study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
pre-existing codition and comorbidities
Item
Does the participant have any pre-existing conditions or comorbidities?
boolean
C0521987 (UMLS CUI [1])
C0009488 (UMLS CUI [2])
no of diagnosis
Item
No.
integer
C0237753 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
diagnosis
Item
Diagnosis
text
C0011900 (UMLS CUI [1])
onset of disease
Item
Onset of disease
date
C0277793 (UMLS CUI [1])
end of disease
Item
End of disease
date
C4019088 (UMLS CUI [1])
enduring
Item
Disease enduring
boolean
C1314677 (UMLS CUI [1])
Item
No. 1 Hypertension
text
C0020538 (UMLS CUI [1])
Code List
No. 1 Hypertension
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date initial diagnosis hypertension
Item
Initial diagnosis
date
C0020538 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No.2 Hypercholesterolemia
text
C0020443 (UMLS CUI [1])
Code List
No.2 Hypercholesterolemia
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date initial diagnosis hypercholesterolemia
Item
Initial diagnosis
date
C0020443 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No.3 Hypertriglyceridemia
text
C0020557 (UMLS CUI [1])
Code List
No.3 Hypertriglyceridemia
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date initial diagnosis hypertriglyceridemia
Item
Initial diagnosis
date
C0020557 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No.4 Other hyperlipedimia or dyslipidemia
text
C0020473 (UMLS CUI [1])
C0242339 (UMLS CUI [2])
Code List
No.4 Other hyperlipedimia or dyslipidemia
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
initial diagnosis of hyperlipedimia or dyslipedimia
Item
Initial diagnosis
date
C0020473 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
Item
No. 5 Diabetes mellitus type 1
text
C0011854 (UMLS CUI [1])
Code List
No. 5 Diabetes mellitus type 1
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
initial diagnosis of diabetes type 1
Item
Initial diagnosis
date
C0011854 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 6 Diabetes mellitus type 2
text
C0011860 (UMLS CUI [1])
Code List
No. 6 Diabetes mellitus type 2
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
initial diagnosis of diabetes type 2
Item
Initial diagnosis
date
C0011860 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 7 Diabetic polyneuropathy
text
C0271680 (UMLS CUI [1])
Code List
No. 7 Diabetic polyneuropathy
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
initial diagnosis of diabetic polyneuropathy
Item
Initial diagnosis
date
C0271680 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 8 Cardiac infarction
text
C0027051 (UMLS CUI [1])
Code List
No. 8 Cardiac infarction
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis cardiac infarction
Item
Initial diagnosis
date
C0027051 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No.9 Transient ischemic attack (TIA)
text
C0007787 (UMLS CUI [1])
Code List
No.9 Transient ischemic attack (TIA)
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis TIA
Item
Initial diagnosis
date
C0007787 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 10 Coronary heart disease
text
C0010068 (UMLS CUI [1])
Code List
No. 10 Coronary heart disease
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis coronary heart disease
Item
Initial diagnosis
date
C0010068 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 11 Stroke (ischemic)
text
C0038454 (UMLS CUI [1])
Code List
No. 11 Stroke (ischemic)
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis stroke
Item
Initial diagnosis
date
C0038454 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 12 Cerebral venous sinus thrombosis or cerebral thrombosis
text
C0338573 (UMLS CUI [1])
C0079102 (UMLS CUI [2])
Code List
No. 12 Cerebral venous sinus thrombosis or cerebral thrombosis
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis cerebral venous sinus thrombosis
Item
Initial date
date
C0338573 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
Item
No. 13 Subarachnoid hemorrhage
text
C0038525 (UMLS CUI [1])
Code List
No. 13 Subarachnoid hemorrhage
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis SAB
Item
Initial diagnosis
date
C0038525 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 14 Intracerebral hemorrhage (ICH)
text
C2937358 (UMLS CUI [1])
Code List
No. 14 Intracerebral hemorrhage (ICH)
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis ICH
Item
Initial diagnosis
date
C2937358 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 15 Subdural hematoma
text
C0018946 (UMLS CUI [1])
Code List
No. 15 Subdural hematoma
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis subdural hematoma
