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16851
Description
https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams. This questionnaire is designed to record tumor-specific therapies.
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- 8/10/16 8/10/16 -
- 9/17/21 9/17/21 -
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August 10, 2016
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Creative Commons BY-NC 3.0
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Palliative and Hospice Care Tumor-specific Therapies in Palliative Care
Palliative and Hospice Care Tumor-specific Therapies in Palliative Care
Similar models
Palliative and Hospice Care Tumor-specific Therapies in Palliative Care
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
date of interview
Item
Date
date
C0011008 (UMLS CUI [1])
date first metastasis
Item
Date
date
C0027627 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Item
Intravenous, cyclic or ccontinuous cytotoxic chemotherapy
text
C0677881 (UMLS CUI [1,1])
C0348016 (UMLS CUI [1,2])
C0348016 (UMLS CUI [1,2])
CL Item
(fortgesetzt)
CL Item
(neu)
Item
Oral, cyclic or ccontinuous cytotoxic chemotherapy
text
C4040137 (UMLS CUI [1])
CL Item
(fortgesetzt)
CL Item
(neu)
CL Item
(fortgesetzt)
CL Item
(neu)
CL Item
(fortgesetzt)
CL Item
(neu)
Item
Oral tyrosine-kinase inhibitor or other targeted therapy
text
C0879484 (UMLS CUI [1,1])
C0001563 (UMLS CUI [1,2])
C3854476 (UMLS CUI [2])
C0001563 (UMLS CUI [1,2])
C3854476 (UMLS CUI [2])
CL Item
(fortgesetzt)
CL Item
(neu)
CL Item
(fortgesetzt)
CL Item
(neu)
CL Item
(fortgesetzt)
CL Item
(neu)
CL Item
(fortgesetzt)
CL Item
(neu)
CL Item
(fortgesetzt)
CL Item
(neu)
CL Item
(fortgesetzt)
CL Item
(neu)
other procedure specification
Item
Other procedure (please specify:)
text
C0393107 (UMLS CUI [1])
chemotherapy number
Item
Chemotherapy
integer
C0392920 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])
hormone therapy number
Item
Hormone therapy
integer
C0279025 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])
reduction of tumor size
Item
Reduction of tumor size to prevent symptoms and/or for prolongation of survival time
boolean
C0475440 (UMLS CUI [1])
control symptoms
Item
Mainly to control symptoms
boolean
C1457887 (UMLS CUI [1,1])
C0243148 (UMLS CUI [1,2])
C0243148 (UMLS CUI [1,2])
neurological compression
Item
Neurological compression + brain pressure
boolean
C0849479 (UMLS CUI [1,1])
C1395826 (UMLS CUI [1,2])
C1395826 (UMLS CUI [1,2])
pain
Item
Pain
boolean
C0030193 (UMLS CUI [1])
shortness of breath
Item
Shortness of breath
boolean
C0013404 (UMLS CUI [1])
gastrointestinal compression
Item
Gastrointestinal compression
boolean
C0565514 (UMLS CUI [1,1])
C0521362 (UMLS CUI [1,2])
C0521362 (UMLS CUI [1,2])
other indication
Item
Other:
boolean
C3146298 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
other indication specification
Item
Other:
text
C3146298 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
agents regime and modus
Item
Agents/Regime/Modus
text
C0003392 (UMLS CUI [1])
C1273869 (UMLS CUI [2])
C0184661 (UMLS CUI [3])
C1273869 (UMLS CUI [2])
C0184661 (UMLS CUI [3])
CL Item
(Vorbehandelnde Abteilungen (bitte spezifizieren): )
CL Item
(Eigene Indikationsstellung nach Rücksprache mit anderen Fachdisziplinen)
CL Item
(Eigene Indikationsstellung)
pre-treating clinic
Item
Pre-treating clinic:
text
C0442592 (UMLS CUI [1,1])
C2709094 (UMLS CUI [1,2])
C2709094 (UMLS CUI [1,2])
Item Group
TT6. Palliative prognostic index PPI in pre-treatment/ starting the new indicated tumor treatment
Item
Palliative performance score
text
C0449820 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1285530 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C1285530 (UMLS CUI [1,3])
CL Item
4.0P (1PPS 0-20) (4.0P (1PPS 0-20))
CL Item
2.5P (PPS 20-50) (2.5P (PPS 20-50))
CL Item
0P (PPS>60) (0P (PPS>60))
CL Item
0P (normal) (0P (normal))
CL Item
(2.5P (stark reduziert))
CL Item
(1.0P (moderat reduziert))
CL Item
(1.0P (ja))
CL Item
(0P (nein))
CL Item
(3.5P (ja))
CL Item
(0P (nein))
CL Item
(4.0P (ja))
CL Item
(0P (nein))
PPI score
Item
PPI Score
float
C0449821 (UMLS CUI [1,1])
C1285530 (UMLS CUI [1,2])
C1285530 (UMLS CUI [1,2])
Item Group
TT7. Was proceding/start of tumor therapy based on consensus in the palliative team?
