ID

16615

Description

https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams. The questionnaire for grief counseling belongs to documentation of the Gernan Grief Institute (Deutsches Trauerinstitut) [Paul 2003]. The questionnaire allows to evaluate the grief counseling retrospectively. With respect to the major documention the questionnaire is offered as a module. Paul, C. (2003). Dokumentationsbögen für ehrenamtliche Trauerbegleitung im Rahmen von Hospizdiensten. Bonn, Pallia Med Verlag.

Link

https://www.hope-clara.de/

Keywords

  1. 7/26/16 7/26/16 -
  2. 7/26/16 7/26/16 -
  3. 7/26/16 7/26/16 -
  4. 7/26/16 7/26/16 -
Uploaded on

July 26, 2016

DOI

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License

Creative Commons BY-NC 3.0

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Palliative and Hospice Care Grief Counseling Retrospective View

Palliative and Hospice Care Grief Counseling Retrospective View

Administrative data
Description

Administrative data

13. Datum
Description

date of interview

Data type

date

Alias
UMLS CUI [1]
C0011008
1. IDNR
Description

id

Data type

text

Alias
UMLS CUI [1]
C1300638
TR1. Counseling
Description

TR1. Counseling

Counseling person
Description

counseling person

Data type

text

Alias
UMLS CUI [1,1]
C0027361
UMLS CUI [1,2]
C0474161
Duration of counseling (From - To)
Description

duration of counseling

Data type

text

Alias
UMLS CUI [1,1]
C0474161
UMLS CUI [1,2]
C0449238
Place of conversations
Description

place of conversations

Data type

text

Alias
UMLS CUI [1]
C0442504
Frequency of encounter
Description

frequency of encounter

Data type

text

Alias
UMLS CUI [1]
C0422341
TR2. Other contacts
Description

TR2. Other contacts

By mourners - Phone calls
Description

phone calls

Data type

text

Alias
UMLS CUI [1]
C0302186
By mourners - letters
Description

letters

Data type

text

Alias
UMLS CUI [1]
C1096774
By mourners - email
Description

emails

Data type

text

Alias
UMLS CUI [1]
C0013849
By counseling person - phone calls
Description

phone calls counseling person

Data type

text

Alias
UMLS CUI [1]
C0302186
By counseling person - letter
Description

letter counseling person

Data type

text

Alias
UMLS CUI [1]
C1096774
By counseling person - emails
Description

emails counseling person

Data type

text

Alias
UMLS CUI [1]
C0013849
TR3. Activities
Description

TR3. Activities

Activities
Description

activities

Data type

text

Alias
UMLS CUI [1,1]
C0441655
UMLS CUI [1,2]
C0474161
TR4. Conversations about emotions
Description

TR4. Conversations about emotions

Conversation about feelings
Description

conversations about emotions

Data type

text

Alias
UMLS CUI [1]
C0515993
Other:
Description

other topic of conversation

Data type

text

Alias
UMLS CUI [1,1]
C0515993
UMLS CUI [1,2]
C0205394
TR5. Conversations about the deceased
Description

TR5. Conversations about the deceased

Conversations about deceased
Description

conversations about deceased

Data type

text

Alias
UMLS CUI [1,1]
C0582166
UMLS CUI [1,2]
C0425043
Other
Description

other topic of conversation about the deceased

Data type

text

Alias
UMLS CUI [1,1]
C0582166
UMLS CUI [1,2]
C0425043
UMLS CUI [1,3]
C0205394
TR6. Conversation about practical issues
Description

TR6. Conversation about practical issues

Talk about practical issues
Description

talk about practical issues

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0001288
Other:
Description

other practical problem

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0001288
UMLS CUI [1,3]
C0205394
TR7. Conversations about problems
Description

TR7. Conversations about problems

Talk about problems with
Description

talk about problems

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0037431
Other:
Description

other person to talk to

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0037431
UMLS CUI [1,3]
C0205394
TR8. Conversation about physical complaints
Description

TR8. Conversation about physical complaints

Talk about physical complaints
Description

talk about physical complaints

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0221448
Other:
Description

other physical complaints

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0221448
UMLS CUI [1,3]
C0205394
TR9. Conversations about religious and spiritual topics
Description

TR9. Conversations about religious and spiritual topics

Talk about religious and spiritual topics
Description

talk about religious and spiritual topics

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0035039
Other:
Description

other religious topic

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0035039
UMLS CUI [1,3]
C0205394
TR10. Conversations about other topics of life
Description

