432 (UMLS CUI [2])
swelling of your legs
Item
27. Swelling of your legs
boolean
C0581394 (UMLS CUI [1])
excessive sweating
Item
28. Excessive sweating
boolean
C0700590 (UMLS CUI [1])
double vision
Item
29. Double vision
boolean
C0012569 (UMLS CUI [1])
believing things are happening to you that are not true
Item
30. Believing things are happening to you that other people say are not true
boolean
C0011253 (UMLS CUI [1])
Item Group
NMS-Scale (section 1-5)
Item
Domain 1: Cardiovascular including falls 1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? SEVERITY
integer
C0220870 (UMLS CUI [1])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
Code List
Domain 1: Cardiovascular including falls 1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? FREQUENCY
integer
C0220870 (UMLS CUI [1])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
Code List
1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
light-headedness changing position score
Item
1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? SCORE
integer
C0220870 (UMLS CUI [1])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
Item
2. Does the patient fall because of fainting or blacking out? SEVERITY
integer
C0085639 (UMLS CUI [1,1])
C0039070 (UMLS CUI [1,2])
Code List
2. Does the patient fall because of fainting or blacking out? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
2. Does the patient fall because of fainting or blacking out? FREQUENCY
integer
C0085639 (UMLS CUI [1,1])
C0039070 (UMLS CUI [1,2])
Code List
2. Does the patient fall because of fainting or blacking out? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
falling because of fainting score
Item
2. Does the patient fall because of fainting or blacking out? SCORE
integer
C0085639 (UMLS CUI [1,1])
C0039070 (UMLS CUI [1,2])
total score section 1 cardiovascular
Item
Total score (SEVERITY x FREQUENCY)
integer
C0476270 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item
Domain 2: Sleep/fatigue 3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). SEVERITY
integer
C2037218 (UMLS CUI [1])
Code List
Domain 2: Sleep/fatigue 3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). FREQUENCY
integer
C2037218 (UMLS CUI [1])
Code List
3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
falling asleep unintentionally score
Item
3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). SCORE
integer
C2037218 (UMLS CUI [1])
Item
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient’s daytime activities? SEVERITY
integer
C0015672 (UMLS CUI [1,1])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
Code List
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient’s daytime activities? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient<80><99>s daytime activities? FREQUENCY
integer
C0015672 (UMLS CUI [1,1])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
Code List
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient<80><99>s daytime activities? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
tiredness limiting daytime activities score
Item
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient<80><99>s daytime activities? SCORE
integer
C0015672 (UMLS CUI [1,1])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
Item
5. Does the patient have difficulties falling or staying asleep? SEVERITY
integer
C0037317 (UMLS CUI [1])
Code List
5. Does the patient have difficulties falling or staying asleep? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
5. Does the patient have difficulties falling or staying asleep? FREQUENCY
integer
C0037317 (UMLS CUI [1])
Code List
5. Does the patient have difficulties falling or staying asleep? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
difficulties falling or staying asleep score
Item
5. Does the patient have difficulties falling or staying asleep? SCORE
integer
C0037317 (UMLS CUI [1])
Item
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? SEVERITY
integer
C0085631 (UMLS CUI [1])
Code List
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? FREQUENCY
integer
C0085631 (UMLS CUI [1])
Code List
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
restlessness score
Item
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? SCORE
integer
C0085631 (UMLS CUI [1])
total score section2 fatigue
Item
Total score (SEVERITY x FREQUENCY)
integer
C0015672 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item
Domain 3: Mood/cognition 7. Has the patient lost interest in his/her surroundings? SEVERITY
integer
C0424091 (UMLS CUI [1,1])
C0014406 (UMLS CUI [1,2])
Code List
Domain 3: Mood/cognition 7. Has the patient lost interest in his/her surroundings? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
7. Has the patient lost interest in his/her surroundings? FREQUENCY
integer
C0424091 (UMLS CUI [1,1])
C0014406 (UMLS CUI [1,2])
Code List