Item
Initial diagnosis
date
C0018946 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 16 Concussion
text
C0006107 (UMLS CUI [1])
Code List
No. 16 Concussion
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis concussion
Item
Initial diagnosis
date
C0006107 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 17 Other pre-existing brain condition
text
C0006111 (UMLS CUI [1,1])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Code List
No. 17 Other pre-existing brain condition
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis other pre-existing brain condition
Item
Initial diagnosis
date
C0006111 (UMLS CUI [1,1])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2316983 (UMLS CUI [1,4])
Item
No. 18 Peripheral arterial disease
text
C1704436 (UMLS CUI [1])
Code List
No. 18 Peripheral arterial disease
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis PAD
Item
Initial diagnosis
date
C1704436 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 19 Atrial fibrillation
text
C0004238 (UMLS CUI [1])
Code List
No. 19 Atrial fibrillation
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis atrial fillibration
Item
Initial diagnosis
date
C0004238 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 20 Hemophilia
text
C0684275 (UMLS CUI [1])
Code List
No. 20 Hemophilia
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis hemophilia
Item
Initial diagnosis
date
C0684275 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 21 Parkinson's disease
text
C0030567 (UMLS CUI [1])
Code List
No. 21 Parkinson's disease
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis PD
Item
Initial diagnosis
date
C0030567 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 22 Rheumatism or arthritis
text
C0035435 (UMLS CUI [1])
C0003864 (UMLS CUI [2])
Code List
No. 22 Rheumatism or arthritis
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis rheumatism or arthritis
Item
Initial diagnosis
date
C0035435 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
Item
No. 23 Hypersensitivity
text
C0020517 (UMLS CUI [1])
Code List
No. 23 Hypersensitivity
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis hypersensitivity
Item
Initial diagnosis
date
C0020517 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
Did the participant receive one or several treatments in the past?
text
Code List
Did the participant receive one or several treatments in the past?
CL Item
Unknown (Unknown)
number of procedure
Item
No.
integer
C0237753 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
procedure
Item
Procedure
text
C0087111 (UMLS CUI [1])
indication of procedure
Item
Indication
text
C0087111 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
Date of procedure
Item
Date of procedure
date
C2584899 (UMLS CUI [1])
Item
Does the participant take any medication at the moment?
text
C1553892 (UMLS CUI [1])
Code List
Does the participant take any medication at the moment?
CL Item
Unknown (Unknown)
number of medication
Item
No.
integer
C0237753 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
medical drug
Item
Medical drug/active agents
text
C0013227 (UMLS CUI [1])
daily dose
Item
Daily dose
float
C2348070 (UMLS CUI [1])
daily dose unit
Item
Unit
text
C0869039 (UMLS CUI [1])
Item
Type of application
integer
C0185125 (UMLS CUI [1])
Code List
Type of application
Item
Route of application
integer
C0013153 (UMLS CUI [1])
Code List
Route of application
CL Item
intramuscular (3)
CL Item
per inhalation (7)
indication of procedure
Item
Indication
text
C0087111 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
start of precedure
Item
Duration - Start of procedure
date
C3897826 (UMLS CUI [1])
end of procedure
Item
Duration - End of procedure
date
C3897842 (UMLS CUI [1])
procedure enduring
Item
Procedure enduring
boolean
C1314677 (UMLS CUI [1])
sketch of family tree
Item
Here you have the opportunity to draw a sketch of the family tree.
text
C1148543 (UMLS CUI [1])
year of birth mother
Item
Mother: Year of birth
integer
C2319404 (UMLS CUI [1])
screened diseases
Item
Screened diseases
boolean
C0012634 (UMLS CUI [1,1])
C0018017 (UMLS CUI [1,2])
Item
Alive?
text
C2321272 (UMLS CUI [1])
CL Item
Unknown (Unknown)
year of death mother
Item
Mother - Year of death
integer
C0425049 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
year of death mother unknown
Item
Unknown
boolean
C0425049 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
year of birth father
Item
Father - Year of birth
integer
C2136977 (UMLS CUI [1])
screened disease father
Item
Screened diseases?
boolean
C0012634 (UMLS CUI [1,1])
C0018017 (UMLS CUI [1,2])
Item
Alive?