TR10. Conversations about other topics of life

Talk about other topics of life
Description

talk about other topics of life

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0376558
Other:
Description

other life topic

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0376558
UMLS CUI [1,3]
C0205394
TR.11 Conversations about changes
Description

TR.11 Conversations about changes

Talk about changes
Description

talk about changes

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0392747
Other:
Description

other topic of change

Data type

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0392747
UMLS CUI [1,3]
C0205394
TR12. Termination of grief counseling process
Description

TR12. Termination of grief counseling process

Determination of grief counseling
Description

determination of grief counseling

Data type

text

Alias
UMLS CUI [1,1]
C1148554
UMLS CUI [1,2]
C0474161
Other
Description

other determination

Data type

text

Alias
UMLS CUI [1,1]
C1148554
UMLS CUI [1,2]
C0474161
UMLS CUI [1,3]
C0205394
TR13. Remarks
Description

TR13. Remarks

Remarks
Description

remarks

Data type

text

Alias
UMLS CUI [1]
C0947611

Similar models

Palliative and Hospice Care Grief Counseling Retrospective View

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative data
date of interview
Item
13. Datum
date
C0011008 (UMLS CUI [1])
id
Item
1. IDNR
text
C1300638 (UMLS CUI [1])
Item Group
TR1. Counseling
counseling person
Item
Counseling person
text
C0027361 (UMLS CUI [1,1])
C0474161 (UMLS CUI [1,2])
duration of counseling
Item
Duration of counseling (From - To)
text
C0474161 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])
place of conversations
Item
Place of conversations
text
C0442504 (UMLS CUI [1])
Item
Frequency of encounter
text
C0422341 (UMLS CUI [1])
Code List
Frequency of encounter
CL Item
 (Wöchentlich)
CL Item
 (Monatlich)
CL Item
 (Andere)
Item Group
TR2. Other contacts
Item
By mourners - Phone calls
text
C0302186 (UMLS CUI [1])
Code List
By mourners - Phone calls
CL Item
 (häufig)
CL Item
 (selten)
CL Item
 (gar nicht)
Item
By mourners - letters
text
C1096774 (UMLS CUI [1])
Code List
By mourners - letters
CL Item
 (häufig)
CL Item
 (selten)
CL Item
 (gar nicht)
Item
By mourners - email
text
C0013849 (UMLS CUI [1])
Code List
By mourners - email
CL Item
 (häufig)
CL Item
 (selten)
CL Item
 (gar nicht)
Item
By counseling person - phone calls
text
C0302186 (UMLS CUI [1])
Code List
By counseling person - phone calls
CL Item
 (häufig)
CL Item
 (selten)
CL Item
 (gar nicht)
Item
By counseling person - letter
text
C1096774 (UMLS CUI [1])
Code List
By counseling person - letter
CL Item
 (häufig)
CL Item
 (selten)
CL Item
 (gar nicht)
Item
By counseling person - emails
text
C0013849 (UMLS CUI [1])
Code List
By counseling person - emails
CL Item
 (häufig)
CL Item
 (selten)
CL Item
 (gar nicht)
Item Group
TR3. Activities
Item
Activities
text
C0441655 (UMLS CUI [1,1])
C0474161 (UMLS CUI [1,2])
Code List
Activities
CL Item
 (Hilfe bei Grabpflege)
CL Item
 (Vorbereitung bei Ämtergängen)
CL Item
 (Freizeitgestaltung)
CL Item
 (Sortieren von Hinterlassenschaft )
CL Item
 (Spaziergang )
CL Item
 (andere)
Item Group
TR4. Conversations about emotions
Item
Conversation about feelings
text
C0515993 (UMLS CUI [1])
Code List
Conversation about feelings
CL Item
 (Einsamkeit)
CL Item
 (Wut)
CL Item
 (Angst)
CL Item
 (Schuldzuweisungen an andere)
CL Item
 (Dankbarkeit)
CL Item
 (Sehnsucht)
CL Item
 (Hoffnungslosigkeit)
CL Item
 (Schuldgefühle)
CL Item
 (Erleichterung)
CL Item
 (Zerissenheit)
CL Item
 (andere)
other topic of conversation
Item
Other:
text
C0515993 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
TR5. Conversations about the deceased
Item
Conversations about deceased
text
C0582166 (UMLS CUI [1,1])
C0425043 (UMLS CUI [1,2])
Code List
Conversations about deceased
CL Item
 (die Beziehung)
CL Item
 (schlechte Erinnerungen)
CL Item
 (die Vorgeschichte des Sterbens)
CL Item
 (die aktuelle Bedeutung des Toten im eigenen Leben)
CL Item
 (Überlegungen, wie es dem Toten jetzt geht)