7. Has the patient lost interest in his/her surroundings? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
lost interest in surroundings score
Item
7. Has the patient lost interest in his/her surroundings? SCORE
integer
C0424091 (UMLS CUI [1,1])
C0014406 (UMLS CUI [1,2])
Item
8. Has the patient lost interest in doing things or lack motivation to start new activities? SEVERITY
integer
C0679474 (UMLS CUI [1])
Code List
8. Has the patient lost interest in doing things or lack motivation to start new activities? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
8. Has the patient lost interest in doing things or lack motivation to start new activities? FREQUENCY
integer
C0679474 (UMLS CUI [1])
Code List
8. Has the patient lost interest in doing things or lack motivation to start new activities? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
lack motivation to start new activities score
Item
8. Has the patient lost interest in doing things or lack motivation to start new activities? SCORE
integer
C0679474 (UMLS CUI [1])
Item
9. Does the patient feel nervous, worried or frightened for no apparent reason? SEVERITY
integer
C3639606 (UMLS CUI [1])
Code List
9. Does the patient feel nervous, worried or frightened for no apparent reason? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
9. Does the patient feel nervous, worried or frightened for no apparent reason? FREQUENCY
integer
C3639606 (UMLS CUI [1])
Code List
9. Does the patient feel nervous, worried or frightened for no apparent reason? FREQUENCY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
nervous worried or frightened score
Item
9. Does the patient feel nervous, worried or frightened for no apparent reason? SCORE
integer
C3639606 (UMLS CUI [1])
Item
10. Does the patient seem sad or depressed or has he/she reported such feelings? SEVERITY
integer
C3845528 (UMLS CUI [1])
Code List
10. Does the patient seem sad or depressed or has he/she reported such feelings? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
10. Does the patient seem sad or depressed or has he/she reported such feelings? FREQUENCY
integer
C3845528 (UMLS CUI [1])
Code List
10. Does the patient seem sad or depressed or has he/she reported such feelings? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
feeling sad or depressed score
Item
10. Does the patient seem sad or depressed or has he/she reported such feelings? SCORE
integer
C3845528 (UMLS CUI [1])
Item
11. Does the patient have flat moods without the normal “highs” and “ lows” ? SEVERITY
integer
C0344315 (UMLS CUI [1])
Code List
11. Does the patient have flat moods without the normal “highs” and “ lows” ? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
11. Does the patient have flat moods without the normal <80><9c>highs<80><9d> and <80><9c> lows<80><9d> ? FREQUENCY
integer
C0344315 (UMLS CUI [1])
Code List
11. Does the patient have flat moods without the normal <80><9c>highs<80><9d> and <80><9c> lows<80><9d> ? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
flat moods score
Item
11. Does the patient have flat moods without the normal <80><9c>highs<80><9d> and <80><9c> lows<80><9d> ? SCORE
integer
C0344315 (UMLS CUI [1])
Item
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? SEVERITY
integer
C1822596 (UMLS CUI [1])
C0860653 (UMLS CUI [2])
Code List
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? FREQUENCY
integer
C1822596 (UMLS CUI [1])
C0860653 (UMLS CUI [2])
Code List
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
difficulty in experiencing pleasure score
Item
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? SCORE
integer
C1822596 (UMLS CUI [1])
C0860653 (UMLS CUI [2])
total score section 3 mood
Item
Total score (SEVERITY x FREQUENCY)
integer
C0026516 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item
Domain 4: Perceptual problems/hallucinations 13. Does the patient indicate that he/she sees things that are not there? SEVERITY
integer
C3843989 (UMLS CUI [1])
Code List
Domain 4: Perceptual problems/hallucinations 13. Does the patient indicate that he/she sees things that are not there? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
13. Does the patient indicate that he/she sees things that are not there? FREQUENCY
integer
C3843989 (UMLS CUI [1])
Code List
13. Does the patient indicate that he/she sees things that are not there? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
see things that are not there score
Item
13. Does the patient indicate that he/she sees things that are not there? SCORE
integer
C3843989 (UMLS CUI [1])
Item
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) SEVERITY
integer
C0011253 (UMLS CUI [1])
Code List
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) FREQUENCY
integer
C0011253 (UMLS CUI [1])
Code List
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