text
C2321271 (UMLS CUI [1])
CL Item
Unknown (Unknown)
year of death father
Item
Father - Year of death
integer
C0425048 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
year of death father unknown
Item
Unknown
integer
C0425048 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Item
Sibling
text
C0037047 (UMLS CUI [1,1])
C0079399 (UMLS CUI [1,2])
CL Item
brother (brother)
year of birth sibling
Item
Sibling - Year of birth
integer
C2317653 (UMLS CUI [1])
C2317746 (UMLS CUI [2])
screened diseases sibling
Item
Screened diseases?
boolean
C0012634 (UMLS CUI [1,1])
C0018017 (UMLS CUI [1,2])
Item
Alive?
text
C2321274 (UMLS CUI [1])
C2321284 (UMLS CUI [2])
CL Item
Unknown (Unknown)
year of death sibling
Item
Sibling - Year of death
integer
C0524344 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
year of death sibling unknown
Item
boolean
C0524344 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Item
Child
text
C0008059 (UMLS CUI [1,1])
C0079399 (UMLS CUI [1,2])
CL Item
daughter (daughter)
year of birth child
Item
Child - Year of birth
integer
C2826771 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
screened diseases child
Item
Screened diseases?
boolean
C0012634 (UMLS CUI [1,1])
C0018017 (UMLS CUI [1,2])
Item
Alive?
text
C0008059 (UMLS CUI [1,1])
C2584946 (UMLS CUI [1,2])
CL Item
Unknown (Unknown)
year of death child
Item
Child - Year of death
integer
C0524343 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
year of death child unknown
Item
Unknown
integer
C0524343 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Item
Degree of affinity
integer
C0680204 (UMLS CUI [1])
Code List
Degree of affinity
CL Item
Great-Grandfather/Great-Grandmother (1)
CL Item
Grandfather/Grandmother (2)
CL Item
Granduncle/Grand-aunt (3)
CL Item
Father/Mother (4)
CL Item
Brother/Sister (6)
CL Item
Cousin (2. degree) (9)
CL Item
Nephew/Niece (10)
Item
Side
text
C0680204 (UMLS CUI [1])
Item
Gender
text
C3172261 (UMLS CUI [1])
year of birth relative
Item
Relative - Year of birth
integer
C2826771 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
screened diseases relative
Item
Screened diseases?
boolean
C0012634 (UMLS CUI [1,1])
C0018017 (UMLS CUI [1,2])
Item
Alive?
text
C3172264 (UMLS CUI [1])
CL Item
Unknown (Unknown)
year of death relative
Item
Relative - Year of death
integer
C0425043 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
year of relative unknown
Item
Unknown
boolean
C0425043 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Item
Degree of affinity
integer
C0680204 (UMLS CUI [1])
Code List
Degree of affinity
CL Item
Great-Grandfather/Great-Grandmother (1)
CL Item
Grandfather/Grandmother (2)
CL Item
Granduncle/Grand-aunt (3)
CL Item
Father/Mother (4)
CL Item
Brother/Sister (6)
CL Item
Cousin (2. degree) (9)
CL Item
Nephew/Niece (10)
Item
Side
text
C0680204 (UMLS CUI [1])
Item
Gender
text
C3172261 (UMLS CUI [1])
relative year of birth
Item
Year of birth
integer
C2826771 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
Item
Diagnosis
integer
C0011900 (UMLS CUI [1])
CL Item
Dementia, not further specified (1)
CL Item
Motor disturbances, not further specified (2)
CL Item
Psychiatric disease, not further specified (3)
CL Item
Subjective cognitive decline (SCD) (4)
CL Item
Amnestic mild cognitive disorder (5)
CL Item
Non-amnestic mild cognitive disorder (6)
CL Item
Probable dementia in Alzheimer's disease (AD) (7)
CL Item
Possible dementia in Alzheimer's disease (AD) (8)
CL Item
Posterior cortical atrophy (PCA) (9)
CL Item
Mixed dementia (10)
CL Item
Vascular dementia (VD) (11)
CL Item
Frototemperal dementia (FTD) - behavioral variant (12)
CL Item
Primary progressive aphasia (PPA) (13)
CL Item
Progressive nonfluent aphasia (PNFA) (14)
CL Item
Logopenic progressive Aphasia (LPA) (15)
CL Item
Semantic dementia (SemD) (16)
CL Item
Idiopathic Parkinson's disease (IPS) (19)
CL Item
Morbus parkinson along with MCI (PD-MCI) (20)
CL Item
Dementia due to morbus parkinson (PPD) (21)
CL Item
Dementia with Lewy bodies (DLB) (22)
CL Item
Progressive supranuclear palsy (PSP) (23)
CL Item
Corticobasal degeneration (CBD) (24)
CL Item
Multiple system atrophy (MSA) (25)
CL Item
MSA-p (Parkinson) (26)
CL Item
MSA-c (cerebral) (27)
CL Item
Essential tremor (ET) (28)
CL Item
Amyotrophic lateral sclerosis (ALS) (30)
CL Item
Huntington disease (HD) (31)
CL Item
Creutzfeldt-Jakob-Disease (32)
CL Item
Depression (primary disease) (33)
Item
Verified?