Item
Was proceding/start of tumor therapy based on consensus in the palliative team?
integer
C0376298 (UMLS CUI [1,1])
C4042877 (UMLS CUI [1,2])
C4042877 (UMLS CUI [1,2])
Code List
Was proceding/start of tumor therapy based on consensus in the palliative team?
CL Item
Clear divergence of opinion, difficult decision making (1)
CL Item
Rather consensus, but also votes against (2)
CL Item
Clear consensus (3)
reasons for medical decision
Item
Reasons:
text
C0920425 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
Item Group
TT8. What was the subjective success of the tumor therapy?
Item
What was the subjective success of the tumor therapy?
text
C0679864 (UMLS CUI [1,1])
C0439655 (UMLS CUI [1,2])
C0439655 (UMLS CUI [1,2])
CL Item
(sehr schlecht)
CL Item
(schlecht)
CL Item
(zufriedenstellend)
CL Item
(gut)
CL Item
(sehr gut)
Item Group
TT9. Was the tumor therapy determined early?
early determination of tumor therapy
Item
Was the tumor therapy determined early?
boolean
C0920425 (UMLS CUI [1,1])
C0457454 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,2])
Item Group
TT10. If yes, what were the reasons for the discontinuation of tumor therapy?
Item
If yes, what were the reasons for the discontinuation of tumor therapy?
text
C0920425 (UMLS CUI [1,1])
C0457454 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,3])
C0457454 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,3])
Code List
If yes, what were the reasons for the discontinuation of tumor therapy?
CL Item
(Toxizitäten)
CL Item
(Ineffizienz der Therapie)
CL Item
(Verschlechterung des Allgemeinzustandes )
CL Item
(Wunsch des Patienten)
toxicity
Item
Type of toxicity/ side effects
text
C0600688 (UMLS CUI [1])
C0879626 (UMLS CUI [2])
C0879626 (UMLS CUI [2])
Item Group
TT11. Was discontinuation of tumor therapy based on consensus in the palliative team?
Item
Was discontinuation of tumor therapy based on consensus in the palliative team?
text
C0920425 (UMLS CUI [1,1])
C0457454 (UMLS CUI [1,2])
C0376298 (UMLS CUI [1,3])
C4042877 (UMLS CUI [1,4])
C0457454 (UMLS CUI [1,2])
C0376298 (UMLS CUI [1,3])
C4042877 (UMLS CUI [1,4])
Code List
Was discontinuation of tumor therapy based on consensus in the palliative team?
CL Item
Clear divergence of opinion, difficult decision making (1)
CL Item
Rather consensus, but also votes against (2)
CL Item
Clear consensus (3)
discontinuation decision reason
Item
Reasons:
text
C0920425 (UMLS CUI [1,1])
C0457454 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,3])
C0457454 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,3])
CL Item
(Arzt/Ärztin)
CL Item
(Pflegende)
CL Item
(Andere Mitarbeiter)
Item
Medical field
text
C0037778 (UMLS CUI [1,1])
C3258039 (UMLS CUI [1,2])
C3258039 (UMLS CUI [1,2])
CL Item
(Innere Medizin)
CL Item
(Hämatologie/Onkologie)
CL Item
(Anästhesie)
CL Item
(Sonstige)
other medical field
Item
Other:
text
C0037778 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])