beliefs that are not true score
Item
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) SCORE
integer
C0011253 (UMLS CUI [1])
Item
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) SEVERITY
integer
C0012569 (UMLS CUI [1])
Code List
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) FREQUENCY
integer
C0012569 (UMLS CUI [1])
Code List
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
double vision score
Item
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) SCORE
integer
C0012569 (UMLS CUI [1])
total score section 4 hallucinations
Item
Total score (SEVERITY x FREQUENCY)
integer
C0018524 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item
Domain 5: Attention/memory 16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) SEVERITY
integer
C0424099 (UMLS CUI [1])
Code List
Domain 5: Attention/memory 16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) FREQUENCY
integer
C0424099 (UMLS CUI [1])
Code List
16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
problems sustaining concentration score
Item
16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) SCORE
integer
C0424099 (UMLS CUI [1])
Item
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? SEVERITY
integer
C2363813 (UMLS CUI [1])
Code List
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? FREQUENCY
integer
C2363813 (UMLS CUI [1])
Code List
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
impaired memory score
Item
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? SCORE
integer
C2363813 (UMLS CUI [1])
total score section 5 attention
Item
Total score (SEVERITY x FREQUENCY)
integer
C3843050 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item Group
Functional Activities Questionnaire (FAQ)
C3827007 (UMLS CUI-1)
Item
Informations are reported by: (only one answer possible)
text
C3827007 (UMLS CUI [1,1])
C1550484 (UMLS CUI [1,2])
Code List
Informations are reported by: (only one answer possible)
CL Item
Spouse (Spouse)
CL Item
Child (Child)
CL Item
Brother/Sister (Brother/Sister)
CL Item
Friend (Friend)
CL Item
other informant (other informant)
CL Item
participant (no informant available) (participant (no informant available))
FAQ informant other
Item
Other informant:
text
C3827007 (UMLS CUI [1,1])
C1550484 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
1. Writing checks, paying bills, balancing checkbook
integer
C3830181 (UMLS CUI [1])
Code List
1. Writing checks, paying bills, balancing checkbook
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
2. Assembling tax records, business affairs, or papers
integer
C3830202 (UMLS CUI [1])
Code List
2. Assembling tax records, business affairs, or papers
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
3. Shopping alone for clothes, household necessities, or groceries
integer
C3830184 (UMLS CUI [1])
Code List
3. Shopping alone for clothes, household necessities, or groceries
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
4. Playing a game of skill, working on a hobby
integer
C3830188 (UMLS CUI [1])
Code List
4. Playing a game of skill, working on a hobby
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
5. Heating water, making a cup of coffee, turning off stove after use
integer
Code List
5. Heating water, making a cup of coffee, turning off stove after use
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
6. Preparing a balanced meal
integer
C3830195 (UMLS CUI [1])
Code List
6. Preparing a balanced meal
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
7. Keeping track of current events
integer
C3830197 (UMLS CUI [1])
Code List
7. Keeping track of current events
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
8. Paying attention to, understanding, discussing TV, book, magazin
integer
C3830196 (UMLS CUI [1])
Code List
8. Paying attention to, understanding, discussing TV, book, magazin
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
9. Remembering appointments, family occasions, holidays, medications
integer
C3830185 (UMLS CUI [1])
Code List
9. Remembering appointments, family occasions, holidays, medications
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
10. Traveling out of neighborhood, driving, arranging to take buses
integer
C3830191 (UMLS CUI [1])
Code List
10. Traveling out of neighborhood, driving, arranging to take buses
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
faq total score
Item
FAQ - Total Score
integer
Item Group
Specific Famlily History - Parkinson's disease
C0574092 (UMLS CUI-1)
Item
Does your relative suffer from Parkinson's disease? Referring to tremor of the hand occurring at most resting, slowness of gait, bent posture and shuffling gait?
text
C0574092 (UMLS CUI [1])
Code List
Does your relative suffer from Parkinson's disease? Referring to tremor of the hand occurring at most resting, slowness of gait, bent posture and shuffling gait?