CL Item
 (gute Erinnerungen)
CL Item
 (Dinge, die nicht gelöst werden können )
CL Item
 (das Leid des Sterbenden)
CL Item
 (das Sterben)
CL Item
 (anderes)
other topic of conversation about the deceased
Item
Other
text
C0582166 (UMLS CUI [1,1])
C0425043 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR6. Conversation about practical issues
Item
Talk about practical issues
text
C0871703 (UMLS CUI [1,1])
C0001288 (UMLS CUI [1,2])
Code List
Talk about practical issues
CL Item
 (Organisation des Alltags)
CL Item
 (Gestaltung und Pflege des Grabs)
CL Item
 (Ordnen der Hinterlassenschaft)
CL Item
 (materielle Einbussen)
CL Item
 (andere)
other practical problem
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0001288 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR7. Conversations about problems
Item
Talk about problems with
text
C0871703 (UMLS CUI [1,1])
C0037431 (UMLS CUI [1,2])
Code List
Talk about problems with
CL Item
 (Familienmitglieder)
CL Item
 (NachbarInnen)
CL Item
 (Freundinnen/Freunden)
CL Item
 (Arbeitgeber, KollegInnen)
CL Item
 (anderen)
other person to talk to
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0037431 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR8. Conversation about physical complaints
Item
Talk about physical complaints
text
C0871703 (UMLS CUI [1,1])
C0221448 (UMLS CUI [1,2])
Code List
Talk about physical complaints
CL Item
 (Schlafschwierigkeiten)
CL Item
 (Essprobleme)
CL Item
 (körperliche Schwäche)
CL Item
 (Schmerzen)
CL Item
 (Konzentrationsschwierigkeiten)
CL Item
 (Angstzustände, Panikattacken)
CL Item
 (andere)
other physical complaints
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0221448 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR9. Conversations about religious and spiritual topics
Item
Talk about religious and spiritual topics
text
C0871703 (UMLS CUI [1,1])
C0035039 (UMLS CUI [1,2])
Code List
Talk about religious and spiritual topics
CL Item
 (Sinnfragen)
CL Item
 (Träume von der/dem Toten)
CL Item
 (Empfindungen von Anwesenheit der/des Toten oder von Zeichen und Botschaften )
CL Item
 (Glaubensfragen)
CL Item
 (Vorstellungen vom Leben nach dem Tod)
CL Item
 (andere)
other religious topic
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0035039 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR10. Conversations about other topics of life
Item
Talk about other topics of life
text
C0871703 (UMLS CUI [1,1])
C0376558 (UMLS CUI [1,2])
Code List
Talk about other topics of life
CL Item
 (frühe Verluste)
CL Item
 (Erfolgserlebnisse)
CL Item
 (andere Probleme oder Verletzungen)
CL Item
 (Glück und Genuss)
CL Item
 (andere)
other life topic
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0376558 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR.11 Conversations about changes
Item
Talk about changes
text
C0871703 (UMLS CUI [1,1])
C0392747 (UMLS CUI [1,2])
Code List
Talk about changes
CL Item
 (veränderte Lebenseinstellung)
CL Item
 (veränderte Beziehungen innerhalb der Familie oder des Freundeskreises )
CL Item
 (Umzug oder Umgestaltung der Wohnung/des Hauses)
CL Item
 (neue Tätigkeiten)
CL Item
 (neue FreundInnen )
CL Item
 (neue Partnerschaft)
CL Item
 (andere)
other topic of change
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0392747 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR12. Termination of grief counseling process
Item
Determination of grief counseling
text
C1148554 (UMLS CUI [1,1])
C0474161 (UMLS CUI [1,2])
Code List
Determination of grief counseling
CL Item
 (ausgehend von dem Trauernden )
CL Item
 (ausgehend von dem Begleitenden )
CL Item
 (gegen den Widerstand des Trauernden)
CL Item
 (unerwartet für den Begleitenden)
CL Item
 (einvernehmlich)
CL Item
 (mit der Vereinbarung, weiter im Kontakt zu bleiben)
CL Item
 (anders:)
other determination
Item
Other
text
C1148554 (UMLS CUI [1,1])
C0474161 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR13. Remarks
remarks
Item
Remarks
text
C0947611 (UMLS CUI [1])

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