integer
C1711411 (UMLS CUI [1])
CL Item
specialist (neurologist/psychiatrist) (1)
CL Item
no verfication (3)
age at onset of symptoms
Item
Age at onset on symptoms
integer
C0150907 (UMLS CUI [1])
register
Item
Register?
boolean
C0585825 (UMLS CUI [1])
identification
Item
Participant-ID
text
C1300638 (UMLS CUI [1])
Item
Which hand do you use to write a legible letter?
text
C2734042 (UMLS CUI [1])
Code List
Which hand do you use to write a legible letter?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which hand do you use to throw a ball?
text
C2734034 (UMLS CUI [1])
Code List
Which hand do you use to throw a ball?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which hand do you use to play with a racket in a game?
text
C2734048 (UMLS CUI [1])
Code List
Which hand do you use to play with a racket in a game?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which hand do you use as upper hand using a broom?
text
C0023114 (UMLS CUI [1,1])
C3843854 (UMLS CUI [1,2])
Code List
Which hand do you use as upper hand using a broom?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
hand snow shoveling
Item
Which hand do you use as upper hand to use a spade snow shoveling?
text
C0023114 (UMLS CUI [1,1])
C2712668 (UMLS CUI [1,2])
Item
Which hand do you use to strike a match?
text
C2734054 (UMLS CUI [1])
Code List
Which hand do you use to strike a match?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which hand do you use to hold the scissors cutting?
text
C0023114 (UMLS CUI [1,1])
C0175735 (UMLS CUI [1,2])
Code List
Which hand do you use to hold the scissors cutting?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which do you use to thread a needle?
text
C2734060 (UMLS CUI [1])
Code List
Which do you use to thread a needle?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which hand do you use to deal cards?
text
C2734058 (UMLS CUI [1])
Code List
Which hand do you use to deal cards?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which hand do you use to hold a hammer nailing?
text
C2734052 (UMLS CUI [1])
Code List
Which hand do you use to hold a hammer nailing?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which hand do you use to hold a toothbrush?
text
C2734038 (UMLS CUI [1])
Code List
Which hand do you use to hold a toothbrush?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which hand do you use to open a bottle?
text
C0023114 (UMLS CUI [1,1])
C0179376 (UMLS CUI [1,2])
Code List
Which hand do you use to open a bottle?
CL Item
always left (-2) (always left (-2))
CL Item
usually left (-1) (usually left (-1))
CL Item
no preference (0) (no preference (0))
CL Item
usually right (+1) (usually right (+1))
CL Item
always right (+2) (always right (+2))
Item
Which eye do you use, if you can only use one eye (e.g. keyhole)?
text
C0422883 (UMLS CUI [1])
Code List
Which eye do you use, if you can only use one eye (e.g. keyhole)?
CL Item
left eye (left eye)
CL Item
right eye (right eye)
study
Item
Study abbreviation (Study number)
text
C2826693 (UMLS CUI [1])
date of consent
Item
Date of consent
date
C2985782 (UMLS CUI [1])
date end of study
Item
Date end of study
date
C2983670 (UMLS CUI [1])