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
Relative:
text
C0080103 (UMLS CUI [1,1])
C0030567 (UMLS CUI [1,2])
Code List
Relative:
CL Item
Grandfather (Grandfather)
CL Item
Grandmother (Grandmother)
CL Item
Father (Father)
CL Item
Mother (Mother)
CL Item
Son  (Son )
CL Item
Daughter (Daughter)
CL Item
Brother (Brother)
CL Item
Sister (Sister)
CL Item
Uncle (Uncle)
CL Item
Aunt (Aunt)
CL Item
Cousin, male (Cousin, male)
CL Item
Cousin, female (Cousin, female)
CL Item
other relative (other relative)
CL Item
unknown (unknown)
Item
Family side:
text
C2347452 (UMLS CUI [1])
C2347083 (UMLS CUI [2])
Code List
Family side:
CL Item
maternal (maternal)
CL Item
paternal (paternal)
CL Item
unknown (unknown)
family history remarks
Item
Remarks
text
C0574092 (UMLS CUI [1,1])
C0947611 (UMLS CUI [1,2])
Item
1.1. Resting tremor
text
C0234379 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
Code List
1.1. Resting tremor
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
1.2. Shuffling gait
text
C0231688 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
Code List
1.2. Shuffling gait
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
bent posture
Item
1.3. Bent posture
text
C0231471 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
Item
1.4. Muscle rigidity
text
C0026837 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
Code List
1.4. Muscle rigidity
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
2.1. Neurologist
text
C0237426 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
2.2. Non-neurologist:
text
C0237426 (UMLS CUI [1,1])
C0560182 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,3])
Code List
2.2. Non-neurologist:
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
3.1. Intake of Levodopa
text
C0013227 (UMLS CUI [1,1])
C0023570 (UMLS CUI [1,2])
C0030567 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,4])
Code List
3.1. Intake of Levodopa
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
Certainty of diagnosis, please stage:
text
C0332146 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
Code List
Certainty of diagnosis, please stage:
CL Item
definite Parkinson's disease (at least two symptoms under point 1 AND criterion 2.1. apply) (definite Parkinson's disease (at least two symptoms under point 1 AND criterion 2.1. apply))
CL Item
probable Parkinson's disease (at least two symptoms under point 1 AND one criterion in 2-3 apply) (probable Parkinson's disease (at least two symptoms under point 1 AND one criterion in 2-3 apply))
CL Item
possible Parkinson's disease (either three symptoms under point 1 OR one symptom in 1 and one criterion in 2-3 apply) (possible Parkinson's disease (either three symptoms under point 1 OR one symptom in 1 and one criterion in 2-3 apply))
CL Item
uncertain Parkinson's disease (at least two symptoms under point 1 apply) (uncertain Parkinson's disease (at least two symptoms under point 1 apply))
CL Item
questionable Parkinson's disease (at least one symptoms under point 1 applies) (questionable Parkinson's disease (at least one symptoms under point 1 applies))
Item Group
Test of ability to smell (12 Sniffin' Sticks)
problems smelling
Item
Do you have currently problems smelling?
boolean
C0481703 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
Item
Sniffin stick 1:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 1:
CL Item
Orange (Orange)
CL Item
Blackberry (Blackberry)
CL Item
Strawberry (Strawberry)
CL Item
Pineapple (Pineapple)
Item
Sniffin stick 2:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 2:
CL Item
Fume (Fume)
CL Item
Glue (Glue)
CL Item
Shoeleather (Shoeleather)
CL Item
Grass (Grass)
Item
Sniffin stick 3:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 3:
CL Item
Honey (Honey)
CL Item
Vanilla (Vanilla)
CL Item
Chocolate (Chocolate)
CL Item
Cinnamon (Cinnamon)
Item
Sniffin stick 4:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 4:
CL Item
Chives (Chives)
CL Item
Peppermint (Peppermint)
CL Item
Spruce (Spruce)
CL Item
Onion (Onion)
Item
Sniffin stick 5:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 5:
CL Item
Coconut (Coconut)
CL Item
Banana (Banana)
CL Item
Walnut (Walnut)
CL Item
Cherry (Cherry)
Item
Sniffin stick 6:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 6:
CL Item
Peach (Peach)
CL Item
Apple (Apple)
CL Item
Citron (Citron)
CL Item
Grapefruit (Grapefruit)
Item
Sniffin stick 7:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 7:
CL Item
Licorice (Licorice)
CL Item
Rubber (Rubber)
CL Item
Chewing gum (Chewing gum)
CL Item
Cookies (Cookies)
Item
Sniffin stick 8:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 8:
CL Item
Cigarette (Cigarette)
CL Item
Coffee (Coffee)
CL Item
Wine  (Wine )
CL Item
Smoke of candle (Smoke of candle)
Item
Sniffin stick 9:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 9:
CL Item
Clove (Clove)
CL Item
Pepper (Pepper)
CL Item
Cinnamon (Cinnamon)
CL Item
Mustard (Mustard)
Item
Sniffin stick 10:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 10:
CL Item
Pear (Pear)
CL Item
Plum (Plum)
CL Item
Peach (Peach)
CL Item
Pinapple (Pinapple)
Item
Sniffin stick 11:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 11:
CL Item
Chamomile (Chamomile)
CL Item
Raspberry (Raspberry)
CL Item
Rose (Rose)
CL Item
Cherry (Cherry)
Item
Sniffin stick 12:
text
C0037361 (UMLS CUI [1,1])
C0392366 (UMLS CUI [1,2])
Code List
Sniffin stick 12:
CL Item
Bread (Bread)
CL Item
Fish (Fish)
CL Item
Cheese (Cheese)
CL Item
Ham (Ham)
sum correct answers
Item
1, Sum of correctly identificated scents
integer
pct correct answers
Item
2. Sum of correctly identified scents %
integer
Item Group
Anamnesis of smelling ability
severe cold or sinusitis causing smelling problem
Item
Do you suffer currently from a severe cold or inflammation of nose, resp. paranasal sinuses, with significant impairment of smelling ability?
boolean
C0030469 (UMLS CUI [1])
C0009443 (UMLS CUI [2])
C0553757 (UMLS CUI [3])
allergies impairing smelling
Item
Do you suffer currently from allergies like hay fever, that impair your smelling ability?
boolean
C0020517 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
chronic inflammatory disease
Item
Do you suffer from chronic asthma or another chronic inflammatory disease of nose, paranasal sinus, that significantly impairs your smelling ability.
boolean
C1290886 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
contact with substances
Item
Did you have regular contact with following substances in the past, for example in context of your occupation? Solvent
boolean
C2220469 (UMLS CUI [1])
exposure substances wood metal dust fume
Item
Wood, metal dust or fume
boolean
C0332157 (UMLS CUI [1,1])
C0043217 (UMLS CUI [1,2])
C0332157 (UMLS CUI [2,1])
C0458047 (UMLS CUI [2,2])
C0332157 (UMLS CUI [3,1])
C0457553 (UMLS CUI [3,2])
medical history of nose surgery
Item
Did you have surgery on your nose as an adult, child or teenager, e.g. nasal polypectomy ?
boolean
C0262926 (UMLS CUI [1,1])
C0188970 (UMLS CUI [1,2])
tying of internal nose artery
Item
Was a tying of internal nose artery performed in the past because of severe nose bleeding?
boolean
C3513217 (UMLS CUI [1])
head injury causing impairment of smelling
Item
Did you have an accident with head injury causing significant impairment of smelling ability?
boolean
C0018674 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
another condition concerning nose or pharynx impairing smelling ability
Item
Do you suffer from another condition concerning nose or pharynx which significantly impairs your smelling ability?
boolean
C0264217 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
other condition name
Item
Do you suffer from another condition concerning nose or pharynx which significantly impairs your smelling ability? Which one?
text
C0264217 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
Gait time measurement: 8-meter-walking-test (8MWT)
C0430506 (UMLS CUI-1)
gait time test performed
Item
1. Gait time test performed?
boolean
C0430506 (UMLS CUI [1,1])
C1254545 (UMLS CUI [1,2])
Item
1.1.
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
CL Item
Participant was not able to walk because of physical impairment (Participant was not able to walk because of physical impairment)
CL Item
Other reason (Other reason)
Item
2. Does the participant need gait aid?
text
C0427136 (UMLS CUI [1])
Code List
2. Does the participant need gait aid?
CL Item
One walking aid (One walking aid)
CL Item
Two walking aids (Two walking aids)
CL Item
Wheeled walker (Wheeled walker)
CL Item
Prosthesis (Prosthesis)
CL Item
None (None)
gait time measurement first try
Item
3. Time measurement of walking: 3.1. First try:
float
C0430506 (UMLS CUI [1,1])
C1254545 (UMLS CUI [1,2])
gait time measurement second try
Item
3.2. Second try:
float
C0430506 (UMLS CUI [1,1])
C1254545 (UMLS CUI [1,2])
repetition necessary
Item
4. Was a repetition of the walking test necessary?
boolean
C0205341 (UMLS CUI [1,1])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
Item
4.1. Repetition because of:
text
C0205341 (UMLS CUI [1,1])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
Code List
4.1. Repetition because of:
CL Item
Falling of participant (Falling of participant)
CL Item
Distraction of participant (Distraction of participant)
CL Item
Other reason (Other reason)
other reason for repetition
Item
Other reason:
text
C0205341 (UMLS CUI [1,1])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,5])
Item Group
Examination of gait (GaitRite®)
instrument-based gait analysis performed
Item
1. Instrument-based gait analysis performed?
boolean
C0558820 (UMLS CUI [1])
Item
1.1.
text
C0558820 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
CL Item
Participant cannot walk/can only walk with walking aid because of physical impairment (Participant cannot walk/can only walk with walking aid because of physical impairment)
CL Item
Cognitive impairment (Cognitive impairment)
CL Item
Risk of falling (Risk of falling)
CL Item
Technical problems (Technical problems)
CL Item
other reasons (other reasons)
reason for physical impairment
Item
Reason for physical impairment:
text
C0231171 (UMLS CUI [1])
reasons examination of gait not performed other
Item
Other reason:
text
C0558820 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
preferred speed NOT DONE
Item
2.1. Gait single task 2.1.1. Preferred speed NOT DONE
boolean
C2009910 (UMLS CUI [1,1])
C1272696 (UMLS CUI [1,2])
reasons gait speed not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C2009910 (UMLS CUI [1,3])
gait speed number of runs
Item
Number of runs
integer
C2009910 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
slowly walking NOT DONE
Item
2.1.2 Walking slowly NOT DONE
boolean
C1851908 (UMLS CUI [1,1])
C1272696 (UMLS CUI [1,2])
reasons walking slowly not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C1851908 (UMLS CUI [1,3])
walking slowly number of runs
Item
Number of runs
integer
C1851908 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
walking fast NOT DONE
Item
2.1.3 Walking fast NOT DONE
boolean
C0080331 (UMLS CUI [1,1])
C0456962 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,3])
reasons walking slowly not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C0080331 (UMLS CUI [1,3])
C0456962 (UMLS CUI [1,4])
walking fast number of runs
Item
Number of runs
integer
C0080331 (UMLS CUI [1,1])
C0456962 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
single serial subtraction not done
Item
2.2. Gait dual task 2.2.1. Single serial subtraction NOT DONE
boolean
C0038603 (UMLS CUI [1,1])
C1272696 (UMLS CUI [1,2])
reason single serial subtraction not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C0038603 (UMLS CUI [1,3])
time single serial subtraction
Item
Time:
float
C1254545 (UMLS CUI [1,1])
C0038603 (UMLS CUI [1,2])
mistakes single serial subtraction
Item
Number of mistakes:
integer
C0038603 (UMLS CUI [1,1])
C0743559 (UMLS CUI [1,2])
Item
Subtraction chosen:
text
C0038603 (UMLS CUI [1])
Code List
Subtraction chosen:
CL Item
-3 (-3)
CL Item
-7 (-7)
serial subtraction and walking fast NOT DONE
Item
2.2.2 Serial subtraction + walking fast NOT DONE
boolean
C2371313 (UMLS CUI [1])
C0080331 (UMLS CUI [2,1])
C0456962 (UMLS CUI [2,2])
C0038603 (UMLS CUI [3])
reason dual task not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C2371313 (UMLS CUI [1,3])
dual task number of runs
Item
Number of runs
integer
C2371313 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
Item
Subtraction chosen:
text
C0038603 (UMLS CUI [1])
Code List
Subtraction chosen:
CL Item
-3 (-3)
CL Item
-7 (-7)
number of subtractions
Item
Number of subtractions
integer
C0038603 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
mistakes dual task
Item
Number of mistakes:
integer
C2371313 (UMLS CUI [1,1])
C0743559 (UMLS CUI [1,2])
Item
3. Tandem/Turn 3.1. Tandem gait
text
C1142033 (UMLS CUI [1])
Code List
3. Tandem/Turn 3.1. Tandem gait
CL Item
1x (1x)
CL Item
not done (not done)
Item
3.2. 180° turn
text
C1997729 (UMLS CUI [1])
Code List
3.2. 180° turn
CL Item
1x (1x)
CL Item
not done (not done)
comment gait analysis
Item
Please only comment if one or several examinations not done
text
C0947611 (UMLS CUI [1,1])
C0558820 (UMLS CUI [1,2])
Item Group
Examination of human resting and activity profiles (Somno-Module)
somno module performed
Item
1. Examinations of somno module performed?
boolean
C1706477 (UMLS CUI [1])
Item
1.1.
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C1706477 (UMLS CUI [1,3])
CL Item
Participant could not perform test because of physical impairment (Participant could not perform test because of physical impairment)
CL Item
Other reason (Other reason)
other reason somno module not performed
Item
Other reason:
text
C1706477 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
datetime start examination
Item
2. Test performance and duration of somno module Start of examination:
datetime
C1706477 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
datetime end of examination
Item
End of examination:
datetime
C1706477 (UMLS CUI [1,1])
C1522314 (UMLS CUI [1,2])
Item
Dominant hand
integer
C0449722 (UMLS CUI [1])
Code List
Dominant hand
CL Item
Right (1)
CL Item
Left (2)
assembly activity
Item
Assembly: Activity
boolean
C0026606 (UMLS CUI [1])
Item
Actigraph applied?
text
C3176845 (UMLS CUI [1])
Code List
Actigraph applied?
CL Item
right hand (right hand)
CL Item
left hand (left hand)
assembly tremor
Item
Tremor
boolean
C0040822 (UMLS CUI [1])
Item
Actigraph applied?
text
C3176845 (UMLS CUI [1])
Code List
Actigraph applied?
CL Item
right hand (right hand)
CL Item
left hand (left hand)
assembly PLM
Item
PLM
boolean
Item
Actigraph applied?
text
C3176845 (UMLS CUI [1])
Code List
Actigraph applied?
CL Item
right leg (right leg)
data on fileserver
Item
Storage of data on file server?
boolean
C0242578 (UMLS CUI [1])
comment somno module
Item
Comment
text
C0947611 (UMLS CUI [1,1])
C1706477 (UMLS CUI [1,2])
Item Group
Examination of eye movements (oculography)
oculography performed
Item
1. Examination of eye movements performed?
boolean
C0013854 (UMLS CUI [1])
Item
1.1.
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C0013854 (UMLS CUI [1,3])
CL Item
Participant could not perform test because of physical impairment (Participant could not perform test because of physical impairment)
CL Item
Other reason (Other reason)
other reasons oculography not performed
Item
Other Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C0013854 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
Item
text
C0576477 (UMLS CUI [1])
C0576478 (UMLS CUI [2])
Code List
dominant eye
CL Item
right eye (right eye)
CL Item
left eye (left eye)
visus test
Item
Visus, close, uncorrected
float
C0042793 (UMLS CUI [1])
visus test monitor
Item
float
C0042793 (UMLS CUI [1])
visual impairment
Item
Visual impairment known?
boolean
C3665347 (UMLS CUI [1])
diopter right
Item
Diopter right (+/-)
float
C0439484 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
diopter left
Item
Diopter left (+/-)
float
C0439484 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
use of visual aid
Item
Test using visual aid?
boolean
C0449877 (UMLS CUI [1])
Item
Optical aid
text
C0449877 (UMLS CUI [1])
Code List
Optical aid
CL Item
contact lenses (contact lenses)
CL Item
glasses (glasses)
Item
Test protocol used
text
C0449876 (UMLS CUI [1])
Code List
Test protocol used
CL Item
NPT  (NPT )
CL Item
other (other)
test protocol used other
Item
Other:
text
C0449876 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
test successfully performed
Item
Testing successfully performed?
boolean
C3258067 (UMLS CUI [1,1])
C0013854 (UMLS CUI [1,2])
Item
Not successful performed?
text
C0392360 (UMLS CUI [1,1])
C0231175 (UMLS CUI [1,2])
Code List
Not successful performed?
CL Item
technical reasons (technical reasons)
CL Item
dependent on participant (dependent on participant)
data on fileserver
Item
Storage of data on file server?
boolean
C0242578 (UMLS CUI [1])
comment oculography
Item
Comment:
text
C0947611 (UMLS CUI [1,1])
C0013854 (UMLS CUI [1,2])